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Jake Bailey on Facing Death at 17, And The Viral Speech That Changed Everything

November 05, 2025 / 01:47:22

This episode features Jake Bailey discussing his new book, The Comeback Code: The Power of Resilience When the Going Gets Tough, and the 4S model of resilience. Key topics include the importance of resilience, personal experiences with cancer, and practical strategies for overcoming adversity.

Jake Bailey shares insights from his journey with Burkitt's lymphoma, diagnosed at 18, and how he developed his resilience through challenges. He emphasizes the significance of community support and the necessity of breaking down problems into manageable pieces.

The conversation also touches on the concept of 'salvaging' during tough times, the role of gratitude, and the impact of mental health on resilience. Jake reflects on his experiences during treatment and how they shaped his perspective on life.

Listeners can learn about the 4S model: Slow down, Salvage, Streamline, and Stand alongside, which Jake believes are essential skills for navigating life's challenges. He encourages young people to build resilience before facing adversity.

Overall, Jake's story is one of hope and empowerment, illustrating how resilience can be cultivated and applied in everyday life.

TLDR

Jake Bailey discusses resilience, his cancer journey, and practical strategies for overcoming adversity in his book <b>The Comeback Code</b>.

Episode

1:47:22
00:00:06
Jake Bailey, welcome to my podcast. >> Fantastic to be here, Dom. Thanks for
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having me. E, >> it's great to connect. You like just popped a vocal zone like 8 seconds
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before we started. >> Yeah. Yeah. No, these these are good. I do a lot of um I do a lot of talking and
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you sort of sit these in the side of your mouth and it means you can I don't
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know do a lot of talking. So that's um that that's that's that's what that's
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for. >> Hey, it's great to have you here. You've got a a brand new book out called The
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Comeback Code: The Power of Resilience When the Going Gets Tough. Um long time between drinks.
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>> Yeah, it has been [laughter] >> like 10 years. You think a book? Is this
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your thing now? A book every 10 years? >> Well, I I don't know. I wouldn't get
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through very many if it was, I don't think. I mean, the book has been Yeah, it's definitely been a lot of years in
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the making. Um, and I guess in a sense it sort of had to be. It's kind of the
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product of the last nine years of of learning and study and and and yeah, the opportunity that I've had to I guess
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work with and learn from people all around the globe and from different walks of life about how we get through
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tough times. Um so yeah, it's been a long time in the making and it's really
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really satisfying to sort of have it out there now into the world. >> Yeah, resilience is like a a big um buzz
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word now, isn't it? >> Massive. And in your book you talk about the um
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>> uh the four model S. >> 4S model. Yep. >> The what? the 4S model.
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>> Yeah. Of um constructing resilience. So what's that? >> So the 4S model is basically the way
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that I have come to uh teach and explain around resilience. It's effectively four
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things uh which we know from I guess studies and and research and psychology are just proven to make people better at
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getting through tough times. And so I guess you know resilience the way to view and think about resilience is that
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it is just like any other skill. It's something which you can learn and develop and improve upon through
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practice. Um but particularly if you sort of practice around specific skills that we know know work. So the four S's
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are I guess four of these key pillars of of what go towards creating resilience and making people good at getting
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through tough times sort of framed up and and and packaged in a way which hopefully people can um understand and
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relate to uh which they can retain and then which they can go on to I guess utilize and actually put into practice
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in life because I think often when it comes to learning about these things when it comes to learning about these
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kind of you know really grandiose concepts a lot of the time they're not particularly tangible. the four S's is
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hopefully a way to to to get it across and communicate it to people in a way which they can yeah actually get use out
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of in life. >> So S number one slow down. >> Yes. First S slowing down. Um and I
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guess at its core the idea of of slowing down is basically to take um a problem or a challenge or a piece of adversity
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and to try and break it down into a series of smaller more manageable bite-sized pieces. Um, we find that
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people who have this ability to, I guess, face things on their own terms, whether that's getting through it, you
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know, a month at a time, a week at a time, a day at a time, an hour at a time, they do considerably better at
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getting through those tough times than people who, I guess, take things on as one big lump sum, one big challenge.
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Because I'm sure you would have experienced this many times in life, you know, when something bad happens, when
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when you're going through a really tough time, there is the sense of overwhelm,
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right? It's how am I going to get through this, you know, this day or this this week or or even this next hour. And
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hopefully the answer for you has been, you know, I'm just going to focus on getting through to the next milestone.
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Um, and even, you know, you were talking about running just before off air and that's something which I'm sure you do
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with running as well. It's definitely something which I do with my running is
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that when you go into a race or you go into a long run or a training block or whatever it may be, you just focus on
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getting through to the next aid station or focus on getting through the next kilometer instead of trying to take on
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this big massive thing as as one hole. >> Um, because it's it's a hell of a lot
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harder to get through it. um when you frame it in that way which makes it appear so much bigger and more massive
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and and I guess insurmountable um than than if you take it piece by piece. >> Yeah. Unmanageable. That's the the only
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way to do it. Um it's like that that joke um you know how do you eat an elephant?
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>> Yeah. 100%. Yeah. And actually it's sort of I talk in the book there's you know
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about a million different really really bad metaphors that psychologists have put to this and it's Yeah. eating an
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elephant, you know, one bite at a time or, you know, a masterful painting is made up of a million individual small
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strokes sort of thing. Like if you have a look online, there's there's, you
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know, there's a whole bunch of of of of metaphors and and and simileies which
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have been put to this, most of which are really really cheesy. But at its core, you know, we know that people who have
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this ability to just face things on their own terms, they just do better at getting through tough times. I I think
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for most people they can understand and relate to I guess why that would why that would be
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>> you know I love this because um yeah tough times are to be expected like life
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is life's a [ __ ] [ __ ] show >> 100% absolutely and you know in psychology we call that inevitable
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adversity right it's this idea that >> you know tough times and and adversity
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and hardship can't be avoided it's not something which you can sort of outwit
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or outsmart through you know luck or or being a good person or always doing the right thing or it's not something which
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you can avoid. You know, tough times are just an inevitable, unavoidable part of
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of life. And suffering and and things being pretty [ __ ] sometimes is just how it goes. That's not a bad thing. Um but
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if we can equip ourselves with the skills and tools to to get through it more effectively and overcome it more
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efficiently, we basically set ourselves up to have a more enjoyable, more successful, better life as a result of
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that. >> Yeah. And is number two, salvage. >> Yeah. Salvaging. Um salvaging is
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basically your ability to look for silver linings. um your ability to find the good during tough times, your
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ability to find the positive in negatives, your ability to deliberately look for and seek out what could be
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possibly good about a bad situation. And and in psychology, this has got sort of
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a fancier name. We talk about this idea of realistic optimism, which is exactly what it sounds like. It's your ability
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to be, I guess, realistic about a situation, which often is to say, you know, this is actually [ __ ] And in
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spite of that, to deliberately choose to be optimistic anyway, to actually continue to seek for and and look for
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the good. um within that situation. Um and and and again, I don't really like
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to keep sort of bringing it back to the fact that this is all around research and evidence because it's kind of, you
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know, people people throw, you know, studies and research and evidence around all of the time. But I think that it is
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important to note that, you know, we have proof that this works and and proof that people who have this ability to, I
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guess, continue to look for the good during tough times are the people who fear best in life. Um, if you can go
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into a bad situation and you can continue to look for and seek out what about that could be positive or good,
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you tend to come out the other side of it better off. And and it's worth noting, I think, a couple of things.
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One, that's actually a conscious, deliberate decision a lot of the time. Um and and two to to to make that
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decision you have to sort of go into life with the sense that not everything is black and white. Not everything is
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binary. Not all good situations are good through and through. Not all bad situations are bad through and through.
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That there is sort of shades of gray in between where there can be silver linings. Um and you know for me and and
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throughout my story that's kind of been a a really defining defining part of
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that. I think that you know humor is a great example of that. And a lot of people are really good at laughing their
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way through tough times. And really at its core, that's just an example of salvaging. Your ability to find
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something to laugh at during tough times is a really practical, tangible example
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of how you can, I guess, take some good um from from the bad. >> Yeah. And we we'll get into your whole
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backstory and uh what makes you qualified to speak about this um shortly, but yeah. S number three,
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streamline. >> Yeah. Streamlining. I guess streamlining comes down to how we engage and manage
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our anxieties and worries particularly during times of adversity and and challenge. Um, and there's there's sort
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of two different parts to this. First of all, we know that for particularly young
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people who are going through really rapid periods of of brain development and growth or what we talk about as
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neurokcognitive development, we know that if they spend a lot of time, I guess mismanaging their worries, if they
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spend a lot of time uh anxious or concerned about things, they can actually physiologically change the way
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that their brain grows and develops um to basically set themselves up to be good at worrying for the rest of their
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life at the cost of their ability to solution find or or problem solve. And I think the easiest way to explain this or
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to think about this is when you're young, you become really good at whatever you spend a lot of time doing,
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right? You spend a lot of time kicking a rugby ball, you become pretty good at that. If you spend a lot of time
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practicing a language or an instrument or whatever it may be, you pick these things up really well when you are young
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because your brain's still relatively sort of plastic and malleable and adaptable and developing. But we also
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know likewise, if you spend a lot of time worrying, you become really really good at worrying. Uh and often to the
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detriment of your ability to solution, find or or problem solve. So when it comes to our young people, it's really
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important that we encourage them to find ways to I guess manage or control their
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anxieties and worries during that period of life. But I think it's something
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which is more relevant and and and broadly applicable than just to our young people. I don't know about for
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you, but you know, for me, when I've gone through tough times in my life before, there's a real tendency to, I
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guess, kind of pick up all of the problems at once or pick up all of the worries at once. It's really easy to
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sort of languish under the tap of bad things when something's going wrong and
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to frame and view everything through this lens that that there is no good. >> Um, and you know, a good friend of mine,
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Dr. Lucy Hone, um, who who some of your listeners will be familiar with as well,
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she's, you know, an international expert in in this field around the psychology
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of resilience. And to to sort of steal her framing, the way that she talks about this point is around is what I'm
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doing helping or harming. Uh I guess at its core streamlining is about ensuring that particularly during tough times
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particularly during periods of of adversity and challenge that we are not making things harder on ourselves than
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they need to be. Um yeah. >> Yeah. Actually a therapist said the same thing to me. Ask yourself that is this
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helpful or is it harming? And then another one is is is this even factual? >> Yeah. Sure. Yeah.
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>> Or is it just something that your brain has made up for you? >> Yeah. Absolutely. And I think that
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that's a really natural human tendency like I say. Um, you know, there's a
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story which I tell about this one which I think kind of it paints it in a in a in a bit of a manner and it's something
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which we can possibly sort of delve into. You know, we're going to delve into the story a little bit later on.
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Um, but when it comes to my my cancer journey and experience which sort of set me on this path, um, during that time of
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of of going through treatment, I lost my my hair, my eyebrows, my eyelashes, and
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as an 18-year-old guy, that was quite it was actually and it feels ridiculous to
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look back on it now, but that was actually a really significant thing. you know, being an 18-year-old guy, you're
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insecure or self-conscious or insecure as as I certainly was, as I presume most of us are at that time of life. And for
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me, I actually vividly remember that it impacted the way that I I guess interacted with with the adversity in
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terms of of of my cancer in a really negative way. and and and I guess I stopped doing things like um you know
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going out in public or or taking time hospital leave when I had the opportunity to even going outside to go
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to the park because I was concerned and worried about the way that other people I guess viewed me um and the fact that I
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attracted attention. It was you know very sympathetic of course but it was a factor which was which was was present.
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I came to realize very quickly that worrying about I guess how I looked and this insecurity which I had around that
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was not only not going towards achieving the outcome which I wanted which was you
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know getting through the cancer and getting better but in fact it was actively working against that outcome.
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You know I wasn't getting out and getting fresh air. I wasn't spending time with friends. I wasn't sort of
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having some freedom from the hospital. So I guess you know I tell that story because hopefully it it paints a or
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illustrates a picture of of what this means. Streamlining is about trying to ensure that during tough times when
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we've already got limited I guess attention and effort and resources that we're putting them towards things which
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which actually matter and go towards achieving the outcome which we're trying
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to to reach not sort of squandering them on on on on other things which are I guess tangentially related and and not
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that important. >> Yeah. So um the forest model so slow down salvage streamline and the fourth
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and final one stand alongside. >> Yeah. Yeah. So standing alongside is you
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know I guess relatively self-explanatory. Um the story which I tell to sort of frame this one though
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was a few years ago I had the privilege of working with the United States Forest
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Service um which is basically the US government's version of of doc department of conservation do similar
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stuff to to doc um but they're you know they're tough a big part of their job is
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just to you know survive out in the wilderness either by themselves or with one other person for prolonged periods
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of of time. So I presented to their team afterwards one of the guys came up to me
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and what he said to me was in the United States Forest Service we have two rules
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to ensure we don't die out there in the bush. The first one is we don't go out
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unprepared and the second rule is we don't climb mountains alone. And what he
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said to me was I think you'll find this relates to I guess resilience into getting through life just as much as it
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relates to surviving in the bush. And I really thought about that and I guess on
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that first point, you know, having some some not going out unprepared. That's
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really what you know, my work is around hopefully equipping people with some skills and tools and strategies to to to
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face life's challenges. On that second point though, far more interestingly,
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not climbing mountains alone. I guess if you take that as a pretty kind of cheesy, pretty obvious metaphor for
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going through tough times, we know for a fact that people who face adversity alone, people who go through tough times
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by themselves or without the support of others around them have just really, really bad outcomes. And this is, you
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know, potentially the most integral of the four S's to creating resilience is
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just having the sense of community, a sense of belonging to something bigger than oneself, a sense of of of a place
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that you are safe or can retreat to, a sense that there's someone somewhere out
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there that cares about you who you can lean on during tough times. And so the idea of standing alongside is I suppose
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yeah actively engaging with people during tough times and leaning on them but also and I guess particularly for us
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as well ensuring that before those tough times you've actually invested the effort and attention and energy and and
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resources into creating relationships where you know that you can can be safe during tough times. I think it's really
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easy for us as guys to, you know, sort of muddle along um and and and sort of suspect that we can go at solo and get
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through all fine when when the times are good and then it's only when things go
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wrong and it's during the tough times that we find actually we did need people
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who we could rely on people who we could lean on. Um and and often by that point
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it's a bit too late. >> Yeah. I suppose um vulnerability comes into that as well. Having that ability
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to let your walls down and um ask for help from other people. >> Yeah, absolutely. which is not it's
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actually not as easy as what a lot of people think it is. >> No, there's it's [laughter] funny
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there's a lot of conversation about that as well. You know, it's very speak up
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and talk and and that but I don't know. I I honestly feel like I'm very unqualified to speak on that point in
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particular because I'm not I'm I'm terrible at it. I'm I'm I'm horrendous
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at sort of not verbalizing or communicating my emotions and and I'm um very very good at sort of masking them
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and and and and sort of pretending that things are great and things are fine when they are not necessarily. So
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>> I'm trying to work on that which is probably why I'm sort of boldly
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oversharing this with you with you right now. Um, but I think that, you know, it's really important that when we talk
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about, you know, the importance of leaning on people that, you know, there just has to be some sort of, it's just
00:14:45
about being realistic with life. I I think I've come to realize, you know, there's a lot of conversation about, you
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know, speak out and speak up and and so on and so forth. I think that there's
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sort of these really grandiose concepts around it. But at the end of the day, it's just as simple as giving an honest
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appraisal of how the day has gone. Not just, and this is probably what I've been guilty of previously as well, not
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just focusing on the positives. I'm I'm I'm a really optimistic person. I'm very
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very good at sort of picking out the good and and I guess that's idea of salvaging, even finding good within the
00:15:11
bad, but probably to the detriment of acknowledging or being aware of the fact that things are sometimes bad and that's
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that's still fine. That's okay. You just have to be realistic about how everything is is going, I guess.
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>> Oh, yeah. You um I think I read this somewhere. You were doing like a a
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school um book thing for for the book, The Comeback Code, and someone introduced you to the phrase toxic
00:15:31
positivity. >> Yeah, 100%. Yeah, absolutely. And I I have I I was once accused of that by by
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a student at a school and it was really interesting. I I I'd never really heard
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the phrase. This was probably two years ago that this happened, I'd say. And and
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I um [laughter] we did so we we we do anonymous well I do anonymous um sort of feedback surveys with students after I
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speak at schools a lot of the time. First of all, you know, no fear like giving 15year-old boys the ability to
00:15:57
anonymously write feedback and comments to you. Like if you want to get a really
00:16:01
honest appraisal of who you are as a person and and and how how they perceive you, then yeah, anonymous comments from
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teenage boys is a is a is a pretty direct way to to to cut to the quick, I'll tell you that.
00:16:12
>> Yeah, it's a generation that's grown up with the internet. There's no fear of
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trolling with that. [laughter] >> No, so I probably even had practice some
00:16:19
of them as well. So yeah no they um yeah it's kind of that's something which I do
00:16:24
because I think it's valuable to understand for me what students connect with what they don't what resonates what
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doesn't what I could do better and what I could do so I so so I I do it because
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of that and and by and large you know the the feedback is is is is generous and and kind from students but yeah
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anyway one one day this phase phrase toxic positivity came up and I sort of had to go away and sort of figure out
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what that was with a bit of bit of googling and I guess I I guess May maybe what it meant to me was that I had
00:16:52
incorrectly communicated what I was saying. Um, and I guess I've hopefully done a better job of it now. For me,
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this idea of, you know, resilience more broadly, but even I guess this idea of salvaging and taking the good away from
00:17:02
the bad and and and the gratitude side of things, like I say, is not about just being willfully, deliberately ignorant
00:17:08
of the fact that there is bad and there is tough times. It's instead, I guess,
00:17:12
the ability to actually face those headto-head to kind of grapple with them and to still look to come out the other
00:17:17
side with as much of a positive mindset and attitude as possible. But I'm not
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I'm not I don't think in in denial about the fact that, you know, there's bad in
00:17:25
life and and that's not a bad thing in itself. >> Yeah, I'm torn about it. I'm talking
00:17:29
about the phrase toxic positivity. Um, like a previous podcast guest I've had
00:17:33
on, um, Asia Scott, she's on a TV, reality TV show on Bravo called Below Deck, and she gets accused of it on a
00:17:40
like an international scale all the time. And I'm thinking, is it a bad way to live your life? You know what I mean?
00:17:46
Looking looking for the >> Yeah. >> Look looking for the good in everything
00:17:49
in every situation. I don't know. I I I think and and as with everything in life, I suppose that there's a bit of a
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you know, a range or a spectrum and there's probably levels in ways in which
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it is healthy and and and levels which it's not. Um and you know, for me, I am
00:18:04
mindful of the fact that I've potentially previously used that kind of um you know, positivity and and
00:18:10
gratitude to sort of mask things that I was aware of or feeling. And that's probably when it's not particularly
00:18:17
healthy or the right thing to do. Um but I guess by and large I think going into
00:18:21
life with an optimistic attitude is going to be a good way to approach and face things.
00:18:25
>> Yeah. Yeah. As someone that has has tried um both um optimism and pessimism.
00:18:31
I feel like optimism has got me a lot further in life than what pessimism >> a hell of a lot more fun as well. I'll
00:18:35
tell you that. >> Yeah. All right. Hey. Um so the book's great. The comeback code. Um so yeah,
00:18:42
everyone can grab a copy of that. Now can we um can we go back to where it all began?
00:18:46
>> Yeah, 100%. the YouTube fame. >> Yes. Y [laughter] >> So, if anyone's wa like watching this
00:18:52
podcast think I I know that face from somewhere. Um that's because you went this is probably in the early days of
00:18:57
the phrase going viral. Like you went viral in um towards the end of 2015. >> Yeah, it was. Yeah.
00:19:02
>> Like 10 years ago. So, um Yeah. How many times has that clip been viewed? Over 50
00:19:08
million. >> Yeah. So, so on YouTube it's, you know, the original video's got got a couple of
00:19:12
million views on it, I think. But through um through you know ways that people have you know re-sliced it for
00:19:18
socials and pages like you know Goldcast and things have reposted it. It's yeah
00:19:22
it's it's well into the well into the tens of millions over sort of 50 million
00:19:25
now across yeah really wide range of different kind of audiences. Um which is yeah very um very surreal I think is the
00:19:33
only way to to put that. That's for sure. It doesn't it doesn't kind of mean
00:19:36
anything to me. you know, particularly during that time of the the cancer and during my treatment, I was just so
00:19:41
incredibly grateful for the support and I felt incredibly supported, I guess, by
00:19:46
the by the public at a broad level and and that meant a massive amount to me. But in terms of the um you know, the
00:19:52
verality of it or the reach and and how many people have seen it, I don't you
00:19:56
know, I don't get anything from those numbers. It doesn't give me a boost. It
00:19:59
doesn't sort of give me a kick in terms of ego or self-esteem or anything. It's
00:20:02
just genuinely um yeah, odd and and surreal. um very very grateful for the support like I say that's come from it
00:20:09
but the numbers in itself don't mean anything. >> No no but I'm I'm keen to unpack the the
00:20:13
whole thing and explore this a little bit because um I'm I'm assuming it
00:20:17
changed the trajectory of of your life and 10 years on you know spoiler alert you're fit and healthy.
00:20:22
>> Yeah I am. >> You've now got a couple of books out and I'm not sure how your life would have
00:20:26
looked otherwise. >> Yeah. And I guess neither am I. And that's you know that's sort of the funny
00:20:31
thing about it. I knew what it was potentially going to look like. I was um looking to go and and go to University
00:20:37
of Oakland here and do commerce and law. I was sort of locked into that path where I had a spot in the halls and I
00:20:42
don't know life life would have at least begun down that trajectory. Um presumably I would have been happy.
00:20:47
Generally as humans we we we find a way to be um I wouldn't have known any different which I guess is a big part of
00:20:54
it as well. But yeah, the experience of the cancer and um everything which came about as a result of that has definitely
00:20:59
shifted and changed the trajectory uh your trajectory which I've I've found
00:21:03
myself on >> um on now. Yeah. >> Yeah. So um October 29 uh 2015 you got
00:21:10
this um cancer diagnosis and the speech that we're talking about that went viral
00:21:14
uh that was on November 4. Yes. Um so like a week later to the day and day three of your chemotherapy.
00:21:20
>> Yeah. Correct. Yeah. Um yeah. Yeah. What are your recollections of that?
00:21:27
>> Um the speech itself specifically, I guess I was so incredibly um sick at
00:21:34
that time. You know, it was it was later described by um by one of my doctors as
00:21:39
sort of this phase where when you're beginning treatment, you're kind of
00:21:42
simultaneously still dying from the cancer and having all of the side effects of the chemotherapy at the same
00:21:47
time. there sort of bit of a war going on within you and and not no one's got
00:21:50
the upper hand yet. Um and so you're sort of getting a bit of a double whammy
00:21:54
in terms of that. So it was a really really difficult phase of my treatment. I was I was really sick and when it
00:21:59
comes to the speech itself, it's funny. I don't recall a great deal of it. I was
00:22:03
on a lot of really strong medication at the time. Um I was, as I say, just profoundly unwell. I have I have
00:22:09
recollections of um some specific parts. I remember being wheeled into the auditorium. I remember um sort of going
00:22:17
through and delivering the speech and I remember looking up at the stage lights and I couldn't see anything. It was just
00:22:22
all sort of stage light. Anyone that spent um any time on a stage before knows what it's like when you can't see
00:22:26
an audience beyond the lighting. So, I remember I remember that. Um I remember that my ears were sort of blocked
00:22:33
because I was I was so unwell. You know, if you're if you're very very um sick or
00:22:37
if you got a really bad head cold and you sort of sound like you're underwater, you can't hear yourself. So,
00:22:40
I sort of couldn't see. I couldn't hear myself talking. Um, and I just was was
00:22:45
pretty uh pretty focused on trying to get through the next kind of 15 minutes. Um, and and and in all honesty, there's
00:22:51
there's there's one other distinct recollection which I have was how much I
00:22:55
was just focused on not throwing up down my front [laughter] because it was like it was I'd been very
00:23:01
sick in the even in the minutes leading up to to going on stage. I'd sort of
00:23:05
been throwing up in the car on the way there. I've been throwing up in the wings on side of stage and mom mom had
00:23:11
said you have to take your sick bucket out on stage with you when you deliver the speech in case you throw up and I
00:23:16
was like mom there is no there's no way in which I'm taking a sick bucket out on
00:23:20
stage to deliver the speech and so I hadn't um but you know that you know there was it was definitely in the back
00:23:25
of my head that ms are always right and I did not want to come out on the wrong side of of of this particular um choice
00:23:31
that I'd made. So yeah, there was a focus on just getting through the next sort of 15 minutes of the speech, not
00:23:35
throwing up down my front and and wanting to yeah get it done really. >> When was the last time you saw it?
00:23:41
>> Oh, um it's a good question. I >> do you play a part of it in keynote
00:23:44
speeches? >> I I don't. No, I don't. That's why you mention that.
00:23:48
>> I don't know. I guess for me, um yeah, it's funny because I guess this
00:23:53
the speech is how people met me, right? This is sort of how people and to some degree still remember me and I guess
00:23:59
will continue to remember me. Um, but for me it was it was just really was just that moment in time. Um, you know,
00:24:06
I I I don't think, you know, it was obviously the circumstances were unique,
00:24:10
but I don't think that there was anything particularly, I guess, remarkable about about me in that
00:24:16
speech. There definitely wasn't anything particularly remarkable about my story.
00:24:20
You know, it's it's it's a very common story. Um, and that's not just that's
00:24:24
not humility. Um, I guess for me it's just something which it is what it is and it was what it was. Um, but yeah, I
00:24:32
I haven't seen it for oh man, I don't know, six years probably would have been
00:24:37
the last time I watched it. I sort of, you know, I hear little snippets of it sometimes um when when when people play
00:24:42
it sort of as background to an interview or whatever as a lead in. >> Um, but it's not it's not something
00:24:47
which I go back and watch. Um, and I don't know, maybe I should and have a look and see how I feel about and think
00:24:53
about it with with a bit of a bit of hindsight and a bit of time to to shift perspectives on it. Um, but no, it's
00:24:59
definitely not um it's not not regular viewing, that's for sure. The 50 million
00:25:02
views wasn't me on repeat. [laughter] >> Well, a couple of them were me the other
00:25:07
day. I I had like you, I hadn't seen it in years, but I re-watched it um knowing
00:25:11
that you were coming in today >> and um yeah, there's parts of it where,
00:25:17
you know, I don't know, you look scared, you look Yeah, you look afraid. >> Um were you?
00:25:24
>> Um no, no, I wasn't. And I guess the reason for that I I was I was you know
00:25:30
profoundly uncomfortable and that that was sort of a lot of what my experience with the with the cancer and going
00:25:35
through the treatment was was that it was physically challenging. It was physically incredibly challenging. Um
00:25:41
but in terms of the psychology and the emotion behind it and what I was going through there wasn't there wasn't a huge
00:25:47
amount to it. And I I guess the so so the answer and and the reason for that is that I never had any doubt that I was
00:25:55
going to survive and to to to to live. But I really need to quickly put a proviso on that which is that that was
00:26:02
not some sort of you know relentless positivity or optimism or bravery or courage or anything particularly
00:26:08
admirable. It was literally just being a naive foolish 18-year-old guy. like, you
00:26:14
know, we're not particularly renowned for being aware of our our own mortality
00:26:17
at the best of times, let alone when you're when you're in your teenage years. And for me, I I honestly think
00:26:23
and and and I guess I've come to better understand in recent years in terms of,
00:26:26
you know, brain development and growth as well, that I was pretty much physically incapable of comprehending my
00:26:31
own mortality in that setting. So for me, no, there was never any there was never any fear around it because there
00:26:37
was never any sense for me that there was another alternative option other than to to to beat it. I was never going
00:26:43
to die in my head. And I guess it was only in the latter years as I had the privilege of of walking alongside a lot
00:26:51
of other young people who who went through that same journey and walked that same path as I did who then went on
00:26:57
to have um I guess a different ending to their story than I had that I probably became fully cognizant of and grateful
00:27:04
for the fact that I had survived it. And for me that was always a foregone conclusion. And that, like I say, is
00:27:10
just just a reflection of of of obliviousness and naivity and stupidity. And there's there's a whole bunch of
00:27:15
stories which I think really reflect that. There was there was one time um where I'd had some symptoms come up and
00:27:21
basically I had to have a brain scan and the two options were either one um the the symptoms were were were fine and
00:27:28
unrelated or two um it was because I the cancer had spread to my brain and if it
00:27:32
had done so then it was probably sort of lights out, right? So it was a really it
00:27:37
was a very tense time for evidently those around me but not for me because I knew in very big inverted commas that
00:27:43
that can't have been what had happened because I knew I was going to be fine
00:27:46
right and the brain scan results came back and we were told as a family that yeah lo and behold my brain scan was
00:27:52
clear and it was all fine and mom bursts into tears and and mom mom's balling and
00:27:57
I vividly remember turning to her and and and trying to comprehend that moment and and I just said to her you you
00:28:03
really thought that there was a chance that I might have died. Um, which sounds absurd, right? But for me, it was just
00:28:10
so foreign. The fact that someone could not perceive it, I guess, the same way that I did. Um, which I think was
00:28:16
probably even more foreign for the people around me to perceive the fact that I I I didn't think that I I could
00:28:22
or would ever die from it. There was a another one another story which I guess is really humorous in in in retrospect
00:28:28
but kind of about you know a week or two into treatment um we had to have a sort
00:28:33
of like a family conference with the doctors and the medical professionals because they were worried I was not sort
00:28:38
of um I had not got the message I'd been talking to the nurses about oh well you
00:28:43
know this is great that it's happened at this time of year because it means that
00:28:46
I'll have these couple of months of treatment then I'll come out the other
00:28:48
side and I'll be good to go for for university at the start of next year 2016 bring it on.
00:28:53
>> Yeah, exactly. And lo and behold, that triggered some sort of family conference
00:28:56
because I I didn't get it. Wasn't taking it seriously enough sort of thing. The
00:28:59
doctors were like, "You do you understand what's going on, right?"
00:29:02
Which I did. Um, but I guess like I say, I was just I was just a teenage guy and
00:29:07
was oblivious to it. So anyway, the the reason that we go through all of that rigmarole is because I guess that's the
00:29:13
answer to your question. How did I feel? Was I scared, afraid? Um, and the answer
00:29:16
is no. Because I didn't carry any of the emotional burden from that. I was an
00:29:20
18-year-old kite. I didn't have, you know, a wife and kids to worry about. I
00:29:24
didn't have a job to hold down. I didn't have a mortgage to pay. My life was
00:29:27
really, you know, simple at that time. And so I I feel very grateful for the fact that I didn't have to carry the
00:29:32
burden of worrying about all of these other, I guess, pressures and and and and influences, which for, you know,
00:29:38
other people going through that experience at a different stage of life would be a really big part of that. Um,
00:29:42
so no, for me it was it wasn't emotionally or psychologically too challenging going through that.
00:29:49
>> Yeah. the the the speech itself it seemed um particularly poant uh given
00:29:54
the um the health state at the time. Did you have a different speech um written before you got sick?
00:30:00
>> So the speech was was very much the same. No, I didn't I didn't really write
00:30:03
another speech. Um there was a few things which were tweaked or adjusted um sort of anything in in the speech where
00:30:10
I referred to I guess the diagnosis and and the news that I'd had in the in the
00:30:14
prior week that was that was obviously added later on. But apart from that, the speech was was was in its um yeah
00:30:19
complete in its entirety before the diagnosis. >> Oh. So So the line none of none of us
00:30:23
get out of life alive. Be brave. Be gallant. Yeah. Cuz it seemed um that's the part that's the bit where you get
00:30:29
goosebumps because you're like [ __ ] this this kid is staring death in the face
00:30:33
and he's doing it with such courage. Oh, it was already pre-written. [laughter]
00:30:36
>> Well, that was And I guess at the end of the day, I mean, like I say, I don't
00:30:39
know. I I don't I don't know. I mean, >> the speech was it was it was a high
00:30:44
school end of year speech. Um, and you know, I guess a lot of the weight and the symbolism that that came to it came
00:30:52
from the, you know, the situation and the context and the cancer itself. Um, and I, like I say, I don't I don't want
00:30:58
to give the impression that I'm not, you know, incredibly humbled by the way that
00:31:01
it was received, but for me, I guess it it it was just, you know, my high school
00:31:05
end of year speech that I' I'd written. Um, and and that was, >> you know, made made very different by
00:31:10
the context, like I say. Um, but yeah, I I appreciate that people found meaning within those words and I guess meaning
00:31:16
within that context as well and value from that >> and they still do. Why was it so
00:31:20
important for you to be there? And were your parents trying to talk you out [laughter] of it or the hospital staff
00:31:25
trying to talk you out of it? >> So from from a medical perspective, there was no reason that I couldn't or
00:31:29
shouldn't be there. People around me were very supportive of obviously whatever I wanted to do either way. No
00:31:35
one's going to go tell the guy with cancer that he has to go and give a speech at his school, right? But
00:31:39
[laughter] they were very um they were very supportive of me doing that if that's what I wanted to do. Um why did I
00:31:46
go and give it? I think and it's a it's a it's a a silly answer really at the
00:31:49
end of the day. I think probably what a lot of it came down to was the fact that
00:31:53
I didn't think realistically that I should have been chosen for that role as
00:31:57
as head boy. Um I think there was probably other people who were you know better qualified would have been a
00:32:02
better fit for that role. And I guess that probably had led me over the course of the year to feel really invested in
00:32:09
doing that job to the absolute best of my abilities. I thought, you know, since it is me, I'm going to give it a really
00:32:14
decent shot, a really a really good crack, a really good nudge. And I don't that that wasn't a conscious or
00:32:20
deliberate factor which sort of played into me giving that speech at the end of the year. I didn't think I', you know,
00:32:23
kind of got to go and do this now um because of that. But I I guess subconsciously I'd gone through the
00:32:29
course of that year really wanting to do that job to the best of my abilities. And I I was quite I was I was quite
00:32:35
worried about how I how I did that job. You know, as as as an 18-y old guy, it was a massive privilege and it meant a
00:32:40
lot to me. And I think I do recall there is a line in that speech about that where it sort of maybe some of that
00:32:46
vulnerability or or insecurity about that role that I'd had sort of shows through. I think I said something like I
00:32:51
hope I did you proud when I when I talked to, you know, the senior leadership team and who who had chosen
00:32:56
me for that role. Um, so I think, you know, in terms of why and why I went and did that speech, I basically just felt
00:33:01
that I wanted to to finish the year as strong as I'd started. I felt like I owed it to those those young guys that
00:33:05
I'd had the privilege of leading over the course of that year. >> And how how did it end up online?
00:33:10
[laughter] >> It's there there was a whole series of of sort of flukes um which which led to
00:33:15
to to all of this happening. Um, one of them was the fact that it was filmed at all and the only reason that it was
00:33:21
filmed was because I was um sick. the hospital, sorry, that the school had set up a live stream of the school um the
00:33:29
end of year assembly so that if I was stuck in hospital, I could watch the the prize-giving live stream from hospital,
00:33:35
[laughter] which even as I say it now is hilarious because the idea that you'd be
00:33:39
sick in hospital going through cancer stream and wanted to watch your high school prize giving is just
00:33:44
preposterous. Like I mean they're bad enough to sit through at the best of times, let alone when you've when you're
00:33:49
dying from cancer, right? So, um, the the reason it was filmed was in case I wasn't there and it ended up being
00:33:55
filmed, you know, with me there. And, um, I don't even know if I should kind
00:34:01
of really entirely tell the story. I don't think that I've shared this story
00:34:04
publicly before, but the way that it ended up I guess in the media was because there had been some um stuff
00:34:10
which had gone on basically a game of sort of tackle bull rush which had gone on at school on the last day of school,
00:34:14
the school that the day that I gave that speech, the 4th of November, and some students had been sort of um injured as
00:34:20
a result of that. Um and um the reporter had come to the school to to interview um the headmaster and to to write about
00:34:29
uh what had what had gone on there. And long story short, I I suspect I don't
00:34:33
know this for a fact, but my suspicion is that my story and and speech may have been thrown as a dummy pass to try and
00:34:41
and and and lead someone away from a an unfortunate story about students being injured in a game of bull rush um to
00:34:47
write something a little bit a little bit different. Um but yeah, it started from there and that began as a very very
00:34:52
small piece on page five or six of the press in the days following. Um and yeah, it just sort of continued to grow
00:35:00
and and expand from from there. >> Yeah. And and it [ __ ] it sure did. Hey,
00:35:05
like went went truly international and and um Yeah. What are your memories of going viral? Like were you too sick to
00:35:10
know about it or care? >> Yeah. I >> Or were you were you refreshing and
00:35:14
reading comments? >> Um I I I knew about it very much. I think, you know, for me, um, the the
00:35:22
prevailing memory of that experience was being in the hospital with my girlfriend
00:35:26
and, um, just sort of hanging out and she was, you know, on her phone scrolling through Facebook. And I
00:35:32
remember her turning to me and saying, "Holy [ __ ] there's a story here in the
00:35:37
Australian news. It's been posted on Facebook by 9 News and it has 5,000 likes on it." And it was like, "That is
00:35:44
unbelievable." And then by that night, uh, the TVN Z story on Facebook had like
00:35:50
50,000 likes on it and it had just blown up and exploded over the course of really sort of 48 to 72 hours. And I
00:35:57
guess that's kind of what Verality is about in terms of, you know, clips going
00:36:00
viral like that. It's a very very quick rise and a very very steep descent. Um,
00:36:05
I guess in in my case, I was I was really fortunate that that people sort of had this prolonged care or interest
00:36:11
for me which was really humbling. you know, people saw the clip and I guess it meant something to them. Um, but more
00:36:16
than that, they sort of continued to care for my health and want the best for me afterwards, which was yeah, so
00:36:22
incredibly yeah, it's just genuinely humbling to think that, you know, people
00:36:26
care about you in that way. Like I say, my story was not sort of special or unique or uncommon particularly.
00:36:31
Everyone goes through adversity. Everyone goes through hardship and suffering. To for me in that place, you
00:36:36
know, surrounded by other people walking that same journey as me to feel like I had the support of really without being
00:36:42
melodramatic to feel like I had the support of the nation behind me was incredible privilege. But I was very
00:36:47
mindful at the time that it was not inherently fair, right? I was one of many, many people in that ward going
00:36:52
through that experience, walking that journey who did not have that same level of care and support and love um being
00:36:58
poured out for them. Um, and I think for me, you know, I was I was really mindful
00:37:03
of that and have continued to be mindful of how lucky I was um, since then. So, in terms of yeah, what it was like and
00:37:09
how it felt in a funny sense, for me, the cancer and and that going viral thing is um, it's sort of inextricably
00:37:17
tied together, right? Like my perception of a cancer diagnosis is that in the days following it, you just end up
00:37:23
plastered all over the media and there's and there's, you know, a million
00:37:25
interview requests come in and and and that's sort of the, you know, your life.
00:37:29
interview requests. Really? >> 100%. Absolutely. Oh, interview requests. And, you know, I it was it was
00:37:35
not just interview requests. It was things like, you know, journalists calling through to the ward pretending
00:37:40
to be family members to try and get put through to to my room to speak to me on the phone and lying about who they were
00:37:46
or um people trying to get into the the hospital ward. And and you know, I I listened to your podcast. I actually
00:37:52
listened to the podcast recently. I know it's not a recent podcast, but with
00:37:55
Kelsey Wagghorn, who is a friend of mine [clears throat] now and someone who I've
00:37:58
come across recently in in life through some some um involvement with an organization that we're both part of and
00:38:03
she sort of, you know, it's a story which which she told in the podcast in terms of the I guess how there can be
00:38:09
some sort of pretty odd odd odd people out there as well as the, you know, love and support and care which I had. There
00:38:15
was a lot of people who were um Yeah. doing doing weird things trying to get into my room. Um there were people
00:38:21
>> like fans, stalkers. >> Yeah. Yes. Yeah. Yeah. Yeah. I suppose [laughter] sort of somewhere somewhere
00:38:26
between somewhere somewhere between the two or maybe a bit of both. Um >> suppose that's the problem when you go
00:38:30
viral and people know exactly where you are. >> Yeah. Exactly. [laughter] You know where
00:38:32
to find them. >> Yeah. There's one sort of one ward where I could have been being treated in in
00:38:37
Christ Church and and that was where I was. So yeah, there was there was some um you know interesting experiences
00:38:43
which came about as as part of that. But for me that was kind of the normal like
00:38:48
there is so and it sounds it sounds stupid but there's just so much upheaval
00:38:51
and change in your life through that whole process. You know your life gets tipped upside down that all of this
00:38:57
other stuff which came with it wasn't wasn't particularly odd. I suppose it
00:39:01
was just oh just another things changed. Oh, you know I now have cancer. I now have to fight for my life. I now you
00:39:06
know I'm not going to school. I I'm now, you know, ripped away and I'm put in
00:39:09
hospital and and I'm I'm in this environment for the indefinite, you know, for the foreseeable future, for an
00:39:13
indefinite amount of time. Plus, now I'm just on the news when I turn the TV on
00:39:17
at night and and plus there's, you know, people who are in some cases getting
00:39:20
into my room um and and people trying to get into my room and media trying to reach me and my family and and all of
00:39:26
this stuff. So, I guess, yeah, it wasn't just that that was weird in itself. The
00:39:31
whole the whole thing was weird and because of that, it was it was just all quite normal and and how weird
00:39:36
everything was. Yeah. And and you you were 18, so you were like like legally an adult at the time, but you're still
00:39:40
very much a child. Like, you know, you're just finishing your school. Yeah. I can't imagine how troubling that was
00:39:44
for your for your parents. That extra additional layer, you know, like the media trying to call that's wildly
00:39:50
inappropriate. >> Um it was a funny one. >> I better think carefully because I was
00:39:54
on the edge at the time. We probably tried to get you on as well. >> I I tell you what, you you didn't you
00:39:58
guys and actually I remember this as well. guys. Um I think it's a family friend of ours was in touch with you
00:40:04
guys and you guys offered to put together some sort of support campaign and to do something really really kind
00:40:10
and wonderful around that and um we we declined it and you guys were incredibly respectful around that at the time. So
00:40:17
no, you might not remember but I do remember and you guys were actually brilliant specifically.
00:40:21
>> Um what was the question there? Sorry, I completely lost track of your parents about I mean so they're
00:40:27
dealing with um like you were cool with it. you you knew you were sick and you were going to beat it like a flu, a
00:40:32
seasonal flu. But for your parents, they thought their kid was dying. Um then there's this additional layer of um this
00:40:37
sideshow going on like um yeah, have you unpacked that with them? [laughter] >> Probably not. Not particularly. Um it's
00:40:44
funny sometimes when I when I speak at schools, you get students that ask the question, you know, what was this like
00:40:48
for your your parents? And I always say to them, that is such an emotionally intelligent question to ask because for
00:40:53
me, not only did I not comprehend what my parents' emotions might have been at
00:40:58
the time, I didn't even comprehend the fact that my parents had any emotions of
00:41:01
any form at all. To me, they were just, I don't know, parents. You don't even,
00:41:06
at least I didn't, as an 18-year-old guy, sort of perceived them in all of their humanity. And and I wasn't really
00:41:11
aware of what it would have been like for them going through it. So, I think with I guess the benefit of hindsight, I
00:41:16
look back on it now and I just say basically, holy [ __ ] Like for my parents, this was the worst thing they
00:41:22
had ever had to go through in their entire life. It was the hardest thing they'd ever had to be through or to get
00:41:27
through. And yet, at the same time, they were expected to not show any form of weakness. They were expected to be
00:41:33
strong and to be there for me and to prop me up during the hardest time of their life instead of just, you know,
00:41:38
retreating and wanting to curl up into a ball and and cry as I assume that they did. Um, so yeah, my parents were
00:41:43
incredibly brave and resilient and strong and just an amazing source of support throughout that time as well.
00:41:49
And I'm I'm yeah, obviously hugely grateful to them for that. >> Yeah. Well, you you even like banned
00:41:53
your mom from crying in front of you. [laughter] >> Look, that's Yeah.
00:41:57
>> Is this on the documentary or >> Yeah. I I don't know. I read or heard.
00:42:02
>> I've let this story out slip some point. It's it's this a story which I I've been
00:42:06
poor mom I've been increasingly sort of reticent to put it out publicly because
00:42:09
it paints me in a really bad light bas you were 18 you're 18 at the time give
00:42:13
yourself a free >> pass that's sort of and and that was the I guess the context after we after I was
00:42:17
diagnosed um we were told separately my parents were told outside the room I guess I was technically an adult so I
00:42:22
was told by myself they were told with my permission outside the room and so there was this moment where I see my
00:42:28
entire family for the first time after after they have found out and I have found out that I've got this this stage
00:42:33
for cancer. And so they walk back in and and you know, mom's mom's crying as as
00:42:37
you'd probably expect. But as an 18-year-old guy, I think as as any human being, the one of the worst things that
00:42:43
you can experience in the entire world is seeing a parent cry. Like it's just
00:42:47
it's a it is just an abomination of nature. That's not how it's supposed to
00:42:50
be, right? And so whilst it was incredibly understandable, mom comes back in crying. And yeah, it's sort of
00:42:56
it's lived on in family law because unfortunately the first thing I said to mom, the first thing I said to mom after
00:43:01
my cancer diagnosis was, "Mom, if you're going to cry, you're going to have to
00:43:04
get the [ __ ] out." Which is just appalling. It's just terrible. But mom
00:43:10
sort of like startled and and then sniffed a few times and kind of wiped her eyes and said, "Okay." And um to her
00:43:18
immense credit, she she held it together um throughout the rest of that time afterwards. Um, so yeah, I'm probably
00:43:24
going to sort of make that one up to her a little bit, but at the end of the day,
00:43:27
it went a long way to Yeah, I I I I guess, you know, I I just didn't have the capacity to deal with other people's
00:43:34
emotions on top of on top of everything which was going on at that time. >> Oh, when when you're that age, your life
00:43:38
sort of revolves around around yourself. You got to give yourself a free pass. Yeah, we we'll get more into that soon,
00:43:44
but I just a couple more on the um the YouTube clip and u So um yeah, 2015 quote of the year. M do um do you
00:43:51
remember who you were up against? >> Um >> John Key was one e with talking about
00:43:55
ponytails. >> Yeah. Oh, was that 2015? Yeah, that was probably about the right time. Yeah,
00:43:59
that could have been it. I was up against um Steve Hansen. I remember um which I think the quote was um in reply
00:44:07
to do you have anything else up your sleeve at the 2015 Rugby World Cup was um just my arms I think was the quote.
00:44:13
There was um yeah, there was a few others which which Yeah, it's quite funny to look back on the quotes
00:44:18
actually. I have seen that somewhere recently and it's like opening a time capsule like it's it's really funny
00:44:23
because they they they relate very much to a I guess a very specific time in in in culture. It's a really is a it's a
00:44:30
really good snapshot. So um I can't remember the off my head. Um but there was Yeah, there were definitely I don't
00:44:37
know there was there's some great quotes amongst them that's for sure. >> Can you remember yours the winning
00:44:41
quote? >> Yeah, the quote the quote was um none of us get out of life alive. So, be
00:44:45
gallant, be great, be gracious, and be grateful for the opportunities that you have.
00:44:51
>> It's a great quote. >> Um, yeah. Yeah. I I think >> Yeah. Where did that come from? This is
00:44:57
pre-C GPT, so [laughter] there's there's no plagiarism here. >> No, there was there was no no plagiarism
00:45:05
there, I guess. Um, >> it's a deep quote for an 18-year-old. >> I don't know. I just wanted
00:45:11
>> You wrote it when you were 17, actually. Yeah. Yeah. 18. >> I don't know. I just wanted to I wanted
00:45:17
to to get my um you know, high school end of year speech done. I just wanted to I guess write something which um yeah
00:45:24
would hopefully I guess yeah and this is it's funny because I guess like I say the cancer
00:45:30
and the context added and changed a lot around that. But I guess at its core I just wanted to write something which
00:45:35
would connect with those boys that I had had the opportunity to lead and hopefully hopefully inspire them to some
00:45:39
degree. Um, so yeah, the speech itself was just a I guess a collection of of of thoughts which I hoped that they would
00:45:46
be able to carry forward into into life with them. Um, and >> yeah, that that quote was was was that
00:45:53
>> cuz in in this chat you you've almost been trying to paint a picture of
00:45:57
yourself as someone that's like naive and self-centered and self-absorbed. Um,
00:46:02
but that like that quote and those uh those words they they tell a different story, I think.
00:46:08
>> Yeah. I mean, yeah, sure. I I guess, you know, as a young person, you're there's
00:46:13
a lot of complexity to to all of us at that time and stage of life. And I I suppose, yeah, I am um pretty kind of
00:46:20
self-deprecating, which which I don't think is a bad thing. I think I sort of
00:46:24
I like the fact that as Kiwis, we are good at just being down to earth and realistic about these things. But I I
00:46:30
guess the reason that I'm I lean into that is because I'm mindful of the fact
00:46:33
that sometimes people perceive, you know, my story and my experience as being so, you know, inspirational um or
00:46:40
so powerful or impactful. And and for me, you know, I just I don't want it to
00:46:45
be framed that way for no reason other than the fact that I think that for for people it makes it feel um I guess
00:46:50
unachievable or unattainable, particularly when it comes to resilience. You know, people say to me,
00:46:53
"You're so brave to get through the cancer. You're so brave going through
00:46:56
that." And it's kind of like, well, no, it was it was it was not bravery. It was
00:47:00
not courage. It was not some sort of superhuman ability. It was just what we all have, which is the ability to kind
00:47:05
of muddle through, fight through to another day, and just to try and keep on going. Um, so
00:47:10
>> if there's anything special or unique or uncommon about my story, it's the fact
00:47:14
that I've been supported by and surrounded by some incredible uh people along the way, which has been, you know,
00:47:19
a massive part of how I've got through those tough times. And that I've been
00:47:22
really, really lucky. I've been, you know, so lucky to be born in a country where I had access to to treatment and
00:47:27
health care. So lucky to have been diagnosed when I was. So lucky to have, I guess, got through that time of life.
00:47:34
So lucky to have been supported by people through that, as I say. And then you're really so lucky to have had
00:47:38
opportunities come about as a result of that as well. Um, I just, yeah, I'm hesitant to frame myself as being sort
00:47:44
of special in any kind of way because I think it comes down to amazing people that I've I've walked alongside and a
00:47:48
lot of luck that I've had throughout that time as well. M >> yeah and I'm just trying to think how I
00:47:54
felt at the time so that you know the clip came and it went viral um and I think we were all just wrapped up in the
00:47:59
story and it's um it just sort of provided a beacon of hope I think to have a positive outcome.
00:48:05
>> Yeah. >> You know to show that that you know some people have a terrible outcome you know
00:48:09
with cancer but not everybody does. >> Yeah. Absolutely. And I guess in a sense, yeah, that that's something which
00:48:15
I've been, you know, mindful of as well and have wanted to try and I suppose
00:48:19
portray through through my cancer experience and journey at the time was the fact that you can go through the
00:48:23
cancer, you can go through that treatment and you can come back out the other side not just, you know, as good
00:48:27
as you were beforehand, but in my case, I think I'm sort of fitter and and healthier than I've ever been before.
00:48:33
And I think that there is yeah, there is something powerful or important in in that for people to people who have
00:48:37
walked that path or people who will walk that path in the future to understand that
00:48:42
Yes, that 2015 quote, none of us get out of life alive. So, be gallant, be great,
00:48:46
be gracious, and be grateful for the opportunities you have. Um, then, uh, 364 days later, you're back again. Um,
00:48:53
in the same stage, same assembly assembly hall. Um, this time cancer-free. Um, this quote was not
00:48:59
quote of the year. It wasn't even a finalist, I don't think. Uh, don't drink
00:49:02
diesels and don't get cancer. [laughter] >> Don't tell me it's not good advice,
00:49:06
though. Right. That's that's bringing things back to basics. Um, again, that's
00:49:10
a that's a snapshot of the time. What What Yeah, for anyone that doesn't know
00:49:13
what we're talking about, what are diesels? >> Diesels are diesels are RCDs. They're
00:49:18
pre premix bourbon and coke and they're I don't know seven seven or eight
00:49:22
percenters. Um, and you still get them. >> I I think you can. I And I only know
00:49:27
because we had a reunion night a few years ago where it was it was compulsory to to drink diesels, which um yeah, sort
00:49:33
of >> I don't know. definitely [laughter] made me uh made maybe made me made me wonder
00:49:38
how we ever managed to drink them when we were 18. That's for sure. Um but yeah, that's I'll tell you what that is
00:49:43
pretty solid advice by and large. As I've said to people before, I think you
00:49:46
know I've had as many um I felt as bad off the diesels as I felt on the chemo.
00:49:52
So um [laughter] they're not >> it's not a great endorsement. >> No, no, it's not. There's no there's not
00:49:56
going to be any sort of brand partnership coming my way from that, I don't think. But
00:50:00
>> well, there's there's two trains of thought. Some might say that diesel um
00:50:03
has the capability to kill cancer. Others will [laughter] others will tell you the cause is cancer.
00:50:07
>> It's pretty it it could be both. It could be either. But um yeah, it's it's
00:50:11
strong stuff. It's strong enough to do to to potentially do either of them. I
00:50:14
think that's [laughter] for sure. >> And then um so the uh the viral clip
00:50:18
that the was the hucker at the end that you got from your your classmates in your school, was that on the clip or was
00:50:24
that a separate >> uh that was on the clip. Yeah, that was at the end of it there.
00:50:28
>> That's powerful, isn't it? Oh, it was it was honestly still to this day probably
00:50:31
the most powerful thing I've ever experienced. It was incredibly powerful and um meant so much to me. It was so
00:50:37
incredibly Yeah, I guess humbling. Um I sort of sigh when I say that because I think I use humbling as a bit of a
00:50:44
crutch word. Like I I I've I've been told before that I repeat that far too
00:50:48
many times in interviews, but there's not really any other way to describe what that experience was like with the
00:50:54
with the um yeah, with the cancer and and and getting through the other side apart from um and the experience of the
00:50:59
hucker other than than humbling. >> I think it's a it's a fine word to
00:51:03
overuse. Um if if you're a person that practices uh gratitude um and looks for
00:51:08
that sort of stuff, I think you would find it humbling. Eh, >> yeah, it was. And it was it was powerful
00:51:12
and I felt the full force of that support. Um, so >> yeah. Yeah. >> Yeah. Cuz that's the part of the clip
00:51:19
where it it like it looks like it looks like you're on the the the cusp of tears. You're fighting the tears.
00:51:24
>> Um >> Yeah. That was just like a a powerful emotional moment. Wasn't for your own
00:51:29
fear of what you were being wheeled off into. >> No. No. It was just it was just I felt
00:51:34
um >> Yeah. I just I just really felt the full weight of that support in that moment.
00:51:38
It was incredibly overwhelming. It was it was very very powerful. And I, you know, I did go back and watch that clip
00:51:44
of the hucker a number of times when I was back in hospital and going through the treatment and and felt, yeah, felt
00:51:49
the full weight of that support. Um, and and it did help me get through some of those tough times, those tough moments.
00:51:54
Yeah. >> Is it okay for you to talk about this stuff now or do you feel like a
00:51:58
completely different person, you know, given 10 years has has passed? Is it is it is it like triggering to revisit the
00:52:04
cancer stuff or >> Yeah. No. So, you know, for me, it's always quite funny because when I talk
00:52:09
about cancer, and I I sort of inadvertently have ended up spending a lot of time doing that. Um, I recognize
00:52:15
very quickly that, you know, for a lot of people, it's a it's a difficult,
00:52:19
uncomfortable, awkward topic to discuss. You know, you you bring up cancer and it's just inherently uh shocking and
00:52:26
uncomfortable and confronting and awkward. It's really hard for people to talk about. And I guess that's because
00:52:31
we've all had experiences with cancer, right? I mean, >> you know, almost everyone knows someone
00:52:36
that has has been through it who's close to them. Almost everyone's lost someone
00:52:40
close to them to >> one in three is the stat. One in three is the stat that they use for daffod
00:52:44
each year that uh it impacts one in three >> Kiwis >> 100%. And I guess you know that that
00:52:48
that's firsthand. I guess the second hand and and and you know the connections which we have to people who
00:52:52
go through and walk that journey is is you know almost all of us experience that. So I completely get and understand
00:52:59
and accept why there is that discomfort around talking about cancer. why people don't feel feel good or or or feel
00:53:05
comfortable talking about it. I guess for me it's it's a funny one because it
00:53:10
for me it's not, you know, shocking or confronting or awkward or uncomfortable
00:53:13
or weird to talk about. For me, cancer's been part of, you know, my journey or
00:53:16
story or life or whatever kind of cliche you want to put to it. Um, and so because of that, it doesn't feel any of
00:53:23
those those negative things. Um, you know, there's a story which I tell which
00:53:27
I think illustrates how people feel about talking about the cancer and it was a few years back I went into a um a
00:53:32
cafe to to order a coffee, went up to the counter and the brisster at the counter said to me, "Oh, have you been
00:53:36
in a scrap? Like, have you been in a fight?" And the reason that she said that was um I've got a a mark under my
00:53:42
right eye. Um it's only in sort of certain lighting. If you get in the right kind of lighting though, it looks
00:53:46
like I've basically copped a shine or I've got a black eye. Looks like it's
00:53:50
sort of darkened up and swollen up around there. Um I'm not sure if it comes through in the clip or not. you've
00:53:54
got such good studio lighting that I suspect it potentially won't. Um, but anyway, you get in the right sort of
00:53:58
lighting, it looks like I've got a black eye. It's not from that at all. It's
00:54:02
actually from where uh when I went through the cancer, there was a tumor. When it grew and grew fast, it sort of
00:54:07
um damaged the underlying bone structure through there, and when it shrunk away during the treatment, it basically left
00:54:11
this dent or this divid, which if you get in the right light and cast a shadow, the shadow looks like a dark
00:54:16
mark and and so on and so forth. But I wasn't going to tell the barista that
00:54:20
because it was 7:00 in the morning and it would be [ __ ] weird to bring that up with a complete stranger, right? So I
00:54:25
just said just sort of shrugged it off and said, "Oh, no, no, it's not. No, no,
00:54:28
it wasn't that. No, no fighting for me." And [snorts] she goes, "Oh, yep. Cool.
00:54:31
Right. Did you fall down the stairs?" And I was like I was like, "No, no, no.
00:54:36
It wasn't that either." >> It's a really inquisitive barista.
00:54:39
>> I think [clears throat] she has a slow morning or something because she then
00:54:42
goes, "Right, right. Okay. Did you did you walk into a door?" I said, "No, no,
00:54:46
it wasn't that either." But the problem was like, as as I'm feeling more and
00:54:50
more awkward about this, she's getting more and more excited. She's sort of
00:54:53
building up into this guessing game instead of it [laughter] instead of it petering out.
00:54:56
>> She's in too deep. >> Yeah. She's loving it. She's, "Oh, you
00:54:58
play rugby." I was like, "Nah, nah." [laughter] And she sort of throws a few more things
00:55:02
out there. And I'm sort I'm always watching her sort of like steam the milk, thinking like, "Fuck, I can
00:55:06
probably ride this out if she just gets this coffee done quick enough until eventually she sort of sealed both of
00:55:11
our fates." and she went, "Well, I'm not going to give you your coffee until I
00:55:14
can figure out how you've done that to yourself." [laughter] And I thought,
00:55:17
"Well, it's going to be a seriously long morning and a long morning with no
00:55:20
coffee if I kind of let you guess away to that ride." So, I um you know, blurted out and like I say, to me, it
00:55:26
means it means nothing. It means nothing to say it. There's no emotional attachment to it. There's no emotional
00:55:30
response. It doesn't you know, it doesn't mean anything to me to say it,
00:55:32
but I just said, "Oh, it's from where I had cancer a couple of years ago." But
00:55:35
to her, I think, you know, her reaction was basically the epitome of of of how I
00:55:40
think people feel about talking about cancer. She physically recoiled in horror. Her mouth literally dropped open
00:55:45
in shock. She would not stop apologizing. Got the coffee for free in the end offer actually. [laughter] Um,
00:55:49
which I think >> you've been using that excuse. >> Yeah. I mean, I haven't paid for a
00:55:52
coffee in nearly 10 years now. I just [laughter] always angling for for freebies from baristas. No, I um I think
00:55:58
for me, you know, that sort of illustrates this this discomfort which people have around talking about cancer.
00:56:02
And like I said, I completely get and understand and accept why that is. But for me, um, to answer your question, no,
00:56:07
I mean, it doesn't mean anything to me to talk about it because it's just how
00:56:11
it's been. It's just it's just the reality. It's just the truth. Um, and
00:56:15
and yeah, I just feel lucky to still to still be out the other side of it and to
00:56:18
have the opportunity to talk about it. >> Yeah. So, it was um September 25th. By
00:56:22
the way, who who was Jake Bailey precancer? Like, what was the biggest adversity you went through before that?
00:56:28
Parents breaking up. >> Yeah. I I I guess I'd been through that sort of normal regular kind of young
00:56:33
person adversity. I mean, I'd lost a grandparent or lost two grandparents. Um, but I'd lost my grandmother who I
00:56:39
was particularly close to in in the year prior to the diagnosis, but that's, you
00:56:42
know, normal adversity. I'd lost, yeah, my parents had split up and separated
00:56:46
when I was um seven. So, that's, you know, again, pretty normal, regular kind
00:56:50
of um young person adversity. I don't think I was, you know, necessarily particularly resilient person before the
00:56:56
cancer. I don't even think I'm really a particularly resilient person after the
00:56:59
cancer either. Um, but I guess I was just a, you know, a pretty regular average sort of teenage guy. I I wasn't
00:57:07
good at sports. I did better in the academic side of things. I didn't do a lot outside of school. I wasn't sort of
00:57:14
musically talented or into culture or arts or like I say, you know, sport was never a strength. So, I was just a, you
00:57:20
know, pretty regular kind of teenage guy hanging out with his with his his mates
00:57:24
and his family and just getting through school and figuring out what he wanted to do with his future.
00:57:28
>> It was fabulous hair at the time. You look like you could have been a six
00:57:31
member of One Direction. [laughter] >> That's quite funny. It's funny when when
00:57:34
I watch that clip. When I watch that clip back of the speech, the times I have seen it, whenever I see a steal
00:57:39
from it, it always really bugs me that my hair looks like that because it's all
00:57:43
greasy and disgusting and horrible. And I guess part of me, it's selfishly part
00:57:48
of me part part of me, you know, um, regrets that because the reason it was is that I had stopped washing it because
00:57:55
I was worried it was going to fall out before the speech. If I if I had washed it, I had it into my head that now I
00:58:01
started the chemotherapy and I was going to lose my hair that maybe I'd get in
00:58:04
the shower, wash it, and it would all come out. And [laughter] so the reason it looks like that in the video is just
00:58:09
that it hadn't been washed for for days. I wasn't, like I said, I was very unwell
00:58:13
anyway. So I wasn't having a lot of um sort of showers particularly. Um but >> I suppose it was the last thing on your
00:58:19
mind. You're not looking in the mirror in the car going, "Yeah, the hair
00:58:21
still." >> No, I wasn't. No, I think I was lay I was laying in the backseat of the car
00:58:24
throwing up. So it was it was it was it was kind of where it was at now. uh where was that then?
00:58:28
>> Um but yeah, I I started to notice it more because as as you'll see, I don't
00:58:32
have a great deal of hair on my head now. So I look back on the clip from 10 years ago and think, man, what a lucky
00:58:37
guy I was back then. [laughter] And I think I took that took that for granted a little bit. So yeah.
00:58:42
>> Yeah. So it was um September 2015 uh when you started getting sick. Um there
00:58:46
was some pain in your jaw. You thought it was wisdom teeth related. >> Yes. Y
00:58:50
>> um so that's starts you on the the health system treadmill. >> Um
00:58:55
>> yeah. Yeah. What happened? you just get progressively sicker and sicker. Was it
00:58:58
a gradual thing? >> It was it was over the course of um probably two two to three months.
00:59:02
>> Why did it take so long to discover it? >> I guess the the the easy answer is that
00:59:06
there was always kind of a logical explanation along the way. And you know, wisdom teeth um saw wisdom teeth and an
00:59:12
18-year-old is not going to raise any alarm bells, right? Wisdom teeth hurt. Wisdom teeth get impacted. They get
00:59:16
infected. They cause difficulty. When my wisdom teeth did that, that was completely normal. Um and then yeah, I
00:59:24
guess gradually stranger and stranger things started to happen. I lost a lot of weight um very quickly. I lost about
00:59:29
12 or 13 kgs over the course of about 2 and 1/2 weeks. But again, there was kind
00:59:33
of a reason for that. I couldn't chew any solid food. So at the time I was living entirely off vanilla up and go. I
00:59:39
was having I was having three three lers of up and go a day. Sort of a one liter
00:59:42
bottle for breakfast, lunch, and dinner. Um and you know, vanilla up and go, great stuff. Still have it, but um not
00:59:49
exactly what you'd call complete nutrition, right? So it wasn't particularly surprising when I lost that
00:59:53
weight. Then I guess the bottom half of my face went numb was the next thing which happened. Um which is you know
00:59:59
alarming to to just you know lose feeling in the bottom half of your face and for it to not come back. But again
01:00:04
there was sort of a reason the wisdom teeth um in an infection in there or anything like that can compress the
01:00:09
nerves which supply sensation to the face. So there was sort of another logical explanation. Um and then yeah,
01:00:16
progressively I just got I guess sicker and sicker um until eventually I was kind of bedbound and and started
01:00:21
throwing up blood and you know in these intervening periods I should make it clear as well that there was a lot of
01:00:27
engagement with the medical system too. Um you know I was was seeing a number of
01:00:32
doctors, a number of maxelo facial surgeons, a number of dentists. I'd been to A&E a couple of times but effectively
01:00:38
there was just always a relatively logical explanation. Um, and you know, when it comes to the presentation of
01:00:45
these symptoms, you don't jump straight to the idea of getting this the cause is some extraordinarily rare
01:00:52
and uncommon form of cancer, right? Um, you go with the most most obvious um solution because 99% of the time that's
01:00:59
correct. It's just in my case it it wasn't. >> Yeah. Again, back to your parents, that
01:01:04
must have been a particularly troubling time for them. >> Yeah. Yeah, it Did they manage to shield
01:01:08
you from how worried they were or was it quite >> like clear to you just how concerned
01:01:12
they were about >> like losing like 10 kilos in 2 weeks or whatever? That's that's it's not great.
01:01:18
>> No, it's not. [laughter] It's not it's not great at all. Um particularly given
01:01:21
that I'm not and and yeah, I'm not not a huge guy as as you will have noticed.
01:01:25
I'm sort of 5'7 and I probably weighed then about what I weigh now maybe 60 65
01:01:30
sort of kgs. So losing losing 10 plus kgs rapidly was um not you know >> was not normal or expected. Um yeah for
01:01:38
my parents I guess they they did do a good job of I suppose shielding me away from kind of their emotions and feelings
01:01:45
around it at the time. Um yeah, I think I think for them they were they were abundantly worried, but we were doing
01:01:54
everything which we could in terms of engaging with the you know the medical system and professionals and they were
01:01:59
really good at at and in practical terms at helping with that and and pushing those things along and advocating for me
01:02:04
within the healthare system. Um but yeah, that's just that's just how it
01:02:09
was. >> Can you remember the moment you got the news? >> Yeah, I can. Yeah, I do. Um, it was a
01:02:16
regular kind of afternoon. I was laying in my hospital bed, my hospital room there. I'd had a whole range of
01:02:22
different sort of tests and procedures in the in the days preceding this. Um, and I guess I knew at that point that
01:02:28
something was was really wrong. I didn't know what it was. I didn't really expect
01:02:32
that it would be cancer either, but I did know that it was going to be bad, whatever it was. Um, just based on based
01:02:38
on sort of what the doctors had been like and based on how sick I was. Um and so lady who I'd never met before came
01:02:44
into the room and she sat down on the bed beside me and she introduced herself as a hematologist. I had no idea what a
01:02:50
hematologist was. Um but she went on to explain just very slowly uh very calmly that I had yeah I had cancer that I had
01:02:57
burkits non-hodkkins lymphoma. Um and explained that at that stage they'd found it through my uh brain lining, eye
01:03:04
sockets, nasal passages, sinuses, gums, jaw, spinal fluid, pancreas and through both of of my kidneys. Um and yeah, she
01:03:13
sort of talked me through um what the options were in in terms of treatment, which was when I say options, it was
01:03:19
sort of the option to have treatment or or not. Um which I guess is a theoretical choice more than anything
01:03:25
else. You know, for me, I was always always set on on having that treatment because, you know, in my head there was
01:03:31
no alternative other than than getting through it. Um, you know, you sort of you actually framed it really well
01:03:36
before when you said, you know, you think of it like um you sort of said you viewed it as having a flu or getting
01:03:43
through a flu or getting through a cold. And really that's kind of what it was in
01:03:46
my head. It was like every other time I'd been sick previously. I'd gone to
01:03:50
the doctors. I'd been given some medication and I'd come out the other side completely fine. And I guess for
01:03:55
me, I perceived the chemotherapy and the treatment in a very similar sort of way.
01:03:59
It was just a matter of just doing doing doing what the doctor said, going through that process and coming out the
01:04:03
other side. >> If if you didn't get treatment, the other option like how long did how long
01:04:08
did they >> uh about about 2 weeks sort of >> you were a very sick young man.
01:04:12
>> Yeah. Yeah. And the cancer, you know, it's incredibly it's the fastest growing
01:04:15
cancer which which exists. Um it's it's evidently very very rapidly growing. And
01:04:21
so, yeah, sort of a two to three weeks was the doctor's best estimate at at kind of, yeah, about how long I' I'd
01:04:26
still be kicking if if it wasn't for immediate treatment. Was was your mom in
01:04:30
the room? Is that the moment that she bled her eyes out? >> No. So, mom mom actually came back in
01:04:34
after that. So, I was I was just in there with the the hematologist at the time.
01:04:38
>> Do you you start crying or are you just sort of is the room spinning? >> Um, no. There was Yeah, there was just
01:04:45
nothing. There was really and I think [laughter] it's worth sort of thinking
01:04:50
of it in in in the sense that to never to to it's incredibly hard to explain as you
01:04:56
can as you can probably tell by the way I'm struggling to frame it. I think in
01:04:59
that moment I felt genuinely nothing which sounds like a bit of a a platitude or a cliche but you've got to think in
01:05:06
life you're always feeling something. Even if you're just feeling, I don't
01:05:09
know, contented or calm or relaxed or whatever, there's always some sort of feeling there. Even if it is a very
01:05:15
neutral one, there is always something there. In that moment, I genuinely, for the first time, and it's only happened
01:05:20
once once since then, I felt absolutely nothing in that moment. It was completely blank. Um, and it's it's
01:05:26
maybe some of your listeners will have experienced that themselves, maybe you've experienced that it's a moment in
01:05:30
life, but if you if you haven't, I think it's incredibly hard to understand or or
01:05:34
or imagine what it must be like to feel blank like that. just absolutely absolutely absolutely nothing. Um and
01:05:41
then as we talked through the the the treatment with the doctor um I pro I probably felt a little bit of a sense of
01:05:49
um maybe impatience. I just wanted to get started on things. I really knew that the only way to get through the
01:05:54
cancer was to be was to go through the treatment. Um I wanted to come out the other side. I wanted to get back to my
01:06:00
life again. And so there was a sense of let's just get on and get started with
01:06:04
this. Let's let's let's get through this. Um, and so that was maybe the
01:06:08
first emotion I felt afterwards. But no, at the time there was no, you know, it didn't feel like the world was crashing
01:06:12
in. It didn't feel like, you know, it didn't it didn't feel like this big sort
01:06:15
of movie moment. There's no big emotions attached to it. Wasn't the things you'd
01:06:18
expect. It wasn't angry, scared, sad, afraid, upset. It was it was nothing. Just just very much nothing.
01:06:25
>> Yeah. May maybe that's cuz you were so so unwell potentially. >> Yeah.
01:06:29
>> Just pleased to finally get an answer. >> There was definitely a bit of that as
01:06:31
well. Yeah. Yeah, there was definitely a sense that um particularly after, you know, months of getting increasingly
01:06:37
sicker without any answer or solution to it, there was definitely a sense of relief that we had kind of got some sort
01:06:44
of answer. And it wasn't a great answer, obviously. Um but it gave us something
01:06:49
to work with, whereas up until that moment, I'd been getting, you know, worse and worse without any idea why or
01:06:54
what we could or were going to do about it. M I I I know um what your answer will would be to this, but um yeah, is
01:07:02
is your mom or your dad salty that it took so long to find the answer? >> Um [laughter] yeah, look, it's funny. So
01:07:09
I I've got no I got no hard feelings about about anything which happened because for me, you know, it didn't
01:07:16
change the outcome. First of all, if it had changed the outcome, it would have been different. Um two, it was there was
01:07:21
never any individual failings. There were some some times where the system um sort of could have performed better. Um
01:07:28
and there were times where I I could have and perhaps should have been diagnosed earlier, but I genuinely have
01:07:33
no hard feelings around that. Um these things happen. That's just the reality.
01:07:37
You you can't have, you know, a healthare system which gets everything right all the time because it's run by
01:07:42
people and people don't get everything right all of the time. It's just it's
01:07:44
just the inherent nature of these things, right? So I don't have any hard feelings around it. Um I don't you know
01:07:51
Yeah. [laughter] my parents and family um may have slightly different perspectives and
01:07:56
feelings around that. But for me, you know, I I've spoken to to people involved through that process and um
01:08:03
it's been a learning opportunity for a lot of people that's come about as a
01:08:07
result of that. Um and yeah, I'm I'm just grateful that it's gone on to to
01:08:11
have some sort of positive impact in terms of how things are done now. Um so that hopefully next time it doesn't
01:08:16
have, you know, it can save someone from falling through some of those same cracks.
01:08:22
So, is this the point where your mom goes to a bar called the Pegasus Arms [laughter] and gets like two double
01:08:30
shots of vodka? >> Yeah, this is [laughter] And mom hates when the story comes up, which is
01:08:36
so funny. Yeah, sorry about that one, Mom. Um [laughter] she and because it paints it's just like
01:08:42
I can't believe she ever let this story slip because it just paints her in the
01:08:46
light in a light which is so much not who she is as well which is what's so funny about it. M is very very um she
01:08:54
she's she's she's fun. She's great but she's very you know she's she's not a
01:08:58
big drinker one. Um in fact she's she's she's spent most of her life sort of not
01:09:02
really drinking at all and she's not really much of a drinker now either. Um
01:09:05
but she's very she's very responsible. Um, she's very levelheaded. She's very,
01:09:11
I guess mature is a funny word to use to describe an adult anyway, but she's
01:09:15
just, yeah, she's a very a very normal, upstanding citizen. Um and somehow um to
01:09:21
her to her ongoing perpetual detriment let slip the fact that yeah that that that that one of the ways that she
01:09:26
responded to that in the immediate aftermath was was was with a few drinks um to try and take the edge off so that
01:09:32
and and as she says when she told this story it's so that she could go back and
01:09:35
sort of put her emotions aside and be there to support me. And in fairness I just told her that if she was going to
01:09:41
cry she had to get the [ __ ] out. So, she was working to find a I guess an alternative solution to mean that she
01:09:46
could kind of be there and I guess taking the edge off things a bit was was what it was in that moment. Um, but
01:09:52
sorry, Mom. >> Cuz you you did um you did a documentary and your mom told the story um
01:09:57
firsthand. And when I saw that, I thought I thought, "Oh, yeah. Yeah, [laughter] it paints a picture of the
01:10:03
type of character she is." Yeah. >> But then you read the first book that
01:10:06
you put out called um What Cancer Taught Me and >> uh there's these wonderful parts
01:10:12
peppered through the book of your mom's sort of I guess you'd call it a diary or
01:10:15
letters to >> Yes, it is. Yeah. She wrote me a she wrote me a letter every day when I was
01:10:18
going through treatment and it was about, you know, what had gone in practical terms, it was about what had
01:10:23
gone on and the treatment and how I was doing, but more than that, it was just a
01:10:26
really broad Yeah. capturing of that time and the emotions and thoughts around it as well. It was really, really
01:10:30
powerful. >> Yeah. They're like love letters to you really in a way. >> They They're a mom's a mom's sort of
01:10:35
care and affection for a son going through this this time and it and it you know a lot of stuff shines through and
01:10:40
it's really powerful. >> Yeah. And you read them and you you think part of it she's writing it for
01:10:46
you for for something that because you're not able to fully remember what's
01:10:49
going through so you'll have an encounter of it >> and then part of it on like on the the
01:10:53
flip side of that is um a diary for herself in case it's a negative outcome as well. Um, yeah, it's multi-layered
01:10:59
and it's um, yeah, it's definitely like a lot deeper than than a lady that just
01:11:03
um does a bit of dating. >> It's funny, eh, because like [laughter] the drinking story paints a real vivid
01:11:08
picture of mom and it paints like complete opposite of who she is. Like it really I don't just I don't it's not
01:11:13
like I'm just leaping to mom's defense here, but it really is I find it quite
01:11:16
amusing that the the picture it paints is just could not be more diametrically opposed to who she is as a person. So
01:11:22
yes. Yeah. Yeah. Yeah. So during this time, what can you It was Is there a point where you can remember the worst
01:11:28
physical pain you experienced? >> Yeah. Yeah. There was and there was lots
01:11:32
of different It's quite funny. I often get asked that by particularly students.
01:11:35
Students are kind of like what was the what was the most gruesome or gory or painful thing that happened and I'm like
01:11:40
cool like I'm on the same page like these are some of the best stories. So I
01:11:44
used to talk a lot more about some of these you know medical procedures and things. I actually I knocked that on the
01:11:48
head in at the end of 2023 because I I figured I'd kept telly over the course
01:11:53
of 2023 I'd had 14 audience members pass out when I when I told them about some
01:11:58
of these medical procedures which I'd had [laughter] at some point. >> Well, you think they'd be quite a
01:12:01
grizzly sort of bunch. >> Uh yeah, 100%. And and it's quite funny. always um you know I' sort of told some
01:12:08
of the same sort of stories and talked through the same sort of things with um with my uh with adult audiences I guess
01:12:15
you'd say as well as companies and businesses and organizations and teams that I was working with but it's
01:12:19
[snorts] always the teenage boys that pass out the girls are way tougher way stronger the men seem to get through it
01:12:26
all right and and and the women are fantastic as teenage boys just drop like flies and I had I have one presentation
01:12:31
to a group of sort of year nine and 10 boys so there 14 15year-olds and they were like, "Yeah, yeah." Like, you know,
01:12:37
tell us the gruesome, gory stories. Yeah. Yeah. And then four people passed out in one presentation. And I was like,
01:12:43
I I can't keep doing this. It's a health and safety hazard at some point. Like,
01:12:47
it becomes a it becomes um it just becomes wrong to to stand up on stage and tell these stories when you know
01:12:53
there's a decent chance that someone's going to flake. So, um >> All right, let's do it one last time,
01:12:57
though. [laughter] But for anyone that's driving a car right now, maybe just pull
01:13:02
over >> deep breaths and and I as I used to tell the students, you know, if you're going
01:13:05
to pass out, put your head between your knees. Um probably not while you're driving might not be great, but I
01:13:10
[snorts] don't know, some of the some of the things which stand out were um something called a bone marrow aspirate,
01:13:14
which is where they take a sample of your your bone marrow. It's obviously inside your bones. Um and the way they
01:13:19
do it is through your pelvis. you know, if you if you touch the back of your, you know, your lower back where where it
01:13:24
meets your, you know, sort of your pelvis, the one on each side, left and right, you've got these bumps or lumps.
01:13:30
Fancy name is an iliac crest. It's sort of the back side of your pelvis. That's
01:13:34
where they they go in through. Um, and basically they take sort of like a the easiest way to describe it is it's
01:13:40
basically like a receipt spike. You know how like at cafes and restaurants where
01:13:42
they spike receipts? is basically one of those. And the doctor, whilst you're
01:13:46
awake for all of this, basically hammers the um you know, this this big metal spike through the skin, through that
01:13:52
thin layer of flesh, punches a hole through inside the bone um and then sort of digs around on the inside of your
01:13:58
bone and and takes a sample of the bone marrow. But you know, this process of of
01:14:01
hammering the spike through you, in my case, you I was young, I had pretty robust, strong bones. And I remember
01:14:06
being in this hospital bed with the doctor hammering the spike through and sort of being thrown around in the the
01:14:12
gurnie like flailing around because of the force that the doctor had to use to hammer the spike through my through my
01:14:18
pelvis and it was you know you're awake for all of us. It was it was horrific
01:14:22
and I remember crying. I cried. I cried like a baby. I cried and cried and cried
01:14:27
and then you know other things um intratheals or sort of spinal taps. Um I had had had chemotherapy put into my
01:14:33
spinal column and um yeah more people have experienced those than than the bone marrow aspirates but that was that
01:14:41
was horrific. That was that was really bad as well. Um and I was having those weekly during treatment um as as part of
01:14:48
my treatment protocol. So there was you'd get through one and you still knew
01:14:51
you had another one coming and another one coming after that. And um that was yeah that was really that was quite that
01:14:57
was quite bad. you know, the the needle would punch into your spinal column and there would be a distinct pop as it went
01:15:01
into your spinal column and then the needle would um hit the nerves which run through your spine towards your legs.
01:15:07
So, you'd get shooting pains through your through your legs when the needles
01:15:11
hit different parts and you get sort of electric shocks shooting down your legs and it was it was that was pretty
01:15:16
horrendous. Um I guess even yeah in terms of the pain strictly there was you know the cancer itself the diagnosis the
01:15:23
cancer in my jaw or pre-diagnosis was that was remarkably painful um and yeah there was there was even a period where
01:15:31
I started to get these horrendous pains in my uh legs the bones in my legs which
01:15:36
felt sort of inexplicably at the time as if my legs were you know sort of sort of
01:15:41
breaking um and came to find out in retrospect that you know with my cancer it's you blood cancer. So, it's produced
01:15:48
inside the bones and the bone marrow. Um, because it's so fast growing though,
01:15:52
the the cancer cells can't get out of the bones fast enough. And so, like if
01:15:56
you shake a bottle of fizzy drink and the pressure builds up inside, um, that's basically what happened to my leg
01:16:01
bones and and the pain, this incredible pain was basically the legs breaking and
01:16:05
and sort of developing these micro fractures from the pressure building up inside them. Um so yeah there was there
01:16:11
was [laughter] a a fair few you know painful bits and gory stories and and stuff along the way but at the end of
01:16:16
the day it was not like I say particularly um unique or remarkable and and often I sort of found myself looking
01:16:22
around and feeling kind of grateful for the situation that that I was in relative to other patients. There was a
01:16:27
guy in the room next door to me at one point who had a brain tumor and the way they were treating it is they drilled a
01:16:32
a hole through his skull and put a port in and they were basically putting chemotherapy through a hole in his head
01:16:37
onto his brain every day. And I was thinking, well, you know, if he can get through that and he's just as human as
01:16:42
as I am, then, you know, presumably I can get through this as as well. Um, so yeah,
01:16:49
>> why why can't they give you like a local or a general force [laughter]
01:16:54
fix on the receipts thing? It's a great visual, by the way. >> Terrible visual, but a great
01:16:59
>> So you get you get a local for that. Um, but the way that it was described to me
01:17:03
and definitely the way that it felt was that you can sort of numb up the skin and the flesh around there, but you're
01:17:09
particularly when you're young, your bones have nerve endings which grow on the outside of the bones and you can't
01:17:13
numb those up. Um, so you don't feel it go through the skin. Um, but you do feel
01:17:18
it go through the the bone and it was Yeah, she was pretty she was pretty rough.
01:17:23
>> It's a great endorsement for up and go though, eh? [laughter] >> This guy's got bone density like we
01:17:28
haven't seen before. Yeah, this guy off the charts. This guy has been drinking 3
01:17:32
lers a day for the past month or something. >> Like, we're never going to get through
01:17:35
these things. >> Yeah. Calcium content through the roof. >> So, um Yeah. So, all all up your your
01:17:40
cancer journey was like it was very brief, eh? Very brief. So, it was like to towards the end of uh 2015 that you
01:17:47
get sick and then by January 29 you're in remission. >> Yeah. Yeah. So, it was Yeah. 3 months of
01:17:52
of treatment. >> Um and I feel incredibly lucky for that. uh like I met and knew and was close to
01:17:59
other young people through that time who had very very long roads ahead of them for for them and their family to to
01:18:05
travel. You know, you'd meet you meet six-year-olds that had four years worth
01:18:08
of chemotherapy ahead of them and you just think that you know that is just >> to use the phrase again that really is
01:18:13
just an abomination of nature. It's just so wrong. It's just so so wrong um to
01:18:18
see young people who have to walk this this path and and their families that have to walk this path with them. And
01:18:23
for me, you know, 3 months of treatment, you can do anything for 3 months, right?
01:18:27
It was it was it was short. It was sharp. It was either going to work or it wasn't. And I'm just lucky that in my
01:18:32
case, it it it worked. And and after that, I was I was out the other side and and my body began to heal and recover
01:18:37
and repair. And um my health is is is now better than it's ever been before,
01:18:42
which is I'm lucky to be able to say that in itself. I know lots of other young people and and other survivors who
01:18:46
have um you know not recovered to to to the same level of standard that they were at beforehand who have been left
01:18:52
with permanent side effects as a result of the treatment and whilst I I had some
01:18:56
of those for a period of time um and and for the long term I'm I'm now you know
01:18:59
fitter and healthier and better than I've ever been before physically. >> So so January that um announcement on
01:19:05
January 29 was that a special day for you or for you was it just like yep good this is what this is what I expected?
01:19:10
>> Yeah. um like for your parents like I I imagine it was a huge um moment of
01:19:16
elation. >> Yeah. I think when you say the 29th, you mean being announced in in remission the
01:19:22
first time? Yeah. >> News. Yeah. >> Well, well, yeah. I said when I said
01:19:25
before that I've I sort of, you know, felt that that nothingness when I was diagnosed and I've only felt it one time
01:19:30
ever since then. That was that was the second time. When I was told that I was in remission, when I was told that the
01:19:34
cancer was gone, I once again felt the exact same thing that I'd felt when I
01:19:38
was diagnosed, which was um nothing. absolutely nothing. A complete nothing and not any of the things you'd expect.
01:19:45
I didn't feel um relieved. Um I didn't feel happy. I didn't feel like a weight
01:19:51
had been lifted. Um I guess even as an 18-year-old guy, I didn't feel that on
01:19:55
behalf of my my parents even. I didn't sort of I didn't I didn't sort of
01:19:58
perceive how powerful or impactful it was for them because for me, I was probably still very much in the space of
01:20:03
I knew I was going to get through this. I can't believe you guys ever doubted
01:20:06
that there was a possibility that anything else could could kind of happen. Um, and so
01:20:12
>> yeah, I mean my memories of that time, like I say, are just being pretty pretty
01:20:16
neutral, pretty kind of blank. Um, and I was I was very aware of how lucky I was
01:20:22
to have made it to that point. Um, but probably the full weight of the emotion hadn't hadn't come through or sunk in at
01:20:28
that point. >> What's your relationship like or what's your thoughts on manifestation? Cuz you
01:20:33
[clears throat] >> I mean it it sort of worked out the way you the way you sort of visualized.
01:20:38
>> Yeah. Yeah. 100%. Um, it's a funny one a because I think that at the end of the
01:20:42
day I suspect that there would be or is some sort of proof or evidence out there
01:20:49
whether it's anecdotal or not that people's attitude as they go through I
01:20:54
guess any form of adversity or suffering goes towards a you know achieving an outcome right and I I suppose that
01:21:01
theoretically anyway cancer is probably no different to that but the reason I'm
01:21:05
quite cautious around that is because if If you make this case that yeah you know
01:21:10
I got through the cancer because of this manifestation or because I was so you know positive or optimistic because I
01:21:15
expected to you then end up creating this this false negative um where you suggest that anyone who doesn't survive
01:21:22
or doesn't make it through or who isn't as lucky as I have been sort of had some
01:21:26
sort of role in in in causing or creating that outcome for themselves which is just isn't true. Um so whilst I
01:21:32
guess yeah I I I guess there's there's maybe a case to be made or it's it's
01:21:36
entirely unknowable but I guess there's a case to be made that perhaps my um
01:21:40
expectation that I would get through you know came to or went towards achieving that outcome but I certainly don't think
01:21:46
that we can you know always jump to those conclusions because otherwise you end up creating this you know the
01:21:51
inverse is a is a false narrative. Yeah, it's it's a tricky one, isn't it?
01:21:55
Because um you know, people like to say things like, "Yeah, you know, she kicked
01:21:58
cancer's ass, whatever." But it's kind of saying that anyone that doesn't kick
01:22:01
cancer's ass wasn't enough of a fighter or didn't try hard enough or do
01:22:05
something. But, uh I think there's a lot of like genetic luck and other things
01:22:08
that sort of come >> 100% and and I think >> I guess the language around that's
01:22:12
probably shifted a lot in recent years as well. Um you know I think people are sort of um more hesitant to frame things
01:22:19
as you know fighting being a fighter or fighting cancer or you know beating cancer like you say kicking cancer's ass
01:22:24
and coming out the other side because I suppose there is a risk that it creates this this inverse as well um which isn't
01:22:30
which isn't true. Yeah. >> Did you did you are you familiar with the term survivors guild?
01:22:35
>> Yeah. >> Yeah. Did did you have any of that at the time or have you had any since then
01:22:39
or >> I >> were you just in in the woods such a brief time you [laughter] didn't you get
01:22:43
to form connections? I tell you what, I I don't think I've ever experienced any
01:22:46
survivors guilt. Um, but I've I I've carried and continue to carry a whole
01:22:51
lot of >> like a shitload of survivors gratitude, I suppose I'd call it. Um,
01:22:56
>> you know, for me, um, you turn up into the hospital, right? And and in my case, you know, I was
01:23:04
treated in what's called the BMTU, which is, you know, this this ward for adult
01:23:08
patients. as an 18-year-old, I wasn't there. But I spent a lot of time in another ward called Chalk, which is the
01:23:12
Children's Hematology and Oncology Center. And that's, you know, you know,
01:23:15
that's that's that's kids with cancer, right? >> And you turn up into this hospital, you
01:23:21
you're diagnosed with cancer at age 18. And I expected that when I got to that
01:23:24
place and I looked around, I would be surrounded by people who looked like my grandparents, right? I thought it' be an
01:23:29
old people's sort of setup. >> Or if people were particularly unlucky,
01:23:34
really unlucky, I thought maybe there'd be some people my parents age there. And
01:23:37
I turned up in this this ward chalk and spent time in there. And you look around
01:23:41
and you are surrounded by people who look a hell of a lot like yourself, people, you know, my age at the time,
01:23:46
people considerably younger than me. Um, and you know, I I I don't know whether I
01:23:52
was naive or oblivious or a bit stupid, but I genuinely never comprehended until
01:23:57
that moment that I saw it with my own eyes that each and every day just up the road from where I've been living, going
01:24:02
to school, going out to town, there were dozens and dozens of other young people
01:24:06
with goals and dreams and hopes and ambitions and whatever just as real and vivid as mine who through no fault of
01:24:12
their own were robbed of that opportunity to go out and to chase those goals and hopes and dreams And for me, I
01:24:19
know that I was incredibly lucky to make it out of that place, to walk out of there. There's a lot of people who I was
01:24:24
close to, a lot of people who I knew who didn't have that same privilege, who who
01:24:28
didn't get to move forward and move on in life. And so, for me, I feel a sense
01:24:32
of responsibility to live my life to the fullest on their behalf. And I think people can sort of comprehend that and
01:24:38
understand that if the roles had have been reversed realistically that's all I
01:24:41
ever could have asked of anyone else is that if I didn't get to walk out of there and they did that they just went
01:24:46
and gave it a decent [ __ ] shot on my behalf. Right. And so I carry that on on my shoulders. But more than that I don't
01:24:54
think that that's a responsibility which I just bear alone cuz I can't really
01:24:57
figure out why it would be like is it my job because I was lucky or is it my job
01:25:00
cuz I met these people or is it my job cuz I saw this place? No. I really think that collectively we uh as as as you
01:25:07
know society and and and particularly young people that I speak to as well now have an obligation to just go and live
01:25:13
life to the absolute max the absolute fullest on behalf of those people that don't get the opportunity to do so. And
01:25:19
I hope that that doesn't come across as sort of patronizing or sanctimonious.
01:25:23
But for me I only feel this way because I I know how lucky I have been. I've
01:25:27
seen that place. I've met some of those people who weren't quite as lucky. And
01:25:31
whilst there's not survivors guilt, there's a hell of a lot of survivors
01:25:34
gratitude for the fact that I can still now go out and and and do all of these things which I get to do. And I think
01:25:38
that that really spurs me on every day. >> No, I I love that. I I think you've got
01:25:43
a like a second chance and you're not squandering it. And it would be easy um
01:25:47
you know, because your your thing seems so your whole process seems so streamlined and seamless, you know, in
01:25:53
and out, couple of months later, done. Um it would be easy to especially with the passage of s uh time like you sort
01:26:00
of lose the appreciation for it or take it for granted but it's it's clear that
01:26:03
you're not >> uh I think that that's that's got to be a conscious sort of choice and decision
01:26:08
and in all honesty it has faded in in part. I don't think go away. It'll
01:26:12
always be an integral part of of who I am and how I view life and how I feel in in in the world. But I had a really
01:26:18
powerful chat with a guy um a number of years ago now when I spoke at an event at a conference and afterwards he came
01:26:23
up to me and he said, "Hey, you know, I went through um cancer when I was when I
01:26:27
was the same age as as you went through it and I just wanted to let you know that all of those things that you think
01:26:32
and feel now, all of those positive changes, all of the gratitude, the perspective, all of these good things
01:26:37
which have come about as a result of the cancer, they do fade with time. you have
01:26:42
to consciously deliberately try to to try to cling on to these things and hold on to them because they will lessen and
01:26:48
deplete and and sort of shrivel up a little bit as you you get further and further away from that experience and
01:26:53
time of life. So for me, yeah, I guess I try and cling on to cling on to the good
01:26:58
and the positive change which has come about through that and as a result of that. Yeah.
01:27:02
>> And what about your mental health? It seems like it was rock solid through
01:27:05
this time. Um has it been good since then? >> Yeah, 100%. I mean, I think like I say,
01:27:10
I've been um I've I've probably been at times, as we touched on earlier, too
01:27:16
good at just focusing on the good. And I guess maybe maybe that's sort of like
01:27:23
the flip side of that that ramble that I just went on there about, you know, living life with a sense that, you know,
01:27:29
everything every single day is always going to be better than the alternative that I had. Right? when when you almost
01:27:34
die and you continue moving forward, you've sort of you've sort of got to go
01:27:38
into every day >> kind of grateful for how things go regardless of how good or how [ __ ] they
01:27:43
are. And I think previously I've probably been not good enough at actually stopping and processing and
01:27:50
thinking and feeling emotions because I just go, "Well, [ __ ] I guess this is
01:27:53
better than having died." um which >> in some ways is a really powerful, you
01:27:57
know, motivator and sense of gratitude and in other ways is just a really profoundly unhealthy way to to view and
01:28:04
think about mental health and and how bad things um just happen sometimes in life. So, um yeah, my mental health has
01:28:10
has been has been good. Um, but I've still got as as we all do, a lot to a long way to go and a lot to learn and
01:28:16
and probably need to do do better in terms of how I Yeah, in terms of how I engage with myself around mental health,
01:28:24
I think, >> oh, spoiler alert, mate. And it never never ends. It's an ongoing treadmill.
01:28:29
I'm 52. I'm still trying to get better, still learning. But I think that's an
01:28:32
exciting thing about life that you never there's never a peak that you reach, you
01:28:36
know? There's always another peak. >> There's and and I guess that is that is
01:28:40
the excitement like you say. Yeah. >> Um but I guess as well in a sense that's
01:28:44
kind of why I'm so passionate about this resilience side of things is that that's
01:28:48
quite I guess that's quite empowering the knowledge that yeah you sort of never there's always another challenge
01:28:54
to come. There's always some other [ __ ] that's going to happen. There's always
01:28:56
some other problem which is coming your way but if you have the capability to try and sort of steal yourself and and
01:29:02
learn and prepare and develop and and hone these skills of resilience that hopefully you'll be in a better place
01:29:08
when those come. And if not, at the very least, you can at least go into them as
01:29:12
the opportunity to learn and and treat adversity as a bit of a training ground instead of as a a victim. I think that's
01:29:19
one of the things which is most empowering about learning about resilience and and I guess my hope with
01:29:23
this book in terms of equipping people with some skills around resilience is that when things go wrong, you can
01:29:28
actually face it from the perspective of this is a a training ground, a learning
01:29:32
opportunity. this is something which I can can can become better from as opposed to just oh god I've ended up in
01:29:39
this shitty situation that I don't want to be in this sucks and there's nothing
01:29:42
good which can possibly come from this. It allows you to meet adversity as a as a as a as a survivor rather than a
01:29:48
victim. >> Yeah, I love I love the path you're on and um your resilience the more
01:29:52
awareness about it and the more that people um can learn that it's something
01:29:55
that can be you know trained rather than you're born with or you're not um I
01:29:59
think the better and hypotheticals are a little bit they're they're silly.
01:30:02
They're kind of pointless. But um yeah, how would life [clears throat] potentially look now had it not been for
01:30:07
the cancer? >> Yeah, I don't it's a good question. I don't know. I was dumb. It's a dumb
01:30:10
question. >> Well, no, it's it's not. I mean, it's it's it's an interesting thing to ponder
01:30:14
and it's something which I've definitely found myself pondering more recently as
01:30:16
well. >> I think like I say, I would have been up here. Um I would have I would have
01:30:21
studied in commerce and law. I think I probably would have gone down the law pathway. Life would have been life would
01:30:26
have been life. Life would have been presumably good and happy and and whatever. Um but you know for me in all
01:30:31
honesty I feel like I'm moving to a stage a stage and phase of life where I'm potentially um looking towards
01:30:38
moving into something different anyway. You know, for me, I've had an amazing 10
01:30:42
years um traveling and and speaking to, you know, over 100,000 people around the
01:30:46
world, having written a couple of these books. And in a lot of ways, I feel like
01:30:50
whilst I'm I'm really grateful for those opportunities, I I very much enjoy that
01:30:54
work, I feel like I'm maybe moving towards um the next stage and and phase of life. Um I don't want to be stuck
01:31:01
with this um teen cancer survivor thing forever. you know, I um no, no one wants
01:31:08
to be defined by something which they did when they were 18. For for better or worse, no one wants to be remembered for
01:31:13
something which they did when they were in in high school, right? And and as I say, I'm I'm so grateful for the support
01:31:18
and care um and and and everything which has come about, all of the opportunities
01:31:23
which have come about as a result. But I feel like I'm ready to to move out into
01:31:26
the world and to to do something different and to to to be something else and and hopefully to become something
01:31:32
more. Um, and I don't know what that opportunity will be yet. Um, if you find
01:31:36
it, let me know. If anyone listening knows about it, be sure to get in touch. I'd love to hear about it. Um, but I
01:31:42
think, you know, I'm moving into a stage of life where I'm ready for for the next
01:31:44
journey, the next adventure, and I'm excited for that. >> Oh, you're playing dumb. You've got
01:31:48
ideas. I bet there's a note section on your phone with a you you must have like
01:31:52
a sort of idea of what you want to move into next. >> Yeah, I can definitely see myself doing
01:31:56
a few different things. Um, and I can definitely see places and ways in which I can can hopefully add value and
01:32:02
particularly add value given, you know, the opportunities and lessons and learnings which I've I've taken over the
01:32:06
past couple of years. I don't think that, you know, I don't feel stuck >> um in this in this this this stage or
01:32:11
space of life where I'm at now. Um, but it's time for me to go out and to prove
01:32:15
myself that to to prove to myself that I can do something different and be something more.
01:32:19
>> Yeah. Well, you're you're a guy right now that loves type two fun. Um you
01:32:24
showed me a photo before we came in of um you and I side by side in the in the Kepler challenge last December which is
01:32:29
a a 60k mountain run. Um so you love um like putting yourselves in situ deliberate situations where it's going
01:32:36
to be tough to be challenging. >> Absolutely. >> Yeah. Yeah. Why is that? Do you think
01:32:39
that would have been there without the cancer? >> Uh no it wouldn't have. It definitely
01:32:42
wouldn't have been for me. you know, endurance sport has been a really big part of the last sort of five or six
01:32:47
years for me from um sort of ultra running and and multisport in terms of the coast to coast and endurance
01:32:53
cycling. Um that all came about because in all honesty, like I say, I sucked at sport when I was when I was at school. I
01:33:00
was like the kid that got chosen last for the team in PE and when you got picked for the team, the whole team
01:33:05
would grown that you were on their team. Like really, this is this is again not humility. This is just reality. I was
01:33:10
the kid that swam widths instead of lengths at school swimming sports day, which I said that to someone recently
01:33:15
and they said like, "What are you what do you mean? What are you talking about?" I mean, literally I had to swim
01:33:19
the widths across the pool instead of the lengths because I couldn't get from
01:33:22
one end of the pool to the other. So, they made me do across [laughter] the pool instead. And like I say, I I'm I'm
01:33:29
not talented in sport. And then I remember getting to the end of year 10 at school. I remember I vividly remember
01:33:35
my last ever PE class that I had and I wasn't taking PE as a subject the following year. And I remember getting
01:33:40
to the end of that class and going to the locker rooms and getting changed and thinking to myself, that is the last
01:33:44
time I will ever exercise again in the rest of my life because no one will ever make me go for a run or or exercise ever
01:33:51
again and I suck at it and I don't want to do it anymore. So I'm not going to
01:33:53
ever have to do it again. This is great. And then [gasps] I guess so so first of all going through
01:33:58
the cancer showed me a couple of things. One that my body had a a hell of a lot more to give than I expected it to.
01:34:04
There were times when, you know, during treatment I was so incredibly sick that I did not think I could it could get any
01:34:10
worse or I could enjoy anymore and I always could. And the second thing was that I realized that my brain was a
01:34:16
really big part to unlocking that. Like I came to see the impact that um yeah that my inner inner thoughts and and
01:34:22
that my head had in terms of controlling my body. And because of that, I guess I
01:34:26
fell into this this world of endurance sport because it's the only thing I've
01:34:29
ever found since then where you can put yourself in a situation where you think you've got nothing more to give and it
01:34:35
somehow turns out that you do and two that the key to unlocking that is within your within your head. So got into the
01:34:41
ultr running side of things and um I've done a fair bit of that over the past
01:34:44
couple of years. But as I say to kids at school when I go to speak at schools like you know I I I was the kid that
01:34:51
sucked at sport. If you are the kid that sucks at sport, that gets picked last for the PE team, then endurance sport is
01:34:56
the sport for you because you don't actually have to be good at anything. I still suck at running. It's just that I
01:35:01
can run for 10 hours straight. You don't have to be good at it. You just have to
01:35:04
be able to do it for a really long time. And I still suck, but I can sort of outlast other people. Um so, so, so
01:35:10
endurance sport is the sport for you if you're stuck at sport. >> I'm I'm laughing along with you cuz I
01:35:14
see I see parallels. I was the same with sport. Um so team sport, I felt like I was always so uncoordinated and so
01:35:20
useless. I'm letting other people down. >> Yeah. Yeah. [laughter] Sure.
01:35:23
>> Cuz if you're running, it's like >> that's feeling as well. I mean, like
01:35:26
that's especially when you're you're teenagers and you're you're mean to each
01:35:29
other, right? Like you let other people down, you know about it. You get told about it pretty quickly.
01:35:34
>> Um and yeah, the running side of things, yeah, being individual is is gives that.
01:35:39
But in many ways, you know, there's there's more to it for me. you know,
01:35:42
being out in nature, the isolation, um the trail running side of things is is really important for me in terms of my
01:35:48
mental health and just as a person, you know, it means a lot to me to um yeah, to to be in the nature. And I think
01:35:56
broadly speaking, I guess the thing is when it comes to to to learning and developing resilience, when it comes to
01:36:01
being good at getting through tough times, you have to go through adversity and hardship. Like I said, you don't
01:36:06
learn to be resilient without going through adversity. And for me, I manufacture or create some of that
01:36:13
adversity in my life by, you know, signing up to go run a 60k mountain race because I know it'll be hard, but I know
01:36:19
that when I get through it, I will be stronger as a result of that. And I'll
01:36:22
get to apply all of these lessons and learnings around resilience along the way and and it will hopefully make me a
01:36:26
better person on the other side of it. >> Yeah, 100%. And yeah, psychologically it
01:36:31
just gives you this data that when things get tough in life, the unforced adversity, you know that you you can
01:36:36
handle it because you've got this >> you've got, you know, you got this
01:36:39
previous data that says you can. >> Yeah. And I mean that's how we build
01:36:42
resilience in life. That's that's what we know about resilience is that it's
01:36:45
it's created around something called self-efficacy, which is basically your ability to back yourself, your
01:36:49
self-belief, your sense that you can get through something and and over the course of a lifetime. That's how we
01:36:54
become resilient as adults. We start off as young people, you know, um, getting through a school swimming sports day
01:36:59
where you have to swim widths instead of lengths of the pool or getting through being picked on in PE class cuz you suck
01:37:04
like I did. And it gives you the sense of I got through this, so I can get through that. And that builds up over
01:37:10
the course of a lifetime until the other end. You're saying, like I said, I can
01:37:13
get through this divorce because I've got through this redundancy or I can get
01:37:16
through this redundancy because I've got through the loss of a loved one. And
01:37:19
that is that you know that is how we create resilience over the course of a lifetime is by taking on increasingly
01:37:24
bigger and bigger challenges. That's something which you can choose to do. You can you can find that within you in
01:37:28
a in a in a voluntary context by you know endurance sport in my case. For other people it's learning a language or
01:37:34
learning an instrument or going through a breakup or moving overseas. Um there's
01:37:38
lots of ways that people find this within themselves. >> I I love that. I've got a couple more
01:37:43
about resilience then. Um we'll let you go. Jesus [ __ ] We've been going like an
01:37:48
hour and 40. [laughter] >> I tell you what, I'm a bit of a listener to your podcast as well, like I said, so
01:37:53
I know for a fact and nearly an hour 40 is that that's on the long end of things. I'm quite I'm quite happy with
01:37:57
that. >> Oh, no. It's good though. It's it's been an intriguing chat and I can't thank you
01:38:00
enough for being so >> No, it's it's a real privilege. Oh, there you go. I've done it again. It's a
01:38:03
it's a real privilege to have the opportunity to be here. Yeah, you you pick yourself up when you say these
01:38:07
things, but I um I only started like getting into practicing like gr gratitude and journaling a few years ago
01:38:13
and it's it's actually like a I find it a great way to live your life like to be
01:38:16
appreciative of of these things. >> Absolutely. >> Yeah. I don't know. I don't know if it's
01:38:22
a ne Yeah, I don't think it's a negative at all. >> Look, and and it's something which I
01:38:24
talk about a lot in the book. I think at the end of the day, kind of in in life,
01:38:28
we've sort of got the option to capture all of the small good stuff, all of the
01:38:33
little wins, all of the the the tiny bits of good throughout the day, uh, or the option to kind of ignore them. Um,
01:38:40
but I think that if you don't capture those, if you don't deliberately seek
01:38:43
them out and try and look for them and find them, then I think that it has a, you know, an overall negative impact on
01:38:48
you over the course of your your lifetime. There's so much good to be found in each and every day. And like I
01:38:53
said, I'm I'm still very I'm very keen to try and temper this, like I say, with
01:38:56
an understanding of the fact that not everything has to be good. Not everything always has to be positive.
01:39:00
You can you can feel bad and feel down and feel upset sometimes. It doesn't have to be good through and through.
01:39:04
>> But I think that if you can find and seek out and and and look for the good
01:39:08
within each day, overall you you know, you end up with a better experience of of life as a result of it.
01:39:14
>> Yeah. If you if you lose the ability to appreciate the good little things in
01:39:18
life like um a crazy red sunrise or um you the first sip of a really cold glass of water first thing in the morning um
01:39:26
yeah life's life life's just going to be way more difficult. >> Yeah I think there's you know there's no
01:39:29
point in not capturing those things and I think that it it puts you in the right
01:39:32
mind mind frame to to get through tough times as well. That's you know the second is that idea of salvaging that
01:39:38
>> uh the gratitude is a good thing to practice not just during tough times but
01:39:41
just always >> it's a good habit to be in. Uh what are some practical strategies you found most
01:39:46
effective in bouncing back from setbacks? >> Yeah, I mean like I said the four S's is
01:39:52
really at the core of everything which kind of really everything which we know about making people good at getting
01:39:57
through tough times. I mean it's a little bit tongue and cheek to say that no one could really assume to create
01:40:01
something quite so comprehensive. But that book and the 4s model is a relatively good summary of like 40 years
01:40:07
worth of research into the psychology of resilience and what makes people good at
01:40:10
bouncing back and getting through. I think you know for me individually the things which I find most powerful are
01:40:17
probably um you know people and connections and relationships. I'm I'm a
01:40:21
big kind of I guess people person um and and find a lot of uh benefit and strength in leaning on people and being
01:40:28
being around people. Um but equally all of those other three S's are kind of
01:40:32
relevant and applicable. I think that these are things which we know for a fact make people good at getting through
01:40:36
tough times. And I I would assume that for your listeners as we went through those four S's, hopefully they kind of
01:40:41
all rang a bell. I'd probably be a bit worried actually if anyone found them
01:40:44
particularly revolutionary because if they if they do ring a bell, if it's something which you say, "Hey, that's
01:40:49
how I got through X, Y, or Z. That's something which I do during tough times." Probably means you're a
01:40:53
relatively resilient, welladjusted adult. It probably means that you're just good at getting through tough
01:40:58
times. >> I I honestly think it's a it's something that a lot of people just don't even
01:41:03
give any thought to. >> And and in a lot of ways, you don't have to. Like I say, you know, those 4S's,
01:41:07
like I for you, for anyone, they're probably relatively familiar. They probably do ring a bell. They probably
01:41:12
are things which you've utilized at different times. I think what is really worth keeping in mind is is two things.
01:41:17
One, if any of those ring a bell, if any of those are things which you do, it's
01:41:21
because you have learned and earned those through blood, sweat, and tears. Like, you weren't born with those. They
01:41:26
weren't innate within you when you came out of the womb. Those things, those
01:41:29
skills, if you do them, if you've got them, it's because you had to earn them
01:41:32
when you went through suffering, right? And [snorts] particularly for our young people, we actually have the capacity to
01:41:38
equip them with these skills before they have to go and figure it out for themselves. We can send them out into
01:41:42
the world, I guess, a bit armed to go out and to deal with things better so that they just have a head start. They
01:41:48
can they can meet adversity as as as a as I say a training ground with some skills and tools on their side instead
01:41:54
of having to sort of bumble through and figure it out. And I think for for for many of us, that's why adolescence and
01:41:59
growing up is so hard is because you start facing real world adult problems without the real world adult skills to
01:42:04
deal with them because you haven't learned them yet. That's really what that time of life is is just figuring
01:42:08
these things out. So, you know, my work with schools, I've been really passionate about equipping young people
01:42:12
with those. But secondly for for adults um for the rest of us as we move past that phase of you know adolescence and
01:42:19
into life I think it's really important to put words to those things which we
01:42:24
don't think about um sort of frame up and understand why these skills that many of us will have why they actually
01:42:30
work what the research is what we can do to lean into them further and how we can
01:42:34
can sort of integrate them into our lives more and I think you know for me with with with the comeback code with
01:42:39
this book I think the thing which has been most I guess exciting about it is that it was it was written really with a
01:42:45
teen audience in mind or or at least for young people and a lot of the feedback and and reviews that I've received over
01:42:52
the past couple of weeks that it's been out has been people of all different
01:42:56
ages and stages of life saying how beneficial and helpful it was to them. I think my favorite review so far was from
01:43:01
someone who said I'm sort of three times the age of the author. I'm 27. You can
01:43:05
do some cook math on that. Wow. >> And he said for me this has taught me so
01:43:10
much and given me so much. And I thought, you know, wow, that's that's that's, you know, very very humbling to
01:43:14
hear. So, yeah, I think it's important to put words to these things and to remember that for our young people,
01:43:18
they're not born with them innately. None of us were, none of us are, but we
01:43:22
still hopefully can learn them and better understand them. >> And how cool is that that someone in
01:43:26
their 80s is reading your book and still still trying to like get better or improve?
01:43:31
>> That's cool. That's so exciting. It is. >> Um, what advice would you give someone
01:43:35
who feels like they can't see a way forward? I think the main thing which you know and and and it's a we touch on
01:43:42
this before because it's a situation which I think most of us have found ourselves in right when when something
01:43:46
bad happens when something goes wrong when there's something catastrophic in
01:43:49
your life often that first sense of emotion or feeling around it is a sense of I've got no idea how I'm going to get
01:43:56
through this next >> you know day week hour >> and and as I said before hopefully the
01:44:02
answer for you for me for for anyone listening has been I'll just get through
01:44:06
to the afternoon or I'll just get through to a catch up with a mate or I'll just get through this week of work
01:44:11
or I'll just get through this project and and to try and take it piece by piece. I think when you feel like there
01:44:16
is there's no way through when you feel that sense of overwhelm, it's incredibly
01:44:19
important to try and strip things back down to a scale at which you don't feel
01:44:23
overwhelmed and to take things on your own terms, whatever size pieces those may may be.
01:44:29
Yeah, that's Yeah, that's something I get from like doing endurance runs like
01:44:34
the Kepler we're talking about. Like it's just Yeah. Putting one foot in
01:44:37
front of the other like taking it Yeah. just go to the next little orange war pole thing, whatever it is.
01:44:44
>> Absolutely. >> Or go to the next drink stop and it's amazing eventually you do that and
01:44:48
eventually you get to the finish. >> And as you would have experienced, as
01:44:50
I've definitely experienced, your your sense of of scale in terms of what you're trying to get through shifts
01:44:56
depending on how you feel. Like there sometimes there was sometimes in Kipl when we ran that last year together that
01:45:00
for me I was like oh boy I just need to get through to that next tree or I need to get through to the next warer like
01:45:06
you say or whatever it may be but and other times you go well I just need to get through to the next aid station or I
01:45:12
need to get through to the halfway mark. Um some of these things are are big some
01:45:16
of these things are small you just have to be adaptable and reactive depending on how you're feeling and that's
01:45:20
applicable to kind of everything in life. God knows it's not just applicable
01:45:23
to to endurance sport and ultra running. Yeah, by the way, very charitable of you
01:45:27
to say we ran it together. [laughter] There was a moment near the start line where we got caught um photographed um
01:45:33
side by side. >> I don't think I didn't realize I didn't realize that you were there either. I'd
01:45:37
seen you before. I had no idea we were next to each other and I'm sure that you
01:45:41
didn't know that I was next to you either, but when I saw the race photos come through afterwards, I picked it
01:45:45
straight away and thought it was Yeah. thought it was pretty entertaining. >> That's cool. But just for clarification,
01:45:49
you you you were finished. You may have even been showered and changed and I was
01:45:54
still [laughter] deep in the forest. >> Well, that I think you've exhibited
01:45:57
considerably more resilience than I had to. Right. If I was at home in the shower and you were still running
01:46:01
through the freaking forest, then I think you probably you probably did a better job of of enduring it and being
01:46:06
resilient than I did over the course of that day. >> Good point. I had way more time on my
01:46:09
face. >> That's 100%. It's a bigger day for you. >> Um, hey, this has been great. Is there
01:46:13
any any final words? Any any parting words? >> No, I don't think so. It's just been
01:46:17
it's been such a cool opportunity to chat and you know I I can I get the sense and understand not only from this
01:46:22
conversation but from from listening to your podcast and and from having met and
01:46:25
known you before as well that you're someone that that thinks about you know
01:46:28
these these challenges in life and how we can best sort of overcome them and and and I know that you've exhibited
01:46:34
great resilience at different periods through your own journey as well. And I think that that's probably why we've
01:46:38
spent nearly sort of two hours talking about it is because um for you, for me, hopefully for the listeners as well, um
01:46:44
we've seen and understand what a powerful and profound impact that resilience has in the course of our
01:46:49
lifetime. We both understand that as as hopefully everyone listening does that that there is this inevitable adversity
01:46:54
we all go through and we all face. Um but it's been a really cool opportunity
01:46:58
to sort of yan through and chat and unpick a little bit with you with you here now. So, thank you for the
01:47:02
opportunity. >> It's been great, mate. Jake Ba, thank you so much. Cheers, Dom.

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  • 75
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Episode Highlights

  • The 4S Model of Resilience
    Bailey introduces the 4S model: Slow down, Salvage, Streamline, Stand alongside.
    “Resilience is just like any other skill. It's something which you can learn.”
    @ 01m 49s
    November 05, 2025
  • Toxic Positivity Discussion
    Exploring the concept of toxic positivity and its implications in life.
    “I was once accused of that by a student.”
    @ 15m 37s
    November 05, 2025
  • Cancer Diagnosis Impact
    Discussing how a cancer diagnosis shifted his life trajectory.
    “The experience of the cancer has definitely shifted my trajectory.”
    @ 20m 59s
    November 05, 2025
  • The Speech That Went Viral
    A high school speech delivered during a cancer battle unexpectedly gains international attention.
    “It’s just preposterous to watch your high school prize giving while dying from cancer.”
    @ 33m 44s
    November 05, 2025
  • The Emotional Toll on Parents
    He reflects on the burden his illness placed on his parents, who had to remain strong.
    “For my parents, this was the worst thing they had ever had to go through.”
    @ 41m 22s
    November 05, 2025
  • Cancer and Resilience
    Discussing the journey through cancer and the importance of resilience.
    “You can go through cancer and come back out fitter and healthier than before.”
    @ 48m 29s
    November 05, 2025
  • Awkward Conversations
    Exploring the discomfort people feel when discussing cancer.
    “I completely get and understand why there is that discomfort around talking about cancer.”
    @ 53m 01s
    November 05, 2025
  • Reflections on Diagnosis Delays
    He expresses no hard feelings about the delay in his diagnosis, focusing instead on the learning opportunities.
    “I genuinely have no hard feelings around that.”
    @ 01h 07m 33s
    November 05, 2025
  • The Pain of Treatment
    He shares the horrific experience of a bone marrow aspirate, highlighting the intense pain he endured.
    “It was horrific and I remember crying.”
    @ 01h 14m 22s
    November 05, 2025
  • A Journey of Gratitude
    Reflecting on his cancer experience, he expresses gratitude for his recovery and the responsibility he feels for others.
    “I carry a whole lot of survivors gratitude.”
    @ 01h 22m 54s
    November 05, 2025
  • Endurance Sports and Resilience
    The speaker reflects on how cancer led them to embrace endurance sports.
    “Endurance sport has been a really big part of the last sort of five or six years for me.”
    @ 01h 32m 46s
    November 05, 2025
  • Equipping Young People
    The speaker emphasizes the importance of preparing young people for life's challenges.
    “We can send them out into the world armed to deal with things better.”
    @ 01h 41m 46s
    November 05, 2025

Episode Quotes

  • Tough times are just an inevitable, unavoidable part of life.
    Jake Bailey on Facing Death at 17, And The Viral Speech That Changed Everything
  • I was never going to die in my head.
    Jake Bailey on Facing Death at 17, And The Viral Speech That Changed Everything
  • It was just what we all have, the ability to muddle through.
    Jake Bailey on Facing Death at 17, And The Viral Speech That Changed Everything
  • It was just a matter of doing what the doctor said.
    Jake Bailey on Facing Death at 17, And The Viral Speech That Changed Everything
  • I carry a whole lot of survivors gratitude.
    Jake Bailey on Facing Death at 17, And The Viral Speech That Changed Everything
  • You can feel bad and feel down and feel upset sometimes.
    Jake Bailey on Facing Death at 17, And The Viral Speech That Changed Everything

Key Moments

  • Fourth S: Stand Alongside11:35
  • Facing Mortality26:39
  • Parents' Emotions40:50
  • Reality of Cancer56:12
  • Pressure Builds1:15:57
  • Gratitude for Life1:16:26
  • Ready for Change1:31:24
  • Equipping Young People1:41:40

Tension Over Time

Words per Minute Over Time

Vibes Breakdown