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Dai Henwood on Surviving 28 Rounds of Chemotherapy & Not Losing Hope – Living with Incurable Cancer

November 17, 2024 / 01:23:58

This episode features D Hinwood discussing his cancer journey, the impact of his documentary series, and the importance of sharing personal stories. Key topics include coping with a cancer diagnosis, the role of family support, and the emotional weight of treatment.

D shares his experience of being diagnosed with cancer in 2020 and how it led to creating a book and a three-part documentary series titled "Liv and Let Die." He emphasizes the importance of leaving a legacy for his family and helping others facing similar challenges.

The conversation touches on the emotional aspects of treatment, including the support from his wife and mother. D reflects on the vulnerability shown in the documentary and how it resonates with viewers, highlighting the importance of open communication about feelings.

D also discusses the challenges of chemotherapy, the mental strategies he employs to cope, and the significance of hope in his life. He shares insights on how his perspective has changed since his diagnosis and the lessons learned along the way.

Throughout the episode, D expresses gratitude for the support he has received and encourages listeners to share love and positivity with those around them.

TLDR

D Hinwood shares his cancer journey, documentary impact, and the importance of hope and family support.

Episode

1:23:58
00:00:05
D hinwood welcome to my podcast hi it's a pleasure to be back it's actually been
00:00:10
a while it has it's been like a a yeah last time we had you on was the um early
00:00:14
in 2023 uh shortly after you went public with Jackie Brown on um the project about your cancer diagnosis and I was
00:00:23
all a bit nervous about about being sort of public with things and one I'm stuck
00:00:27
I'm still here feeling good and and looking okay and uh also you've grown as
00:00:33
well so it's pleasure to be back oh it's great to have you and when not only are
00:00:37
you still here like since then um you see you've gone from being diagnosed with cancer in 2020 spending the first
00:00:44
sort of three years of your diagnosis and the sort of Darkness I I suppose just coping with it since then you put a
00:00:49
book out which focus on it focuses on it and a three-part documentary series which is just gone to here yeah they
00:00:55
they were both two things that um I really wanted to I suppose on a selfish level give to my
00:01:04
family leave as a legacy whether I'm here whether I'm not and also to be able
00:01:10
to to help with the public people who are going through a similar thing people who know people who are going through
00:01:16
cancer or chronic illness cuz once I'd done that interview with Jackie Brown on
00:01:20
the project and people contacted me and they I was like [ __ ] actually this is resonating with people and sharing my
00:01:28
story a few things I've learned my perspective was resonating with people and and since the Dockers started going
00:01:34
to air I've been contacted by patients and even by people who whose family members have passed away and said
00:01:42
watching this gave me a frame of reference for what they were going through um they might have been people
00:01:49
who who you know weren't articulate I'm blessed of this as my job articulating
00:01:53
my feelings is my job so being able to put it out there and and help people is so atic and that selfish thing of sort
00:02:01
of by helping other people you you help yourself yeah so we're recording this on
00:02:07
a Wednesday so the the final episode of Liv and Let Die goes to Air Tonight on 3
00:02:13
so by the time this podcast comes out anyone that hasn't seen it you got to watch it it's on three plus it's it's
00:02:18
it's masterful actually just before we we came here for the podcast today I was
00:02:22
in a the cafe down the road and um you're on the front page and there's a
00:02:26
big review in the entertainment section and it's a great review but I'm wondering like even if was a [ __ ] review
00:02:30
would that bother you no what this is the weirdest thing I've done you know I
00:02:36
I think back to probably one of the more nervous shows I had going to air was when I did Family Feud like I'd moved to
00:02:44
because people were investing in a 5:30 game show I was a late night comic no one we had a bit of cultural cringe so
00:02:52
you know like the second the ratings come out how how are we doing oh God I don't want to look at the reviews with
00:02:58
this it's like I don't really care what the ratings are like and you'd you'd
00:03:03
have to be pretty Savage to give it a rough review like like it's it's a bit
00:03:09
easier it's a bit easier to give my comedy a rough review than this so but but then I was just reading someone sent
00:03:17
me a review I think it was The Herald Review or the spin-off review and just the beauty that people have have written
00:03:25
about it have made me feel so blessed and also I let it all hang out like I let it all
00:03:32
hang out my rule to myself was I'm going to just live and do everything and I
00:03:38
don't care what I look like and I'll Trust these people who are making the
00:03:43
show to not make me look good but to to carry it with some sensitivity and Justin Hawks who
00:03:52
directed it was masterful uh Dom Freya who shot it it's just beautiful it uh my wife watched it which um I I
00:04:04
sort of that that was the person I was most worried about about seeing it she's
00:04:09
very private person um and obviously she's been the person who's really been
00:04:14
wearing this diagnosis with me and she she really liked it and and it it touched her and she said this
00:04:25
conveys the heaviness of what being in treatment is like and this conveys this roller coaster of of emotions and plus
00:04:35
everyone's reached out on Insta and emailing me and I've tried to get back
00:04:40
to everyone and and it's just been beautiful so thanks to everyone who's
00:04:45
watched it yeah it's an outpouring of love I mean it's just it's it's [ __ ]
00:04:49
sad to watch because it's just a it's a a reminder that you know [ __ ] things
00:04:53
happen to good people and you you are a good person I was going to ask you about
00:04:56
your wife yeah because she had your mom's very prominent in it um and we'll
00:05:00
get into your mom what a delight oh yeah um but your wife yeah and your kids are
00:05:05
in it as well to to a degree but um not your wife was that so it's very interesting cuz it was like
00:05:12
um it was a conscious decision my wife not really being in it she's in a small
00:05:17
FaceTime in it and then it was like oh is it like conspicuous that if she's not
00:05:23
in it like is everything okay with you guys sort of thing but then it was like no this is our life she is a private
00:05:30
person I'm a I'm a public person and I think it conveys both in the book and in
00:05:37
the in the doco how much I love my wife and how how amazing she has been for me but also she's a different person and I
00:05:46
I need to respect her her sort of boundaries and and her wishes around it too so when when did you first get a
00:05:53
copy of the uh the show to watch when did you get the Vimeo link did did did you watch it with your mom and your wife
00:05:58
or it was so the weird thing was I made this with friends right so everyone it's well I
00:06:05
mean it's like you know working in this industry long enough whether it be radio
00:06:10
or TV you meet people they become your mates and you end up sort of working here and there with them so when it
00:06:16
first was edited I remember going out to South Pacific pictures who I produced it
00:06:22
with and sitting in a little theater there just me and the um directors it's
00:06:27
very different to when you make another show I say let's get some beers some
00:06:31
pizzas we'll get people around we'll watch it have a watch party this is like
00:06:35
[ __ ] this is pretty heavy bro let's just have two of us yeah and watched it
00:06:43
and it was so emotional but also so uplifting for me cuz I was like so nervous about what it was going
00:06:55
to be and then I was like this is exactly what I wanted it to be and then my best friend Mikey Carpenter
00:07:02
graded it which is like making colorizing it so giving it a flavor and and an even color and all
00:07:09
that and I had to go in and watch each episode separately with him CU he he's
00:07:13
the guy who drives me to every chemo and stuff so it was hard and huge for him uh
00:07:20
to do it so watching it was tough and then um got the Vimeo link then of course always nervous cuz I'm like okay
00:07:29
now Mom M's got to watch it I hope she's happy with how she comes across yeah
00:07:33
it's very personal and then Mom was really happy with it and Mom's a super
00:07:37
proud person and so so she was awesome and um I was just sto my daughter was so cute in it as well I and your son he
00:07:46
seems geez the Apple doesn't fall far from the tree um yeah there's some light moments
00:07:52
in there like you mentioned Mikey Carpenter um so he drops you off to chemo and he's gives you a hug and says
00:07:57
have a good one um just kind of what you're saying weird you you don't think
00:08:02
about that till after right yeah and then there's like Brenan love grve like
00:08:05
having a Dary in front of you like okay you just mentioned my favorite part the whole he has to be the only one in a
00:08:14
cancer documentary smoking a cigarette was that was that for comedy so it wasn't
00:08:20
in number two he's smoking inside which hasn't happened since like the two 2000s the best part is it's not
00:08:30
in the Doo we're standing the gigs about start he gets his name gets called he
00:08:36
hands me a cigarette so I'm holding a cigarette he storm runs off then he comes back and oh [ __ ] [ __ ] uh this a
00:08:44
cancer dog I've just given a go cancer or cigarette um uh just H so from a personal point of view
00:08:54
that's my favorite moment in it but the awesome thing is cuz I've got the the
00:08:59
comedy element of it and it it it traces me building up for the show at the state
00:09:05
opera house it's a nice tool to bring a bit of levity and just a change of pace
00:09:13
from the the heaviness of sort of the chemo shots and then um a lot of the stuff that happens in Japan is so
00:09:20
emotional as well so the comedy is a nice vehicle in there and also it's a um
00:09:27
it's nice to show how your work material from a tiny little place in devonport
00:09:33
through to a a sort of big 1 and a half thousand Ceder down in Wellington yeah and and that was special I'm getting a
00:09:40
standing ovation at the end oh that that was that that theater so special to me that standing ovation
00:09:49
was the most emotional part of my comedy career and what was the the absolute cheery on
00:10:00
top was that that standup show I was so proud of on a creative level so it wasn't like hey these people are
00:10:12
clapping me for my body of work and for the entertainment I've done over the
00:10:19
last 20 years the show was awesome like the hit rate of laughs for that whole show was huge the um Samantha hu warmed
00:10:28
up for me and Justine Smith were amazing so it was an awesome show as well so it's cool having a show you're super
00:10:34
proud of plus the outpouring of emotion and this whole thing has shown me and I've I've since done that show up in
00:10:43
Oakland and I did it went down to Christ Church and did it and it's cool you know
00:10:50
in this world now that's quite feels quite divisive with you know everything
00:10:57
that's going on in the Middle East America to to an extent New Zealand but thankfully not as much but you know
00:11:05
political parties feel more divided people feel more divided seeing everyone come together
00:11:12
and have a laugh and then I'm meeting people who are from completely different
00:11:17
walks of life might have completely different political views but we're all just having a laugh and that's like [ __ ]
00:11:23
humanity is good souls are good and and it's it's been a bit of a tonic for me
00:11:30
just seeing how many beautiful people there are out there yeah but I mean that yeah that's
00:11:38
that's sort of a community that you've built by because you know you you um you
00:11:41
radiate love so I suppose it comes back to you and it's uh it's welld deserved
00:11:46
and that's that's the thing is I love and and positivity and there's a fine
00:11:53
line though between positivity and sort of toxic positivity if that makes any sense like
00:12:00
there is a bit in the um spiritual sort of community or um I almost call it conspirituality
00:12:10
online there's also sort of a sort of conspiracy spiritual element of people
00:12:16
who are selling snake oil and that there can be quite a lot of toxic positivity of no you've just got a smile it's going
00:12:22
to be okay and just gen General positivity I have [ __ ] times I cry I deal with anger and all the same
00:12:31
emotions everyone does but I've just got to a place where I can realize that
00:12:38
that's just part of my sort of climate if you will and it changes anger comes
00:12:43
and goes like rain does and happiness comes and goes and and I've got a little
00:12:48
toolbox of how to how to keep myself happy in hard times yeah when did you last cry there's
00:12:54
there's a lot of lot of Tears in this documentary a like it's the most Raw and
00:12:59
vulnerable and open and honest I've never cried I I have never cried in front of someone before and then I went
00:13:06
well I certainly have Chang i' certainly changed that is this your first time
00:13:10
crying on TV on any yeah yeah yeah yeah yeah um I I I mean as weird weirdly the only
00:13:20
time I used to cry in front of people was um when I was a PID and you get a bit emotional at the end of the night
00:13:29
if you're on the J and um this I didn't plan to cry and I had some of the biggest cries I've ever had
00:13:43
but what this this whole diagnosis has taught me and um and my wife sort of taught me as well is [ __ ] a big cry can
00:13:54
sort things out oh it's cathartic isn't it so like just when you feel it
00:13:59
building up and now I'll get to a point where I've been having a lot of tension
00:14:04
around scans or like um I'll go back to this but [ __ ] [ __ ] got a lot worse for
00:14:10
me after that documentary on the cancer side of things and when stuff's going bad I can feel it
00:14:17
building up and I'm like oh right a cry is coming I just need to get sort of get
00:14:24
home and just let it happen and um some with same with my wife and it's something I've learned now is going oh
00:14:33
no if someone's having a big cry my partner's having a big cry I don't need
00:14:38
to make them better which is a very I think it's quite a guy thing is we need to solve
00:14:45
problems we need to fix things I just need to be there for her so and then that same with me is I've just got
00:14:54
to cry and get it out what are they are they like frustration tears sadness tears gratitude tears at times um it's
00:15:04
sadness and anger a lot like um so after the doco finished I got back from Japan
00:15:13
Japan was sort of the last major part of the doco that we we shot and then I got
00:15:20
back and my breathing got really bad and just before Christmas I went and saw my
00:15:26
oncologist and saw that um I had a tumor sort of on my Airway that was starting to to to close off my right lung and so
00:15:36
I went back into chemo and that knocked it back but not quite enough and then um I had a little break
00:15:44
from chemo and then my lung collapsed um cuz the the the right lung got cut off so the top of my right lung collapsed
00:15:52
and so then I went into hardcore radiation and then I just recovered from that and now I'm back into to Cho my
00:15:59
breathing's a lot better but so the tears come from the reality of things and just the
00:16:08
can I just get [ __ ] have a break like can I just get a break cuz it's like
00:16:16
every appointment is bad news it's not it's like can I just once go along hey things are going
00:16:25
pretty good at the moment we're stable let's just step some time off you know
00:16:30
it's like no right get back in the trenches I've just finished round 28 I
00:16:36
think it is of chemo which I worked out means in the last four years I've been
00:16:41
I've done basically a year straight of chemo CU it happens in two week Cycles
00:16:47
so between that and then when I TI it all off of like six major surgeries and countless days of radiation and that
00:16:57
I'm like [ __ ] the time what I've gone through in the last four years considering I was a I consider myself a
00:17:05
healthy person pre cancer right I'd always go to the doctor for checkups but
00:17:11
I didn't have a lot of serious ailments you know and then now I've definitely
00:17:17
got my oncologist on speed dial yeah yeah I got I have got a good context list of Specialists tell you there yeah
00:17:26
you were you I remember like we used to I used give you Kudos on straa like pre-diagnosis you were building up your
00:17:32
running um you'd come in for interviews when we were on the radio and you're
00:17:36
obsessed with Cups of Tea like you were very um yeah you were very Zen yeah I was and i' sort I've sort of embraced
00:17:43
that and um there's a runner actually who's become an inspiration for me who's been
00:17:51
through some serious cancer stuff um Tommy rivs I think oh yeah yeah I know Tommy like an ultra marathon he's
00:17:57
incredbly incredibly handsome and a a beautiful aesthetic on his Instagram page as well oh um how he's one of those
00:18:03
guys I looked at his Instagram page and you know you go well I've been doing
00:18:06
this wrong you know what you go he's thought his entire every post so col matches and but so he he had like a Ser
00:18:16
he's only got like something like 20% lung capacity and and he's back Runner these
00:18:25
huge um things and as people like that were I just he's someone who just grabs life
00:18:32
you know and it's people like that and I I I look at people like him and that
00:18:39
as as mentors in a way I've got lots of mentors who I don't know you know
00:18:45
because now with the the beauty of podcasts of social media you can actually get to
00:18:53
learn about people and they can become a mentor without having to meet up with them if you know what I mean you can
00:19:00
take inspiration from them yeah pick their brains sort of vicariously yeah yeah um yes so the physical stuff so you
00:19:06
touched upon the six major surgeries and as we saw on the TV a massive massive back Sky yeah massive um yeah you you
00:19:15
you you show everything and it's incredible yeah cuz I didn't want to I suppose I didn't want to gloss over
00:19:24
anything and I didn't want to dwell in anything I just wanted it to be pretty
00:19:28
straight up and honest yeah I've got these scars I got one that's sort of
00:19:33
like half an angel one cuz I've had three lung surgeries one they went through my back the other went they went
00:19:39
through under my right Peck and um on the other ones on the other side so I got two uh two different surgeons
00:19:48
did them and it was interesting cuz when I got the second one she was the um she
00:19:52
goes I bet you I can see you up better than the they had a little rivalry and then when I went to see a me un nailed
00:19:59
that like just fan yeah and she's look look at that so A buter and yeah that that was what I was nervous about
00:20:10
is I got the got the call from Justin and he's hey how do you feel about sort
00:20:14
of being naked in the studio and we film your scars and you know of course that's like
00:20:22
oh I'm want to be in good shape and then I'm just like actually I'd just be just
00:20:29
be me and I'm stoked I did that and it's also it's a reminder for me as well when I
00:20:38
watched it of going wow you've gone through all that and you got a smile on your face so that's Primo yeah you're
00:20:48
man you're so you're so resilient um so where are things at now with the chemo you're you're on chemo at
00:20:53
the moment yeah so so I did last week chemo so basically say like I'll do it on a
00:21:01
Wednesday it takes two days to infuse it 4 hours in the hospital and I take away
00:21:07
a little baby bottle that's in a little um Lululemon bum bag erotically the best no this is this
00:21:16
is the funny thing right so I um go do like the colon cancer Reddit and I'm like right cuz cuz every every cancer
00:21:24
has different type of chemo right some people just do it one day for a certain cancer then you'll go back for for bowel
00:21:32
cancer you typically take it away for two days in a baby bottle so I'm like hey what's the best like bum bag for
00:21:41
these and then so many replies and they're like okay you got to get the small Lulu Lemon one I think they only
00:21:48
sell it out of the store in Canada but it fits the bag it fits the bottle perfectly ordered it it's the best thing
00:21:55
my God and oh you're walking around you're around um the chemotherapy where
00:22:02
hey where' you get that that's perfect size wasn't endorsement yeah so so it's
00:22:08
amaz I don't know if the when they designed it they thought that that was the exact perfect thing for it and
00:22:15
um and so you build up like this sort of toolbox of things so yeah I take it away
00:22:21
for two days and infuses for 48 hours plugged into my chest um and then I'll
00:22:27
go back so so start on a Wednesday go back on Friday get unplugged then the real hard time start cuz you're off the
00:22:37
sort of intense drugs that keep you pepped up and everything going so you're
00:22:42
detoxing from the drugs and your body's detoxing the chemo cuz it's like if
00:22:49
you're on a bender on the piss for two days and your body's just trying to get
00:22:52
rid of the poison so everything's working overtime and then by Sunday I have
00:23:00
usually sort of come right for me I have found when I'm in my sort of chemo time
00:23:10
and that if I'm fasting and sort of there's some interesting science now
00:23:17
around keto and carnivore sort of stuff and its positive effects around chemotherapy and and so forth so I've
00:23:25
been investigating that and I found for me I cannot for anyone else everyone's
00:23:29
journey is different for me that has massively helped me get out of the The Fog quicker and then by Monday I'm sort
00:23:38
of okay on Sunday I'll start hitting ice bath and sauna to get my blood going in and out and for me I
00:23:49
found um in my for my brain when I get depressed or start spiraling with mental health I'm I need to change my state so
00:24:00
I need to get in cold or really hot and that just shakes me and um I don't know
00:24:09
any of the science around ice baths and that but for me it makes me mentally feel good so I do it and yeah it's that
00:24:16
it's building up the toolbox and because I've been in this game now for 4 and a
00:24:20
half years the toolbox is getting better yeah that's a lot of chem said 28 28 29 yeah 20 I think I I think it's 28
00:24:31
I've just done my 28 so you do it then you have a break then you do it again
00:24:35
and you it's like a s but done you've managed to do all this work as well like
00:24:39
with half your calendar block you know blank out yeah I've just looked and somehow during the next four rounds of
00:24:46
chemo I'm doing a seven days tour uh I'm better at booking things now around it so I do it in
00:24:54
six six uh chunks six um chemo chunks which is roughly 3 months right so I was like I wanted to start sort of September
00:25:07
and then get through to December and the beginning of December I'll do my last
00:25:12
round so I could then just take a break over Christmas and New Year and then gauge how things are and it is that the
00:25:21
plan is just to stay on the road until there are some more advancers m M and things are moving in the cancer
00:25:33
space weirdly AI is actually this is cancer is one of the things AI is going to massively help
00:25:43
because it can just the computational thing is it can just run run all the different models of
00:25:49
drugs and it can sequence genes heaps quicker and that and the the aim I suppose talking to a lot of cancer
00:25:57
researchers is in a way not trying to cure cancer is trying to get cancer to a point like diabetes where it's a chronic
00:26:05
illness but you can manage it so they're trying to find a combination of potentially drugs that are out there
00:26:13
that already exist that you can combine to take to just keep things stable so like how are you today like
00:26:21
you see you seem good you look good you're articulate you're sharp that's
00:26:25
the thing that that question there is what people need to ask people with cancer not the
00:26:33
big so how are you more like how you doing this morning man cuz today I'm great you know if You' asked me that on
00:26:42
Saturday oh was [ __ ] I was in bed today I'm great we had planned a a trip to to
00:26:49
see some family over in Sydney tomorrow I'm going to the Grand Final NRL Grand
00:26:54
Final with my wife and two kids so it's cool I've got some excitement to look
00:27:00
forward to but then I land back in New Zealand Tuesday afternoon and I go on to chemo Wednesday morning
00:27:07
so my timelines are so different now and that's often where tears come from is from
00:27:18
jealousy of seeing like you know like a mate a mate would text um like like like
00:27:27
Bryce Casey is good mate he texts hey do you want to play golf and then he's like
00:27:31
oh I can't I'm in chemo and that's for 5 days you know and then so it's just
00:27:38
those little things then I'll be sitting Kemo going oh he's just left working
00:27:43
sunny out there and he and and I suppose that that jealousy thing of seeing people just living everyday lives and
00:27:56
that gets Amplified by social media because Instagram is the highlights of everyone's day so I have
00:28:05
to be very careful like for instance I'm going to turn off my email turn off delete Instagram off my phone
00:28:15
and so when I'm on holiday I'm just in the moment creating my own memories with
00:28:20
my family and then when I'm in chemo I try not to look at Instagram and that cuz it
00:28:27
just Sparks you know fomo yeah the the worst kind of fomo not the fomo where you're just at home and you're not at
00:28:34
the party the fomo you're having chemo and everyone else is rocking he said cho fomo cho
00:28:42
fomo ion Bryce case he probably knew and he thought oh this is a chance to like beat
00:28:48
D yeah do you go all right do you go all right with the golf for how long I've been playing
00:28:55
definitely not definitely not th hey this is a this is an example golf's one
00:29:01
of them and ukulele is one of them for me right I reckon everyone should have something that they do as a hobby that
00:29:10
they're [ __ ] at that they never want to do publicly right I love performing I love playing
00:29:18
the ukulele and I'm so bad at it and the I would never want to do it on stage but
00:29:25
I love doing it by myself someone everyone should have a hobby for them that's just for themselves paint it
00:29:33
doesn't matter if you're [ __ ] at painting and for me that's a good outlet
00:29:37
and I don't know why I still play golf I've been the same level of [ __ ] for
00:29:44
like 10 years but I really 10 years oh oh you've done your 10,000 hours I've
00:29:50
done oh you're going to drop it son look I am living evidence that Malcolm Gladwell is a liar
00:29:59
oh it's enjoyable though isn't it I reckon I played very little golf but you
00:30:03
know you can have like a hundred [ __ ] shots and then one where you just connect and it doesn't hurt and it makes
00:30:08
that sound and the ball flies where you imagined it was going to fly and that's
00:30:12
enough to get you back yeah and that that is what I do it and also I do it because unfortunately with a lot of the
00:30:19
the lung stuff like for me my meditation exercise thing was like running and as you know when you step out of running
00:30:30
say for 3 months that first run is like hold on how do I used to just bang out 20ks 3ks is feeling pretty rough you
00:30:40
know and for me now with the lung stuff it's like oh actually this is not a push through
00:30:47
moment this is a you know this is a look after yourself moment so I'm aware how
00:30:53
important for your mental health and your physical health getting some exercises so for me like
00:30:59
golf is sort of slow exercise but I'll go and walk for 4 hours you know now now
00:31:06
I'm sort of more I'll walk the dogs and do and do bigger walks and now I'm
00:31:13
starting to to breathe a bit better I'm looking at sort of getting into the to
00:31:17
the runs and like my um my son's liking a bit of running so we want to first
00:31:24
goal is to try and do you know do a bit of training do a park run together the little 5K cuz I discovered
00:31:33
Park runs when I was sort of trying to not drunk get off the piss slowly and as a tour and comma cuz like oh I'm in
00:31:42
Melbourne look at a park run Edinburgh there's a park run you know and then you
00:31:47
could have these things that you could just keep track of all around the world and then oh there's one in Western
00:31:52
Springs you know so and it's cool cuz 5Ks is a 5Ks I believe is a great distance for an amateur runner cuz it's
00:32:05
that it can either be a real challenge if you're getting into it or if you're
00:32:09
in the Rhythm that's something you can really push for you to B A Time yeah no it's great anyone that
00:32:17
hasn't done a park run I recommend you do it um yeah they have them all around
00:32:21
the world it's free logs your times it's pretty brilliant and there's also I
00:32:25
noticed it's really a real cool crew of people show up to those things it's neat
00:32:32
it's a tribe he yeah it's a tribe um so yes so the chemo does it get any easier
00:32:39
you know how most most things you do in life like say you're scared of a bungee
00:32:42
jump you do a bungee jump by the time you've done 28 29 bungee jumps you know
00:32:46
it's is is that is that how us with chemo or no is it difficult the so the first nine rounds I
00:32:54
did um was the heaviest Kemo done and it was this drug uh I'm probably not pronouncing it correctly it's oxy
00:33:03
plantin and it gives you neuropathy so where um any change in temperature feels like electric shock so I was wearing
00:33:12
gloves to get milk out of the fridge um an amazing thing is that's the chemo Dean
00:33:21
Bara was on and I was talking to him about it and he was Bloody training for the America's Cup while doing it so he
00:33:27
like heated gloves and stuff while he was out on the water because it gives you this um this
00:33:35
neuropathy then I moved on to one that is what I'm doing now is slightly easier in terms of it doesn't
00:33:45
have that side effect but it doesn't get easier some rounds are easier than others
00:33:52
but that has no Rhyme or Reason like I'll sometimes I'll be [ __ ] I'm not in
00:33:58
the zone for this I'm just going to struggle then I don't find the round
00:34:03
that hard and then other times I'll feel like I'm dialed in and the round will be
00:34:11
epically hard so n unfortunately it does never gets easier because in this documentary you say it's um chemo is a
00:34:18
5-day punishing hangover hardest thing I voluntarily done I suppose you to continue that analogy you know sometimes
00:34:25
you can you can drink and you wake up the next day feeling fine other times you have like three beers and you wake
00:34:29
up with their hangover no it's completely like that yeah when you're like oh I didn't even drink that much
00:34:34
why do I feel you don't drink that much and you're like [ __ ] this is lingering a
00:34:38
couple of days or no it's it's exactly like that and I just liken it I think to
00:34:44
booze because it's your liver processing poison when you drink too much alcohol and but the sad thing is
00:34:52
you don't have any of the the good times around it and I've also buil up I use the term toolbox a lot like I
00:35:02
now have found there's a drug like a a sort of anti-anxiety drug called lorazapam that
00:35:10
that people might be familiar with I've found that now I take that a small dose of that before I go
00:35:17
into chemo a small dose of that at the end of the first infusion and it's almost like a bit of an amnesiac it
00:35:24
helps me sleep it takes away uh cuz you get associative nausea with chemo so I'll get nausea pulling into the car
00:35:35
park before I've even got the chemo because your body's like this is where
00:35:41
this is where it goes down that that helps with that I I sort of only discovered that around round 20 so you
00:35:48
know and then once I had that I was like oh wow this is a game changer and it also combats the um you have a drug
00:35:55
called dexamethasone which a give you which is the drug that um Donald Trump took when he got
00:36:02
Co and he took so much makes you quite crazy he took not that he needs more of that he was crazy before that and he
00:36:11
took a heavy dose of that right and he ordered a Superman suit sent to the hospital cuz he wanted to walk out of
00:36:17
the hospital rip his normal suit off and he had a Superman suit on underneath at
00:36:23
his eyes there's a great New York Times article on this at his eyeses intercepted the suit and managed to talk
00:36:30
him down cuz this it's almost like methampetamine like it you feel so it's a heavy steroid
00:36:40
so it's what helps is antor it keeps all your organs going but um coming it means it's very hard to
00:36:48
sleep this lorazapam sort of helped that um medical marijuana alongside that so you do get you do figure out and you
00:36:58
also find out your limitations you know of going when I need to lie down when I need to rest what food makes me feel
00:37:07
[ __ ] what food makes me feel good you I mean before before the cancer you were I
00:37:12
think quite in tune with your body I guess you're even more so now but do you
00:37:15
have like how do you how do you get up for each round like you um from a mental perspective the hardest thing is after
00:37:22
so now I'm going say weake out from doing another one but I'm still in the phase where I if I
00:37:31
think about it I'm like I can't do it I can't do it but then I find a couple of
00:37:37
days out I'm like oh I think I can do this and then it's inevitable it's just there and then I
00:37:49
break things down into chunks of okay just got to get home and have a rest you know know I plan a few shows
00:37:59
I'm going to watch I take it easy and um then I come out the other side and then it's that mental thing of
00:38:07
okay I've done three out of the six and because you can only do chemo if your
00:38:14
Bloods have come back to a level because it kills so many of your healthy blood cells right so you have these things
00:38:22
nutrifil and you need them above a certain level to do the chemo so after I've done four rounds of chemo I have an
00:38:30
extra week break so I have two weeks in between rather than one week so now I'm
00:38:34
like right I'll get to that fourth one now I got two whole weeks you which to
00:38:40
most people are like two weeks but to me I'm like two weeks man that's huge what
00:38:45
am I going to do I'm might write another book definitely not writing books is
00:38:50
very H do you think um when would it get to the point where you think n that's it
00:38:55
I'm done no more chemo I'm I'm just done can't face another round you're talking the dock about
00:39:01
thing called cheemo resistance like do yeah you I'm sure you'll get to that
00:39:06
chemo resistance point before you you give up yeah so well I mean I an example is I I do chemo alongside a drug called
00:39:15
a vastin which um mck with a blood supply to tumors and this chemo is working less than it
00:39:24
did at the beginning and then I've got enough drug chemo and it's not chemo but
00:39:30
it's administered alongside chemo that I can move on to and then I think that might be the
00:39:38
last drug I can the last option I have in that on that sort of toolbox that that Arsenal so
00:39:48
I at the moment I can do it because for me three month blocks is manageable right six is manageable and then have a
00:39:59
have a breath recalibrate get everything back as as sort of healthy as it can be
00:40:07
and then and then go again and then I'm constantly researching I'm constantly
00:40:14
looking you know I'll spend I'd reckon I'd average an hour to two hours a day reading medical papers
00:40:21
researching things you know um I've become uh huge cat GPT guy just how good is that
00:40:33
just for you know I'll get 10 PDFs on a certain thing around cancer put them all
00:40:41
into chat GPT analyze what are the what are the commonalities between these things and
00:40:49
i' I've found AI when you're actually when you are giving it a corpus of data so it
00:40:56
can't hallucinate by going on the web and making things up it's it's it's
00:41:01
amazing and it's a great leveler because it means it can interpret a three page
00:41:07
scientific PDF I'm not qualified to read and it can put in layman's terms then if I see
00:41:15
something interesting from the outcome I'll will go and double check it and all
00:41:19
that and for me I'm a I'm a curious person so that helps me and I'm always keen on
00:41:29
trying new things trying diet interventions trying maybe some offl label drug interventions that as long as they're
00:41:38
not conflicting with my standard of care and I run everything past my oncologist I'm I I'll do it cuz I then I
00:41:47
feel like I've got some agency over it I'm actually advocating for my own
00:41:52
health and is it is shown that people who people who buy into their own thing and become active
00:42:00
patients have better outcomes rather than just passively doing what they're told I sort of do
00:42:09
what's recommended but I like to cheuck on my own to Cent I think that's the
00:42:14
right thing to do as well like it's a there's a quote from I think Socrates
00:42:17
that um you know you're a fool if you're not your own doctor yeah um and the
00:42:22
information's out there so you should explore it 100% And also it's that thing
00:42:25
of don't people shouldn't be scared of things I'll read stuff like something might might be
00:42:35
considered snake oil or there might be it might be an off Lael drug that people are using and then everyone's like why
00:42:42
no that's all conspiracy it's all [ __ ] and then I'm like well why are
00:42:47
the why is this huge community of people using it so then I'd like to investigate
00:42:52
that and it's keeping an open mind on everything I think cuz you don't have to do it but
00:43:00
you may as well investigate it giving yourself every possible chance for a successful outcome isn't it yeah
00:43:08
and for me it's doing something it feels like I'm I'm not just sitting there I'm
00:43:16
actually making an effort and I do I do try things and and if they work they work or if they
00:43:23
make me feel better they make me feel better and it is just being in tune with your body being in tune which
00:43:32
I I was but I wasn't at the same time oh I think yeah pre-cancer I think you probably
00:43:40
were you probably weren't compared to how you are now but compared to most people you definitely were yeah which re
00:43:46
which is also a bummer in its own its own way and it shows how something can just creep up and that's the freaky
00:43:56
thing about I I I was contacted a couple of days ago by someone marathon runner clean
00:44:05
eer smoo in their face off they're in the same situation as me right they didn't have your history of boozing as
00:44:15
much as I did that they were your glass of wine at a wedding person you know and
00:44:21
they're in the same situation at me so it is a leveler you know and it's
00:44:27
worrying I have no answers as to why this is but it's really worrying how prevalent cancer is
00:44:36
amongst people under 50 and I mean who knows there's no cancer does not have
00:44:44
one cause unless you're sort of asbestos related or something like that it seems
00:44:51
to have multi causes and then you go who knows seems to be quite prevalent in this Gen X sort
00:44:58
of uh you know but then when I look back at the amount of weird Tupperware we were
00:45:05
putting in the microwave and stuff there's probably no surprises yeah yeah [ __ ] it's a lot mate
00:45:14
yeah that's a [ __ ] lot when when did when did your last cry it's actually
00:45:19
been a while for me weirdly when I'm in when I've started chemo I feel quite
00:45:30
resilient it's almost um almost so I either read Zen books or books about SAS dudes going
00:45:40
hard out and so I love too there's no middle ground like reading your Mitch RS and
00:45:47
your Jo yeah Jo just all these sort of hard out guys and um I liking it a bit like that
00:45:56
like it feels like when I'm in chemo I've put my kid on and we're flown in and I'm on a
00:46:04
mission you know let's [ __ ] go let's [ __ ] go let's get through this this
00:46:10
is the end zone then when I get to the end that's when I deal with a PTSD of it
00:46:16
all and well that's that's understandable that's cuz you're broken
00:46:20
right yeah and then I can have a cry and sit back but also it's a cry of like I
00:46:25
did it m got through it like my tumor markers were high you know like like an an example of how perspective
00:46:37
changes for bow cancer they monitor a um thing called CA and um for different people it reacts
00:46:47
differently but for me when my CA is high it means the tumor's growing like I've
00:46:55
proven the link for for my body and then I'm like for me couple of years ago High I'm like
00:47:03
[ __ ] it's 40 right now it's like 260 and I'm like well that's hot like so getting changing
00:47:12
that perspective of going I was at 40 and I so in a normal a person who doesn't have bowel cancer you you'd
00:47:19
probably see three or less um and for me I was like oh 40 right I'll try get through chemo and get it down to
00:47:30
10 and then it was okay I'll try and get it now it's like I'll try and get it
00:47:34
under 100 so it's that thing of moving goalposts yeah the moving goalpost and
00:47:40
what is what is a win for me now would have felt like a massive loss you know a year
00:47:48
ago is it just constantly being prepared to like adjust and change your mindset yeah and also not to live and die by the
00:47:56
numbers and the scans to actually live and die by in the morning I'll get up I
00:48:04
like to go and stand on the lawn and bare feet and just listen to the birds do a bit of sort of chiong or meditation
00:48:11
and that's when I check in and do the how am I feeling how am I feeling right now and
00:48:19
there's a um uh amazing uh person I think she's from Harvard called Ellen
00:48:25
Langer um who they're saying if people check in on themselves more regularly you actually
00:48:34
find you feel better cuz I'll check in on myself four or five times during a
00:48:40
day and I will go I know I'm you know four out of those five times I'm might
00:48:45
go I'm actually feeling good and then I can go no I'm feeling good today it's
00:48:49
like an advanced mindfulness really isn't it yeah and she she was a she's
00:48:53
done a lot of studies around the impact words have right which is a lot why they now don't sort
00:49:04
of work around timelines telling someone they have 6 months to live influences whether they
00:49:11
live six months or not you know if you had the same cancer at the same stage and a doctor tells
00:49:20
person you're you got 5 years mate at least and goes no you've got six months
00:49:27
that actually influences the outcome yeah understand language because people get the Mind Body is all one
00:49:36
thing and how we talk to ourselves and all that so she she became quite she's
00:49:43
done some amazing studies not just around cancer on all these uh uh different things and that's a beauty now
00:49:51
of information and podcast and I would never have heard of her M back in the day but she just stumbled across my
00:50:02
algorithm and completely changed my thinking gez you you're doing some phenomenal work in the space eh yeah you
00:50:10
must be like a I mean it's it's accidental and uh you wouldn't wish it
00:50:14
upon anyone but um you know you're you're the right person for this uh for
00:50:19
this role at this time what's so weird is if you saw my school results you know I would not have thought I'd be
00:50:30
studied looking at scientific papers and being able to um potentially help people
00:50:36
and stuff and it's it's the example of the right person for the right time
00:50:45
never underestimate who you are because that can change you can become someone else don't under sell yourself don't
00:50:58
CU I am a better person now I am a happier person ironically now than I was when say family few for instance when
00:51:12
I now I've lost so much work over the last four years I've lost so much money
00:51:18
due to this for having to turn down projects combined with the fact that the media Landscapes just changed so much
00:51:25
it's not really a lot of TV projects out there but my family few time I was on TV five
00:51:33
nights a week Gigan everywhere earning great money having a great time I'm H I'm ironically happier
00:51:43
now and I have stage four cancer than I was then because I know who I am now and I'm happy with who I am
00:51:54
and I'm proud of who I am I'm proud of who you are too who who would have thought the kid that um was
00:52:00
obsessed with that sex B in your parents Library How well thumbed was that oh my
00:52:06
God oh my God do you um yeah yeah we'll get back to the documentary for a bit so
00:52:12
you you do things like that you're play playing it up for the camera a little
00:52:15
bit afterwards you're like oh God why did I do that yeah always why did I sh and also I saw that again it was um
00:52:23
there's this book sex in the movies that had some good boobies in it and now I'm
00:52:29
thinking back like wow before the internet just one picture of boobs went a long way it did a lot of hard yards a
00:52:39
lot of heavy lifting for many years yeah God you're um yeah that's in your your
00:52:44
family home which your mom has um downsized um God what a special lady yeah I I um yeah I thought thought about
00:52:52
her a lot after watching that so she's um 78 Dame Carolyn hwood yeah um court
00:52:58
judge so she she lost her her husband your dad a couple of years ago um now she's been dealing with this and I'm
00:53:03
sure she's a strong stoic lady but [ __ ] it's a lot to endure it was for a mom of
00:53:08
one it was huge because 2019 I lost my dad 2020 I was diagnosed in the 18 months leading up to
00:53:18
his passing he had dementia so you basically dementia is but when someone's in the throws dementia that is
00:53:28
grieving for someone while they're still alive so we went through that had a buried him sort of
00:53:40
August 2019 then you move into summer Co me being diagnosed April right at the the
00:53:51
beginning end of the co pandemic and we were separated for that right so the only time we saw each other
00:54:01
was like a catch up in a car park um and Mom's she's been a lawyer and a judge
00:54:12
and what was so Primo is being able to have her on my medical team so she'll FaceTime in when
00:54:20
I'm with my oncologist and it's great cuz when he's talking to me I'm the
00:54:24
patient so I'm like my head's just swirling trying to process oh [ __ ] what does this
00:54:32
mean what's that lung thing that whereas she's a bit more critical so then she can answer the
00:54:41
questions ask questions sorry and then also it means when I come out of the meeting I'm not trying to ring her and
00:54:49
relay what happened you you're you're a creative as well and I suppose she's
00:54:53
more of a like an analytical no and she'll be asking me like so what did he say what was his tone there and I'm like
00:54:58
oh uh I think he cuz also words matter so much in those yeah things because an oncologist will never sugarcoat anything
00:55:08
for you they cuz they can't give false hope right so you cling to what they say
00:55:15
and and having her part of my medical team is awesome she's an amazing grandmother she's an amazing
00:55:22
mother-in-law and we're such a a tight unit because I'm an only child she had three siblings and they've
00:55:33
all passed um my dad had three brothers and they' all passed and my dad's passed so we're
00:55:42
a small family you know I've got beautiful cousins luckily uh and it's a small unit so having her
00:55:53
there and it it was big selling family house cuz we never moved they bought the house just before I was
00:56:00
born and I grew up in that house and then Mom luckily sold it downside to a small place in Wellington
00:56:11
and got a small apartment close to us in West ockland and it's cool cuz now we
00:56:16
see more of her um she can sort of be be around and and she was massively helping me while I was came
00:56:26
over this the previous summer and has brought us very close cuz it's honest and she's like me she's
00:56:37
optimistic but also as it goes on you got to be optimistic but then the reality of of it all starts to at
00:56:47
home yeah has has she always been good at showing vulnerability with you and vice versa like you talk about your dad
00:56:54
in the documentary and um I suppose he was a he was a loving dad but a product of his generation so he you you knew he
00:57:01
loved you through actions rather than words and your mom after he got diagnosed with dementia she she made him
00:57:08
uh go and like say the things that he had never never said was she like the the loving one the one that expressed it
00:57:15
with words she did express it with words uh the frame of reference for dad was he's a Welshman who
00:57:26
was bombed his house was bombed to Smither when he was a kid you know they were CU When the Germans hit Britain in
00:57:36
World War I the Welsh Town Swansea where we're from was one of the first towns
00:57:41
bombed where it's where the planes came in so that got leveled you know and so
00:57:47
they took kids and the kids went and hidden the forest and [ __ ] while um the adults were in bunkers and things so
00:57:57
you can't underestimate the mental trauma that that causes people even even as young
00:58:05
kids so yeah we would talk rugby and we'd talk about performing and love came through in that
00:58:16
and I always knew he'd loved me dad you know he loved me to bit and but Mom was probably the you know the more
00:58:28
Huggy she pardon me she was the more Huggy lie with me when I'm sick and that
00:58:34
sort of carry on yeah it comes through it's a special relationship well even
00:58:38
and yeah vice versa with you to to her like there's a card um that she still it
00:58:43
on the wall unit that you wrote when you were 21 which is really really um really
00:58:48
well written like it's really poetic so I hadn't read that since I was 21 and I
00:58:53
read it in the docker and I'd never real realized why it was up there it was
00:58:58
profound and then when I I was like oh my God and I was super stoked that I managed to articulate how much I
00:59:11
love my mom as a young kid because I don't think a lot of people do and I used to like to
00:59:21
write poetry um when I was younger and sort of um that was a creative outlet for me and
00:59:29
I've always liked to express my emotions and cards and I've always been pretty
00:59:33
good at telling people how I feel about them so I think it's really important to tell if you
00:59:42
love someone tell them and tell them why you know yeah absolutely like yeah you're born with a like a a limitless
00:59:49
supply of compliments like it's it's not going to run out no you can don't use
00:59:53
them sparingly no just just dish them out and it is it is amazing how you can change someone's day I think
01:00:05
it was um it got emphasized to me when I was it was years ago actually and it's
01:00:11
was like an in a CF or something and I remember the person in front of me talking to the server
01:00:17
going [ __ ] you look good in that top not as like it wasn't like a pickup line or
01:00:22
anything it was just sh you look good at that top and then when she was serving me I was like she is beaming you know
01:00:29
like they just but like if you think it just say it yeah it's guessing someone up and it's like
01:00:36
you pump someone's tirres up and then everyone and it's that thing of it's
01:00:40
that idea of if you do something nice for someone and you don't tell them or you don't try
01:00:46
and take credit you just do something nice for someone they think the universe is a better place than it is or they
01:00:54
that well as it is they think the universe is a better place so then they do something nice you know like just you
01:01:01
can just do nice things and and do tell people you love them because you never know when you're going to
01:01:10
um you never know when something's going to happen you're not going to see
01:01:15
someone we had we had someone in our wider Community recently who's younger than me just pass
01:01:22
away like that right yeah no no signs and that made me go right I've been dealing with this for 4 years it's
01:01:32
constantly there what what's this sort of what could this timeline be like this
01:01:37
person's just taken and you you hear about that happening and it makes you go what what are the things that people
01:01:47
wanted to say you know would you regret not just taking five minutes to text that person like should I love
01:01:56
you man you thanks for helping me out with that or so so share the love share the compliments and love is one of those
01:02:02
things the more that gets out there the more there feels there is yeah and so how old are your kids now
01:02:12
11 and eight God they're cute kids aren't they they are and I make sure I I
01:02:17
mean I'm the opposite words wise of my dad I tell them I love them all the time I I I'm very open
01:02:27
I'm very open with that and um I think it's important and and it's you know parenting's not easy I we
01:02:39
have our ups and downs but I'm super proud of them I'm super proud of how they've sort of
01:02:47
processed this all without I obviously don't flood them with info the doco is not
01:02:56
appropriate for them to watch I'll sort of clip out the bits that they're in and
01:03:00
show them but that's all they want to see anyway yeah but the emotion and the
01:03:06
message is a bit too much for them at present uh but I'm stoked it's there is
01:03:12
a resource for later life when um who knows I could still be rocking it and they can look and
01:03:21
go Dad dealt with the heaviest [ __ ] in his life life with his head held high and he
01:03:29
dealt with it in a good way and I hope that they realize that that's in them as well cuz I I tell them I'm
01:03:40
proud of them I know who they are I know who they're going to be when they're
01:03:45
25 I know they're going to be good people cuz I know who they are and that's not going to that's not going to
01:03:52
change and I make sure they know that they're humans and humans are made out
01:03:58
of Stardust man you know we got iron running through our blood where do you get iron from the only place you get
01:04:05
iron from is a collapsing star so we're made out of Stardust and I make sure
01:04:09
they know that and know that the universe is a better place with them in it cuz I think if you instill
01:04:16
kids with not a self-importance but just man you are special and when I say you're special I don't mean you you need
01:04:25
to be a flash lawyer or an Entertainer you could be special just by being a hippie who sits on the Junes and watches
01:04:34
sunsets I don't care what you do as long as you find what your internal happiness
01:04:40
actually is that's so cool that's wonderful oh man that's some heavy [ __ ]
01:04:49
you've been dealing with EH that never ceases to amaze me I do I I was texting
01:04:56
with a mate who texts me and he goes um I um I've just been overseas I'm
01:05:02
going to watch I'm going to catch up with a doo when I get back and I just text him back go
01:05:09
man when you've watched it let's not talk about it let's get together and
01:05:13
just tell some dick jokes man you know there's plenty of dick jokes in well but
01:05:19
it's just like it's also I'm in this Jer position of through the book through the doco I
01:05:29
preach that I'm living with cancer and to live in the moment and then I'm like I've actually
01:05:36
got to start doing some of that you know cuz I've been documenting it and and so
01:05:43
now I I'm really proud of what I've got out there and now I'm just going to live
01:05:50
and be the best version of myself I can and where I can help people I I can and to any anyone who listens to this who
01:05:57
reaches out to me I honestly try and get back to every um person there's a there's a there's an amazing human is
01:06:06
nam is Derek cers um he's sort of done the podcast round he's a um he he's an amazing he's sort of someone
01:06:17
I look at as a mentor American guy then find out he lives in Wellington which was very weird just and um he answers
01:06:26
every email right I emailed him and he answered me and I was like I try and answer every email and I really
01:06:34
appreciate it and I am reading what what people send me and it it might take me a
01:06:39
bit of time to to get back but thank you to everyone I'd just like to say thank
01:06:44
you to everyone thank you to yourself man and like so many people have have showed me kindness in my life and I
01:06:54
think that's also so where I've I've got the kindness from yeah it's reaping what
01:06:59
you say though isn't it yeah completely yeah hey I mentioned on Instagram you're
01:07:03
coming I've got some questions should we in with some Instagram questions let's
01:07:07
some Instagram questions um you went to see a b cancer specialist 2 to three years before your diagnosis
01:07:14
how do you find peace with that this is a huge one this is something maybe I've
01:07:19
found peace with more than my family have um so it wasn't strictly about cancer specialist so I had bleeding from
01:07:29
the bum right huge symptom of colon cancer doctor thought it was potentially a um anal Fisher it didn't fit the bell
01:07:40
curve of what needed for a colonoscopy but I went to a bow specialist who did a short um a short sort of colon mini
01:07:50
colonoscopy I don't know exactly what it's called and they didn't find
01:07:54
anything but thought yeah it's probably an anal Fisher that's 2017 right and
01:08:00
then 2020 I'm diagnosed with bow cancer so it's like would that be the difference
01:08:07
between um had one surgery and a bit of chemo and I'm clear now because Bale cancer
01:08:14
out of the cancers if you do find it early you it's you got a pretty high rate of being okay yeah I've had Dean
01:08:21
Barker and Alex pler on the podcast same thing caught it relatively early both Legends been in contact both of
01:08:28
them and they beautiful humans and I so I had to park that right that's something you could hold on to and get
01:08:38
bitter around but that's not going to help me the way I reconciled it none of it was done maliciously
01:08:48
right both of those doctors wanted to help me they've both gone over the nightes
01:08:55
and you know that's just what happened so I have to just park that up as that's what
01:09:02
happened you we we talked before about our love of like SAS guys and there's
01:09:06
this guy um Joo willing he's got a book oh no Joo willing his Instagram's just
01:09:10
photos of his bloody watch 4:30 why are you in the gym but he's he's got a book that I
01:09:17
really like called um extreme ownership and I was trying to figure out on my run
01:09:22
today how that applies to you because it's it's basically just saying own
01:09:25
everything like blame no one else for anything you know extreme ownership and but you kind of did that's a frustrating
01:09:32
thing no also what's the frustrating thing is I did everything they tell you to do you're
01:09:39
worried see your doctor I was worried I saw my doctor my doctor didn't know the
01:09:44
answer sent me to a specialist so you know it's like what more could you have I literally owned it
01:09:50
and I literally did but but then you want to put a positive spin on that I didn't have health insurance in
01:10:00
2017 and then I did and health insurance has made this path for me a lot easier oh thank God
01:10:09
so yeah yeah so I mean pros and cons yeah uh is there anything you wish you did differently not really I do wish the
01:10:22
biggest thoughts for me are the dark thoughts around you know was it I was drinking too much did I party too much
01:10:31
is that what gave me bow cancer you know did I not figure out how to manage my anger properly you know
01:10:39
like um I was a bottle up passive aggressive bottle up well yeah I never saw that I I suppose I I never really
01:10:45
saw you on sort of like interview circuits and stuff yeah and I I never like no I when I say anger it's not like
01:10:53
I were're getting fight yell at people people argue with my misses and that it
01:10:57
was internal anger um and then when people reach out to me like the the person I mentioned before Who
01:11:09
marathon runner clean living and so forth then I'm like actually no I know people who still party way
01:11:17
more than me who are still getting on the bloody gear and and dance parties and they they're older than me and
01:11:25
they're fine so no I had to park all that stuff cuz you have to figure out what's healthy for your brain and
01:11:36
what's not Emy raking stuff over the coals of regrets misdiagnosis that ain't helping me
01:11:45
moving [Music] forward cancer has taken away so much has it given you anything good yeah it's
01:11:52
given me that honest happiness that uh I was talking about it's given me it's fast tracked my spirituality
01:12:05
it's fast tracked my mindfulness it's been this um massive kicking the nuts and a wakeup
01:12:13
call I'm a better husband I'm a better father I'm a better person but then it's that thing of um
01:12:21
there's a phrase I heard which I don't necessarily agree with the whole of it it's cancer
01:12:28
is a teacher and when it has taught you what you need it will go I don't I don't
01:12:34
agree with that but it's an interesting idea right cancer is a huge teacher anyone who's had cancer will tell you
01:12:42
it's a teacher and I'm not saying it's a good teacher or a bad teacher but that's
01:12:48
the thing is I I feel I've learned enough now how long how long is this degree
01:12:53
yeah exactly um how different would your life look now if you had not been through
01:12:59
this you probably stressing about losing all the TV projects yeah that that'll be
01:13:05
that's interesting cuz I don't know how my life the the arony is like um is I my cancer happened at the
01:13:17
beginning of Co so I was dealing with um the beginning of chemo and all these surgeries through Co so to me I
01:13:25
was like why was anyone talking about Co what do you mean you're stressed out cuz
01:13:31
you're at home and you're drunking too much wine you know that's not an issue
01:13:36
bro so so to me and then then I suddenly went then I realized because people come
01:13:43
up to me a lot and go oh man I'm B da D having these issues but it's nothing
01:13:47
compared to what you're going through and then I go no it is man cuz before cancer
01:13:55
an issue seem just as big as cancer does so to other people their issues are just
01:14:00
as big to them as cancer is to me and it made me realize that problems are just problems issues are just issues everyone
01:14:07
has them and your brain gives them this high this hierarchy that they're all so
01:14:12
important but it's not until you actually unfortunately stumble across something like cancer that now I went oh
01:14:22
wow these problems are nothing you know the the stuff I was worrying about is nothing and that it
01:14:31
all changes and it all moves and time passes so I've I feel I'm I'm a a better person I've I feel in
01:14:46
in a sort of Pokemon sense I've evolved I've evolved into my into my best iteration
01:14:56
yeah I love that are there any misconceptions about living with incurable cancer that you'd like to
01:15:01
address yeah there is all I knew about cancer was from TV and that people St you know clutching onto the IV
01:15:14
stumbling through the hospital and sort of gaunt GA and frail and and unfortunately the Bold thing is with the
01:15:23
chem I'm on thankfully I haven't lost my my hair but the Bold thing is a regular
01:15:29
occurrence just cuz a lot of the chemos kill your fast growing hair celles but then when I was in when I'm in there I
01:15:38
look around and go oh some people are smiling they they're like I'm like I
01:15:42
wouldn't have guessed I wouldn't have guessed 90 sure there are a lot of
01:15:46
people who are in that frail because they're just getting hammered by this appalling disease
01:15:55
but there's a lot of people out there who might have incurable cancer that you don't
01:16:01
know because they're like me where they're going through tough [ __ ] but they're lucky enough to sort of
01:16:11
look normal so you don't know what people are going through and incurable cancer
01:16:21
is always there for people who have it but you don't have to always talk about
01:16:26
cancer with people who have it just hit them up man if if you if you know someone and
01:16:35
go do you want to talk about it or should we just forget about it today yeah if you go out for a game of golf
01:16:41
you mentioned um Bryce Casey before one of your golfing Partners um yeah it's a
01:16:46
long time on the golf course do you do do do your friends actively avoid talking about it in those environments
01:16:53
um no the good thing is I've sort of got a WhatsApp thread with a crew of people that that's where
01:17:02
I it's called Little D with a big c that's where I'll check out how I'm
01:17:08
feeling [ __ ] today I need my tires pumped up I'm going so that's where I
01:17:12
sort of have a lot of the cancer related chat and then when we're out there no often I'm just with mates or
01:17:22
Comics who just want to talk some rubbish and that that's what I love yeah um what does hope mean to you now and
01:17:31
has the definition changed hope hope Falls in there with when you've got a breath there is
01:17:42
still hope that's how I I feel and I say to myself it's an old saying who I
01:17:48
forget the the name of the woman who first said it that is I sort of say to myself every day and every way I'm
01:17:54
getting better and that's my little hope Mantra and yeah I got hope and hope is
01:18:04
everything I've got hope for the world you know I've got Hope For Humanity I've
01:18:09
got hope for the climate nothing's hopeless so hope is huge and hope is important and you don't rely on Hope but
01:18:23
why not there's no harm in it yeah I saw a therapist a few years ago and I had this tendency to almost like
01:18:31
cont um catastrophize things or look for the worst case scenario and she was like
01:18:35
it's only fair if you look for the worst case scenario that you have to also like
01:18:39
entertain the best case scenario as well mate that's exactly what I do I cuz humans I think go negative right but
01:18:50
that's cuz you know [ __ ] someone's going to what's the worst they could well like
01:18:54
a lion attack us you know so we got to set up we're setting up camp right what's going to what's going to [ __ ] us
01:19:00
up but I'm the same I'm like hey I've been thinking about all the worst case
01:19:06
[ __ ] what if this all works out you know and sometimes it's weird you know when
01:19:12
you actually flip that script a bit and do think about the best case now you do swell a bit in terms of like positivity
01:19:20
and you do feel a bit better absolutely and you start to think it's possible
01:19:27
it's possible that this could happen yeah the um the the documentary is this
01:19:32
the body of work that you're most proud of yes 100% 100% but I as I mentioned at
01:19:38
the beginning I let it all hang out the the people I trusted with my story told it exactly how i' want it to
01:19:46
be told and yeah I couldn't ask I couldn't ask for anything more it's definitely my
01:19:52
most proud moment uh in terms of things I've I've put on the screen or stage
01:19:59
it's incredible I um yeah I mean it's not an easy I the thing I love about
01:20:03
where we are with um TV and media now is it lingers around yeah um so people can
01:20:08
go on 3 plus and watch it whenever they whenever they want so I feel like it's
01:20:11
going to be I don't know what TV ratings are these days but I feel like this is
01:20:14
going to be one of these um things that gets consumed you know for years to come
01:20:18
my um end game for this is I want to we we're looking at cutting it down to sort
01:20:27
of a festival documentary size putting the three three of them into more one sort of hour and a half thing because I
01:20:36
I think I don't think you need a frame of reference for me as a person to get
01:20:41
something out of this so I'd like to to sort of get it out to a wider audience
01:20:47
as well and leave the bit in there where you talk about [ __ ] the plug hole maybe there little a little teaser for
01:20:56
anyone who hasn't seen it watch that oh God honestly ws and all The Good the Bad
01:21:02
and the Ugly hey um yeah uh can you remember what your last words were in the documentary the very final words
01:21:08
it's a real poyant quote I think so this in a way I think if it's what you
01:21:15
you you're referencing this is the most poignant thing I've ever said and it
01:21:19
just popped into my head and it is um when the fear of death is gone all it remains is the joy of living yeah and I
01:21:30
think that that is so true and people see at the end of this I did a Tadashi ceremony which is a a Japanese departure
01:21:40
or death ceremony and that took away my fear of death and I think everyone needs to face death
01:21:50
in the Western World we don't um we're scared of it we hide from it it's going to happen to all of us so
01:22:00
it also is a great way of crystallizing how awesome today is and that thing of realizing that we're all going to die
01:22:09
with a to-do list so don't freak out too much about all the minutti [ __ ] you've
01:22:14
got to do just enjoy the day and I think when the fear of death has gone all it remains is the joy of living and if
01:22:23
people were to take away anything from the doco I'd want you to take away that what a place to end it thanks very
01:22:32
much D mate thanks so much I'm so proud of you oh mate I'm so proud of you like
01:22:37
I I mate I had tears streaming down my face watching it had real weird moments too like just um seeing the dynamic of
01:22:43
the relationship with your mom for example um yeah the Japanese death ceremony moments my wife said said this
01:22:52
to me at the end of the death ceremony I had a hug with the Monk and my wife goes [ __ ] that looked
01:22:59
like a really good hug and it was an amazing hug for anyone watching it look at the hug I have with this monk it's a
01:23:07
cracker of a hug yeah after he was kind of mean to you as well um you have to write down the names of three people
01:23:14
dear to you so you've got your two kids and your wife and you're like oh can I
01:23:17
throw on my mom as well like a fourth and he's like no no cuz that was the hardest I was saying I've got a small
01:23:21
unit that's my unit right so I was like yeah sorry M hey you're an absolute Legend mate and
01:23:29
um whatever the future may bring for for you I I just wish you all the best I love you mate hope to be on here in
01:23:37
years to come going this is how you get rid of cancer

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Episode Highlights

  • Resilience in the Face of Cancer
    The speaker shares their journey of coping with cancer and the importance of sharing their story.
    “I’m still here feeling good and looking okay.”
    @ 00m 27s
    November 17, 2024
  • Legacy Through Storytelling
    Creating a documentary and a book to leave a legacy and help others.
    “By helping other people, you help yourself.”
    @ 02m 05s
    November 17, 2024
  • The Power of Crying
    Exploring the emotional release and healing that comes from crying during tough times.
    “A big cry can sort things out.”
    @ 13m 54s
    November 17, 2024
  • Building a Toolbox for Chemo
    The speaker shares how they've developed strategies to cope with chemotherapy, including diet and mental health techniques.
    “It's building up the toolbox.”
    @ 24m 16s
    November 17, 2024
  • The Role of AI in Cancer Treatment
    AI is poised to revolutionize cancer treatment by quickly analyzing drug combinations and gene sequences.
    “AI is going to massively help cancer.”
    @ 25m 40s
    November 17, 2024
  • The Reality of Chemo
    Chemo is likened to a punishing hangover, with unpredictable side effects that never truly get easier.
    “Chemo is a 5-day punishing hangover.”
    @ 34m 18s
    November 17, 2024
  • The Power of Perspective
    Changing perspectives on health and life goals can lead to a more positive mindset.
    “Moving goalposts of what a win means to me now.”
    @ 47m 41s
    November 17, 2024
  • Facing Cancer with Resilience
    Despite a stage four cancer diagnosis, the speaker finds happiness and purpose.
    “I’m ironically happier now than I was then.”
    @ 51m 43s
    November 17, 2024
  • The Importance of Expression
    Expressing love and appreciation can change someone's day and strengthen relationships.
    “If you love someone, tell them and tell them why.”
    @ 59m 42s
    November 17, 2024
  • Extreme Ownership
    Taking full responsibility for one's life and choices, even in tough situations.
    “Own everything, blame no one else.”
    @ 01h 09m 17s
    November 17, 2024
  • Cancer as a Teacher
    Cancer teaches valuable life lessons, but it's not always a good teacher.
    “Cancer is a huge teacher.”
    @ 01h 12m 28s
    November 17, 2024
  • Hope and Positivity
    Finding hope and positivity even in the face of cancer.
    “When you've got a breath, there is still hope.”
    @ 01h 17m 39s
    November 17, 2024

Episode Quotes

  • This conveys the heaviness of what being in treatment is like.
    Dai Henwood on Surviving 28 Rounds of Chemotherapy & Not Losing Hope – Living with Incurable Cancer
  • I need to change my state.
    Dai Henwood on Surviving 28 Rounds of Chemotherapy & Not Losing Hope – Living with Incurable Cancer
  • It’s a game changer.
    Dai Henwood on Surviving 28 Rounds of Chemotherapy & Not Losing Hope – Living with Incurable Cancer
  • Never underestimate who you are because that can change.
    Dai Henwood on Surviving 28 Rounds of Chemotherapy & Not Losing Hope – Living with Incurable Cancer
  • You’re made out of Stardust, man.
    Dai Henwood on Surviving 28 Rounds of Chemotherapy & Not Losing Hope – Living with Incurable Cancer
  • I've evolved into my best iteration.
    Dai Henwood on Surviving 28 Rounds of Chemotherapy & Not Losing Hope – Living with Incurable Cancer

Key Moments

  • Cancer Diagnosis00:14
  • Emotional Reflection04:25
  • AI in Cancer Research25:40
  • Chemo Journey45:24
  • Personal Resilience45:24
  • Expressing Love59:42
  • Misdiagnosis1:11:43
  • Facing Death1:21:40

Tension Over Time

Words per Minute Over Time

Vibes Breakdown