Search Captions & Ask AI

Going Blind At 19!

November 19, 2025 / 01:06

This episode covers health issues, patient advocacy, and the importance of seeking answers from medical professionals. The guest shares their personal experience with severe dizziness and the challenges faced in getting a proper diagnosis.

The guest recounts the onset of their symptoms in early 2011, including severe dizziness that led them to fear a brain tumor. Despite their concerns, a private neurologist dismissed their symptoms without conducting necessary scans.

They describe the emotional toll of their condition, including sleepless nights spent worrying about their eyesight. The guest reflects on the fear of losing their vision and the impact it had on their daily life.

Throughout the conversation, the guest emphasizes the need for patients to advocate for themselves in the healthcare system. They encourage others to seek second opinions if they feel their concerns are not being taken seriously.

The episode highlights the importance of persistence in healthcare and the need for systemic change to ensure patients receive the care they deserve.

TL;DR

A guest shares their struggle with dizziness and the need for patient advocacy in healthcare.

Episode

1:06
00:00:00
the start of 2011, I started getting
00:00:02
severely dizzy. I just thought I had a
00:00:03
brain tumor just because of the severity
00:00:05
of the dizziness. My doctor sent me to
00:00:07
the private neurologist, which I
00:00:09
requested, and the private neurologist
00:00:11
completely poo pooed me basically and
00:00:13
just said, "Go away." With my list of
00:00:15
symptoms, the fact that I wasn't given a
00:00:17
scan is crazy. So, I actually requested
00:00:20
a scan as well and you know, it was a
00:00:22
private system. So, I said, "I'm willing
00:00:23
to pay. Happy to pay. I just want to
00:00:25
make sure it's not that." But yeah, I
00:00:26
was turned away. I sort of didn't want
00:00:28
to go to sleep. couldn't go to bed cuz I
00:00:29
thought I'd wake up and like wouldn't be
00:00:30
able to see anything. [music] Every
00:00:32
night was walking around the house
00:00:33
looking at family photos, photos of
00:00:35
myself, all that sort of stuff going,
00:00:36
"Shit, is this the last time I'm going
00:00:38
to see it?" Luckily, I still have some
00:00:40
eyesight left. [music] I wasn't supposed
00:00:42
to really, but they didn't know where it
00:00:44
was going to stop. It was kind of a
00:00:45
gradual process, which was [music]
00:00:47
pretty terrifying.
00:00:48
>> What do you want people to feel when
00:00:50
they heal your story?
00:00:50
>> I don't know how the hell it would come
00:00:52
to fruition, but I'd like to enact
00:00:53
change. want people to know that if they
00:00:55
don't get the answer they want from
00:00:56
their doctor, they should be arguing it.
00:00:58
The doctors obviously do a bloody
00:01:00
[music] good job. They've got a a hard
00:01:02
job, highly qualified, but at the same
00:01:04
time, they can be lazy as hell.

Episode Highlights

  • Facing Health Fears
    In 2011, severe dizziness led to a terrifying health journey and the fear of losing eyesight.
    “Shit, is this the last time I’m going to see it?”
    @ 00m 36s
    November 19, 2025
  • Advocating for Yourself
    A powerful message about the importance of questioning doctors and seeking answers.
    “If they don’t get the answer they want from their doctor, they should be arguing it.”
    @ 00m 55s
    November 19, 2025

Episode Quotes

  • Shit, is this the last time I’m going to see it?
    Going Blind At 19!
  • I’d like to enact change.
    Going Blind At 19!

Key Moments

  • Health Crisis00:02
  • Fear of Blindness00:29
  • Self-Advocacy00:55

Related Episodes

How an Undiagnosed Brain Tumour left Mitch Wilson Blind at 19 Years Old
November 19, 2025
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:36:22
How an Undiagnosed Brain Tumour left Mitch Wilson Blind at 19 Years Old
Dr Ineke Meredith - The WILDEST Surgery Stories You’ll Ever Hear!
April 20, 2025
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:24:08
Dr Ineke Meredith - The WILDEST Surgery Stories You’ll Ever Hear!
Nigel Latta: What Really Matters When You’re Told You’re Dying
October 05, 2025
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:37:23
Nigel Latta: What Really Matters When You’re Told You’re Dying
Jake Bailey on Facing Death at 17, And The Viral Speech That Changed Everything
November 05, 2025
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:47:22
Jake Bailey on Facing Death at 17, And The Viral Speech That Changed Everything
Nigel Latta on Shocking Cancer Diagnosis, Outliving 6-12 Months' Life Expectancy, Managing Adversity
September 29, 2024
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:36:53
Nigel Latta on Shocking Cancer Diagnosis, Outliving 6-12 Months' Life Expectancy, Managing Adversity
Dai Henwood on Surviving 28 Rounds of Chemotherapy & Not Losing Hope – Living with Incurable Cancer
November 17, 2024
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:23:58
Dai Henwood on Surviving 28 Rounds of Chemotherapy & Not Losing Hope – Living with Incurable Cancer
She Was Given 18 Months to Live… 15 Years Ago: Terminal Cancer Survivor & Business Coach, Di Foster
October 13, 2024
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:19:59
She Was Given 18 Months to Live… 15 Years Ago: Terminal Cancer Survivor & Business Coach, Di Foster
Out of the Blue: Ryan’s life-changing physio lecture
August 14, 2025
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
33:27
Out of the Blue: Ryan’s life-changing physio lecture
Michael Galvin aka Dr. Chris Warner - 30+ Years of Shortland Street
February 12, 2025
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:39:18
Michael Galvin aka Dr. Chris Warner - 30+ Years of Shortland Street
This Emergency Department Doctor is Attempting to Run an Ultramarathon on Every Continent in 2024
August 04, 2024
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:32:22
This Emergency Department Doctor is Attempting to Run an Ultramarathon on Every Continent in 2024
Paralysed at 16 & Surviving Suicide — Lee Warn on Marathons, Advocacy & Purpose
April 27, 2025
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:51:17
Paralysed at 16 & Surviving Suicide — Lee Warn on Marathons, Advocacy & Purpose
He Survived Leukemia Twice & 10 Heart Attacks – Josh Komen’s Story of Resilience
July 16, 2025
Captions not detected. You can watch the video, but not search it. If you think this is an error, contact support.
01:42:26
He Survived Leukemia Twice & 10 Heart Attacks – Josh Komen’s Story of Resilience