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Josh Koman talks about beating cancer twice! || Runners Only! Podcast with Dom Harvey

October 21, 2022 / 01:09:34

This episode features Josh Coleman discussing his journey as a former elite 800-meter runner in New Zealand, his battle with acute myeloid leukemia, and the impact of his experiences on his life and outlook.

Josh shares details about his athletic career, including his impressive 800-meter time of 1:51 and his aspirations for the Commonwealth Games. He reflects on the challenges he faced after being diagnosed with leukemia at the age of 23, including the physical and emotional toll of treatment.

He describes the moment he learned about his cancer diagnosis, the subsequent treatments, and the mental struggles he endured during isolation in the hospital. Josh emphasizes the importance of seeking help and the pivotal moment when he chose to live for his family.

Throughout the episode, he highlights the support from his community, the friendships he formed, and the lessons learned from his experiences. Josh also discusses his recovery, his journey to Everest Base Camp, and the unexpected love he found during his treatment.

In the latter part of the episode, Josh talks about his ongoing health challenges, including heart complications and graft-versus-host disease, and how he has turned to practices like the Wim Hof method to cope. He concludes with a message of hope and resilience, encouraging listeners to appreciate life and seek support during tough times.

TLDR

Josh Coleman shares his journey from elite runner to leukemia survivor, highlighting resilience, support, and newfound purpose in life.

Episode

1:09:34
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[Music] [Music] Runners only with dom Harvey and Josh Coleman g'day mate how you going Don
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going fantastic it's so good to have you here in my motel room in Christchurch
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nice city no nice location to Hagley Park mate but it's something an absolute
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privilege to be here today and have a chat is that so yeah thank you very much yeah you've got some wonderful gifts on
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your podcast yeah Barry McGee Arts Shelly listen to them fantastic humans yeah the old dogs yeah it's nice to
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bring out these stories too and hear what they've got to say yeah and it's
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great to have you here because you've got a hell of a story it's my responsibility to be able to share my
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story we now so hopefully other people who do go through hard times can have some perseverance or some encouragement
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or some inspiration from myself yeah that one go forward yeah yeah first things first mentally and physically how
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are you now how are you today oh I mean if you compare me to the runner that I was you know I'm talking about maybe 50
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but from where I was being in a hospital hospital bed in a coma I'm fantastic
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mate yeah great awesome great I can walk I can talk I can breathe do a bit of running do a bit of sports some things
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you know I never thought I'd be able to do and um here I am very grateful oh
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that's good oh let's go let's go all the way back so first of all you're um
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you're like an 800 meter Runner the fastest in New Zealand yes and um on the
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cusp of um like Commonwealth Games yeah oh I mean it's hard to say I mean I had
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a fantastic year in 2011 I only had one race but I had a great build up I had two New Zealand silver medal 800 meter
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races and I finished second in both of those races and finally in 2011 I had a great off season
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um it was fantastic I've got some K's on the leg and 2011 was my year it was the
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year that I was going to win this gold medal at a national level and then it was going to be the
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um pedestal going forward um who knows what would have happened but unfortunately I didn't get to
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compete in that 2011 national champs and I had the fastest time 800 meter time until I got diagnosed so yeah what was
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the time what sort of times what was that 151 I mean it's fast it is fast in this in the essence of
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someone from the outside but when you're in that competitive realm it's not that
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fast and no it is it is by anyone's standards it's bloody quick so what would you do a
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kilometer on if you keep going for another 200 meters yeah early twos yeah oh my god mid-220s oh wow that's insane
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yeah ridiculous okay so man there's some there's so much ground to cover with you
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and so much to unpack first of all you've got a super bottle you're sipping
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on that what what's the reason behind that um I don't really produce it um
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had a lot of radiation and this um I had a transplant I got the Scarface host disease and it's tacked all the attacked
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the endothelial cells in my body like the skin the fascia the ligaments and um inside my arteries as well so I
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struggled to produce saliva yeah okay so so you're a coaster you're from
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Greymouth Greymouth what's it like there magic place is it yeah Magic Mike we've
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got some we've got some amazing people on the coast good hearty Souls soul to
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the Earth um a fantastic community and going through what I went through I had fantastic support around there yeah
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tough bastard say is that where is that where the grit and determination to be an 800 meter Runner came from do you
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think definitely I ran with a guy called Eddie gray on a Sunday he was 65 when I
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first met him and he was hard he was a former cross-country New Zealand cross-country champ and a 10K champ
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and you got food at the Wilton 1969 at the world cross country yeah and he was hard as Nails mate he would go out
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running his pants on a 30 degree day running over the pepperella hills and I really admired him because he was had
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this pure tenacity about him and I adopted that that was my method of running no matter how hard it got I'd
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still continue on and um Eddie really um signified that yeah and what was life like growing up what were your parents
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like parents were great I had a great mum um my dad we didn't have a great relationship he was hard at work but I
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didn't really understand my dad um he had a very very tough childhood and through my diagnosis we actually got
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to know each other a lot better but I had a fantastic childhood all in all my mum was a really loving caring mum
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yeah but Dad was great he was always working he worked at the coal mine he was trying to provide us kids something
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that he didn't have and I really respect that now was he just not um not a great
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communicator what do you mean or was he just a hard strict he was tough but he was fear um he was always working and he
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was tired and exhausted yeah um and he had strict disciplinary actions with with me being the oldest
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but that was that was fine but his background is 10 times tougher than what I had it I'm away in what way that he
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come my grandfather come from post-war Holland okay so he set up a farm in wataroa and his mother his wife sorry my
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granddad's wife passed away when Dad was two and he get got sent to an orphanage
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got physically abused and things like that all right and came back to a dysfunctional household yeah and they
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lived in pure poverty back then as well so he had it tough he didn't have the
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parenting skills to bring me up at my mom she was soul to the Earth but my dad's an amazing man from what he
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knew and what he had he created did a fantastic environment for me to be able to thrive do you think it's just from
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that generation where I don't know where it's you know you just didn't show any sort of
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vulnerability or yeah absolutely I never saw my dad cry until I was diagnosed so
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that's why I got to know one another yeah yeah and I was always seeking for my dad's approval but he was he was
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never there and I I got a lot of other Role Models within my community yeah such as a man called Glen Gibb he was a
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former International kiwi rugby player he lived next door he'd always take me
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running or doing physical activities mountain biking and things like that yeah I love my dad dearly yeah I'm not
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not discreeting my dad whatsoever he's a great man yeah we're great mates now we
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really are that's good are your parents still together yeah are they yeah yeah
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yeah yeah yeah all right Jesus I can't wait to talk about your mum we'll get
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into that later because um I've heard you on some other podcasts talk about her and it seems like just a a wonderful
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relationship oh mate yeah she's she's my she's my light she's yeah did you always
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always have that close connection with her or is that something about strength that strengthened over the years with
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the illness uh no no I've always had that close connection my sister teased me a lot that I'm the mummy's boy
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so yeah I've been the oldest I mean I think you have that closer connection to
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your appearance as well because you've got that time by yourself yeah yeah you've been around longer than the other
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yeah so I've always gravitated to mum and and I absolutely love it yeah that's
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great yeah okay so um so so you're running you're in the form of your life
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um you had a job as well though right yeah IE was a qualified line mechanic so I left school when I was 16 17 become a
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line mechanic and it was a hard physical job so I worked physically hard and I trained hard that's all I knew work hard
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train hard so that was my kind of philosophy back then and it was great for me to get to where I got to
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especially coming from Greymouth and training by myself and the likes of Eddie gray and Ruth Croft but a lot of
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that was solo training it gave me that perseverance to kind of be accountable for myself yes but it also
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hindered me in the way that I pushed myself far too far far too far where I probably was a
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correlating factor to how I got sick really because you think so because you just trained so hard trying so hard but
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I I didn't eat well but for me I worked 10 to 12 hours a day sometimes six days
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a week after that the boys would drop me off I'd run 20K home you know I had a
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good bit of time in the day I go off and get a load of firewood cut it up back in
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you know it was ridiculous young what's the saying young dumb and full account
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yeah yeah that was me yeah I thought I could do anything and then once I started drinking I'll go crazy because I
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couldn't really handle my drink yeah right and I just go crazy you know I got
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arrested twice for indecent exposurement did you I did whereabouts what were the
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circumstances in Greymouth I am oh I just that was just me I never got angry or anything like that yeah um
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like flopping your [ __ ] out oh no I took my clothes off one day and said to the
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police give them the burden I said you can't catch me you can't catch me but
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the thing was they did because they knew who I was all right right yeah it's a small town it's
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a small town I went back to the pub I was with my mates told them the story they're cracking up my mate saw me and
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then the bouncer come up put his hand on my shoulder goes oh someone wants to see
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you outside cuffs on the back way to go yeah oh that's crazy it's a bit of a
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loose cannon especially when I drank yeah and I worked out but I just couldn't handle it was it just yeah just
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because you were that physically fat all it took was a couple of beers didn't take much yeah okay so when um
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I I I'm quite familiar with your story and it sounds like you were you were very very sick before you even got help
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and it sort of reminded me when I heard you a story of um like Lance Armstrong in a way when he got testicular cancer
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like he was he was so fat and so used to being in pain um that has his nut was getting gigantic
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and he just didn't even do anything about it he just sort of persevered through yeah parallels to you parallels
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yeah yeah I can really relate to that I mean I took me probably about a month before I mean I had to collapse at the
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sink before I got taken to hospital to the Intensive Care Unit what were the what were the warning signs say oh there
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was heaps mate so we're sitting outside Hagley Park I tore my um tore my ligaments there and chipped
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the bone in the body wouldn't heal it just wouldn't heal it was unusual for me I'd
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normally bounce back from an ankle sprain quite easily um and then I that's for the New Zealand
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Champs and I moved home I decided I've got to get get away travel but I got sicker and sicker
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um I entered in a bike race around Brunner it's 130k race yep and I collapsed halfway I was up with the
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leaders and I collapsed and like what the heck's going on um what do you mean you collapsed I just
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fell off my bike yeah really it's got so dizzy and I fell off yeah yeah so I
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thought what's going on maybe I'm just low in sugar so I pushed my bike for
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half an hour to the lake Runner store I walked in staggered and I need a I need some chocolate I need
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I sat there for another two minutes gone finished the [ __ ] race man just finish the race because that was my
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mindset coasters mentality get the job done yeah so I picked off little places where I biked through and I was
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struggling and struggling and then finally the last person to overtake me was a guy who I knew and he'd he'd had
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cancer and about maybe a k 2K away from the Finish Line I said even a [ __ ] cancer patient can overtake you finish
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the line collapsed I'm never riding a bloody bike again and I slept for about
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maybe a week and really just fatigue just fatigued I was done and I just had low hemoglobin just low red blood cells
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oh yeah yeah why why did it take so long for you to seek help you must have not how old were you at the time I was 23.
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you did you have like a gut instinct that something was wrong I think you were just ignoring it or what no I put
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it down to the fact that I couldn't compete at the um New Zealand Champs that year and that was my year to show
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everyone what I was capable of and I was in denial I didn't want to be sick I
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knew I was sick but I didn't want to be sick and that's the big thing I wouldn't
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I wouldn't reach out for help because I didn't know how to yeah it was obviously
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my own man I knew how to I knew how to control my own environment I could do it all by myself I was about to learn I
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couldn't and I was soon going to learn I had to reach out for help so it took me
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to the point of death to basically collapse at the sink my brother picked me up none took me to hospital and then
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the next day I got diagnosed with acute myeloid leukemia right how did you look at that stage like had the weight been
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dropping off you did you look ill I looked ill yeah people people so I looked a bit different but no one really
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said anything too much um but it just comes back to being young dong I just keep pushing I I didn't want
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to know about it I didn't want to be sick yeah I was I had a trip planned overseas and I wanted to go over to
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Southeast Asia experience a bit and come back and give the running a go again yeah yeah so that was a plan I just
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wanted to go overseas and just reset yeah because not competing at the New Zealand Champs out here just just
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devastated me yeah yeah of course yeah of course and also listen no no judgment from me I had a mess of tumor growing in
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my gut for like 10 years and I ignored all the warning signs as well yeah I ended up collapsing during the Auckland
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Marathon so no no my my health Journeys but it doesn't have anything on yours
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but same sort of thing just just dumb not listening to your body yeah why why didn't you listen
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oh no I just thought I thought I don't know I thought I was just getting older
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and I don't know I started running again I felt a little when I when I'd run and
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I thought it must just be because I'm old and I was like 30 at the time it was
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just dumb yeah it's dumb dumb yeah yeah okay so you're in you're in the hospital
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uh what do they say when you go in there they like how do they break the news to
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you oh it was it's probably not most professional way that day it was it was
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a day like this it was dark and gloomy clouds out and I woke up in the morning feeling a bitter I had a blood
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transfusion and I was on an IV my mum and parents my mum and dad no my mum and uncle walk in with this
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concerned look on their face and then the doctor come in and he just said you've got cancer
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and my mum just burst out crying and I was just so confused and then there was this old guy in the bed across from me
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and he said my brother-in-law died from can't you know talent and I was like
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what the heck is going on so the doctor pulled your curtain it should have done it should have been done a lot more
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proficiently in an office somewhere Friday and then my mum was crying my uncle threw his arms up in the air said
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no no no and I was like what the heck's going on why am I causing so much pain
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in my family yeah and that was just and then I couldn't fly overseas had my first series of blood
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transfusions at Greymouth hospital then I got sent over to Christchurch to the South Island bone marrow unit where I
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was about to understand my diagnosis understand my cancer and understand the treatment protocol
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when you think back now um about how you were told and stuff does it does it make you angry or no no
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no no no I'm not angry about that I was I was just so caught up and being diagnosed with cancer and not being able
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to fulfill my dream of representing New Zealand yeah I had been completely taken
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away and I became so angry how could I get cancer I I was one of the fittest fastest in New Zealand and then it was
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like how how the heck did I get this and I got so angry real Angry really angry at what just just your circumstances
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you put all this hard work into something you work 10 to 12 hours a day you save your money you go away to races
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you're training you have this goal sitting on it and my my vision was so narrow because I only had that gold
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medal in sight and I wasn't really appreciating what was around me that the ability to be able to run yeah yeah yeah
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and I didn't see that I just thought my life was completely taken away because
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that's all I knew working running it's all I knew and um at that time did they
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say it was a terminal or did they what was the chance of survival that was given to you
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um so I I went to the Christchurch bone marrow unit and it took a few days to understand my prognosis and where I was
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so it started off as a good prognosis and then by the end of the week I was about I got given 10 to 30 odds of my
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cancer I had so I got put in the poor prognosis bracket it was never terminal yeah yeah yeah 10 to 30 is not great
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though not great but um I thought I'll Trust the doctors don't know what
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they're doing I've got no idea so I said I'll just sit here and take what I've
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got it's a bit of chemo maybe it's just like an ice pack on my ankle it'll heal
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that's my mentality but I didn't understand what chemotherapy was going to do to me yeah what does it do to you
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I Strip Me Apart first round of chemo obviously I was about to understand what real pain was first round my stomach
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lining got Stripped Away and just shrunk to the size of a walnut and I was in hysteric pain that first week and the
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nurse on she was an older nurse she was about to retire and she was coming in with big bolus as a morphine injecting
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me into the stomach it always just started school I don't want your [ __ ] morphing just you know it was not me I
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don't swear it is just not me and I'm having all these things coming out and I
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actually wrote her apology letter and she actually came up to me the next day and she goes don't worry love I've had
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way worse than that some stuff goes on in here yeah yeah yeah that's probably
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worth um highlighting at this point um so you're an 800 meter Runner so you're used to putting yourself in
00:16:44
uncomfortable situation so I'm guessing you've got quite a high pain tolerance
00:16:47
so when you say it's [ __ ] painful it's it's [ __ ] painful it was terrible yeah I I hadn't I hadn't
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physically experienced that bad pain yeah I love that good pain you know going out getting a load of firewood
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lifting it on sweet running down my face you know that that um feeling of it's
00:17:04
like a meditative Freedom running pushing myself I loved it because I knew it would in some stage I didn't know
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when this pain would end I had no idea um so was it just continuous yeah it just it just landed so I knew I was that
00:17:18
was my first round of chemo and then I'd have to have five more rounds that's just Relentless and then I had I
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had the leukemic cells in my central nervous system so I had to have these lumbar punches and through the equal
00:17:30
chemo into my central nervous system what's that like lumbar patches that's
00:17:33
like a big needle in your bed yeah so it's a big needle into my um spinal cord
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and they inject it in there to um mop up their leukemic cells within my central nervous system and then I also had to
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have these bone marrow aspirins once a month to understand what the cancer was doing because the cancer was derived
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from a hemopoietic stem cells these stem cells that live in our bone marrow that
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basically create your immune system yeah so they had to suck out a bit of bone in
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my hip through this big needle and it was it was just painful I was on the nitrous oxide gas oh the noise yeah how
00:18:03
good I loved it mate doing it for pass out I'll just be sucking hard on it and
00:18:07
like just set this needle in but I had this really bad experience with it it didn't work and the doctor just mucked
00:18:12
it up it took them four goes to get it to suck this bit of bone out so it was just this continuous cascading of
00:18:17
physical demeaning pain for how long does that last for so the treatment protocol for that first eight
00:18:25
months was a month in isolation locked in isolation I'd have a week to 10 days
00:18:31
of chemo depending on what was the dose was when you say in isolation what is what does that mean exactly so basically
00:18:35
a little room maybe quarter the size of this with a little kitchenette okay and there's a double ventricle door air
00:18:40
pressure door so only the nurses and family were allowed in and some friends now and then so it's a very small room
00:18:46
with the bed you drop your line and a little kitchenette where you could um cook some toast or get a bottle of water
00:18:53
and it's literally isolation yeah yeah visitors real loud in yeah we had visitors but um you're locked in a room
00:19:00
by yourself but I had a beautiful view of the park heavy Park next door which um kept me saying right yeah because I'm
00:19:07
guessing for a like a fit active dude in his 20s that must have just been like mentally like torturous it wasn't that
00:19:15
was the hardest part about it and when I talk about real pain that was the compounding pain with that physical pain
00:19:21
and then I had that mental pain my whole life got taken away and I basically was
00:19:27
in despair I disconnected myself from everyone because I thought my diagnosis was killing everyone around me because
00:19:32
everyone was so sad and I thought I've done something bad to everybody else um why did you think that
00:19:39
everyone was so sad Dom I thought yeah that's not it's it's like you know you
00:19:44
can't you can't hold any uh like guilt or Shame about that like at the time I
00:19:48
did though yeah because I was a man I was supposed to be helping other people and that's what I thought because I
00:19:53
always helped out other people that's who I was and I just didn't I just
00:19:57
didn't like seeing my mum in such distraught seeing me and I didn't know
00:20:02
how to handle it and I looked at myself once you see your physical change in the
00:20:06
mirror and you saw yourself from hey from who you used to be yeah you know you fit strong and healthy that's what
00:20:16
you love working outside all the time and you're locked in an isolation room
00:20:20
with your own thoughts I didn't know how to control it I just didn't know how to
00:20:23
control it I really didn't I didn't even know how to talk to people I didn't want
00:20:26
to talk to people I didn't even know the words to say hey can you help me so what
00:20:31
did I did I thought gee because when I was out sorry mate I thought I can't control these thoughts I can't
00:20:41
control this cancer the only way I can in this is taking my life so I really thought about it
00:20:47
and I was up on this balcony and so I'll get through this that's all right take your time and
00:20:58
I just couldn't contain a Dom and I put a league over and I thought all right
00:21:03
this would be a good way to go because I couldn't control anything maybe I could
00:21:06
control my situation by making a choice and in that moment as I was thinking about it this bit of wind tap the right
00:21:13
hand side of my face and I still feel it vividly and I turned around and I saw my
00:21:16
mother's cup of tea foreign cup of tea it just hit me in the heart you know it hit me there
00:21:30
and I said to myself I can't put the pain I'm feeling inside my mum I just
00:21:34
can't do that it would be worse it'll be worse for her than for me what I'm going
00:21:39
through right now so I I stood away I said I've got to get some help mate yeah desperate man
00:21:46
this was using my strength mate this was me using my strength now so luckily in New Zealand we have amazing
00:21:53
foundations and there was a canteen her name was Sarah and I said listen I need to get some real help can you give me a
00:22:00
psychologist and she got a psychologist on board and I managed to be able to have some bit of
00:22:04
an outlet someone to talk to we offered a therapist um earlier than that like getting diagnosed I had to collapse at
00:22:10
the sink before I could give treatment yeah I was on the edge I had my foot you know
00:22:17
how high I would have it was four stories up I was on the fourth okay right yeah I would have done 15 meters
00:22:24
maybe geez what awful way to go yeah I it's tough to think about now and I think holy heck what were you thinking
00:22:30
was it just to was it you you I mean you didn't want to die did you just want to
00:22:34
escape the pain is that what it was I just wanted to escape the pain in my mind because I didn't know how to
00:22:38
control it I wanted to escape the physical pain and I didn't think there was a life ahead of me I couldn't see it
00:22:44
I was so blind because I was focused on this pain that I was in right now I was just blind I was like in this closed
00:22:49
closet and I hated being in isolation I hated being sick I hated having cancer and I perceived myself as this weak
00:22:56
loser pathetic man that had no control of his life I really did and it was silly it was just really we were like
00:23:02
embarrassed I was I was yeah that is so [ __ ] up and from with the benefit of hindsight now from where you are now you
00:23:09
can you can see that can't you yeah it's just a silly mindset that I had it was
00:23:14
ridiculous because I thought it was a man I can control everything but it wasn't
00:23:20
until I got real help I managed to talk to someone and understand that this was okay
00:23:25
that these thoughts are normal that I finally got out of that dark hole yeah yeah and I also from that it was a
00:23:32
real pivotal point I got help and he basically told me it's not you Josh Coleman that wants to die it's just the
00:23:39
pain in the situation you know and he assured me this which this will soon pass so I went back into the hospital I
00:23:46
got given this book it's called man's foot search for Mania I know that Victor
00:23:49
Frankel yeah concentration camper incredible my favorite book in the world yeah and I read read a passage in there
00:23:56
and Victor Frankel went through a whole heap and suffered horrendously you know he made a choice to stay with his family
00:24:02
in Austria and he got captured by the Nazis and put in Auschwitz he said in there the last of the human freedoms you
00:24:09
know when everything gets taken away the last of the human freedoms is to choose
00:24:13
to make a choice to choose One's Own Way yeah so in that moment I made a choice I
00:24:17
made a choice to myself and I made a choice to God and I said no matter how hard life gets or not choose to do what
00:24:25
I've decided what I thought I would do to take in my life no matter how do we I
00:24:28
would put the pain inside myself I would talk to people and I would carry on and
00:24:33
I made that choice well from like from your Athletics as well I mean you've got
00:24:37
that that sort of warrior fighter mentality don't you yeah but I had to get that from that other story because
00:24:43
Victor Frankel went through a horrendous amount and I thought if he could get through what he went through then maybe
00:24:47
I could get through what I'm going through which was nothing compared to that nothing compared to Auschwitz yeah
00:24:52
yeah we always religious or did you um did you find a religion or God or whatever
00:24:58
you want to call it through this journey that's an interesting question I mean my
00:25:01
dad was religious my mum and I didn't like church it was in denial all about
00:25:07
it but something really grabbed me when I was in hospital especially being able to take my life um like in the hospital
00:25:14
yet you get a Bible in there and I actually opened it after I started reading the book I started reading and I
00:25:18
opened it to a passage it was in Joshua I just open to Joshua because my name resonated with that first thing I read
00:25:24
and I read in the first verse um Joshua 1 verse 9. be strong and of good courage do not be
00:25:31
afraid nor dismayed for the Lord God is with you and that just sunk to me it just really resonated with me and then
00:25:36
from then on I had a belief in God so that's that's where I really found it in
00:25:40
that moment I suppose when you're going through what you were going through you you need that
00:25:45
belief in God you need to have that feeling that there's something on the other side yeah something on this other
00:25:50
side but someone keeping you accountable too you know because you read it and basically you know how jesus carried the
00:25:55
cross and carried his burdens and sufferings it was like well I need to go through what I'm going
00:26:00
through because this is life and being in that hospital environment Dom you were young kids they were adults and I
00:26:05
got to see everyone else's pain everyone was going through something it just
00:26:09
wasn't me yeah yeah so I thought maybe I could get through this and then I can
00:26:13
encourage other people to get through their own hard times right so so how long all up does it take you to get
00:26:18
through this um this um leukemia so that that bout was was eight months yeah eight months in hospital in and out and
00:26:25
um after that yeah suicide thing I really got myself right I started diary writing writing a
00:26:30
lot of diary visualization was big I did that when I was running visualizing myself running and being happy again
00:26:37
um you know I did a lot of pre a lot of meditation and I started talking to a lot of people people that I trusted I
00:26:43
don't want to talk to everyone but diary writing writing my thoughts down was
00:26:46
fantastic I allowed myself to cry when I needed to cry that's something the psychologist gave me so I locked myself
00:26:52
in the toilet cry to myself and just open myself up a bit more to people who I trusted yeah yeah so um yeah you've
00:27:00
got a book out called um the wind at my back is that is that made up from your diary entries or your journaling at the
00:27:04
time or was this just a book that you wrote specifically so it was made up a bit about my diary because it helped me
00:27:09
recollect the thoughts that I had back then but it wasn't until I was getting
00:27:12
treatment in Melbourne that I really started writing this book because um there was another time where I got in
00:27:17
deep depression as well yeah so I started writing that thinking maybe my life's gonna end not by me taking it but
00:27:23
by the disease that I had and um maybe it's just email for my family or my nieces and nephews yeah it's a hell of a
00:27:31
story yeah a hell of a story okay so so you survived the first bout is that is that where you got it when you go to
00:27:37
Nepal so I get out of the hospital and I recover remarkably right yeah so I was quite confused then I really couldn't
00:27:44
associate myself with a lot of my friends in Greymouth so I kind of disassociate myself and I just went
00:27:49
surfing mate I was out in the surface what do you mean it had just something changed and you know I was just
00:27:54
searching for the meaning of life and what's gone on you know beforehand I was
00:27:58
out partying taking my clothes off running around doing all that stuff and I thought there's more to life than just
00:28:04
doing that yeah I had I had I experienced so much in that eight months yeah and I was understanding who I was
00:28:09
and what was going on and what's this pain and suffering on going on in life
00:28:13
and also too I just love being by myself I really did I enjoyed it it was different this time it was just just me
00:28:20
and I was praying I was thinking and I was out in the surf and I just love being out in nature just connecting just
00:28:26
connecting myself back out back yeah yeah so I was out in the surf and then um friend good friend Ben Wallace rang
00:28:32
me up and he said hey bro do you want to go down Nepal to Kathmandu and I said no
00:28:37
[ __ ] off you were joking I just I just mean we we well enough to travel at that
00:28:41
point no no no but on your life for short Don yeah yeah and it was like you knew that you needed
00:28:48
to take opportunities because something can be taken away from you so quickly so I've rung him back and I said to you
00:28:55
mate let's do it I was out in the surf one down and I just slapped my hands down and I said you mate you just got to
00:28:59
do it so I spoke to my doctor he said yep good as gold go do it and I got on the plane arrived at
00:29:06
Kathmandu and it was just overwhelming just been it was my first overseas experience so oh is that right yeah
00:29:13
actually yeah I've been to Australia right yeah it doesn't really count yeah
00:29:17
it doesn't really count you know Aussie's similar to New Zealand yeah going over there I mean you land you go
00:29:21
you get out there and there's just all these people talk talk and the smells
00:29:24
and the senses and seeing everyone around but this trip really changed my life in a in a huge way it gave me a
00:29:30
real good perspective of how good I did have it in my hospital room it's a very
00:29:34
poor place isn't it very very poor I think it's in the top five right all
00:29:38
places in the world but go to my talk talk and he's taking me to the backpack
00:29:41
as we were staying I was driving along and just in awe of where I was and I saw these kids you know BFF similar couple
00:29:49
of men no tops and they're playing in this rubbish and they got up and they're
00:29:52
waving at me with these smallest on and I thought holy heck how good did I have it to suffer in such good conditions no
00:29:59
I had my mum I had a beard I had the treatment I needed and I had good food yeah you know I had everything I needed
00:30:05
to suffer in such good conditions that these kids had nothing and I thought holy moly yeah some perspective it was
00:30:11
it really was so it really fulfilled me then that I didn't have it so bad I really didn't have it that bad
00:30:18
um and I thought no just go out and enjoy what you do have yeah yeah well yeah so um what you did there is um
00:30:26
something I'd love to do one day you you walked to base camp yeah it's tough how long does that taste it
00:30:32
took us 13 days return I think 13 days right I can't recall the exact number off the
00:30:37
top of my head but yeah it was about 13 days return was it is it tough everyone or is it just tough for you because you
00:30:42
were recovering no it was it's tough for everyone yeah I think there's about 40
00:30:46
of people who decide to go there going to get there I meet a lot of people who got flown out
00:30:51
um I did get altitude sickness spent two nights uh tingle Tingle show spent two nights there recovered got to Everest
00:31:00
Base Camp then climbed up to this mountain called Mount kalipatar it's just under 20 000 foot and got to watch
00:31:05
the um um sun sunrise over Mount Everest mate and I call these small perfect moments
00:31:12
you know I just capture them and put them into my heart and hold them there tight because no one could take that
00:31:16
away from me and I knew how special that moment was you know I set myself on a goal and I achieved it with a good
00:31:21
friend and I saw the sunrise come over and it's like holy heck last year you're
00:31:25
in hospital wanting to you know what we spoke about and here you are Mount Everest you know where Siri it was yeah
00:31:31
I was going to say it must be an extra special being there as a New Zealander it was it was really special you know we
00:31:36
went to the Edmond Hillary School we've got some coloring books and gave some to
00:31:39
the kids and the kids and it was just it was just really really wonderful experience yeah life changing
00:31:45
so then um you come back home is that when you start skydiving yeah so what if what were you up to you wanted to become
00:31:52
like a skydiving instructor it was over the two things that I wanted to do in my
00:31:56
life right even when I was running go to Mount Everest Base Camp and become a skydiver and I knew there was a high
00:32:01
chance of my cancer coming back I knew that yeah really what what did they say yes because I was in a poor prognosis
00:32:07
yeah um they thought they'd try this treatment just the chemotherapy and if it did come back then I had to then I'd
00:32:13
have to have a allergenic stem cell transplant so that was a backup option so I thought we'll have the chemo first
00:32:18
and see what happens um so I come back from Nepal and I enrolled outside of Mifflin the New
00:32:24
Zealand diploma in commercial skydiving it was just absolute matchup mate how many jumps did you do I ended up doing
00:32:29
about 200. [ __ ] yeah wow but that's nothing you know my instructor had done
00:32:34
20 000 jumps yeah so you were you're you're at the point where you where
00:32:39
you're like in charge of your own um Paul cord and stuff like that yeah I was
00:32:43
responsible yeah and I was filming people um 10 and people I was filming them special experience that the most freest
00:32:50
I've ever felt in my life yeah yeah it was wonderful I met some amazing people
00:32:54
too and some good friends here too yeah yeah no close calls or anything no apart
00:32:59
from my very last jump my very last jump I jumped with a good friend Ivan and we went up to 16 000 no
00:33:06
18 000 feet and I got hypoxic and I started seeing six of them as I jumped out of the plane I was like what's
00:33:12
hypoxic hypoxic when I've got um low oxygen people I've got a low saturation
00:33:16
of hemoglobin so the oxygen can't bind to the hemoglobin hemoglobin so I got got real Dizzy and I've seen
00:33:24
six of them whoa started spinning around and he's like waving at me like what's
00:33:27
going on and then I just pulled my shoot at 10 000 feet and just got down to the
00:33:31
ground and you know I was really dizzy and obviously he goes hey bro what was going on and I knew what was going on
00:33:37
because the same thing happened prior when I fell off that bike I looked at my hand too and I saw these purple spots
00:33:43
that was a sign of low platelets platelets are anti-coagulants that kind of clot our blood and I just saw that
00:33:49
and I thought oh I know what's going on it's back it's back and um so I rang up
00:33:54
my mum and dad and I said I know what's happening come out for a Skydive and go for a jump
00:33:59
together so I can film you as well have a family but I was more accepting this time I understood well yes I've had
00:34:04
peace with it I was yeah I really was I've found what I needed in my heart right and I made the choice that no
00:34:10
matter how hard this would get I'd continue on with what I had and you yeah you knew what was uh when
00:34:17
you'd been there before and you knew how hard it was and you had to do it all
00:34:20
over again yeah but this was going to be way physically harder but mentally I've
00:34:24
got the tools in the toolbox now right I could handle that yeah I could handle that and
00:34:29
um I had my mom and dad and I had the people in my corner and I trusted them and I was open to talk to them and yeah
00:34:36
so I was mentally prepared but physically what I was about to go through was going to be something else
00:34:40
yeah and it was didn't disappointed a little bit harder than the 800 meter Raceway wow well I suppose that's the
00:34:50
thing like um whatever distance you're running you're putting yourself in pain
00:34:55
but the pain stops as soon as you stop so you can decide to end that pain yeah it's your choice yeah the sort of um the
00:35:02
sort of pain that you're going through with this these Cancer Treatments there's no escaping it yeah no escaping
00:35:08
you just got to get the job done yeah yeah so why was the uh why was it so much worse the second time around so
00:35:14
this time I'd had to have what I mentioned before an allergenic stem cell transplant so basically what that means
00:35:20
I've had to have um these hemopoietic stem cells these hemopoietic stem cells
00:35:24
live in our bone marrow and they basically the factory cell of our immune system so going to create a whole new
00:35:30
immune system for me yeah so I'd have to get these from a young girl in Germany I
00:35:35
didn't know she was a girl at the time but they were coming from Germany so it
00:35:39
was a mismatch it wasn't a um it was a it wasn't a complete match so there was
00:35:44
this wrist which graft versus host disease so I was going to get Graphics host disease from it so what the protocol
00:35:51
looked like was two months of chemotherapy and then I'd have to have a break in between of another two months
00:35:56
to get myself get myself right before the treatment before a transplant now the treatment before a transplant is
00:36:02
absolutely horrendous they kill your whole immune system basically like Roundup times 10 just spray it so it
00:36:08
doesn't grow back and need these other cells to come in so they can grow a whole new Garden whole new immune system
00:36:13
right yeah does that make sense yeah it makes perfect sense cool and so I had that two months of chemo and after the
00:36:19
second round of the chemotherapy I got put in on I got neutropenic sepsis and I got put into life support and I had this
00:36:27
big tube down my throat and the doctor said to my mum and dad this is probably a good chance you won't wake up from
00:36:31
this and God willing I did after 10 days um God that must have been a healthy appearance it was yeah yeah it
00:36:40
absolutely was but there's a silver liner I'll tell you the story my sister
00:36:43
tells it better than I but um apparently when they were putting me in a coma everyone was in there and mum's crying
00:36:48
Rachel's crying and dad walks in and he's like oh yeah all right see you
00:36:53
later son Ben's over he's got that Builders crack coming out lets out this
00:36:57
massive fart mate and you've got five specialist doctors in there like oh yeah he's about to say
00:37:04
goodbye to his boy was that what he was doing so like saying because he literally thought it was going to be the
00:37:10
last time I'd see your life especially for my dad yeah but I must mention earlier before I got when I had got
00:37:17
cancer that first time that's when I really got to know my Dad yeah when he first when I first got to see him cry
00:37:22
yeah we understood one another we connected on a different level so um yeah he put his hand on my shoulder you
00:37:28
know I said goodbye did that we laugh about it now mate you have to don't you
00:37:32
yeah the doctor said you know he may not wake up and you know I did so as I said
00:37:37
before you got two months off that last round of chemo I only had two weeks because the person who could donate the
00:37:43
stem cells they only had two weeks to do it in this period because she was going
00:37:46
away on holiday right yeah so I got out of this coma mate I couldn't talk I couldn't walk I was in a wheelchair I
00:37:54
had to ride on this little white board to you know I was skinny I was like a little alien what what do you weigh now
00:37:59
and what were you weighing then it's about 52 kg when I got out of there I weigh about 61 to 63 now right so 62
00:38:06
around there yeah so I was skinny weak yeah and um I had to have this transplant so I had that high dose Rat
00:38:15
full body radiation I had this high-dose chemotherapy that inoculate my immune system wait for the transplant to come
00:38:21
feed into my bone marrow start regenerating this new immune system and for that month I was in there just
00:38:28
like in the semi comatose state but as I said before this small small little special moments that happen and
00:38:34
sustain you through it you know and I just looked outside to Hagley Park a place that was quite special to me and I
00:38:40
used to see the boys running past and I just visualized myself running with them
00:38:43
yeah yeah and then my mum would come in and give me this sparkling water you know with the carbon dioxide bubbles in
00:38:49
and I couldn't swallow because I had um Graphics host disease in my stomach and that's just popping my mouse mate
00:38:57
it would just give me this joyous smile and it's just little things that sustain
00:39:00
me for the day that I just really hunt on to right I was in a hospital room my mum was here and I had these sparkling
00:39:05
bubbles so it's just small things that I held onto yeah so what'd you do you just
00:39:09
like sort of swish it around in your mouth and then spit it out just held it there and just felt fell to go pop up
00:39:13
and just yeah it just scammy it was where you smile right set it back out and then um chose to woke up for another
00:39:20
day right and when did you when did you realize you were out of the woods was it was
00:39:28
there a moment where you're like okay I'm good yes so it normally takes 100
00:39:32
days 100 day period to kind of see if the transplants accepting your body and I was having a whole heap of
00:39:38
complications so basically I spent a year in Christchurch back and forth um going in and out of hospital with
00:39:44
many many complications you know I had heart issues and body issues but finally they got the level of immunosuppressants
00:39:52
and steroids to kind of balance everything out and I I got in the I got in the clear of it you know I was good
00:39:57
to go home after that year in hospital so it was basically let's see how you go
00:40:03
let's see what what happens with this grass graft versus host disease and hopefully it doesn't flare up and then
00:40:08
slowly taper down the medication because I couldn't be on high steroids and high
00:40:13
immunosuppressants all the time because that would cause more damage going along
00:40:16
in the future especially being so young so I moved to Nelson just recovered there I try to recover
00:40:23
and then I got this email so I got a bit of a part-time job at Skydive much awaker just driving the van now and then
00:40:29
for the Frozen yeah I got this email and from the receptionist at Skydive watch Waker and this email said hey do you
00:40:36
know a guy who's recently had a transplant he's apparently a skydiver because I got to write a thank you
00:40:41
leader to my donor but the names get crossed out so I wrote this thank you Knitter and she's email me back and she
00:40:46
knew I was a skydiver so she emailed all the Drop Zones in the south island and it turned out that she was my donor so I
00:40:53
got her email address we started emailing back and forth and I thought oh yeah I gotta go make this skill I gotta
00:40:58
go say thank you yeah and this is not allowed this wasn't allowed why why is
00:41:02
it not allowed because a lot of people in the past have taken advantage of the situation how do you mean yeah yeah no
00:41:08
good question um so some people have had the transplant they said well you owe me now
00:41:12
oh okay gotcha right yeah right you owe me and and there's a lot of missing counters that have occurred from it so
00:41:19
that's why they kind of keep it separate yeah so I told Ellie the transplant lady
00:41:25
and she said I will keep it on the delay you know I said yo I know her name was but this is another funny thing I just
00:41:31
spontaneously called her Hannah when I got this first letter from here because we were writing but we didn't know the
00:41:36
names and I just called it I just called it Hannah and her name was Hannah mate h-a-n-n-a-h her name was Hannah Boyer
00:41:43
yeah wow that was just a name that I gave you yeah so it was special so I thought I've
00:41:54
got to go see this girl and you're still friends well you just want to see her once just for that thank
00:42:00
you moment I went over there no his sister her younger sister's been out and
00:42:03
stayed with us for two months lived with us I've been over there met her family
00:42:08
um yeah we're really good friends yeah really good friends and I so I went over to
00:42:13
Germany went to Berlin stayed there and I met her and I was just in awe of a you
00:42:18
know no words could justify how I felt no words could do it and I was just I broke down in her arms and she said
00:42:24
Thank you thank you multiple times but it was a harsh winter then it was the end of the year of 2014.
00:42:30
and I ended up getting put in Berlin hospital I got pneumonia I was coughing up blood you know I wasn't strong enough
00:42:36
to go into such a harsh winter got flying back to New Zealand came back here and this Graphics host
00:42:42
disease we were talking about you know it started to flare up and um our body was starting to glue itself together and
00:42:48
I got you know I was I was deteriorating my body was deteriorating basically my body was starting to kill its own self
00:42:55
it started to eat itself I was getting glued up my fascia my ligaments and my collagen were gluing itself together you
00:43:00
can see my face now you know it's all pigmentated threw it around my eyes were getting dry and bloodshot
00:43:06
and this is when the saliva wasn't getting produced properly properly so maybe again I decided to do this walk
00:43:15
to Saint Angela's Hut to the Blue Lake I wanted to go to the Blue Lake and I did
00:43:19
this walk and this was going to be my New Year's resolution you know started for a year
00:43:24
but my body was slowly deteriorating but the medication was holding okay me and my donor Got Back
00:43:30
so I did this walk and my body just started cramping up on the first Hill cramping up and walking up I didn't know
00:43:36
why I didn't know why because of the disease but I didn't I didn't want it
00:43:40
I fell on the top of that top of the hill just locked up like a dead sheep mate you know how did she look it is
00:43:46
silly isn't it yeah yeah just near Saint Angeles Hut and this guy Jeremy from
00:43:52
Switzerland he picked me up took me down the hill I was in hysterics again and from then on my body just deteriorated
00:43:58
um my face fled up red bright red I got sent to Greymouth hospital they thought I had shingles and I said no it's not
00:44:05
similar to Christchurch and I got this pain called trigeminal neuralgia and trigeminal neurologist described as the
00:44:12
worst pain known to man it's also called the suicide disease because about 20 of
00:44:16
people who get this commit suicide just to escape the pain mate to describe the pain
00:44:21
it's like a cheese grater behind your eye or someone's burning your face while
00:44:25
they're stabbing your stabbing your side of your face it was horrendous I was on
00:44:29
every pain medication you could think of and I was screaming down that bone marrow unit just screaming my head off
00:44:34
yeah so but that pain does it like come in bursts or is it just there continuously
00:44:41
no no it was there in birth it was it was flaring like it was hot like burning but then you'd have these severe burst
00:44:47
of pain it would just grab me and it's like yeah light me up what the heavy one
00:44:53
obviously not enough of whatever they were giving you yeah I was on morphine fentanyl ketamine Gabapentin
00:44:59
yeah and then finally I got sent up to the Intensive Care Unit I got given lignocaine infusions which
00:45:05
is an anesthetic a IV and it numb the nerve down the trigeminal nerve on the left side of my face and um I was
00:45:13
pain-free yep but it's still numb but I can still feel it where I'm pointing now it's
00:45:18
still numb there how's your vision is your vision all right I've had both my
00:45:21
cataracts done so yeah that's okay but not the best yeah so I had that and then this gvhd
00:45:28
was out of control mate I was the body was eating itself together it was and the treatment that immunosuppressants
00:45:34
and the steroids weren't doing the job so they'd had to they had to simulate
00:45:37
Melbourne to get some treatment yeah wow she said how can you have faith you know how can
00:45:45
you believe like there's there's a God when you've had such a rough [ __ ]
00:45:49
hand yeah that's a good question but the thing is there's been so much worse
00:45:53
stuff happened to me and I thought why why then why not me so I made that decision that I carry the burden on my
00:46:00
back no matter how hard it got that was the decision I made yeah yeah FM Why Not
00:46:04
Me Why Not Me Maybe I'm taking the pain away from somebody else maybe if I get
00:46:09
through what I get through maybe my story could help someone else that's going for something because I know
00:46:13
everyone out there is going through something it doesn't have to be so significant as me but I know a story can
00:46:19
help someone yeah absolutely so I've had people come into my ward and have a chat
00:46:23
and say hey I've been here and I've got better you know I've been to many many
00:46:27
places you know thinking about taking my life and things being taken away from me
00:46:31
but I've managed to hold on to that self-belief within myself that things would get better yeah and they really
00:46:37
have yeah we're not there yet we haven't even got on to the heart attacks yet yeah that's coming up
00:46:47
someone's got it in for you unbelievable um yeah we'll get to that but your
00:46:52
health now it's it's good it's so good yeah compared to where I thought it
00:46:56
would be yeah it's it's incredibly good yeah I can't even fathom that I'm in
00:47:00
this position and I'm just so grateful to be alive and doing what I'm doing
00:47:03
yeah and what are the chances of the leukemia coming back or any of that coming back I haven't asked for the
00:47:09
statistics yeah and personally I don't think it's going to come back yeah um I
00:47:13
think I'm in my mind I'm stable I'm good I'm healthy I'm strong that's how I see
00:47:17
myself yeah brilliant yeah hold on to that yeah right so yeah so the the heart complications
00:47:23
did this come as a result of the leukemia or anything or completely random no this was a basically a result
00:47:29
of the graphics yeah so we got sent over to Melbourne to get treatment I'm away
00:47:34
from my family and friends but my brother's with me at the time and God bless my brother he's an amazing boy he
00:47:39
was he's seven years younger than I and he took it on his back to fly over with
00:47:43
me get myself sorted cook my dinners do everything like that and set himself up in Melbourne just to help me out mate
00:47:49
incredible young man seven years younger Harold was he at the time like late teens early 20s yeah it would have been
00:47:53
about 18 yeah yeah yeah so he went for a heck of a lot but amazing young man for
00:47:58
what he did he took that burden on put his hand up and he was responsible for me when I was responsible for him back
00:48:04
in the day but yeah he took me over there and I started getting this treatment it's called extra Corporal
00:48:09
phototheresis so it's basically down regulating these T lymphocytes my body these tea lymphocytes were sending
00:48:15
signals to other cells to attack my body creating this graph versus host disease
00:48:19
effect um so this hopefully this treatment would just down regulate these these um
00:48:24
pro-inflammatory cytokines and and things like that and it started to work it was great you
00:48:30
know my body was freeing up a bit but these cramps that I talked about my body would just lock up I got locked up down
00:48:37
at the corner of Burke Street and just I'm in pain mate I'm on the ground again
00:48:41
my brother had to come and pick me up put me on the shoulder carrying it home the body was slowly getting better with
00:48:46
the treatment I was getting it three times a week I was living in Melbourne for six months but then I was away from
00:48:50
family I was away from friends and I got that negative thought am I ever going to
00:48:55
get better this is seven years now since I got first diagnosed that's a journey
00:48:58
it's a journey mate and I just winners are going to get better when is it going
00:49:01
to get better but just carry on just carry on and you know every day I thought about jumping in front of a tram
00:49:07
or doing something silly like that I thought about it but it was that conscious choice of not doing it just
00:49:12
carry on keep calm and carry on why did you why did you think like that just because it was like you just had enough
00:49:17
or you exhausted or yeah I was just utterly exhausted I couldn't produce tears I'd go walk down and it was just
00:49:24
like barbed wire in my eyes and I had this constant pain on my body would just spontaneously lock up my arms and feet
00:49:31
and everything would just lock up it was just it was a nightmare it really was but I
00:49:37
held on to hope that I would get better I did hold on to that hope treatment started to work I was getting
00:49:44
a little bit better but that graft versus host disease as a it was attacking the indoctilia cells in my
00:49:50
skin but also inside my arteries so I went to this Wim Hof Retreat I went to this
00:50:00
one hops Retreat because I was trying out the wormhof method and I was starting to feel a bit good inside
00:50:04
myself yeah I was having these cold showers and I was doing the slow breathing yeah for anyone that's I'm not
00:50:09
familiar with Wim Hof which is probably not many people uh the Dutch Guy this is
00:50:14
a cold shower day keeps the doctor away absolutely so yeah how did you get on the Wim hofbuzz just like a an audiobook
00:50:20
or you read a book or no no a friend um Matt Walker he sent me the link of this voice documentary of Wim Hof saying he
00:50:26
could help his immune system decrease inflammation in the body do all these miraculous things I thought I'm
00:50:31
desperate I need to just try anything you know I'm willing to try anything to
00:50:34
get myself better yeah the doctors were doing a wonderful job of getting me better credit to them and the nurses
00:50:39
amazing people but I needed to take responsibility for myself and try and help myself a bit you know push myself
00:50:44
along and I I changed my diet I was doing a whole group of things and I thought I'll try this method yeah and I
00:50:49
had my first cold shower and I felt a little bit good you know you know it's
00:50:53
invigorating it is it's amazing you know we increase dopamine levels by 250 by
00:50:57
getting into a cold shower you know I did feel a little bit good so just give me a bit of purpose for the day and in
00:51:03
the culture feel good yeah I'm in a [ __ ] situation go have another cold shower so
00:51:08
it gave me that outlet and then I went to a retreat because when Hof was doing this Retreat so I
00:51:12
thought so he was actually there he was there and I got to meet him in Federation Square and he said come come
00:51:17
and do the retreat man he's full of energy I'm like wow this guy's amazing I
00:51:21
want what he has I just want it so I signed up for his Retreat and the first day I didn't even get to attend I
00:51:29
woke up and had a massive heart attack now this is before everyone got to meet each other massive heart attack because
00:51:34
this graphic disease was attacking these my arteries in it and they yeah so it was clamping down on that left main
00:51:41
artery got sent to Geelong hospital had another two heart attacks got sent to Peter
00:51:46
McCullum Cancer Center always getting treated had another one there who finally got sent to the Royal Melbourne
00:51:52
cardiac unit I was in there for 24 days where I had another 12 heart attacks how
00:51:56
did you not die yeah is it your Fitness they got you through I'd say I had a
00:52:00
great Fitness on the you know great Foundation yeah yeah a heart attack's not Cardiac Arrest we've got to remember
00:52:06
that too okay what's the difference so basically that's when Cardiac Arrest is
00:52:09
basically when blood flow stops to the heart I was just getting restriction of blood flow to the heart so that's
00:52:14
basically what a heart attack was and I get this extreme pain it's just yeah you
00:52:18
couldn't move and you can see the ECGs just flip upside down and they didn't know what to
00:52:23
do with me because my skin and all my collagen and all of those ligaments are glued together they didn't know whether
00:52:28
to give me a heart bypass or just stint the left main yeah so they didn't know
00:52:32
how to go about me I was pretty special and they so I wrote the doctor a letter I wrote him a letter and um
00:52:41
I said I don't care what you do if I die that's fine just make a decision and
00:52:45
learn from me as a patient just I wrote him a letter Next Day heart attack he went in the cat lab stint to my left
00:52:50
main artery and I was out there oh two days later yeah but then this gvhd fled up mate
00:52:56
and I'll become a mess I was an absolute Miss I remember I remember um my friend Matt Walker coming into my
00:53:03
coming into my room and um Royal Melbourne Cartier unit and he had all these bubbles going on and I was just in
00:53:10
the corner just crying my head off mine just crying like when will it end but it was just holding on to that face
00:53:16
that it would just holding on at night it's just crying man yeah sheer exhaustion
00:53:24
yeah I don't know if I had much more left but I had my mother's love and I
00:53:27
had hope you know I found God and found a purpose and I was responsible so I had
00:53:32
to keep carrying on yeah yeah so I got got more treatment and then I finally got to go in my first ice
00:53:41
bath now a lot of people would be questioning this I've just had a stint in my left
00:53:46
main artery and I was going to go in a nice bath I was severely depressed mate a
00:53:51
cardiologist probably wouldn't advise it I wouldn't think yeah he didn't advise
00:53:55
it okay so so that's your first ice bath so you go from um so you didn't even do the one half
00:54:01
Workshop because you yeah I didn't get to party in that okay I went there everyone said hello to each other we had
00:54:07
dinner and I went to bed and I woke up in the morning that's when I got taken
00:54:12
away oh for [ __ ] sake so you you so um okay so you go from having cold showers
00:54:17
to the ice bath um how did you how did you learn about like the breath work and stuff like that
00:54:22
just on his online course 13-week course yeah I was doing that but then someone recorded a podcast of the retreat and
00:54:29
they sent it to me because they were wondering how I was and there was this guy Dave O'Brien talking he had the
00:54:34
establishment called Fifth Element wellness and he was talking about gut health and supplements and excess all
00:54:41
this wonderful stuff and I thought I gotta go check this out and I walked into this room and I saw this man called
00:54:46
Mark cluer a wonderful man he's become a great friend and he's just like this um
00:54:50
basically I describe him as a pirate who found his treasure he was just full of life he had this big beard he was tough
00:54:56
tattoos down his arm he's like Josh eat mate yeah picked me up I'm like who the heck are
00:55:00
you would be wondering how you are so he invited me to come and do this ice bath
00:55:04
and you know I was scared I was [ __ ] [ __ ] myself mate but as I said I was desperate and I wanted help shutting
00:55:11
yourself because um you what you thought you might have had a heart attack yeah yeah I did I didn't know what would
00:55:16
happen yeah but I just I knew that this exposing yourself to cold science had validated what it could do for your
00:55:22
immune system your Cardiology logical system and your neurological system especially for depression yeah I went in
00:55:29
there and I was so scared and this was a big change for me because I really wouldn't talk to anyone
00:55:35
beforehand or anything like that and I was so disconnected from myself in a way and I got on the ice
00:55:43
and I just breathed through it closed my eyes the boys like breathe Joshy and I overcome something that I didn't think I
00:55:48
could and I got out mate after how long I was in there for five minutes it's
00:55:52
about two degrees and I got out and I felt absolutely incredible like amazing yeah and I felt
00:55:59
this connection within myself again I started to pick my head out and foreign it's hard to describe the feeling
00:56:09
I I finally felt like I had myself again I had that running was like a moving meditation for
00:56:16
me it was my outlet it was somewhere but now I could physically overcome something that I didn't think I could
00:56:21
and I felt it inside myself and I was just Blown Away mate and it became my daily
00:56:27
practice yeah yeah and you teach it now yeah yeah I teach it now yeah at ice Studio here in Christchurch
00:56:34
and around at home um and Greymouth yep and it's just been an absolute privilege to share something
00:56:40
that's had a profound effect on me especially with my mental mental state of things yes okay so for anyone that um
00:56:46
is curious about it or intrigued like how how would you start how do you start um you can look up the Wim Hof method
00:56:52
yeah um get his teamwork course um but basically the method is just deep diaphragmatic breathing breathing from
00:56:59
the diaphragm hyperventilating yourself and just doing um slow breath holds and then we just expose ourselves to a
00:57:06
culture adapt ourselves to cold and then slowly we get into an ice bath and it's
00:57:10
just learning to be comfortable in that uncomfortable situation so combining the
00:57:13
breath with the ice we can control our breathing and that's you know this is
00:57:17
what I call full mindfulness when we're in there we've only got to focus on
00:57:21
ourself and where we are right now just breathing slowly getting it all under control and just
00:57:27
learning to be comfortable in that uncomfortable situation and that's what happened for me mate that's what really
00:57:31
happened for me yeah wow this yeah but there's always a silver lining so once I had that ice bath you
00:57:41
know I started to feel a bit better I started to communicate with people and my story is just another story of so
00:57:47
many other stories it really is that is always you know the light at the end of the tunnel so after eight years of
00:57:54
getting that treatment I was on a plane back to Melbourne getting treatment and I managed to sit next to this um young
00:58:00
girl and her name her name was Sybil and I and I said hello to her you know I wouldn't talk to anyone on a plane
00:58:06
before I'd shy away and I just said hello how are you really why would you shine away ah just a loner or oh you
00:58:13
look in the face and I was just I was embarrassed about who I was and what I was doing I didn't really want to share
00:58:17
too much about my treatment and stuff I really didn't I'm looking at your face in front of me
00:58:22
now there's there's definite um pigmentation stuff going on but um it looks I've said I've seen you on TV
00:58:27
interviews and stuff in the past um it's it's definitely looking a lot better now than what it has in the past
00:58:31
so much better than what it was yeah yeah for sure but at that time when I was getting treatment it was a lot worse
00:58:37
right yeah I was in a lot worse condition and you still didn't know you looked out
00:58:42
yeah I looked really ill bloodshot eyes all the time yeah you know I sat next to
00:58:47
I said hello she said hello back and she's gorgeous mate she's absolutely
00:58:50
gorgeous and I said where you're from she said from Switzerland I said what have you been doing she's been packing
00:58:54
around New Zealand had a great time now she's going over to Australia and I said
00:58:58
oh cool and then I asked oh what do you do for a job and um she said I'm an oncology nurse a
00:59:03
cancer cancer specialized nurse what are the chances what are the chances mate so
00:59:07
I don't recommend this for a pickup line but I said oh I actually going over to
00:59:12
Melbourne to get this special treatment it's called ACP and she goes oh I've
00:59:15
never heard of it so I said to her do you want to come and check it out you're on a backpacking holiday around
00:59:22
Australia yeah mate I'm like what what was she thinking so here I am didn't
00:59:27
think she'd turn up the next day I told him my hotel meet me at the front at 10
00:59:31
o'clock and to this day it's the first time my treatment got delayed normally
00:59:34
it was at 10 o'clock it got delayed to 1 pm so we unfortunately hours yeah we got
00:59:40
we got taken we had to spend that afternoon that morning together and we had a lot in common we really did and
00:59:46
she was just a wonderful person do you think um do you think she um in this may have even been a
00:59:51
discussion that you've had since then like was was she legit interested in the
00:59:56
treatment or did she just like you no I think she was more legit interested in the treatment
01:00:03
three hours late maybe in a blessing because it was a chance for you to charm that yeah yeah I didn't really really
01:00:08
know what to say because I've just talked about my last seven years eight years I mean it wasn't much to say but
01:00:13
she was really intrigued and she was just a generally nice person but the beautiful thing about her is she didn't
01:00:18
see my physical self yeah she saw inside me and who I was yeah man that's cool yeah man
01:00:29
she you know you talk about health so it's fundamental key people like her who
01:00:34
just saw me for me yeah a lot of people shied away from me a lot of people shied away from me and
01:00:41
that's why I didn't want to talk to people before because I knew how scared
01:00:43
they were when they looked at me you know I thought I was a monster how I look but she saw right into me man
01:00:49
sorry no apology not accept it and um she saw me and we spent the week together and at the end of the week mate we had
01:00:57
it we had a nice moment we had a kiss I yeah you've got so much gratitude don't you like I mean these are tears of
01:01:09
gratitude yeah nothing more you know it's just the people in your life that sustain you
01:01:14
mate you know I had my mum and then I had Subs I met here and and she decided to fly over to New Zealand come
01:01:21
and see me when I flew back and this is how special she is yeah I was living at home with my mum and dad I
01:01:27
had no job I was getting treatment for gvhd and I had no income nothing you should come over and hung out with me
01:01:35
for two weeks and that was it in stone now we're married mine and we've got a
01:01:40
kid on the way I'm gonna get onto my mind you know it's so good and let's let's show we sent some of the
01:01:51
story you know I'm not 100 of what I was when I was that Runner but I've got so
01:01:56
much more than what I had and your appreciation for life eh and the people around me mate you know those
01:02:02
wonderful people that went behind my back you know they were the ones pushing me along and I finally got my gold you
01:02:09
know sibling you know we I froze my sperm 11 years ago and we the doctor said you know
01:02:16
there's a good chance your sperm won't work but we'll give it a go and it's the
01:02:19
first egg got fertilizing it was an absolute Miracle mate because I know how many people struggle having IVF babies I
01:02:27
really do and it was the easiest medical procedure I've ever been a part of we
01:02:31
deserved it myself and um and uh my ex JJ yeah we uh after I had that tumor taken up that I
01:02:40
told you about um yeah we were on the uh the IVF treadmill for a number of years
01:02:43
I think we ended up having like seven failed rounds or something before we gave up but um I mean you yeah you
01:02:49
deserve you deserve that that that lucky shot and you've had no no no I don't
01:02:54
accept your apology at all man the stuff that you've been through like you deserve some good luck and some good
01:02:59
news and that was it yeah I was just waiting and holding on to that that's something would change yeah so simple's
01:03:05
over here she's got four weeks to go to she gives birth and uh amazing you know
01:03:11
it'll be a dad have I've got this wonderful woman by my side and you know I've got something to
01:03:16
really look forward to every day I mean yeah isn't it funny how everything happens for a reason everything happens
01:03:21
for a reason if you hold on to face yeah what are the chances of you you know sitting being seated next here on a
01:03:26
[ __ ] plane right oh chances are surreal I mean you know there's too much luck in my life to say it's luck you
01:03:33
know I'm very blessed on I really am and to be here today to have a chat with
01:03:38
you mate in a park across the road from where everything started falling out of control you know it's an absolute
01:03:44
privilege mate it really is to be able to share my story with you and I just really hope that what I've been through
01:03:50
and what I've got out of it is so much more than what I ever could have fathomed yeah maybe it could help
01:03:55
someone in such a dark situation because I know what it's like to be an athlete I
01:04:00
know what it's like when you think everything's been taken away yeah I coach kids now and it's just wonderful
01:04:06
that I can still give back in a way I can't run like I used to no way I can only run for about 10 minutes but seeing
01:04:12
these kids develop and sit in some Good Foundations in their life you know that's me giving back and that's me
01:04:17
being a part of running again and it's so fulfilling but how can you say you've
01:04:23
had so much luck like anyone that's listening to the story will be if anything you've been unlucky yeah for
01:04:30
sure but it's a glass half full going out I think so many life is about suffering
01:04:38
it really is there's so much hard stuff out there and I think we're accustomed
01:04:41
in life to think it's all good and glossy and I thought that beforehand before I was 23 going into that hospital
01:04:47
room I was I saw young kids two years old getting chemo I saw young boys you know they didn't wake up the next day I
01:04:54
saw Dad's with young kids passing away you know I went to Nepal and saw these
01:04:59
kids with nothing I've seen people suffer if you want to see something go into the bone marrow unit you'll see
01:05:06
real suffering and everyone's going through something everyone is and it's
01:05:10
my responsibility just to go through my suffering and hold on to Hope and Faith that something good would come and it
01:05:15
did yeah and it did and that's what I just share to other people just hold on
01:05:20
to those small perfect moments hold on to that love something special in your life knowing that things will change
01:05:25
that things will change for the better because I know they will yeah yeah I think you're gonna be a
01:05:32
great dad too you I mean you'll definitely be um you know more more open and more willing to display love than
01:05:40
what your own dad was I guess yeah but he showed love in a different way yeah you know I mean to say I'll be a good
01:05:45
dad my dad was a great dad yeah because he didn't have the tools that I'd I had
01:05:49
now of course and he was a great dad in his own way because he was trying to provide money
01:05:54
for my for us to provide opportunities that he never had and I respect him for that yeah yeah oh that's great yeah geez
01:06:02
you're one of the most great people you really are man and um your book The Window by back how can how can people
01:06:08
find that how can they buy it if people want to hear more of your story um you can go to www Josh coleman.com
01:06:14
there's a link there to buy it um I think it sells it with calls and Paper Plus
01:06:18
um yes you can order it through there yeah but yeah that's that's the link to
01:06:21
the book but um thanks for being so open with your story and uh I have to be honest he's key in
01:06:27
this life and yeah you know there's too much mistreuce going on and I'm honest
01:06:30
as I can be for people and that that's what happened um I'm lucky for my suffering I really
01:06:35
am really pleased about it because it's made me a better person it really has
01:06:38
yeah man I'm just so thankful that when you are standing on that balcony that
01:06:42
day that there was that that breath of wind breath of wind yeah Perfect Analogy breath of winds took me around and I saw
01:06:49
my mum and that love hurt me eh yeah was she right there was she yeah because she
01:06:54
was looking after me yeah so she went to the supermarket that day so she was staying at ranui house our new house is
01:06:59
amazing facility they have in Christchurch for long-term patients where family members can stay and
01:07:03
support them so she was staying there and those times I'd have that month of
01:07:06
treatment then come out for a week so in that week she was looking after me she went out to the supermarket yeah I
01:07:13
thought yeah that's when I made that kind of incorrect decision I mean yeah had you done it and let no one no one
01:07:20
could be mad at you no one could you know you'd be perfectly entitled to but
01:07:24
[ __ ] yeah I would no I mean it's hard to think what I was thinking in and to be
01:07:32
honest I wasn't thinking you know I was just in complete despair yeah you know
01:07:36
life was meaningless I felt powerless I felt hopeless I had no purpose and I connected myself to death that's that's
01:07:43
just what I connect myself with well let's hope the second half of your life is better than what the first has
01:07:51
been oh every day's been amazing since I've met sibs you know it really has you
01:07:54
know in those days of hardship too have taught me a lot Don yeah they really have taught me a lot and we can go
01:07:59
through so much you know we've all got it within ourselves to overcome the obstacles that that present themselves
01:08:04
we all have it there and everyone someone wants to help someone and that's the strength right there reaching out
01:08:10
for help you know we we spoke about it earlier in the conversation you know I was too young dumb and fully come to do
01:08:16
it it's silly it was absolutely silly yeah yeah we all need a bit of help we
01:08:21
all need a bit of wind at behind our back and I'm just so thankful for every
01:08:26
person that's come into my life doctors my Greymouth Community the the running
01:08:31
community that I had prior to that everyone's been absolutely amazing and I love them and appreciate them all and I
01:08:36
just love what you're doing Dom you've got some great great people on this
01:08:40
podcast and you talk about some heavy hitting stuff and really get that true authentic person out and they get to
01:08:46
speak some true meaning and life and I think you're doing a wonderful job mate
01:08:49
thanks mate yeah it all depends on the willingness of the person to share their story and be um you know open and raw
01:08:55
and vulnerable and you've definitely been all those things today man and I'm
01:08:58
so appreciative that um you shared your story with me I thank you thank you very
01:09:02
much thanks mate yeah no seriously cheers Josh Coleman love you mate love you too mate thank you Don

Badges

This episode stands out for the following:

  • 90
    Most emotional
  • 90
    Most intense
  • 90
    Best performance
  • 85
    Most inspiring

Episode Highlights

  • Coleman's Journey to Recovery
    Coleman shares his story of perseverance and recovery after a serious illness.
    “It's an absolute privilege to be here today.”
    @ 00m 42s
    October 21, 2022
  • The Moment of Diagnosis
    Coleman reflects on the day he was diagnosed with cancer and the impact it had on him.
    “You've got cancer.”
    @ 13m 28s
    October 21, 2022
  • Facing the Pain of Chemotherapy
    Coleman discusses the intense pain he experienced during his first round of chemotherapy.
    “I was in hysteric pain that first week.”
    @ 16m 10s
    October 21, 2022
  • A Moment of Clarity
    A pivotal moment where he chooses to seek help after contemplating suicide.
    “I can’t put the pain I’m feeling inside my mum.”
    @ 21m 32s
    October 21, 2022
  • Finding Faith
    Discovering a belief in God during his hospital stay.
    “Be strong and of good courage, do not be afraid...”
    @ 25m 31s
    October 21, 2022
  • Life-Changing Perspective
    Gaining perspective on his own suffering after witnessing poverty in Nepal.
    “I thought holy moly, some perspective it was.”
    @ 30m 11s
    October 21, 2022
  • Facing the Pain
    The speaker reflects on the mental and physical challenges of cancer treatments, emphasizing the choice to endure pain.
    “It's your choice to end that pain.”
    @ 34m 56s
    October 21, 2022
  • A Life-Changing Connection
    The speaker shares a touching moment of gratitude towards their stem cell donor, who turned out to be a friend.
    “No words could justify how I felt.”
    @ 42m 20s
    October 21, 2022
  • Finding Hope Amidst Struggles
    Despite facing severe health challenges, the speaker emphasizes the importance of hope and perseverance.
    “I held on to hope that I would get better.”
    @ 49m 40s
    October 21, 2022
  • The Ice Bath Experience
    Facing fear, the speaker tries an ice bath after a heart stint, leading to a profound realization.
    “I got in the ice and I just breathed through it.”
    @ 55m 43s
    October 21, 2022
  • Gratitude for Life's Journey
    The speaker reflects on the importance of gratitude and the people who supported him.
    “It’s just the people in your life that sustain you.”
    @ 01h 01m 14s
    October 21, 2022
  • Gratitude for Community
    A heartfelt thanks to the supportive community and individuals in life.
    “I'm just so thankful for every person that's come into my life.”
    @ 01h 08m 24s
    October 21, 2022

Episode Quotes

  • I had to collapse at the sink before I got taken to hospital.
    Josh Koman talks about beating cancer twice! || Runners Only! Podcast with Dom Harvey
  • I was in hysteric pain that first week.
    Josh Koman talks about beating cancer twice! || Runners Only! Podcast with Dom Harvey
  • I thought, no just go out and enjoy what you do have.
    Josh Koman talks about beating cancer twice! || Runners Only! Podcast with Dom Harvey
  • No words could justify how I felt.
    Josh Koman talks about beating cancer twice! || Runners Only! Podcast with Dom Harvey
  • I just want what he has.
    Josh Koman talks about beating cancer twice! || Runners Only! Podcast with Dom Harvey
  • I know what it’s like to be an athlete and think everything’s been taken away.
    Josh Koman talks about beating cancer twice! || Runners Only! Podcast with Dom Harvey

Key Moments

  • Diagnosis Shock13:28
  • Chemotherapy Pain16:10
  • Isolation Experience18:25
  • Physical Challenge34:39
  • Stem Cell Transplant35:14
  • Life Support36:27
  • Community Support1:08:34
  • Authenticity1:08:48

Tension Over Time

Words per Minute Over Time

Vibes Breakdown