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Business Leader David Downs: NZ's Branding Problem!

April 15, 2026 / 01:52:42

This episode features David Downs, a former comedian turned IT professional and bureaucrat, who discusses his journey through cancer treatment and his advocacy for better healthcare in New Zealand. Key topics include his experience with CAR T-cell therapy, the challenges of funding cancer treatment, and the importance of community support.

He also talks about his role at the Malagan Institute, where he is involved in fundraising efforts for clinical trials. David emphasizes the need for New Zealand to develop its own cancer treatments to avoid the high costs of traveling abroad for care.

The episode touches on themes of resilience, hope, and the importance of community in overcoming adversity. David's positive outlook and commitment to helping others shine through as he discusses his ongoing work to improve cancer care in New Zealand.

Listeners will gain insights into the realities of navigating the healthcare system and the impact of cancer on individuals and families, as well as the importance of advocacy and support in making a difference.

TLDR

David Downs shares his cancer journey, CAR T-cell therapy, and advocacy for better healthcare in New Zealand.

Episode

1:52:42
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Who is David DS? Ex comedian turned IT guy now bureaucrat and a bit of a cancer patient along the way just for good
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measure. >> Do you think you were going to die? There were definitely times where you go
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that might not end well. >> I made a touch of cancer documentary about selling the house and they
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literally sent me this email estimated price $1 million and we want it all up front. You can't sell the house. We
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could spend all of this money and then I could still die and then you'll spend
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the rest of your life broke and penalous with the kids. And she said that's not
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the worst case scenario. I'll spend the rest of my life wondering what might
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have been. What a moment in your marriage. That line in the documentary has set me off. Eight years of my life
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and we're down to the last few. >> Mate, I'm so glad you survived.
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>> David DS, welcome to my podcast. K. Nice to be here. Thank you. It's great to
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have you here. First, first question. Who is David DS? >> Well, if it was me, um, I guess what,
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how do I describe myself? Ex comedian turned uh, IT guy, now bureaucrat. That's probably it. And a bit of a
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cancer patient along the way, just for good measure. And an author >> and a board director. So so many so many
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hats. Why why ex comedian? What does that mean? >> Well, it's it's a safety net in case I'm
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not funny anymore. I know. I used to be a comedian many years ago. I dropped out
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of uni to become a comedian much my parents disgusted. And then uh and I did that for quite a few years. It was
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great. But then I had to get a serious job like you know to pay the bills and stuff. So I sort of stopped doing any
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kind of formal comedy. But people tell me that I still you know have a bit of that in me. So I yeah when I present and
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things like that I always say ex comedian in case people want to laugh. give them a permission cuz when was the
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last time you did like an actual what you'd call a standup routine? >> I did. It was not that long ago
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actually. I uh late last year so november I think it was and it was um for it was a a charity gig for the
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Malagan Institute. We'll talk about them later I'm sure. But I I roped in old
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friends Jeremy Corbett, Michelle Aort, um Emma Lang, John Bridges and I and uh we had this great night in down in
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Queenstown and Gibson Valley. had a really good night and it was that was classic old school standup you know
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people in front in a microphone standing in front of a crowd telling jokes basically so it was that was great fun
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but I hadn't before that hadn't done it for probably 20 years >> all all those names that you mentioned
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like New Zealand household names when it comes to comedy people that have devoted
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their life to it whereas you've gone off on a more corporate route >> did you did you notice a difference when
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you reunited are you like oh there's levels to the game and >> uh yeah John and I who haven't done it
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for a while and Emma a little bit but we John and I definitely were doing some of
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our old material from literally 25 30 years ago. So, um, but you know, the stuff about fax machines and all those
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really those great gags, uh, it still makes sense. But no, Jeremy and Michelle, you know, they are
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professional comedians and so yeah, they are more match fit than we are. But we still had a great time and the crowd I
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think really liked it. Yeah. Nostalgia. >> Yeah, that's I mean it's there there's
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so many hats that you wear. It's been such a fascinating career or careers. Um, you see CEO of a thing called New
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Zealand Story as well. Yes. >> What's that? >> So that's a government agency. So we are
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um paid for by the government and our job is there's a about 15 of us. So we're a micro agency. Our job is
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basically telling the world about New Zealand in a way that helps them understand there's more than just
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mountains and rivers and lakes and beautiful environment. That's cool stuff. Don't get me wrong. We we love
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that. But we want them to know that there's also great people, there's business, there's innovation, there's
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investment opportunities, all that sort of stuff. So it's basically growing New
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Zealand's uh international reputation. Where do you start? Yeah, you you start
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with the stories of New Zealand actually, like who we are and what we stand for in the world and our history.
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New Zealand's unique. We have uh we are the last place in the world where humans
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settled, for example. Many New Zealanders don't know the stories of our own of our own culture. And if you think
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about New Zealand being the youngest country in the world by definition, the sorts of people that came here, you
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know, had left something behind and they were looking for something better and they were adventurers and explorers and
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navigators, you know, the the early Polynesians who became Mari uh indigenous people and then the the the
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Europeans that came here were incredible and that they left something behind that
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was pretty safe place to be because they were had that adventurous spirit. And if
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you kind of play that forward, you you find New Zealand is a place where, you know, people who think differently, we
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challenge authority. You know, we're quite self um self-reliant. We, you know, we innovate in a different way
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than the rest of the world. And that kind of explains a lot about New Zealand's story. So when you start
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talking about the stories of New Zealand, first place in the world to give women the vote, first place in the
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world where there was a labor union, the 40-hour working week was created here, ACC, bungee jumping, you know, like all
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these things actually the space industry that we now have, all these things come
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from this kind of the root of New Zealand. So we basically then tell that story to the world and actually it
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resonates really well. people love hearing about. >> That's I've been doing this podcast four
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years now and that's what I found. You know, there's just so many New Zealanders out there like giving it a
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crack and doing really really well and thinking really big. >> It's really inspiring. Eh,
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>> it is. It is. And we, you know, the whole cliche punch above your weight,
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I've sort of banned that from use in my organization, but but we definitely have
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a disproportionate impact. New Zealand, you know, when we measure um perceptions
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of New Zealand globally, so that's one of the things we do, for example, is research. U when we measure that New
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Zealand's always in the sort of top 10, top 20 countries, which is remarkable
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given there are 193 countries. We're 5 million people. We've got no right to be
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in the top 10 or 20 of anything, but we are consistently every year on lots of different aspects and dimensions. So we
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I think Kiwis kind of forget how valuable that stuff is. And um certainly in times like this and that you know we
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haven't got the hard power, we don't have a military, we don't have a big
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financial base. Our soft power, our relationships are the things that will that we need to rely on
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>> in terms of brand New Zealand. Uh what are we getting very right and very wrong
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as a country? >> Oo that's a good question. Very right is going back to relying on the core values
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of who we are as people. You know um welcoming, caring, uh innovative, trustworthy. So those are sort of the
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core values of New Zealand. There's a whole piece of work we did on that around what are trying to define who are
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the values what are the values of New Zealand that stuff works well where we get it wrong and we and I think we don't
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necessarily do it consciously but subconsciously is where we rely on kind of cliches and tropes you know so New
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Zealand is clean and green therefore the rest of the world you know must think we
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are well the reality is we're not as clean and green as we would like to be and relying on sort of sustainability or
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the perception of kind of um New Zealand's environmental safety or standards is a is a bit of a mistake for
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us because a we need to lift our game and b uh it's a risky thing even if even
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if it were true uh you know you have one small food crisis or issue or or or something and suddenly your whole
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reputation is is broken. So definitely inside New Zealand story and that was part of the reason we were created is to
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say actually our our image is too narrowly defined on one thing which is natural beauty and environmental kind of
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impact and the reality is we've got to be quite careful that that is not the
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only strings we have to our boat. That's right. Because there's the whole 100%
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pure campaign, which leaves no margin of error. >> No, no, exactly. I often joke, I mean,
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it's still a good campaign and it does a good job for the tourism, but I say the
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problem with it is it's not 100% true. Um, and it's not 100% everything we do.
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So, like it's even if it were 100% true, it's not showing you innovation and
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investment and, you know, education opportunities. It's just showing you a beautiful mountain, which is great and
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that gets tourists here. So, it does a fantastic job from a tourism point of view, but is a bit lacking in other
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areas. Yeah. But if the uh if the campaign had have been like 85% pure news that would have felt like a poster
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in Murray Murray's office >> we make those sort of Yeah. We realize that quite often you can't say
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something's like 85 and a half% pure >> the other bit. Yeah. So now this um this
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chat today was um set up by um the how do you say Malahan Maligan >> Melan the Melan Institute. Yeah.
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>> Of which you're a trustee and an ambassador. >> That's right.
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>> What is the Melahan Institute? They uh so amazing. This is a classic Kiwi story
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of a a real treasure tonga for New Zealand that we New Zealanders don't always realize is there. So it's a cat
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research institute or it's a a research institute based in Wellington and they
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have about 150 odd staff some of the most uh incredible PhD level people who are looking at the human immune system
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and how the immune system operates. And they are literally a global leader in this. You know, they're one of only half
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a dozen institutes like them around the world who do this kind of research looking at the immune system. And
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they've been around about 40 or 50 years, maybe a bit longer. And for a long time, they were seen as a little
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bit of a weirdo organization. Look at those guys. They're mucking around with
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the immune system, but the real serious work in and is working on drugs and you know, pharmaceutical discoveries. What's
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happened in the last sort of 10 or 20 years has been this revolution in healthcare. Realizing that the immune
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system is this amazing complicated and yet um sophisticated mechanism that that can save us from many things. 99.9999%
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of all the things that go wrong in your body your body will take care of mainly through the immune system. So what the
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work they've been doing over many many years is to understand that better and
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uh they've got a particular program of work in cancer. They do lots of other
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stuff too like gut health and and things like that. But um in cancer they they're
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using their human immune system to fight cancer. And I'm involved because eight
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years ago I had the same sort of treatment that they're pioneering as well. But I had it in America. I had to
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go a long long way to get it and spend a lot of money to get it. Whereas right here in Wellington, New Zealand, we're
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we're creating our own version of the same and one of only again half a dozen
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institutes around the world that is able to do the sort of work they can do. >> Well, this is going to be a great chat.
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So, we're going to get into the the KT cell therapy and your trip to Boston. Um
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the fund raise Oh, the fundraising challenge. Go the distance. What is that? >> Yeah. Yeah, that's it. Well, cuz we're
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trying to get this Well, we're not trying, we are getting this clinical trial. So, to back up a little bit, the
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way that um drugs make their way into market or medicines make their way into the market is through, you know, quite a
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considered system of clinical trials. You don't just sort of create something
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and stick it out there and hope it works. You know, it's not like, you know, software where I used to work,
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spang it out there and hope it works. Um, no, with medicine you have to go through quite distinct clinical trials.
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The the typically because New Zealand is a consumer of international technology.
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We're not usually a creator of medical um, uh, interventions. We normally just
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get other people's clinical trial results and go that's good enough for us
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and we roll it out. In New Zealand, we've had to create our own clinical trial for our own uh, cartis cell
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therapy, which we'll talk about that in a minute. But that's an incredibly
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expensive and difficult thing to do. It's taking us millions and millions of
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dollars. Uh, and so we've been raising money um because the because the I hadn't mentioned the Malagan Institute
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is actually a charity. It's a it's literally a you know it's classic New
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Zealand thing again. We've got so many of our amazing things are charities in
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New Zealand um and rely on philanthropy and donations to succeed. So this clinical trial will cost us nearly $20
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million and we've raised most of that money but we're right down to the last
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few million. Feels like it's been a long time. Eight years of my life I've been
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working on this. Um and we're down to the last few. So we thought we would instead of just doing what we have been
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doing which is going to the way you raise money is by the way you go to rich people and ask them if they'll give you
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money believe it or not it's not rocket science but that has worked really well
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up until now and we've and we've done extremely well and there's been some
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very generous people but we're down to that last you know few million and we
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need to get more people involved so we've got this challenge called go the distance and the and the concept there
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is there are so many New Zealanders like me who have to go overseas you know I went to Boston 12 times over two years
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for my medical treatment for my cancer I know other patients even today still going to China, to the UK, to Singapore,
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America, having to spend a lot of money and having to travel a long ways and uh we're saying that if we need to go the
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distance both to get this clinical trial across the line, get the money in the tin so that we can actually have this
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treatment in the mainstream system in New Zealand, but to stop those other people having to go the distance that
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they're going. So that's kind of the the idea. So, for the month of April, I've
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committed to walking 200 kilometers. Um, which is why I walked here this morning. I was just telling you I walked
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for the fair. I've got to get my steps in. Um, but we Yeah, lots of people doing that. They're signing up. They're
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being sponsored. Um, you know, it it's just a way a it shows support for the
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institution, but but it's good way for people to have a bit of a competitive
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streak, too. So, my team's doing better than your team and we're raising more
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money and stuff. So, we're hoping to close that gap by going the distance. you're still passionate about the cancer
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stuff. Is it um I do go on about it? No. It's a really important thing, but it'd
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be easy for you to you find it triggering or whatever and be it's part of my life and I want to draw a line in
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the sand and I've done my bit and move on. >> Yeah. Yeah. Yeah. >> I think some people and I I completely I
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have no problem with people that do want to move on cuz that's fine. Um for me, I
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there was a triggering moment for me. I mean I I was diagnosed with cancer. I went through the normal treatments and
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it and and it was sort of I was a very public about it. But I was writing a column about it while I was had
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treatment. But there was a point where I realized we really needed help and it and it it was such an important u moment
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in our lives. Katherine and I realized that to get on this clinical trial, we'd
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been had this amazing opportunity to go on a clinical trial in Boston. But it but the quote was a million dollars. You
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know, literally out of the blue, an email comes in and goes, "Yeah, you're
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on you can get on the trial, but a million US dollars." And we we don't we
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can't do that. Like we don't have the money. We can't sell the house quick
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enough. We were going to have to try and sell our house. that wouldn't have got
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the money, but it would have got some of it. So, we just thought, how what are we
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hell are we going to do? And so, so many people helped us. You know, there was a
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give a little campaign which was incredible. It was humbling and, you know, sort of cringeworthy, but at the
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same time amazing that there's thousands of people putting in their their little
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bits of money and whatever to help. >> So, that was incredible. Um, but then
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there was other people who put on, you know, benefit concert. my comedian mates got together and did a concert and and I
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just felt this huge sense of not obligation that's the wrong word but just wow look at the power of people
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coming together for a cause and when I came back from my treatment and I was you know I was cured um it made me
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realize I I have an ability to be able to help other people even people I don't
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even know so if I go out there and be more visible and act as the ambassador and uh help raise the money um and it
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was amazing Because the first time they, you know, the Malagan approached me, I they flew me down to Wellington to show
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me around and then they sort of tentatively said, "We were wondering if you might consider being the our
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ambassador." And I went, "I'm in. What does it mean?" And they went, "We're not
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sure." And we went, "Okay, we'll work it out as we go along." And what turns out
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it means is helping them, you know, spread the word and raise some money. Um, and it's now 8 years later and yeah,
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I'm just privileged to be able to do it and be in a position where I, you know,
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I can actually share my story and talk to lots of people and Yeah. and and it's
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it's resonating which is good. >> We've been going almost quarter of an
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hour. This is a great setup. It sort of establishes um who we're dealing with
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here. Yeah. >> Um all right, let's go all the way back. So you're from Wongui. I'm from Palmer
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North. >> Wow. >> Yeah. >> You hang on. I'm just trying to work out
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your age now. What school did you go to? >> Palmy boys. >> Oh, there you go. Yeah. Yeah. There you
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go. Now I Wangui. I was born and bred to two Irish immigrants. >> Yeah. >> Earliest memories?
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>> Gosh, school? I loved school. I was it was good. I went through the Catholic
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system. So, you know, all the all of the nuns and priests and stuff like that were around and it was they were small
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schools, but it was great. I I had a I had a great bringing up very much working-ass family. My father was a
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painter and decorator. U my mother didn't work when we were little. Um I've
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got two older sisters and and a much much younger brother. And uh yeah, we always had a blessed childhood. And
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we're growing up in an Irish family. You know, my parents are very Irish in their
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demeanor and their language and everything, very eloquent and funny and and you know, I was blessed to have
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that. But then also going to school in a place like Wongui had a large mai population. You know, the school I was
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at was for the 50% mild role. It was just normal and I loved it. You know that that's, you know, culture and
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celebration and crack as they say in Ireland. But um all very kind of for me is a very different thing in what we're
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doing now. Yeah. Yeah. We had to learn a few of those things actually. Yes. My parents had to adjust some of their
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language. Yes. But it was wonderful. And then Yeah. And then left to go to Palmster North. Go to Yi.
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>> Yeah. Yeah. >> Uh Yeah. What does it mean to you to have Irish roots? Does it
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>> Born in New Zealand? >> Born in New Zealand. Yeah. Um but have lived in Ireland. I went and traveled
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there quite a lot. We've got lots of family over there still. And Katherine,
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my wife and I when we got married, we went and lived in Ireland for a little while just to sort of try it out. Um but
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it is important. It's part of my heritage. I love it. um the connection into uh an older civilization, but
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there's, as I say, there's such similarities with the Irish culture and New Zealand culture,
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uh language, you know, celebration, faro, family being important, all that sort of stuff is really familiar to me.
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So, yeah, I I enjoy it. >> And I get invited to some great St. Patrick's Day events.
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>> My was there a moment early on where you realized you were good at communicating
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ideas? >> Like, did your family like wheel you out to tell jokes at functions? Yeah. Yeah.
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It was almost literally. Yeah. When I was at high school, me and my uh high school mates, you know, in sort of
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fourth form, fifth form, so what's that? Year 10, 11. Um formed a little comedy
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club, you know, it was um we were probably terrible in retrospect, but we kind of got people to come and watch us
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do pretty much Montipython sketches and, you know, other people's material. We
00:16:57
started writing a few things of our own, but you know, through through high school, we did that. We actually did
00:17:02
some sort of productions, you know, at the local Amdram Theater type thing where our group was called up the ante
00:17:08
and it was cool and and I learned a little bit of stage craft and a little bit of, you know, um, timing and
00:17:14
performance from that. So that was probably it. And then I did, you know, I used to do all the school speeches and
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debates and things like that. So yeah, I think maybe it's the um, you know, the
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Blanny Stone type thing that comes through with Irish people. We tend to have a bit more of that eloquence
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>> cuz in in terms of like a comedy pathway back then in New Zealand there was
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nothing really there would have been probably similar age there was like mfen Gansby Billy T James Jones James
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>> and Funny Business they were like hugely influential >> Willie did a great
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>> those guys and Dean and yeah and um and Peter so they were great influence
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literally the first sort of time professional thing so we watched them on TV like they were on when I was in the
00:17:50
sixth form seventh form whatever and I remember they were coming to Wonganui to do a like a gig and they were my heroes.
00:17:56
But I they were going to do it in the local pub of course and I was 16 or 17. And so we me and this comedy group that
00:18:03
I mentioned, my mates, convinced one of our teachers, amazing guy, Father Tig, um he snuck us in basically he went with
00:18:09
us so that we were at a chaperone and we went to the pub and watched Funny Business like live. Uh and it would have
00:18:16
been 1987 probably six. And um I remember going up afterwards sort of very shyly going to the stage and Willie
00:18:22
hates me telling the story now but and just sort of you know trying to shake Willy's hand and and say hello and he
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was my idol and it's so funny cuz years and years later now he's a very good
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friend of mine very very close um and you know we've been through a lot together he and I but but back then it
00:18:36
was such a thing so there weren't too many icons. There was all the British comedy stuff as I say like you know the
00:18:42
Montipythons of the world but in New Zealand it was a very nent industry. But I was lucky because I landed in at a
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very, you know, fertile time in New Zealand comedy. That ne the next sort of 10 years was was a really interesting
00:18:54
time to be in comedy. >> Defining. Yeah. Did you have um like uh VHS's of like Richard Prior or Eden
00:19:00
Murphy or >> did a little bit the American stuff? I liked it. Wasn't as big a thing on me as
00:19:05
the as the um UK stuff. But >> um no, there was definitely all of that. Yeah, we were we were voraciously
00:19:11
consuming that and reading Viz magazine and all that sort of stuff, you know, just getting all these different inputs.
00:19:16
But Billy Billy T was a good one because he was the first sort of real New Zealand, you know, and Mfall Gatsby to a
00:19:21
degree. But, you know, Billy Tai guy telling Marty jokes, which you know, probably these days we'd all be
00:19:26
horrified about, but it was it was it changed, you know, changed our perception of, oh, you can actually do
00:19:31
this sort of stuff here. And we have got a kind of a semi-indigenous, well, semi,
00:19:35
you know, New Zealand sense of humor. So what did you want to be when you when you grew up like through secondary
00:19:40
school what was your plan because that difficult question like like now now if you're if you're
00:19:46
that sort of age you can say you want to become a content creator back back then
00:19:50
it was not even feasible to say you'd be like a professional comedian >> no literally it was a priest I was going
00:19:55
to be a priest up until right up this I don't tell many people this cuz it doesn't come up in conversation but I
00:19:59
went to a Catholic school very Catholic Irish upbringing Catholic Catholic Catholic some of the great influences on
00:20:04
my life some of the teachers I really admired were were priests. And I I thought, okay, I'm going to go into the
00:20:09
seminary. I'm going to finish school, go into the Catholic seminary, become a
00:20:12
priest. Um, but again, the same father, Tai, very amazing man. He said, that's
00:20:18
lovely. You know, we're having our fun of, you know, end of year chat. That's
00:20:20
great. Maybe you should go to university first, just for a year, and if you still
00:20:23
want to go into the priesthood, you know, that that's a great idea. Well, he
00:20:27
was right. I went to university discovered alcohol and women and and other things freshmen don't mix that
00:20:34
well with no turning back after no it was great it was a gift to me and he he became a a great friend and sort of
00:20:40
married Katherine and I and baptized our children all that sort of stuff so he was he was an influence you know by
00:20:46
telling us not to do something which was great yeah >> so so you moved to Palmy after school um
00:20:50
you go to me studying for a BSE what's that bach science >> yeah yeah and uh back then it was
00:20:56
mathematics and and uh I did chemistry and I jumped around topics cuz while at school I was quite smart, you know, I
00:21:03
was the tallest dwarf basically cuz it was I was the ducks of my school of literally six kids in, you know, in year
00:21:08
13 or seventh form. So I thought I was all, you know, wow, I'm so amazing. But
00:21:12
you get to university, you realize, no, you're not. You're uh pretty average. Um
00:21:17
and I didn't and I discovered all these other things that were much more interesting than actually studying my
00:21:21
degree. So I sort of scraped by in my first year um and kept changing topics and you know it wasn't really committed
00:21:29
to um the academic life at that point because there were so many other cool things to do at university.
00:21:34
>> Who who were your mates then? Palms North is a fertile ground for for comedy
00:21:38
and also for like commercial radio. Were you were you were you there at the same
00:21:42
time as Steven Joyce who set up radio messy or >> just just clipped the end of his period
00:21:46
there. Um and I sort of knew of him >> and Bernard Hickey who who's in the
00:21:50
media now. He was but yeah no Bernard's uh >> oh the financial guy financial guy yeah
00:21:55
yeah yeah he he was at radio massy >> um so yeah it was it was futile as you
00:21:59
say and then there was 2xm which was like a commercial station and Robert Scott was there for example at that
00:22:04
point and um those guys and then my you know the Jeremy and Nigel Corbett the Corbett boys were there and John Bridges
00:22:10
and >> Yatesy Paul Yates and a whole lot of people that that became really good
00:22:15
friends of mine and are still many of them still working in media and TV and and you know have their careers have
00:22:20
just gone gone ahead. So yeah, that that was the crowd I kind of landed into the
00:22:24
middle of and I was very lucky as I say I was um I got there just at the point where things were getting quite
00:22:29
interesting and uh I joined you know my almost my first couple of months I joined the Massie University Drama
00:22:34
Society MUDS um cuz they have an annual review capping review so it's very British again like that they call it
00:22:41
footlights in um Cambridge and it's the they come together and they do sketch
00:22:44
comedy and it's all very you know formulaic in some ways but Muds was doing the same sort of thing so I joined
00:22:50
up and I I remember walking in, it was probably one of the formative moments of my life, walking into the sort of, you
00:22:55
know, lecture theater where they were rehearsing and meeting all these people who would now become my, you know, very
00:23:01
close friends 30, 40 years later. >> Um, and yeah, they accepted me in and we
00:23:07
had a we had a wonderful time. So did um did basically that was where I spent most of my time was doing that kind of
00:23:12
work. >> Did did it feel like feel like you'd found your tribe like this is where I
00:23:16
belong. These are my people. >> Yeah, definitely. There's definitely that moment where you go, you know, they
00:23:20
got shared sense of humor but but different and had slightly different life experiences than me and and yeah,
00:23:25
you do I felt very lucky that you you've got this this opportunity to meet people
00:23:29
that are like you and universities are great hunting grounds and you know you've got radio going on and I got
00:23:35
involved in the student newspaper and then I became the treasurer of this of the student association and you know I
00:23:40
just got involved in stuff. It was cool >> cuz Steven so Steven just slightly older
00:23:44
than you. He looks very much older than me. A Stephen if you're listening. Oh,
00:23:48
I'm ancient. He's probably about five years older than me. I don't know.
00:23:51
>> He was he was doing like a vet degree and um cut his teeth in radio there.
00:23:55
Then went on to set up the company that is now Media Works. He was my boss for a
00:23:58
while. I think Jeremy Corbett was an investor as well. >> Jeremy's got a great story about that
00:24:02
cuz he apparently missed out on he like he's got this he invested in the early
00:24:06
days and then pulled his money out just as it got good and just started flying. Yeah. So he did Energy FM and in I think
00:24:11
Tanaki and Jeremy stopped and then of course Media Works took off. But yeah, you weren't tempted to be an early
00:24:16
investor. >> No, I didn't have the opportunity. I have no money. I was broke. I was a
00:24:20
completely broke student, but loved it. And also I only stayed at Massie about a
00:24:24
year and a half or two years. And then we had this incredible experience where we literally got, you know, the phoned
00:24:28
up and said, "Do you want to be on a TV show?" >> Me and a few other guys. So, so we went
00:24:33
off in a different direction for a little while. >> Yeah. So, this is when um God, this is
00:24:37
going to age the conversation. There were two TV channels in New Zealand, TV1 and TV 2. And then TV TV3 was launching.
00:24:43
And this was a TV show called A Way Laughing. >> That's right. Yeah. >> So, you got sort of headhunted for this.
00:24:47
>> It was amazing. >> How I mean it's like it's it's the
00:24:51
starlights, right? It's the it's the dream. But how did that conversation go
00:24:54
down with your parents? >> Uh not well guys. >> I like to think cuz my um yeah, it was
00:25:01
the second year of uni. We got we did we're doing the capping review again and
00:25:05
unbeknownst to us one of the a d a producer from TV came along Dave Gibson um came along watched it and he sort of
00:25:11
was obviously writing notes and he went you you and you and he picked the three of us and we got a phone call saying do
00:25:16
you want to come and work on this TV show I'm creating. It was literally sort
00:25:19
of out of the blue like these things don't happen. So, I had to break it to my parents that I was going to quit
00:25:24
university halfway through second year and um go off and do this weird thing of being an actor and and a comedian. And
00:25:30
and it was it was heartbreaking to them, I think, because I was going to be the first ever on both sides of my family.
00:25:37
My my father and my mother were all very workingass. Their whole generations back, you know, Irish, you know, living
00:25:43
sort of pretty hand-to-mouth existences. And I was the first child to go to university. my two older sisters who are
00:25:49
who are now incredibly um uh profession and accomplished but back then had children quite young and didn't have the
00:25:56
opportunity to go to university etc. So it's like the whole family history was
00:26:00
resting on my shoulders and then I said >> I'm throwing it away. Yeah. I have the
00:26:04
great hope I'm throwing it away. I'm going to go and be a comedian. I was
00:26:07
like you can just imagine them oh gosh >> you couldn't be more disappointed.
00:26:11
>> That's right. But um but no I think I've made up for it now I hope. But yeah,
00:26:16
>> knowing what you know now about TV and how fickle it is and how how quickly
00:26:19
they you make knee-jerk decisions or they did back then, there's no way you do it, right?
00:26:23
>> No, but the way you pull out it depends on your like you've ignorance
00:26:27
>> when something like that presents itself at the age of I was probably 19 or 18
00:26:31
even maybe um no 19 it was why wouldn't you like there's there's a very low risk
00:26:38
um at that stage of your life. I mean, I mentor lots of young people now, and I just say, "Do anything." Like, anyone
00:26:42
that offers you anything at that age of early 20s before you've got mortgages
00:26:46
and children and long-term relationships and debt and whatever, just take every opportunity that's offered to you cuz
00:26:50
it's >> there's very low risk and um you can always adjust later. When you're my age
00:26:55
now, like mid-50s, late 50s, yeah, you got to be a bit more thoughtful, but back then, you know, take the
00:27:00
opportunity. But yes, it's very fickle. TV, as you know, media, oh, you're
00:27:04
you're great. You're the greatest thing ever. No, you're gone. So, we've given
00:27:07
it two episodes. It hasn't worked. >> Sorry. Yeah. One of the TV producers I
00:27:11
used to work with, I hope this is not too much for you say one day they're opening the bottle of champagne for you
00:27:15
and next day they're shoving it up your bum. So, >> but yes. >> So, what was it like back then? Um you
00:27:22
being on it must have been exciting like being on the startup channel TV3. >> It was we were opening night of TV3. Um
00:27:28
it was it got a lot of hype. Uh you know it was bus stops and whatever and and there was like two or three local
00:27:34
content things that night. um I think news news something or other um there was a news program there was us there
00:27:40
was a there was a drama program and then there was a bunch of you know US-based stuff or whatever they bought so we it
00:27:45
was a big deal and it was all in the press and you know listener and all the articles and stuff and it it was an
00:27:50
ensemble cast so there was I think eight or 10 of us um some really cool people Kevin Smith god Rest his soul was was
00:27:56
there um Donald Mlain Robert Malcolm me John Paul you know a bunch of people Tim
00:28:03
Balm I can't remember who now there was a few of And it was cool. So, and we we
00:28:07
were given this, you know, amazing uh opportunity, a 13 part episode, 13 episodes. We had a couple of series in
00:28:13
the end. And it was very character- based. You know, they were they were basing it on some Australian formats
00:28:18
where they where they have regular characters with kind of catchphrases and the catchphrases were designed to become
00:28:23
more and more repetitive. >> Comedy company in Australia. >> Comedy company. It was the same kind of
00:28:27
time as that came out. And so I had two of those characters. One was Daryl Hoon.
00:28:31
Uh Daryl Hoon and what's it to you? Um, that was my catchphrase among other things. And then we had me and John did
00:28:36
these two skateboarder guys that were actually a sketch that we' done at university. So, so it was very And then
00:28:42
we had just general sketches. So, it was very safe. I look back at it now and some of it's a bit cringeworthy. Some of
00:28:47
the gags still held holder, but most of it you go, "Oh man, it was a bit ropey."
00:28:51
But, um, you know, it was we was we were learning. We were trying things out. What were the reviews like?
00:28:55
>> Yeah, they were okay. They were pretty good. I think we did go up against like
00:28:59
Mcfallen Gatsby and stuff in the end. So like they were putting us against some pretty, you know, established things.
00:29:04
But yeah, I think we did pretty well out of it. And you know, it was certainly fun. Like me and um me and my friends,
00:29:10
you know, it was the dream come true. We were suddenly working in TV and getting
00:29:13
paid more than we ever knew was possible. We had literally $1,000 a week or something. It was like, "Oh my god,
00:29:18
what are we going to do with all this money?" We found out some of the rest of the
00:29:23
cast were getting paid substantially more than that. But we were like the naive young guys from Palmer North.
00:29:28
>> And was it around this time that you um co-ounded the classic? >> Just a bit after. Yeah, we move after
00:29:34
doing two series of that. We moved to Oakland um and continued working in TV. I say we cuz um by that stage my wife
00:29:41
which my girlfriend at the time who's become my wife Katherine and we we'd got
00:29:44
together. John came up here and we moved moved up here worked in other TV shows.
00:29:49
So, we were in like more production roles or writing or doing a little bit of acting and stuff and and because that
00:29:55
as you probably know is not really a job like you you'll have a 3 or 4 month
00:29:59
project which is awesome and then you're sleeping on someone's couch for 3 months
00:30:03
while you haven't got any money you know so so we decided we needed to be a bit
00:30:06
more in control of our own destiny so we we were doing a lot of standup comedy in
00:30:10
clubs as well in bars and stuff and but they were other people's pubs and I remember you know vividly remember we
00:30:15
would done had done all the work we would be bringing in the chairs We would be s Katherine and girlfriends and stuff
00:30:21
would be sitting at the door taking the tickets. We'd be on stage telling our
00:30:24
jokes. We'd pack it all up again the end of the night and then we'd divvy up the
00:30:28
proceeds and we might get 20 bucks each. And you'd watch the guy behind the bar
00:30:31
just creaming it the whole time and making money. So we think, why are we doing, you know, things in other
00:30:36
people's bars? Why don't we own the bar? You know, again, naively, I was I was
00:30:40
not even I was probably 21, 22, but three or four of us decided, yeah, let's
00:30:45
let's do it. How hard can it be? So we turns out very hard. But al again, same
00:30:50
sort of thing. You know, you don't know how hard it's going to be. There's no
00:30:53
real major mistakes you're going to make at that stage of your life that you
00:30:55
can't get out of. So, we um yeah, we set up the classic. So, um incredible. I've
00:31:00
had um I had Scott on the podcast at the beginning of the year. Great chance. So,
00:31:04
he he was one of the founders with you and he's still there now. >> Still there now. Yeah. He's amazing.
00:31:08
>> The original model was um >> there was about five or six of us involved. Scott was sort of on the
00:31:13
peripheral to start with, but then he became very important. Um but it was Jeremy put some money in you know we got
00:31:18
friends and family you know and friends family and fools as the sort of go saying goes with um early stage money.
00:31:24
Um Katherine's mother put money in like we put whatever money we had. We were
00:31:28
the only ones at this stage that had any kind of assets. I owned a we owned a house randomly a little apartment tiny
00:31:33
little place that we'd scraped to get enough money to buy. So that was the that was kind of the um the guarantee on
00:31:39
the loan from for setting up the classic. And then uh yeah, but what we were trying to do is basically turn it
00:31:45
into a business. And and it's sort of a business, but actually much more it's a
00:31:49
social good. And we realized after a few years that actually the model of trying
00:31:53
to have multiple people own it and think that you're ever going to make any money
00:31:56
is not going to work. >> It actually needs to be an owner operator like a like a dairy.
00:32:00
>> And that's kind of what it still is. And Scott's done an amazing job. um not not
00:32:04
dismissing um you know it is a business but actually it's much more of this just
00:32:08
kind of engine of creativity and growth and giving comedians an opportunity to kind of learn their craft.
00:32:14
>> Yeah. And in terms of nurturing young comedians he's so bloody good, isn't he?
00:32:18
So lucky to have him. >> It's always been his massive skill. Like it's so funny cuz most of the people who
00:32:23
work in comedy are comedians, you know, and they sit around and tell jokes with and it's like oneupmanship and you're
00:32:29
kind of taking the piss out of each other constantly. And Scott's this really interesting force. He's the
00:32:33
godfather. Um cuz he'll sit there and not try and do all of that, but he'll
00:32:37
observe and he'll tweak and he'll give people advice and it's amazing. He's
00:32:41
just got such a skill and as you say, nurturing the next generations that come through. So back then we were ropey as
00:32:47
hell. You know, 50% of our stuff was awful, you know. Um we were learning, the audiences were learning as well.
00:32:53
Like it was so funny. I look back like we we both none of us really knew what standup comedy could be or should be. Um
00:32:59
and you have to do a lot of it. It's like any skill, you know, thousands of hours of training to get good at
00:33:04
something. Um and so yeah, the early um audiences were put up with a lot. Uh but
00:33:10
Scott was Scott was very much there training, learning as himself, showing other and then part of bringing um a big
00:33:17
step we took at one point was to start to bring in international comedians into New Zealand. Like it was a real like a
00:33:22
step change to thinking not only are we going to run our own thing, but we're
00:33:26
arrogant enough to think that we can produce other people's shows. and Scott
00:33:28
was big behind that. Um bringing in you know Ed Davies um who was Rich Hall um Bill Bailey who were the first producers
00:33:37
of Bill Bailey and so we did this thing over through the comedy festivals um bringing in these comedians and yeah he
00:33:43
he was a big driver behind that was amazing. >> Yeah. So, so you're in this unique
00:33:47
position where you you're a creative um but also yeah 1992 CEO of the comedy
00:33:52
fest and then 19 uh mid '90s you set up a company called Eureka software development company.
00:33:57
>> Oh gosh, you have done your research. >> So you you've got it's almost like these
00:34:00
two lives. >> Yeah. Yeah, it was a bit like that. I think cuz my brain's always been a bit
00:34:05
more mathematical than most others and I was the sort of initial CEO for for the
00:34:09
um for the classic and the comedy fest when it first started because I knew how to use a spreadsheet cuz I'd gone to
00:34:14
university and done maths like it was literally I had no idea about finance. I just had knew how to use a spreadsheet.
00:34:19
Um and then I had some good friends that helped as well. But yeah, so there has been that and and also I knew again I
00:34:25
could see pretty quickly that the comedy thing was not really a career. It was a
00:34:28
cool thing to do for a few years and hanging out with my mates and we did a lot of radio and it was awesome but we
00:34:35
needed a proper job and again maybe I was a little bit more mature advanced than some of my friends. No disrespect
00:34:40
to them but Katherine and I got together early decided we were going to get married wanted to have children realized
00:34:45
that jeepers one of us had barely have a job. So we we set up this technology company and again it was super early
00:34:52
1995 was just when the internet was starting out. Windows 95 came out. I remember it vividly and we set up a
00:34:58
company at that point to basically do the sort of things that are still around now. Um, but we were way ahead of I was
00:35:06
going to say way ahead sounds like like we arrogantly knew what the thing was doing. No, we we were too early trying
00:35:10
to do things with technology that was too immature. Um, underinvesting in it, not really knowing quite what we're
00:35:16
doing. But we we we set up a pretty good business that went for a few years, quite a few years. So yeah, it was fun.
00:35:21
And I was running that at the same time I was running the classic for a couple years. there was an overlap and it was
00:35:25
and we actually had the office the techn Eureka was set up in the same office as
00:35:29
the comedy um club for a while. So I'd be you know helping out the comedy side
00:35:33
for one in the evening and then trying to do and write code and stuff too. I was I learn I taught myself to be a
00:35:39
software developer. >> That's wild. So were you were you like two different p two different people and
00:35:44
to be in one room you're in >> probably possibly actually I don't know
00:35:48
I mean I was I was nerdy in both of them. Um, but luckily I have good people around
00:35:53
me. I mean, that's the thing. That's the thing I've learned is you don't have to
00:35:56
be perfect at everything. You just have to gather people around that are good at
00:36:00
stuff. So, yeah, >> it's just a crazy thought this guy writing code by daytime and having these
00:36:04
these these meetings about where the the internet's going to go in the future and
00:36:07
then by night you're doing five minute sets on stage. >> Well, the interesting thing is comedians
00:36:11
are often very intelligent. I'm not saying I am but many int a lot of intelligent and there's a lot of
00:36:16
parallels between those types of sort of logical things like mathematics or computer programming. Jeremy Corbett's a
00:36:22
closet computer programmer if you don't know that um used to do a lot of work in
00:36:26
cobalt John Bridges wrote a his whole mast's thesis on hypertextual analysis
00:36:31
and webs and how websites would work and so a lot of people have that in them it's just that comedy is kind of like a
00:36:38
much more near-term short-term sugar rush that you can get out of it. Where did I stay withd
00:36:52
that sort of dropped off along the way? >> Yeah. Yeah. A lot of people. Yeah. It's
00:36:54
not for everyone. It's a a is a lifestyle. It's a difficult job. You know, those that work hard, they work on
00:37:00
weekends and nights. It's pretty antisocial from a family point of view at times. B, it's actually hard to be
00:37:06
successful because you've just got to do a lot of work, a lot of hours to get
00:37:09
good and you've got to takes a lot to, you know, a fiveminute set takes you hours to think of and write and craft
00:37:14
and hone and tune and whatever. So, there's a lot of effort behind it and then of course you've got to have the
00:37:18
talent for it. So, you know, um, a lot of those people drop off. You often have to have a second job. You know, you
00:37:25
know, radio was a classic one or people would do things that allow them to do that stuff in the evening. So for me, I
00:37:30
I quickly realized there were other things that interested in me more and I probably wasn't willing enough to spend
00:37:36
the the hours and hours needed to get really good and you know I want to spend time with my family and do other cool
00:37:42
things. Yeah. >> And and you like you like money. You like not being broke. You like eating
00:37:46
food. >> Yeah. I like Yeah. I like eating food. Yeah. That's the other thing. Yeah.
00:37:49
You've got to surviving on >> Yeah. Yeah. Exactly. So, but I I'm so
00:37:54
pleased with the way that we did that back in those days and the whole industry has just developed. You know,
00:37:59
we couldn't have written the script better in terms of New Zealand's comedy
00:38:02
scene is rich and diverse and cool and youthful and has a has a New Zealand twist on it. It's all the things we had
00:38:09
hoped, but um it wasn't there wasn't a business plan to do that, but that was
00:38:12
certainly part of the the vision that we hoped for. >> And you do so much um keynote speaking
00:38:17
and stuff now. I suppose that sort of scratches your itch. >> It does. That's my uh my outlet. Yeah.
00:38:21
People say, "Do you do much comedy?" I go do comedy every day. Like every
00:38:24
meeting I'm in. I'm not on purpose. I'm not trying I'm not cracking jokes very
00:38:28
often. Probably too much for my kids, you know, a bit dad jokey. But um but I definitely It's funny actually cuz in my
00:38:34
when I dropped out and I went and worked for Microsoft and all this sort of stuff, I thought, "Oh, I better be
00:38:38
serious and I better put a shirt on and I can't I can't show people who I really
00:38:42
am." So I'd be like biting my tongue, not saying the funny thing. uh and you
00:38:46
know for years and then over the years I realized the more I just let myself be myself and make the jokes and be you
00:38:52
know friendly and whatever the better things went. So I just sort of unleashed it and now I'm in this job where I sort
00:38:59
of literally am briefing the prime minister and talking to ministers and whatever and make and I just be me and
00:39:04
it and it seems to work pretty well. So I don't try and you know be two different people anymore.
00:39:09
>> Yeah. >> Yeah. >> Yeah. You you mentioned Microsoft just then. Yeah. So you worked at Microsoft
00:39:12
for 13 years. regional director for Southeast Asia. >> Yeah. Yeah. >> Um that sounds like a big job.
00:39:18
>> It was. Yeah. It was cool. I mean we I worked here in New Zealand first for
00:39:21
Microsoft. I got headunted by Microsoft after say running my own business and technology and that you know and they
00:39:28
asked me to come and work for them which was cool and it was great fun to work for a big corporate. Again I hadn't I
00:39:33
hadn't really consciously thought of it as a next step but it was a great next
00:39:36
step like going work for a massive corporate and learning how corporate environments work. Then they offered me
00:39:41
a job uh working in Southeast Asia which we'd never lived in or worked in. So it
00:39:46
was great. And it was at that time we had we've had um three children and we
00:39:50
thought yeah it's a good age. The kids are kind of you know what they four seven and nine or something like that I
00:39:55
can't remember. And we thought yeah let's go and do have an adventure with
00:39:58
the kids. And so we went lived lived in Singapore which is a nice sort of safe easy place to live. And then I looked
00:40:04
after all these 11 countries around Southeast Asia, which were the the weird and wonderful markets, the places that
00:40:11
US corporates kind of struggle to be successful in sometimes. And my job was um kind of being the the um regional
00:40:19
manager. Sounds awful. It sounds like a David Brent thing, but um but but basically they had subsidiaries in all
00:40:24
these countries and then I would sort of fly in and just make sure that we're
00:40:27
being legal and you know, everything's above board and things projects are going well and we're we're doing okay.
00:40:32
And um yeah, it was great fun. Yeah. Did you enjoy it? >> Oh, I loved it. Oh, that was probably
00:40:36
one of the best jobs. It was stressful as hell because the the answer to the question is are things going well was no
00:40:41
most of the time. Um cuz 11 countries, some of them are a little bit wild westy in terms of the way that their
00:40:49
legalities work and there's a bit of graft going on, bit of corruption here and or a very grumpy customer or
00:40:55
whatever. Um so it wasn't always easy. Um, but it was great fun and learning
00:41:00
the differences between countries. You know, as a New Zealander, we often look at the world and go, there's Asia and
00:41:05
there's America. And it's only when you get up close and living there, you
00:41:09
realize the differences and the nuances and, you know, Philippines is very very different than Vietnam or or Indonesia
00:41:15
or whatever. And so, you're learning and I love that aspect of it. Um, I was
00:41:20
applying the business stuff I knew but in a completely new context. >> Wow.
00:41:23
>> Yeah. Did did you have anything to do with upper management like Bill Gates or
00:41:27
>> Paul Allen the other guy? >> Yeah, way back then. Yeah. But Bill Gates gave me a watch which was very
00:41:31
cool. Actually I won award. Yeah. I won this award a big award the big Microsoft
00:41:35
global award for sort of whatever I can't remember the chairman's club it
00:41:39
was called. That's right. So I got a Rolex gold Rolex from Bill with it on the back it says 2D from BG
00:41:46
uh which is pretty cool. So that was at a that was you know like an award thing that you know Microsoft like all those
00:41:51
big corporates they have these big incentive programs and this was the you know the top of them top of the top
00:41:55
awards. So I've still got that in a draw somewhere. I don't wear a watch so and
00:41:58
I'm not going to wear a gold Rolex cuz it's a bit of wanky but >> was is the money wild in that time.
00:42:03
>> Oh it wasn't it wasn't wild enough. I I mistimed my run. Microsoft was this
00:42:08
amazing company. It grew like crazy. And like when I joined they said to me don't
00:42:12
worry about the don't worry about the pay. It's all about the stock options.
00:42:15
You just just forget about the pay. It's just like chump change. But then I joined and then they had this this issue
00:42:21
with the US government and you know there was the consent decree and the the stock basically just flatlined for about
00:42:27
12 of the 13 years I was there. And then after 12 13 years I I'm going to do
00:42:31
something different. I'm out of here. Made a little bit of money. Don't get me
00:42:34
wrong, you know, we we did fine. But compared to the there's a great story about Microsoft where there if if you
00:42:40
can let me diverge for a second where there was a receptionist in one of the offices in Australia and every year all
00:42:46
the all the people that work for Microsoft in in those early days would get stock options as part of the annual
00:42:50
bonuses and and she didn't understand what it meant. She was oh yeah whatever
00:42:53
just and then one day she said to one of her workmates what are these things that
00:42:57
I've got here? I've got you know so many hundreds or whatever of these things and
00:42:59
they did the calculation and she had like $3 million. It was like she was literally the receptionist at the at the
00:43:06
office in and uh so you imagine what that was doing for some other people that were on a substantially higher but
00:43:11
I missed that bit and then when I left I thought I've had enough. I'm going to do
00:43:15
something else which has been great don't get me wrong I'm not bitter but
00:43:19
when I left I had to sell all of my remaining stock and stuff and then I look back at it you know years later I
00:43:24
go oh my god it's gone up literally 10 times what I would have sold it for. >> But it's okay I'm fine. I'm not bitter.
00:43:30
>> Thanks for reminding me. Yeah. Who's got um in terms of that, have you and Jeremy
00:43:34
Corbett have a discussion about who's got the worst scars on their back? >> Yeah. Yeah. Yeah. Yeah. We we get
00:43:39
together and be bitter and twisted together. But it's both good for both of you guys.
00:43:43
>> Uh if you if you worry about stuff like that, you're worrying about the wrong
00:43:46
stuff, you know, like we're okay. We can feed the kids and you know, whatever.
00:43:49
And and it's it's never been about the money, you know. Um money's money is
00:43:54
important to a certain level. It's a hygiene factor for all of us. And someone said to me a very wise thing
00:43:59
once, there's no such thing as a poor philanthropist. You know, I really want
00:44:02
to be in a position where I can give away money. And Katherine and I have already talked about, you know, when we
00:44:06
when we pass, we'll be giving money to these different charities and stuff like
00:44:09
that. We haven't got a lot of money, but it'll be nice to be able to recognize
00:44:12
that. Um, but you can only do that if you've, you know, you're not sustainable. And also from a time point
00:44:18
of view, I've been very lucky that I work part-time in my New Zealand story job. They let me do that because I want
00:44:23
to work for the Malagan Institute and do all these other things. So, um, yeah, if
00:44:27
you if you you can't do that unless you're in a position to do that. >> Yeah.
00:44:31
>> What room would you say you're more comfortable in? Is it like a like a room
00:44:33
full of comedians or a room full of computer geeks or a room full of suits or >> Wow, these are good questions.
00:44:40
>> I could do all of that. I don't mind. I'm in all of those rooms quite
00:44:42
regularly actually. >> And you you're pretty much the same or you just moderate your behavior slightly
00:44:47
for the audience. >> I might moderate it a little bit. you know, if you're in a room full of
00:44:51
politicians or, you know, serious business people or whatever, you're not you're not quite doing the, you know,
00:44:55
the cracking the jokes that the comedians are going to do, but at the same time,
00:44:59
>> comedians, you know, will talk about world affairs and are interested in the
00:45:03
economy and what's going on and politics and stuff like so the the worlds are not
00:45:07
mutually exclusive at all. Um, yeah. And I I find that useful. >> Part of I think part of my value is a
00:45:12
little bit that I do walk in these different spaces and I can actually connect the dots um between things.
00:45:17
>> Oh, it's a superpower. Yeah. Hopefully served you well. >> Yeah. So far,
00:45:21
>> Jess, um 22,000 followers on LinkedIn as well. Like you're very well connected.
00:45:25
>> Most of them are my mom. She set up all these ghost accounts, I think. Yeah.
00:45:29
>> Well, for me, I think LinkedIn's the only social media app that's safe from
00:45:32
my mom. >> Well, she's definitely not going to check you out on LinkedIn. I know. Oh,
00:45:38
LinkedIn's been an amazing part of my story. Actually, I'm so lucky because
00:45:41
LinkedIn was literally the way that my life got saved, you know, and I give great credit to it. I was so I was
00:45:47
public with telling my story. and I got connected with this guy on LinkedIn who who said I think I can help you and and
00:45:53
so it's amazing but but also I do see it as a useful um way to kind of connect
00:45:58
with other people and share and learn and yeah >> you you brought it up then the um yeah
00:46:04
the LinkedIn thing and the um the guy from FISA that slid into your DMs. >> Yeah.
00:46:09
>> Um almost is would it be fair to say he's almost like a guardian angel?
00:46:13
>> Yeah, Mike his name is. He is. Yeah. and he still connects with me very
00:46:16
regularly. Like he'll send me a text every now and then. He's a great a great
00:46:19
guy. So the story there is I was I was just going to work. I was back here in New Zealand at this point. Had finished
00:46:25
my job at Microsoft was working at New Zealand trade and enterprise which is an amazing government agency using my
00:46:31
skills in international like work and great. Um and then I got I basically got came down and got diagnosed with cancer
00:46:37
out of the blue. you know, I was just feeling a bit under the weather and went to the doctor and it just escalated
00:46:41
really quickly to I think I've got the flu to no, you've got quite severe
00:46:45
cancer and actually we need you to do chemotherapy and I'm in and out of hospital. And so my life just changed
00:46:51
like radically in a really short amount of time, mid-40s at the time. And um and
00:46:56
I had, you know, again, like I said earlier, I I've always wanted to be creative. So I thought, what am I going
00:47:00
to do? I started writing and I wrote a column every day, every every week and stuff published it, which was cool. Um,
00:47:07
and it was because I was a comedian. I don't take things too serious. I was writing kind of a a more humorous
00:47:12
version of what it's like to go through med serious medical incidents. And sometimes though it's quite serious
00:47:17
because what you're going through is quite you know difficult. But I I put it
00:47:20
out every week whether I liked it or not. And uh it got thousands of followers. It was really getting a lot
00:47:25
of uptake and I was getting lots of um you know beautiful messages and things like that. But it did get to the point
00:47:31
where the treatment just we ran out of options. And this is why this is such a thing that's close to my heart is cuz
00:47:36
people are still getting this kind of message in New Zealand. We just don't have the treatments you need. Like we
00:47:41
can go this far, but we can't afford the treatments that are now available. You
00:47:45
know, there's so many of this these stories that are still in our media all the time. And I was one of them. And for
00:47:51
me, it was, you know, the choices where go home and, you know, live out the next
00:47:55
6 months of your life and enjoy it. Um, or nothing. You know, there was no other
00:48:02
option. And so I wrote about that. I said, you know, I'm we're at the end of
00:48:06
the road. Things are looking really bleak. They've just had, you know, the tumors have come back. They've told me
00:48:10
they've got no more chemo options. And this guy who had been reading my column,
00:48:15
Mike, um, sent me a message on LinkedIn, uh, out of the blue again and just said,
00:48:20
"Look, you don't know me and I don't know you, but I've been reading your
00:48:22
story and, um, you know, I'm I've sort of work in the medical field and can I
00:48:26
help?" >> What is he like vice president at? >> Yeah. turns out to be the senior vice
00:48:30
president uh for immunology at at FISA bas he's got an office in New York. What's he doing reading stuff?
00:48:36
>> Yeah, cuz he it's cool. This one I love it. This random all these things come
00:48:40
together cuz he'd been to New Zealand on holiday and he loves New Zealand. He
00:48:43
loved the people. He loves reading New Zealand news. He'd like been here and
00:48:47
done the April Tasman and whatever. Went back to America's kept reading stuff cuz
00:48:51
it's like he goes it's such like a a joy to read a newspaper that's not all about
00:48:55
American politics and not it's not this one perspective of the world. It's just
00:48:58
and your news is pretty simple, you know, like he sometimes still texts me and he goes, you know, you've got cow
00:49:04
loose on road that's on your front page of your paper today. It's like, yeah,
00:49:07
Mike, it's actually a really big problem, the cows on the roads thing. Don't diss us. But anyway, it's it's a
00:49:12
beautiful thing. So, he and he just clocked it one day. It said mild touch. It was called a mild touch of the cancer
00:49:17
was the name of the you know trying to send a message that it was you know humorous and uh yeah and then then he
00:49:23
just reached out to me on LinkedIn and it turned out you know with his connections he was the type of person
00:49:28
that absolutely could help me and he put me in touch with people you know within
00:49:31
a few literally a few hours of me going yes I need help he'd said right here's a
00:49:35
person here's three people you can talk to this one's doing this trial this is
00:49:38
this call this guy you know it was amazing and uh basically orchestrated the opportunity for me to go to Boston
00:49:45
so it out of the blue. But again, I I always talk about this. The phones don't
00:49:50
usually ring that way, you know, like I had this phone call and got discovered on a TV show. I got this thing out of
00:49:55
the blue to say, "We think we've got a treatment for your cancer." Like
00:49:58
lightning doesn't strike twice or three times. So, I was just so lucky. You got
00:50:03
to grab those opportunities when you see them. And then if you're in a in an
00:50:06
opport a position where you can give other people that opportunity, you should do it as well. So, that's kind of
00:50:11
big mantra for me. >> I mean, it's wonderful how it all it all worked out. Um you told that so well
00:50:17
like almost the whole cancer journey in the space of about 3 minutes to drill down on some of it. Yeah. So um
00:50:23
>> you're a sucker for punishment. >> So so New Year's 2016 into 2017. Um this
00:50:28
is pre-diagnosis. What what are what are your goals and dreams for the year? >> Well, how was your health?
00:50:33
>> My health was okay. I was at the end of that was the end of a year and it you
00:50:36
know it was I was um quite tired. I remember I was probably working too hard. I've got a bit of a propensity to
00:50:42
do that. Just putting that in there in case my wife listens. Um, it's my fault
00:50:45
completely, dear. Um, but I would, yeah, so I was tired. So I thought I need I just need a holiday, you know, I had a
00:50:51
sort of a three or four week holiday and still was tired and and grumpy and um couldn't couldn't, you know, get better
00:50:58
and I didn't know what was going on and and I thought I had some sort of virus
00:51:01
or flu. We'd been to Fiji on holiday, so we thought Katherine, my wife's going,
00:51:04
"Oh, you've probably got Zika virus." That was going around at the time.
00:51:07
That's cool. Like Zika virus, very exotic. So I went to the doctor and they did all these barrage of tests and
00:51:13
stuff. Uh and they discovered no it wasn't Zika virus. It wasn't this. It
00:51:16
wasn't that. It took a while to actually work it out. And then they said actually
00:51:18
no we we'll do an abdominal scan. We just we can't work out what's going on.
00:51:22
And when they did the abdominal scan they discovered a massive tumor. >> And it was like oh okay that explains
00:51:27
it. You've got how big cancer? About the size of a basketball like about oh wow
00:51:31
>> at 10 in by 12 in sort of deal. >> I remember the doctor um walking in and
00:51:36
she said yeah you're going to we're going to get to know each other quite
00:51:39
well. You know, I'm I'm a hematologist. This is weird. A I think I'm a really
00:51:43
reasonably intelligent person. I didn't know some of these words. I'm a hematologist and you've got a hematical
00:51:48
malignancy. And I was going, well, thank you. >> I thought that's what it was.
00:51:51
>> Exactly. I was googling it like when she left me. What the [ __ ] is he malignancy?
00:51:56
Why don't you just say cancer? So, I was like, wow. >> So, that's that's February 2017 that you
00:52:02
get diagnosed. Um, >> yeah. What What are you thinking at that point? You I mean, you didn't know what
00:52:06
was ahead, but >> No, I was pretty optimistic. I'm a very optimistic person, but I was at the time
00:52:11
it was like she said, you know, we we're pretty sure we know how to treat this.
00:52:14
It's lymphoma. This is a kind of common blood cancer. You've got B cell lymphoma. It's pretty, you know, we know
00:52:20
how to treat this. It's fine. So, >> 80% chance >> 80% chance. You see, literally said 80%
00:52:24
chance. But this is but but we have to get on to it immediately. You know, you can't muck around. So, we need you in
00:52:28
hospital on Monday. You know, you won't be able to go to, you know, you'll be
00:52:32
feeling pretty sick about things. So, you know, called my boss, who's amazing
00:52:35
guy, and just said, "I don't know what's going to happen, but I think it's
00:52:38
probably 3 or 4 months uh of treatment, and I probably, you know, I'm in and out
00:52:42
of hospital a bit, but I can probably do some work." And so, it was all okay. But
00:52:46
then, like, by the time the following Tuesday comes around, they' done some extra tests and sent my thing off to um
00:52:52
biopsy off to Australia to do some more tests and and then it got it started getting worse and worse, you know,
00:52:57
pretty quickly. It was like, "Oh, the treatment that we were going to give you
00:53:00
is probably not going to work because you've got this particular genetic makeup, which means that we know the
00:53:05
chemo that the standard chemo is not going to work. You you're a bit special
00:53:08
and different, which is not something you want to hear, by the way. So, and but we'll need you to be in hospital
00:53:14
now. You're not you can't just come and do the day stays and leave and go home.
00:53:18
You've actually got to stay in hospital for like a week at a time, every every
00:53:21
two or three weeks." So, it got bleer and bleaker. Uh and the and the odds have went from you know 80% to about
00:53:28
25%. Oh, >> you know they just said just statistically you know but you're young
00:53:32
and you know we can still so I was still trying to be optimistic but it was it was got harder and harder.
00:53:37
>> You scared or annoyed? >> I was a bit scared or annoyed is good. E it's a good
00:53:42
question. a little bit annoyed because it's so inconvenient. You got other plans. I want to think [ __ ] to do
00:53:47
>> and you do think I mean on the dark moments you know and I talk to lots of
00:53:51
patients nowadays about those moments where you you're sort of alone in your
00:53:55
room late at night or whatever and you think about what if I'm not around in 5
00:53:58
years time or 10 years time. What if I don't see my kids get married or see grandchildren or be retire with my
00:54:03
partner or whatever. So you do have that um but that's not a healthy place to
00:54:08
stay mentally. M uh you've got to think no no what okay the doctor said this
00:54:12
we're going to this the plan from here is this let's just do this next two or
00:54:15
three steps let's not get tragedy you know let's not over catastrophize so I
00:54:20
was constantly you know I didn't realize I do quite a bit of public speaking as
00:54:24
you mentioned I talk now about about the power of um a power of the mind to actually create different realities you
00:54:30
know the the way that we talk to ourselves and the language and the and the perceptions that we create actually
00:54:35
is like a muscle that we can train and while while you can't be completely naive to what's going on. You can
00:54:40
certainly build up a level of resilience that helps you. And I and I was doing that all that period of time. I was
00:54:45
doing things that were entertaining me like dressing up my my hotel room. I called it a hotel room, not a hospital
00:54:51
room. Putting up posters and making my visitors come in costume and just >> you do theme things like you pretend
00:54:58
you're in Fiji or Paris. And you weren't allowed to like turn up. All visitors
00:55:02
were welcome, but you weren't allowed there unless you were on. >> That's right. I had to wear costumes. I
00:55:05
remember like you go back to people like Jeremy Corbett and stuff turning up in a
00:55:08
big Mexican costume with a massive hat and a fake mustache and like walking through the hospital and like it's just
00:55:13
like that's the kind of silly stuff that you know comedians like doing to each
00:55:17
other as a bit of a joke. But it was like building up a it was a it was showing people that I was still you know
00:55:23
me and B it was I didn't realize but it was helping me work out ways of dealing
00:55:28
with the stress cuz again if you just sit there watching this little chemo drip going for days and days and you
00:55:33
you'll be driven mad. So, you've got to do things that actually put you more in
00:55:37
this kind of sense of control and um giving you a sense of um uh I I am a principal. I mean, I I've got agency
00:55:45
here, you know, I'm not just a victim in my situation. And that was such an important mindset to get out of victim
00:55:50
mentality. >> Um but but it was hard, you know, I had to do that for months and months and
00:55:55
months. The the three months I told my boss turned into, oh, it's now five. Oh,
00:55:59
it's now seven. Uh oh, it's probably 10. You know, it's like kept going longer
00:56:03
and longer and longer. Yeah. [ __ ] >> It's like when you start a home
00:56:05
renovation, e and like they give you a quote. >> Oh, yeah. Yeah. And then you find out
00:56:10
there's asbestos there or there's something. >> Actually, isn't that's not a bad
00:56:14
analogy. Yeah. Yeah. They they they got underneath the they ripped up. Oh, hang on. There's more while we're in there.
00:56:20
That's right. Yeah. It's going to cost a lot more and take a lot longer.
00:56:23
>> But no, it and it, as I say, that was months and months and months. And I got
00:56:27
to the point after 10 months or whatever of of just the standard New Zealand treatment, you know, they we'd stop a
00:56:33
chemo and they'd try a different thing and then we had to go back to we went to
00:56:36
a different hospital, you know, escalating all the time, escalating. And it was they were going to do this thing
00:56:41
called a bone marrow transplant, which is um a pretty awful sounding procedure. >> Um and it just got to the point where
00:56:49
they said, "Actually, there's no point doing it because we know it's not going
00:56:51
to work for you." So we're at this point. It's like a little hoham moment.
00:56:55
What are we going to do now? And that was when it all, you know, turned to custard and the doctor said, "Look, we
00:57:00
think you probably got less than a year to live and um maybe we should consider stopping treatment now. You're pretty
00:57:06
beaten up. Had a lot of chemotherapy by this point." I was looking pretty I look
00:57:09
at the photos of myself then and it's awful. I was very gaunt, very lost a lot
00:57:14
of weight, 20 probably 20 kilos, you know. I could probably lose some some of that again now. But um but I look at it
00:57:20
and it's just like, wow, that was a really tough time. And it and that's
00:57:23
where lots of patients are finding themselves still. You know, I talk to patients in those positions quite
00:57:27
regularly sadly and it's it's you wouldn't wish it on anybody. You know,
00:57:31
you have it's there's no choice. Suddenly you're you go from being in the
00:57:35
safe hands of a doctor in a medical system to going actually there's nothing
00:57:38
left. >> What are we going to do now? >> You so that moment where you get told um
00:57:46
>> by the way you've got a great movie on Neon um called A Touch of Cancer which
00:57:50
which I I watched last night. Oh. >> Oh, yeah. Yeah. One thing, um, >> so, so the the dress the dressing up
00:57:56
thing that we talked about before and and the the turn of phrase and the words you came up with like club med and, uh,
00:58:01
chemo kowir kimono kimono. >> Um, and and the footage you were taking, what what was what was that footage for?
00:58:08
Like what was the intention with it at that point? >> When we were doing it way back, I didn't
00:58:11
know that we were going to do a te like we got approached to do this documentary, which is cool. Yeah. And
00:58:15
and Annie, the director, and Irene, amazing. They they they took what turned out to be sort of a year's worth of
00:58:21
footage and made a very lovely thing. And it's not just about me, it's about
00:58:24
some other patients as well. But we were at the time um John, my mate for John Bridges was the producer of the project,
00:58:31
the TV show, The Project. Um >> that's when I first heard about regular updates.
00:58:36
>> They did. And so John being an opportunistic what kind of friend does this by the way? Answer me this Tom.
00:58:42
Like he calls me up and he said, "Oh, David, I heard you got cancer." Yeah.
00:58:46
can we do a story about it? And I was like, oh, okay. And actually, can we do a series and follow you? It was like,
00:58:51
oh, okay. But it was I mean, of course, you got to do that for your friend, but it was lovely. So, they did the series.
00:58:56
So, they were getting me to do selfies and they would send a crew every now and then over about a year they followed me
00:59:01
and it was wonderful cuz again, it and I I'm I'm joking about it cuz it was
00:59:04
amazing way again. >> It helped me so much later because when I needed help that so many people had
00:59:10
seen stuff on TV, bought into it. And I remember getting remember like John getting a a beautiful um little old
00:59:18
lady. It sounds terrible, but he got a check in the mail when when they found out that I had spent a million dollars
00:59:22
to go little check from a little old lady for $20 and said, "Can you please
00:59:26
pass this to David DS because we want to help him?" And it was that so it was
00:59:29
amazing. But yeah, so because of that, we were documenting the whole thing. And my wife's a TV director um by
00:59:34
profession. So, you know, she again, I'd be lying in the hospital having had a
00:59:39
blood transfusion or whatever and she'd whip out the camera and get some B-roll.
00:59:43
It's like, so we just have heaps of that sort of stuff. But, so, so when when
00:59:48
you're filming that stuff and you're the central character in the story, are you
00:59:51
thinking it's going to be it's going to be a happy ending that can be shared or
00:59:54
you think it's a love story to your friends and family? >> It could have been. Yeah. I mean, it we
00:59:57
we had no idea at the time. Of course, looking back retrospectively, it's it's
01:00:01
all leading to this beautiful conclusion with this amazing happy ending, but it could have been just as easily a story
01:00:07
of, you know, of of something quite different. >> So, I hadn't thought about it and but I
01:00:11
also thought it would be useful for my children and others to see that part of the journey. There's still, you know,
01:00:16
heaps of that video footage and stuff like that. I haven't looked at it for a
01:00:20
long time, but they used it. They went they crawled through it all for that um doco and and again, and then they sent a
01:00:26
crew with me on some of my trips to America. um which is really cool as well and they were there the moment that you
01:00:31
know the doctor said you're cured you know they were the crew happened to be
01:00:34
there it was just amazing that we had that all now on documented for us so yeah mild touch cancer on neon
01:00:40
>> yeah it's great great by the way well worth a watch um >> yes so so that moment you're in the room
01:00:44
and you've done all all the you've exhausted all possibility in New Zealand
01:00:47
and the oncologist says you know um get your affairs in order you've got 6 to 12
01:00:50
months you should think about how you spend it >> what um >> yeah who's in the room how do you what
01:00:57
do you what do Well, that that particular moment was really wild. It was John, my my my best friend, uh,
01:01:04
Brian Bridges, one of my best friends. Um, my wife Katherine, my brother John, also called John,
01:01:08
>> and then the the doctor Anna, who's now a good friend, actually. She's a very
01:01:12
good friend. Um, and it was really tough because they were all quite emotional, including Anna, very emotional telling.
01:01:17
Imagine having to tell a patient. I' I have such sympathy in for doctors in this scenario where I have to tell you
01:01:24
I've got no more treatment for you but I know that there might be something somewhere else you know but I can't get
01:01:28
it you know I talk to doctors about that all the time but that so that was a really tough moment of being say
01:01:34
actually let's take this opportunity and John John was there John Bridges was
01:01:37
there because he was helping document like he was helping um you know write up our notes and stuff like that cuz you
01:01:42
it's always good to have a support person um but yeah it was it was crazy but that again that was the moment you
01:01:48
almost that it was literally that day that I connected back with Mike and said we need help and he start and then it
01:01:54
started us off in a whole another journey of connecting and finding these clinical trials and we we got busy
01:01:59
basically which was in that room you're not like well well I'm fed >> no no there was a bit of that there was
01:02:05
definitely a bit of oh my god what are we going to do now but I immediately got busy and went right and I remember
01:02:09
Katherine telling my my kids we had to sort of break it to the kids what was going on and dad she said look dads you
01:02:15
know we've we've lived all around the world we navigate quite complicated
01:02:18
business things. If there's a solution somewhere in the world, we'll find it.
01:02:22
Which which was a great vote of confidence for me. But um but we did which is amazing through through such
01:02:28
generosity of other people helping. Um but yeah, that was the way that I dealt with it was by getting busy, you know,
01:02:34
and going right, okay, let's make a plan. How if we go to America, how what about visas? How are we going to pay for
01:02:38
it? You know, how do we travel? It was it was like assembling your army around you. And um yeah, quite incredible. And
01:02:45
then my, you know, family and friends just swung in and helped and it was just just amazing.
01:02:51
>> Did you think you were going to die? >> There was times, dear, definitely. Yeah,
01:02:55
there were times, I mean, I sort of, again, I'm quite optimistic, so I was always going, "No, no, we're going to
01:03:00
find a pathway." But there'd be other times I'd go, "What right have I to
01:03:03
think that I'm going to be any different than anyone else who finds himself in
01:03:06
this situation?" And there were definitely times where you go that might not end well, you know, and it and we
01:03:11
have to plan for that, you know, and think about what will happen for Katherine and the kids. And it was it
01:03:17
was much harder for Katherine, I think, in that scenario than it would have been
01:03:20
for me cuz I she's dealing with all these different versions of future reality and trying to keep the kids kind
01:03:25
of normal and they're at school and and for I had the singular task of trying to
01:03:30
get better whereas she had this much more complicated task. But yeah, as I say, there were definitely times where
01:03:35
we talked about, okay, what will happen if I'm not around in a couple of years
01:03:38
time or a year's time? What what will you do? >> Yeah. Which is a hard conversation, but
01:03:43
a bonding one. You know, Kath and I have been married 30 years now and um and we've got very good rel tight
01:03:50
relationship with our children and our and you know, we're stronger family unit
01:03:53
for this. I wouldn't want to do it again. I wouldn't wish that on anyone,
01:03:57
but boy, it brings you together. >> How was it on the kids? >> Tough on the kids. Yeah. Tough. they the
01:04:03
youngest ones, you know, the younger ones, they're not quite following it when it first starts and it just becomes
01:04:08
part of life and then all of a sudden it goes, "Oh, hang on." And they sort of
01:04:10
realized how bleak it could be. And there was definitely uh sort of post-traumatic stress stuff that
01:04:16
happened for the whole family. And you know, they still, you know, and for a long time worried about me, you know,
01:04:23
like what if it comes back and you know, if I went away, you know, for work or whatever, oh, they'd be worried.
01:04:29
>> So, it's actually this weird thing. And I've got this personality where I just
01:04:32
get on and okay next I go on woo, you know, I'm happy clappy. But it's not the
01:04:37
case for everybody that they're like that. They they a bit harder to deal with. So I had to sort of stop myself
01:04:42
after a little while and go I better be a bit more attentive to other people's
01:04:46
needs, not just my own. >> So you're in coms with um this guy Mike, the FISA guy in New York, and he's like
01:04:53
great, we can get you into into Boston for this experimental thing. >> Um but it's going to cost a million
01:04:58
bucks. >> Yeah. He didn't say that. The poor guy. He he put me in touch. The hospital was
01:05:02
the one who came back and said, "Yeah, yeah, we think we can get you in." And
01:05:04
they literally sent me this email going, "It's a million. We think estimated
01:05:08
price $1 million >> and we want it all up front." >> Uh, >> you tell you tell a great joke in that
01:05:14
documentary like, "Oh, can I pay 50% now, 50%?" Yeah. Yeah. We're not better.
01:05:19
>> Did you actually say that? Yeah, I did. I did. >> A great line. >> Well, we we we met some friends and you
01:05:24
know, like who one of them had worked in the American health system. She's American. And she
01:05:29
said, "You know you can negotiate." And it's like such a foreign concept. I go,
01:05:32
"What do you mean you negotiate?" She just said, "Tell them you're not going
01:05:34
to pay." What? You can do that? She said, "Yeah, yeah. Think of it like
01:05:38
Harvey Norman, like, okay, I see that's your price, but I've got a better price
01:05:41
from someone else, so can I pay you half?" And all this sort of stuff. So, we I just cheekily started doing that.
01:05:46
And um yeah, it kind of worked out. They did, you know, we And then the other thing is um we needed to get to see the
01:05:52
doctor as soon as possible. Like he said, "We need you to come to Boston. We
01:05:55
got to do these final tests to make you absolutely can get in." But they couldn't he wouldn't give me he couldn't
01:06:00
give me an appointment. The hospital refused to give me an appointment unless we transferred like $100,000.
01:06:05
All this sort of stuff went on and then finally one of the nurses and this is an
01:06:08
amazing story always in the health system. The nurses one of the nurses got hold of me by email and she said just
01:06:13
book your trip and I'll I'll make sure he's got a gap in his diary. If you're
01:06:17
here next Tuesday or whatever um book your trip. So we just sort of went back to them, booked the trip, told them,
01:06:23
"Oh, we're going to be there next Tuesday." And they go, "What? What? No,
01:06:26
we can't. Oh, we haven't received your payment. Oh, well, we're there next
01:06:28
Tuesday. And um I think I gave him $10,000 instead of $100,000. This is the kind of weird negotiations. And then uh
01:06:36
yeah, we had the meeting. And then basically, and the doctor, he became a good mate, too, actually. Afterwards, he
01:06:40
said, "The moment you walked into my room, you know, the hypocratic oath says, you are my patient." And all that
01:06:46
other stuff about payment, that's the hospital's problem. That's not my
01:06:49
problem. My problem is you. And once you're in my care, you're in my care. It
01:06:52
was like a really powerful demonstration of professional, you know, ethics. So, he said, "Don't worry about all that."
01:06:58
And then from then on, actually, that's he kept doing things like that. Okay, we
01:07:01
won't do that test. You don't really need it. Uh, we'll do one PET scan, not
01:07:04
two. You know, he was, "I'll try and keep you out of hospital. You can stay
01:07:07
in the apartment across the road. That'll lower the price." So, everything
01:07:11
he was doing was kind of in my interests, kind of against his employer. Hope they're never listening. But
01:07:17
>> I'm just trying to keep cost down as much as >> he's just trying to keep the cost down.
01:07:20
That's American health system. It's so ridiculous. I mean, it still costs
01:07:23
hundreds of thousands of dollars, but it wasn't the million that they told me it
01:07:26
was going to cost. Yeah. >> Um there there's a great line. You might remember it. I I I don't want to attempt
01:07:31
it cuz I'll mess it up, but on that um a Touch of Cancer documentary about selling the house.
01:07:35
>> Yeah. >> Yeah. Can you remember what that line is? >> I do. It was It was a conversation
01:07:39
between my wife and I cuz again when we had this quote of a million dollars and we just didn't have the money,
01:07:45
>> but we have a we had a home but we didn't we own it. We still have a
01:07:47
mortgage. you know, Ken um and I were talking and she said, "Well, we'll just
01:07:51
put the house on the market. We'll sell the house. That'll get us enough money
01:07:54
maybe to get a deposit or whatever on this treatment." And I, you know, really
01:07:59
clearly it was late at night. We were talking about this is the sort of the day after I'd been diagnosed as as
01:08:04
terminal. And I said, "No, that's you can't sell the house cuz if we sell the
01:08:08
house, there's no guarantee I'm this treatment is going to work. could spend
01:08:11
all of this money and then I'll I could still die and then you'll spend the rest
01:08:17
of your life broke and penalous with the kids. And she said, you know, that's not
01:08:21
the worst case scenario, David. The worst case scenario for me is we don't sell the house. We know you'll die.
01:08:28
That's what we've just been told. And then she said, I'll spend the rest of my
01:08:31
life wondering what might have been. >> [ __ ] I still get a bit teary. Sorry. Cuz it's
01:08:37
like, wow, what a moment in your in your marriage. And it was just like far out that was.
01:08:43
And I had to put myself into her perspective and go, "Yeah, that would be awful. Imagine." And this is the
01:08:48
scenario. This is why I'm so passionate about the stuff I do. Thank you for reminding me. Cuz I meet people like
01:08:54
this today having these conversations with their partners going, "We can't
01:08:58
afford it, but if we don't do it, this is going to happen." Then you know what
01:09:01
happens to you and uh and this this complicated emotional state they find themselves in. So
01:09:06
>> yeah, so we put the house on the market. Like that was the the only decision.
01:09:10
Then called up a friend who was a real estate agent, you know, and and that was Yeah. horrific as well cuz then suddenly
01:09:17
you're having to tell everyone why we got house on the market. Oh, cuz of this
01:09:20
incredible. And then people go, "Oh my god." You know, like you life again. We
01:09:23
were already quite public. Like I'd already been writing in stuff about having cancer, but now we're telling
01:09:28
people about our financial problems like we can't afford it. We haven't got the
01:09:31
money. And and yeah, but it was it was just such a a moment. Yeah. Again, from a marriage point of view, we married 30
01:09:39
years. Those that was one of the real points in our marriage where we came closer together.
01:09:44
>> Yeah. That um that line in the documentary, it set me off last night just out of the blue.
01:09:49
>> Well, I thought like I don't know, maybe it's a male thing, but I think I'd think
01:09:53
of it the same perspective as you. You think about the big picture and then um her line, it's just like a an epiphany
01:09:58
sort of. >> It is an epiphany of how different people think and um about and you know
01:10:02
how Katherine had to think. But imagine her life if if I hadn't done it. And
01:10:08
either it's just awful to think about all these scenarios. And you know again
01:10:12
I meet people I know people who have found themselves in those different scenarios of a selling everything and
01:10:17
still the partner passes away or b not selling and now going oh my god if only we got there quicker. if we only could
01:10:23
do this more. And some of the other people who are involved in this go the distance challenge for the Malagan
01:10:28
Institute are people I met because of these situations and they >> they just want to help like we do.
01:10:35
>> When you started going to Boston, did it did it feel like um did it feel like
01:10:39
hope or did it feel like the last roll of the dice? >> It felt quite funny actually. It was I
01:10:42
feel um it felt like the last roll of the dice definitely like we were just like right we're all in again. I'm I'm
01:10:48
just like right let's do it. The opportunity has presented itself. we don't get two chances like this. We've
01:10:53
got to go for it. Flying out there. Catherine came with me the first trip when it was just the assessment cuz we
01:10:58
just wanted to I've never been to Boston. Um never spent any time on the east coast of the US and um and so we
01:11:06
thought well we got to make the most of this. So we went and visited you know normalized things for us like what was
01:11:11
quite an abstract idea became concrete. you could, you know, the hospital's good
01:11:14
and the people are great and the doctor's really nice and it's quite similar to what we've done before and
01:11:19
Boston as a city is cool and so we so that that helped a lot for us both to go actually I can actually now visualize
01:11:26
myself doing this. It's not so fanciful so weird like when you're sitting here
01:11:31
in New Zealand and someone says to you you can go on this clinical trial and it's this and and you just go I can't I
01:11:36
can't visualize that. I don't know how that would work. So, so that helped a
01:11:39
lot. But we also had some amazing cool things that happened. Like we went to Boston, we went went to the doctor, did
01:11:44
all this thing, and then we thought, right, we're in Boston. What do we do now? Go to the Cheers bar cuz it was the
01:11:49
only thing we knew about Boston. So Kath and I went, we might not ever be here again, and it might not end well, so
01:11:54
let's go to the Cheers Bar. So we went to the bar that they shot the, you know,
01:11:57
the comedy chairs in cuz again, bit of a comedy nerd. It looks nothing, the inside of it looks nothing like the
01:12:03
outside like the like the movie. But this is another quick coincidence. I loved it. I hope you don't mind me
01:12:08
telling you, but we ended up sitting in this tiny little bar and we're opposite
01:12:11
each other. It's packed and everyone's around us and Kath and I having dinner,
01:12:14
cheap, shitty, you know, burgers, whatever that you have. And we were talking about what had been going on
01:12:18
that day. And we saw the doctor and we're talking about the scenarios. And as we finished our dinner, this lovely
01:12:22
old man next to us um turned to us and he he was about to leave and he said, "I
01:12:27
hope you don't mind. It's almost impossible not to listen to you." And
01:12:29
he'd been dialing by himself. He said, "I just heard I understand that you're
01:12:32
going through this cancer and you're new." And he said, "This is incredible.
01:12:35
my wife's had cancer and I know all about it and he said, "Look, if you do
01:12:38
end up coming back to Boston, here's my number and he gave me his number, Frank." And so anyway, I did end up
01:12:44
going back to Boston. So I called him, random guy from a bar. And um we've turned now we're great mates, me and
01:12:50
Frank. I go, I've stayed at his place a few times. His wife is wonderful. Uh
01:12:54
his, you know, he's in his 90s now, Frank. And he just he's just this wonderful guy. He took me to some
01:12:59
basketball games. And so he was just um that's what happens when you sort of
01:13:03
open yourself up. and then his son and daughter-in-law have and their son have come and visited us now and we've kind
01:13:09
of family friends and you know it's it's amazing. So we we we're just so lucky
01:13:13
that these sorts of things happen again if you open yourself if you allow yourself to be open to opportunities
01:13:18
that's what kind of happens. >> Yeah, that's a thing that's a really
01:13:20
good takeaway. >> So you do 12 trips to is it just like once a month? Once a month you go over
01:13:24
>> pretty much. >> And and and the Karti treatment like what is it? >> Oh, cool. Here we go. Here's the Karti.
01:13:30
So Karti cell therapy. So essentially um it's I had cancer and the way that we
01:13:35
predominantly deal with cancer we humans is uh surgery or radiation or um some sort of chemical to try and kill it. So
01:13:44
all of those treatments are trying to kill the cancer or get rid of the cancer out of your body. And that's the reason
01:13:49
that cancer is still one of the biggest challenges health challenges is it's so
01:13:53
difficult to do to treat because it's our own body. It's not a foreign thing
01:13:56
coming in. our own body cells have have mutated in a way that our immune system and our and our body just can't handle
01:14:02
it and they're they're growing and growing and growing and but the the rest
01:14:06
of your body just doesn't notice if you like but killing it is quite difficult
01:14:11
you know we've all of human history we've been trying to do it so this CT
01:14:15
cell therapy is a form of immunotherapy so the idea is that those three things you know they there's good things that
01:14:21
happen but sometimes it doesn't work in amunotherapy you're doing something
01:14:25
completely different you're saying rather than try and kill cancer Why don't we try and harness the immune
01:14:29
system somehow? So there are lots of different types of immunotherapies, but the one that seems to be really showing
01:14:34
a lot of promise is this thing called car T- cell therapy. So TE-C cells are part of everyone's immune system. We've
01:14:41
all got them. When you cut your hand and you get a slight red thing or when you get a cold and you get sort of sore
01:14:47
under the arms or you get a bit weepy, that's your immune system working. The
01:14:50
tea cells are going around and they're finding infection and they dup replicating themselves and and doing
01:14:56
their job. And they do an amazing job of it as I said earlier. So the idea is instead of trying to kill cancer, could
01:15:02
we harness those tea cells if they knew what cancer looked like maybe they could
01:15:06
do the job of killing the cancer. So what we so the all the sort of treatment uh research went into can we retrain tea
01:15:13
cells to kill cancer and that's what CT cell therapy is and it sort of started
01:15:17
about 20 20ish years ago in the states with some early early research. um it it hit the mainstream maybe sort of 8 to 10
01:15:25
years ago like I was one of the first clinical trials in humans um and it and it's proven to be very very successful
01:15:32
particularly for blood cancers so training the immune system so the way they do it they take out the tea cells
01:15:36
out of the body u which is basically like giving blood and then they genetically re-engineer those tea cells
01:15:42
put a little bit of extra um DNA into the cells or RNA and and it it makes the te- cell kind of recognize the cancer by
01:15:50
by training it what cancer looks like it has a little receptor on the outside of
01:15:53
these tea cells and then when they put them back in the body it's like a little
01:15:57
Pac-Man running around. It can now see cancer cells and it just does what it what it normally trained to do. It just
01:16:02
goes and kill them. Goes and attaches to them, sends them a little signal that the cells self-destruct basically. But
01:16:09
because it's a living treatment, your own tea cells in your own body doing what they're basically normally doing.
01:16:15
It's very kind of elegant. It's very um simple sounding. But the technology and
01:16:20
the science behind it is incredible. You know, you are genetically re-engineering
01:16:24
human cells in a way that can't replicate. These cells are just, you know, wouldn't exist um unless they were
01:16:30
back inside the same body they've been taken from. Um but that's why it's so
01:16:33
expensive cuz it's like literally cellby cell genetic modification. It's um you
01:16:38
know a lot of testing and safety and things like that. So the most of the treatments that have been happening in
01:16:44
the world have done by these global farmer companies in other in other countries and the massive you know big
01:16:49
corporates doing this. It's a billions of dollars of research going into it. Um
01:16:55
and so little countries like New Zealand are never going to get that stuff. You know we just we're not a 5 million
01:17:00
population does not make sense for them to bring that treatment to New Zealand. It's too expensive. Um which is why
01:17:06
again the Malagan Institute is so important. That's why I'm so passionate
01:17:10
about this. There is no other choice. We'll always be going to China or America or whatever for treatment unless
01:17:15
we can do this sort of stuff ourselves. >> What would it cost? How much would it
01:17:19
cost to bring it here? >> Well, the Yeah. Well, so at the moment patients are spending about between $400 and a
01:17:27
million. $400,000 and a million dollars each and that's plus travel and stuff.
01:17:32
to do it in New Zealand. The clinical trial we we're doing at the Malagan Institute is going to cost us around 20
01:17:37
million and that that will treat 60 patients. Um, and we're we're about 2/ird of the way through that. So that
01:17:44
20 million is already good value. Um, as you can see, it's a lot cheaper than what we're
01:17:50
spending overseas, but it'll quickly get a lot cheaper because once we've scaled
01:17:54
up manufacturing, you know, the the Malagan Institute's got a spin out company called Biora that is going to
01:18:00
create a manufacturing plant in Christ Church that will bring the price down. Um, having more patients with more
01:18:06
different types of cancer use it will bring the price down. So, everything everything means that we are much more
01:18:11
in control of our own destiny. And you could get you could get it down to under the public system, we think it could be
01:18:16
free. Um, I mean, I I'm not the Minister of Health yet, but um, watch this space,
01:18:22
but um, but it's a joke, by the way. Um, but but you can see why it makes a hell
01:18:28
of a lot of sense to do this in house in New Zealand. You the New Zealand government today is spending money
01:18:32
quietly sending people overseas, spending millions of dollars at a time. If they just spent that in New Zealand,
01:18:37
we could treat, you know, dozens more patients than than we can at the moment. So, yeah. So, it it it could get to the
01:18:43
point where it's it's getting close to free. >> Mhm. Well, it's just a horrible thought
01:18:47
to think that any New Zealander is dying just because they don't have the means
01:18:50
or the money to get some treatment that have an impact. >> Well, this is the inequity issue that we
01:18:55
often see that is there are treatment options available. There's kitrudas or
01:18:58
there's you can go over and get um >> uh deratusab or you know there's these
01:19:02
drugs that are amazing but you have to go overseas to get them or you have to buy them privately or whatever. So
01:19:07
there's just this inequity that forms really quickly and when you're in the
01:19:11
position and you need it, you know, I have no debate. Go for it. If you've got
01:19:14
the money, go for it, buy it, whatever. But we need to set up a system that it does not require me to have a
01:19:19
high-profile, you know, a lot of people putting money into a give a little account, you know, the ability for me to
01:19:24
travel. All of those things are such barriers for people that we have to make it more equitable. And um and that's
01:19:30
why, you know, people like me need to get involved because I had the privilege to be able to have all those things that
01:19:36
got me the treatment. >> Um but not not other many other people don't have that. So if people like me
01:19:41
don't stand up for them, who's going to? Also, there's a lot of shy private
01:19:44
people. So, there's a lot of people that really don't want to die, but they'd
01:19:47
probably rather die than have like a big fuss mate about them, like a give a little page or
01:19:51
>> I've met so many patients like that. I mean, because I'm quite visible still.
01:19:55
Um, if you Google cancer, you'll probably find me pretty quickly. Um, >> but I get lots of people contact me and
01:20:00
a lot of it is that exact scenario of I I can't go over. I don't know. I've
01:20:04
never been overseas, you know, literally. Um, or I don't know how to find that amount of money and I'm not
01:20:09
going to ask anyone for money, you know. So, >> pride. >> Yeah. pride or or shyness or you know
01:20:14
whatever. So many reasons all valid and I'm not debating them but um that's why
01:20:19
the system has to change. You can't rely on individuals selling you know literal
01:20:23
tin cans outside their house to try and raise a little bit of money to go overseas or or give a little which is
01:20:28
not a sustainable way to run a health system. And if you step back and go actually what's you know it makes
01:20:33
business sense if you like for New Zealand too. There's a societal benefit. We're spending a hell of a lot of money
01:20:39
on uh a small number of people to try and you know do bone marrow transplants or whatever it would be. If we could get
01:20:45
early interventions and early testing and better treatments, yes uh the cost per patient might look high at the
01:20:52
beginning, but actually when you take it all into account, it makes a hell of a lot of sense to do it. So that's the
01:20:55
kind of arguments that um we're working with through with um government at the
01:20:59
moment. >> Yeah. So your personal experience with KT treatment, what's it like? It sounds
01:21:04
like it's just a blood test. Yeah. Does it knock you out or not really? >> Does it It does a little bit. Yeah. I
01:21:09
mean, it's not trivial. Um and it's when I did it, it was quite experimental. So,
01:21:13
it was there was no guaranteed outcome, but it but yeah, the the experience of it is a lot simpler than a normal cancer
01:21:19
um chemotherapy or whatever chemotherapy. Most of the way that cancer patients feel really bad is
01:21:24
because of the treatment, not because of the cancer. You know, chemotherapyy's
01:21:27
got awful side effects. Um whereas this doesn't have as many side effects. And
01:21:31
in fact, all the time they're getting fewer and fewer. the the I I had virtually no side effects from it. So,
01:21:36
it was yeah, you go in, give blood, which sounds trivial, but it took six hours and you can't move your arm, so
01:21:41
it's not nothing. Um, but then they send them off to a lab and then you've got
01:21:45
like I had two weeks and this is going back me and Katherine were in Boston and we were going, "Oh, go to the art
01:21:50
galleries." And, you know, we had a great time. So, so we just were waiting for the for
01:21:55
the blood to come back. When the blood comes back, it's an injection. Um, you
01:21:59
would have seen it on the doco. Very kind of underwhelming in some ways. They just bring in this little chili bin,
01:22:04
open it up, dry ice everywhere. That's the most dramatic thing that happens.
01:22:07
Apart from that, it's really boring. Um, and then they just inject it back in,
01:22:11
and then it's like, okay, now what? You just wait. And you normally, you know, I
01:22:15
was supposed to go into a hospital room and wait, but they let me stay in the hotel over the road. As I say, the
01:22:19
doctor was amazing. So, as long as you're just right across the road >> and if anything goes wrong, get back in
01:22:24
as quickly as you can. Um, but that saves like, you know, $5,000 a day on hospital in in US. But yeah, so the
01:22:31
experience was great. And then sort of 30 days later, um, they do a test. In the meantime, I felt like I had the flu.
01:22:37
Like, cuz that's again the way the immune system works. It's the same symptoms. It's, you know, you get puffy,
01:22:42
you get sore under the arms, you get a little bit sort of we, you know, drippy nose or whatever because it feels like
01:22:49
the flu because it's the same mechanism of action that's happening inside. And
01:22:53
then that goes away. And it was like, "Wow, that was pretty mild." You know,
01:22:56
which is ironic cuz I called it a mild touch of the cancer cuz when I was first diagnosed, I felt like I had a mild flu
01:23:01
and that was how I got diagnosed. And then this treatment was like a mild flu again.
01:23:05
>> So all this all these sort of synergies. >> Um but yeah, so from a patient point of
01:23:09
view, very very different. >> Yeah. >> So that year flying between New Zealand
01:23:13
and Boston 12 times, did you >> Yeah. Yeah. What was what was it like? Did it just feel like your life was in
01:23:17
limbo? Did you feel like you were getting better? >> Definitely. Oh, I definitely felt
01:23:20
getting better. Yeah. Yeah. I I mean it was definitely the life in limbo. Thank God it was a nightmare. I mean, I look
01:23:25
at it now and go, "How did I do that? That was nuts." Like, what were you
01:23:28
doing between travel? >> I was working. I went back to work and again, my boss was amazing and I'm I'm
01:23:33
very blessed that um have a great team and everything. And I So, I wasn't on
01:23:37
full duty, so I was able to to just take, you know, uh a few days off for a week. Some of the trips were I would try
01:23:44
and hook some work stuff into it and and, you know, u make it sort of beneficial and but other times I was
01:23:49
just there and back. I'd already been there sort of a month ago and I needed
01:23:52
to go back and I could have stayed over there for the whole time but you know I've got a family and a life and a job
01:23:57
and stuff and so there were it was just so such an imposition and again this is going back to why it's so important to
01:24:04
have it in a place like New Zealand. Not only is the money crazy and the access crazy but there's no way most people
01:24:09
could do that. I was just incredibly privileged again to have a job that was already related to international travel
01:24:15
so I could kind of hook a bit of job stuff in a and a and a organization that said it's okay if you take an extra
01:24:20
couple of days don't worry about it um you know take time off in L or whatever.
01:24:24
Um so yeah just just so blessed to be able to have that experience. >> Great air points by the way.
01:24:32
Everyone asks you what's your ear points like great points. >> You end up with a lot of banged ears.
01:24:36
>> I did I've got like 12 banked ears now. pros and cons. >> Honestly, yeah, it's pros and cons.
01:24:41
Yeah. >> Yeah. A million bucks. Yeah. You got um >> Yeah. Do you get progress reports along
01:24:47
the way that like, oh, the cancer is dying or or you don't know until >> it's actually quite dramat? No, it was
01:24:52
actually quite dramatic. Um and this is again a bit of my choice. But the the from the day they give you the
01:24:58
treatment, which is just again a single injection. You're not getting any more
01:25:01
treatment from then on. It's just monitoring. 30 days later, they said it looks like all the cancer's gone. So you
01:25:07
actually you're in remission. It's 30 days. It's amazing. And but they can't
01:25:12
call you cured for quite a bit longer after that a couple of years or whatever. But so the treat the the trips
01:25:17
back after that were purely for the clinical trial to get data. It wasn't for me. There was no medical benefit to
01:25:23
me. And the doctor even said to me after one or you know the first trip or two he
01:25:28
said you know you don't have to come back. Like if you don't come back nothing will happen medically to you.
01:25:33
You'll be fine. >> And I said oh yeah but what will happen to my data? And he said, "Oh, we just
01:25:37
we'll take it out of the trial results." And I went, "Well, that's a bit crap,
01:25:39
isn't it?" Like the deal is you give me the treatment, you get the data, which
01:25:43
helps with the trial results, which help, you know, get this thing into market. So, I'll come back. So, so I
01:25:48
kept going back, but there was, as I say, no clinical benefit. Um, I was doing CT scans or PET scans. I was doing
01:25:54
blood tests and things like that, but they were they were not telling me anything new from from 30 days in. two
01:26:01
years later they said you know given that you've had two years and none nothing you you we'll call you cured
01:26:07
>> so that was a beautiful thing but they I didn't need to have done all that stuff
01:26:10
in the middle it was just my choice >> why after everything you've been through
01:26:13
why did you keep going back >> I felt this obligation again I've maybe
01:26:16
I'm brought up in a Catholic guilt environment I've always got this thing I
01:26:21
said I'd do it I'm going to do it though >> yeah it's really noble but I mean no no
01:26:25
one could hold it against you >> know and the even they say the doctor even said don't worry about it but I
01:26:29
knew that they only had a I think it was 100 patients doing the trial. My result
01:26:34
was really good. It would skew the results if I didn't, you know, they would have to take my own data out. So,
01:26:39
I've I felt this obligation, moral obligation to to do it. >> Um, yeah. And I and I stand by that. I
01:26:45
would still do that. And it's important to do the things you say you're going to
01:26:48
do. >> Yeah. >> Yeah. >> Hearing you've been cured, what was that
01:26:51
moment like? >> That was pretty cool. >> Yeah, >> that was pretty cool. We captured it on
01:26:54
the um on the video, I think some of it. There was a moment there where I sort of
01:26:58
said to the doctor, "Can I use the C word?" And he's going, "What?" You know,
01:27:01
Americans don't have a great sense of use. He was, but what do you mean the C
01:27:05
word? Yeah. Cured. He was like, "Yeah, oh, okay. Yeah, good." And then I said,
01:27:08
"All right, let's call Katherine." Cuz she was back here in New Zealand. I was
01:27:10
in the States. So, got her on FaceTime and as we as as it's dialing, I said to
01:27:14
him, "Okay, Jeff, put on a really sad face." And he's going, "What?" He's go,
01:27:19
"Yeah, yep." And he's going because he get quite clicking. So, yeah. Sorry,
01:27:23
Cather. It's great results. It was Yeah. Anyway, >> oh, it's so cool. What What did you What
01:27:30
were the big things you learned about yourself after staring death in the face? >> Resilience is a big one. I mean, I'm I
01:27:35
Everyone has this depths that they can go to. They're not often tested, but um
01:27:40
we are human beings are remarkable about the extent to which you can um deal with
01:27:46
things. So, there's there's something there. I think also the power of um
01:27:51
perception and I talk a lot in my talks about this idea that we we frame up reality you know things happen facts and
01:27:58
and physical things happen in the world and we create the reality of what that means for us so we can create different
01:28:03
realities just by thinking differently you know when I was in hospital you know I could have chosen to be a victim of
01:28:09
the situation and feel sorry for myself the whole time or I could say what what can I do to be more in control so that
01:28:14
that's quite a there's quite a depth there um and then optimism I mean I on my LinkedIn profile you'll
01:28:21
know just now I I describe myself as a genetically modified optimist but optimism is a powerful thing and it's
01:28:27
not false you know hope and it's not hopefully it's not this sort of toxic
01:28:31
positivity that some people talk about but I do believe but by being by having a default stance of optimism you are
01:28:38
more open to possibilities you you see things in a different light you you you follow things that you might not
01:28:44
otherwise and it does create better outcomes so I think those are some of the key things.
01:28:48
>> Yeah. And and I suppose alongside optimism, it's just holding on to hope.
01:28:52
And without hope, there's not there's not a lot. >> Yeah. Yeah. And hope hope with u
01:28:57
momentum, you know, like you've hope sitting on a in a room and just hoping something's going to get better won't
01:29:03
probably get you there. But hope married with some activity or action to get you
01:29:08
towards that. You know, if I had just hoped that someone would call me out of the blue and say there's a clinical
01:29:13
trial in Boston, it probably wouldn't happen. But I was putting myself out in
01:29:16
the world. you know, we're writing articles, there's a lot of work going
01:29:18
on. We were researching, we put ourselves in a state where that could actually turn into something. So, I
01:29:23
think hope without any activity is probably um a bit of a fool's errand, but you can actually, you know, generate
01:29:31
uh opportunities by putting yourself out in the world. >> Was it a weird transition back to normal
01:29:36
life after that? Like, I'm just wondering if you come that close to potential death, if you suddenly it
01:29:42
feels like you should be making the most of every day. The reality is you've got
01:29:45
this mortgage and >> Yeah, I do. I live this I live a very um joyful life, bountiful life at the
01:29:51
moment and a lot of it is driven by this need to think that I actually have to make the most of the time available. Um,
01:29:58
you know, again, you it sounds very deep, but when you've sort of literally had the terminal diagnosis, you got a
01:30:04
less than a year to live, you got 6 months to live, whatever. You you think very differently when it changes about
01:30:08
what's the value of time and what are you going to do and what's your legacy
01:30:13
that you want to leave. It's not about have you got a jet ski and, you know, a
01:30:17
bigger car than someone else or whatever. It's about what what can you do to make other people's lives better
01:30:22
and easier and what make the world a better place and all that. It sounds very again highutin, but to me it's
01:30:28
really important. You know, I step back and and often think is this is this the right thing? Could this be what's the
01:30:33
best outcome I can help create here? Um, and I'm blessed to be able to be in a
01:30:38
position to do that. Again, there's a privilege here. I've got, you know, I've
01:30:40
got a a great job and great people around me, supportive, loving family. I'm in a I'm in a privileged position if
01:30:47
I don't use that in the right way to help other people. You know, there's
01:30:52
days when I just go, "Oh god, here we go again. we're trying to raise more money
01:30:54
for the Malagan shoot. Oh god, I've got to go and walk 200 km for this bloom and
01:30:59
why did I say I would do this again? Oh, this is nuts. Or or you know, I find myself presenting the same story again.
01:31:06
>> Um but if you if I don't, then who's going to? >> Yeah, but it's funny how it'd be very
01:31:11
easy for like a couple of years or even 5 years afterwards to think, oh, you know, I'm lucky to be here. Don't sweat
01:31:16
the small stuff. Make the most of every day. But then after a while it's like
01:31:20
you just fall back into your old habits, old patterns, old routines. >> I do. I mean I I I still I'm back to
01:31:26
some of those old habits, old routines. I'm sure. Um again, we should get my
01:31:29
wife on here. She'll tell you what I'm but but I think it's hopefully now with
01:31:33
bit more purpose and and um and because I'm so involved with >> the Malagan Institute and Blood Cancer
01:31:39
New Zealand and and the Well Foundation, which is the charity for the Northshore
01:31:42
Hospital. So I've kind of got myself embedded in the in the parts of the system that I think I can have an impact
01:31:47
on. It's kind of part of my normal life now. And um and even in my in my jobs,
01:31:52
it's sort of agreed that I'm going to go and disappear and do stuff like that in
01:31:55
the cancer world every now and then. You know, tomorrow I'm taking a day off work
01:31:59
and I'm going down to Christ Church for the blessing and opening of the new Karti facility that they're that um it's
01:32:05
not the opening, it's the it's the they're starting work on it and um and
01:32:09
they've asked me to kind of MC it cuz that's one of the things I can do. So I
01:32:12
said, "Yeah, I can help with that." And that means they don't have to pay an MC.
01:32:15
Sorry, Jason Gun, you're not going to get that gig. >> It's all right. He's doing all right.
01:32:19
He's doing all right. >> The cats the gigs. Leave them to me. >> Um, what about the term survivors guilt?
01:32:26
>> Yeah. >> Is that something you >> Yes. It's interesting. I've get I do
01:32:30
think about this a lot. I do have a surviv the survivor's guilt is this concept that you know you and
01:32:35
particularly me I see other patients who don't get that outcome. You know I'm
01:32:38
very yeah as I say very visible. I get patients and their families calling me, you know, once or twice a week for the
01:32:46
last eight years. So, how many hundreds of people is that? And I definitely meet
01:32:49
people who don't survive. You know, I've been to lots of funerals and they are
01:32:55
often not that different than me, you know, personal life situation, whatever. Um, so you do realize every one of those
01:33:02
helps you realize the luck that came along on that journey and the opportunities that were presented to to
01:33:08
us and the people that helped us. And so yeah, it does create. I'm not sure it's
01:33:12
a guilt thing cuz guilt means sort of that I did something wrong, but it's definitely an obligation thing. Like
01:33:18
this is part of what drives me is very much this, right? I can't I can't sit
01:33:22
back and go, well, I'm all right, mate. You know, pull up the ladder, you're on
01:33:26
your own. If I'm in a position to help someone else, I'd like to be able to do
01:33:29
that. >> Yeah. >> So yeah. >> Yeah. What you're doing now is sort of
01:33:32
on a a bigger scale what you were doing by going back to Boston when you didn't
01:33:35
have to anymore. >> Yeah. Exactly. It's the same deal. But really when it's like like when they
01:33:40
first asked me to help out raising the Malagan said like we want to raise some money and the first little clinical
01:33:44
trial round was just a small clinical trial and they said we need to raise some money and how much could you raise
01:33:50
could you raise a million dollars and I went oh my god a million dollars that's
01:33:53
a like a resonant number cuz it's the same number I was told yeah I'll raise a
01:33:56
million dollars. I thought how the hell am I going to do this? I've never raised
01:33:58
like but we we did it and that was the first thing and I thought oh good I'm
01:34:02
done. I've kind of washed away my guilt. I am now free. And then they then the
01:34:07
Malagan guys come back. Oh, we're going to do this next one. It's going to cost
01:34:10
20 million. Do you want can you help out? It's like of course I can. I don't
01:34:14
know how you raise $20 million. But um I mean they've got a great team there that
01:34:18
do most of the work. I don't have to do anything really. But just turn up and
01:34:20
talk to people. But it is um it is. Yeah. And I don't think that'll be the
01:34:24
end of it. I think there'll be something else will pop out. >> Yeah. >> Yeah. 100 million.
01:34:28
>> That's right. Yeah. >> Do you do you feel um much different to
01:34:32
how you did 10 years ago? How are you the same? And how are you the how are you different?
01:34:35
>> Um I'm more I'm more of an intense version of myself I reckon. I was asking
01:34:40
my kids this actually. They said you're like a concentrated version. So yeah,
01:34:44
same sort of positive energy, love doing stuff. Um I'm probably less stressed
01:34:51
than I used to be in terms of it's little things will stress me out like I can't find a container lid.
01:34:58
But but I don't get too hung up on big thing, you know. Not too It takes a lot
01:35:02
to stress me out these days. and work stuff I can usually navigate through and you know so I'm I've leared you know the
01:35:08
boundaries of that sort of stuff. Um but I guess I spend I and I probably spend more time I I say yes to a lot of stuff.
01:35:14
That's probably the thing that's changed more is I'm more I'm more involved in
01:35:18
lots of different things which I have to sometimes just step back and go is it the right thing? Is it the best use of
01:35:22
my time? But >> mostly it is >> random podcasts. I I appreciate you being here today.
01:35:30
This is really cool. I love it. >> Are you um >> Yeah. Do you you made a joke before
01:35:34
about being the Minister of Health. Do you have any interest in politics? I was I was recently asked by one of the
01:35:39
political parties if I would get into politics and I said no thank you. Um I'm
01:35:43
not it's saying yes to things. I mean I would love to magically. I would love to
01:35:47
be Steven Joyce if you're listening. Joyce Joyce got the phone call and then
01:35:50
he was on the list and then he was the minister and I went can I have that? If I did that I'd be fine. I don't want to
01:35:55
go through the actual political like standing around handing out leaflets. And the other problem is I'm not
01:36:01
completely politically aligned. Like I I I have friends across the political spectrum. I'm friends with multiple
01:36:07
ex-ministers and ministers from different political parties. I admire many of them. Uh and I I I think about
01:36:14
the policies that they have and I can't see a particular one thing I'd tie
01:36:19
myself to cuz I um so I'm not political enough to be in politics if it were. And
01:36:25
also I think you I can probably have more influence outside the system than >> than in it at the moment.
01:36:30
>> Yeah, >> I had Sir Rod Rury on the podcast who's >> Rod's a great man.
01:36:33
>> A great man. He he said the same sort of thing. He can have more impact by not
01:36:36
being in politics than by actually being in >> help have a billion dollars up sleeve by
01:36:39
the way. But Rod's a great guy. He's a good friend and you know and he's doing
01:36:42
some incredible work and I was so pleased to see him get the New Zealander of the year and his nighthood and things
01:36:46
because >> yes, Zero was amazing and all of the IT stuff before that, but what he's doing
01:36:51
now is remarkable and that's a really good example. He's doing at scale the
01:36:54
sort of thing that I would have loved to. And I keep jokingly saying to him, "If you got a job, Rod, I'd come and
01:36:58
work for you." Um, but he doesn't employ anybody anymore. So, but he gave me a
01:37:04
tour of his house in his his amazing >> his basement. Could you >> Do you like the Stargate portal?
01:37:08
>> Oh my god, it's incredible. It's incredible. It is cool. It's like um
01:37:13
It's like a 20-year-old boy just got given a billion dollars or something. >> Yeah. Yeah. But it's good. But it's I
01:37:18
don't I I love it cuz he's all he's doing all that and it's cool and he's
01:37:22
got the amazing cars and stuff which we probably shouldn't talk too much about
01:37:25
anyway. But he's also doing incredible things building a hospital. He's he's
01:37:29
you know um cycle trails. He's reforesting the hills behind his houses. Like he's doing amazing things for the
01:37:36
local community as well. So I don't begrudge anyone spending them spending money on themselves
01:37:40
>> if they're also doing all that other stuff. I do get pissed off when I see
01:37:44
very rich people who are so don't seem to have that kind of same sort of social
01:37:47
obligation that he >> seems and and it must be hard because you know you talked before about needing
01:37:51
you know $20 million or $10 million for this project or whatever and um I can't
01:37:55
imagine how many emails you know the likes of Rod Ry or Sir Peter Beck or the Mobres get
01:38:01
>> um yeah cuz the more the more money you've got I suppose you the bigger a
01:38:05
target you have on your >> back and many of them are amazing you know those some people give quietly some
01:38:10
people have foundations or family offices or whatever. And we are blessed in New Zealand that actually we do have
01:38:14
some incredible people who will give significance outs of money. I mean, for this 20 million, 6 million of it came
01:38:19
from one couple, you know, for example. And it was just uh they're quiet. They
01:38:23
don't want to be necessarily known who they are, but they they said, "We'll do
01:38:26
this." And then they also are very clever cuz they're business people. And
01:38:28
they said, "We'll give you six, but you got to match it. Find the other six to
01:38:31
match it." I was like, "Oh, that that's actually quite cool cuz you can go to
01:38:34
other people and go, if you give me a million, I'll actually get another million." You know, so it's like,
01:38:38
>> yeah, >> negotiating again. turned into a game >> a little bit. Yeah.
01:38:43
>> Are you still afraid of death? >> No. No. I'd be I'd be sad if it happened
01:38:48
tomorrow. Touchwood. Um but it doesn't worry me. I mean I mean I I hope I've
01:38:53
living a a bountiful and good life and I'm a good person and all that sort of
01:38:57
stuff and and my you know and I hope that I can leave would leave things in a good position for my family uh and for
01:39:04
my friends and stuff. But I'm not I'm not afraid of it. No. No. If you got
01:39:08
told today you had like three years or five years left, is there anything you'd
01:39:11
change? >> Uh, probably work a little bit less, but no, I think I'm, you know, I would probably
01:39:18
accelerate. This is probably, sorry, Katherine, my wife's getting less. I would go even harder and faster on some
01:39:23
of the things we're doing. You know, like trying to get this cancer treatment
01:39:25
into New Zealand is a real passion project for me. Um, but there's also other stuff that I'm involved in that I
01:39:32
think is really important. The things that could potentially, you know, really can change the fabric of our of our
01:39:37
country. Um, and I think there's stuff that I can still contribute to that. I
01:39:42
would probably go hard at that stuff. I wouldn't just go and sit on a an island
01:39:45
for I might do that for a week, but not for 3 years. No. >> You get the feeling you're you're a
01:39:51
negative relaxer. You got to be doing something. >> Yeah. I'm a shocker.
01:39:53
>> Yeah. >> Yeah. Yeah. Are there are there things that you you um used to take for granted
01:39:57
that you don't take for granted anymore? >> Um time with my wife and my family is
01:40:04
things that you know it sounds terrible e but when you're in your sort of 30s
01:40:07
and you're trying to build a career and you're trying to you know you think
01:40:12
you're fending you know for your family and bringing home the bacon and stuff
01:40:15
but actually you're probably distracted from the from the realities of being a
01:40:18
parent. I think that stuff I don't take for granted anymore. I love you know
01:40:22
spending time with my family. Um, so yeah, and Katherine and I in particular have got closer as we've got older. So
01:40:29
we we spend a lot of time together. Um, but yeah, and then your health is another thing you don't take for
01:40:34
granted. You know, your body as you get a bit older already starts to sort of creek and grown around you. So you've
01:40:40
got to be thoughtful about what are you doing to protect your health. And I've
01:40:43
I'm I'm better at that. I still have to constantly remind myself to exercise
01:40:46
properly and not drink too much and eat better and whatever, but I'm I'm more at
01:40:51
least I'm having those conscious thoughts now >> and acting on the most middle-aged thing
01:40:56
ever. E like you become obsessed with aging like in your sleep patterns. >> I haven't bought any Lyra yet. I mean,
01:41:01
that's when I think I really will have crossed the the entry. But yeah, >> I'm surprised you haven't. If you and
01:41:05
John Bridges are that close, he's obsessed with it. He's always in I reckon he's in Lyra probably 80% of the
01:41:10
time. I'm graciously letting that be his thing. Otherwise, we'd hang out too
01:41:14
much. So, John, you can have the Lyra and the wedgies and all that sort of stuff that you do when But he's I mean,
01:41:20
he's very very fit. He's doing really well. >> Um, but no, it's I health is an
01:41:25
important thing. You know, you've really got to cuz everything can change very
01:41:28
quickly if you're not healthy. >> Well, as you discovered immediately.
01:41:32
>> Yeah. >> Just with a a Friday doctor >> thought I had the flu and then suddenly
01:41:36
it was all went to custard. Yeah. You you do so much public speaking. You do a bunch of podcasts. Is there one thing
01:41:42
that you wish more people asked you about that they don't? Oh. Um I love it when people ask me how they
01:41:52
can help or how they can get involved. A lot of people go, "Wow, you do so much."
01:41:55
I go, "Yeah, I do, but you know, you could too." Um I'm happy for you to
01:41:59
help. I mean that. But what having said that, that sounds like I'm blaming other
01:42:02
people. What's been really cool, for example, we're doing this go the distance challenge with Malagans. Do you
01:42:06
see me? I'm such a pro dragging it back to the topic I want to talk about ignoring your question. But what's been
01:42:11
cool is I went out to a bunch of people and I said, "Would you join me and join
01:42:15
a team and do some fundraising?" And man, oh man, it's been great. So many of
01:42:18
them have said yes. They've got involved their fundraising. Um, so that is cool.
01:42:23
So I love it when people say, "Yeah, yeah, lean in." Because people just
01:42:26
sometimes need to be asked and shown a little way forward and then they can get involved in things like this. But
01:42:30
>> yeah, well anyone that's listening to this or watching this now, what can they
01:42:34
do? >> Go the distance. If you Google go the distance in New Zealand and you'll see
01:42:38
there's this it's going for the month of April basically all of the money will go
01:42:42
to the Malagan Institute as I say it's trying to close that gap so that people
01:42:45
don't have to go overseas and don't have to travel enormous amounts uh and don't
01:42:49
have to spend a lot of money and we can get this treatment in New Zealand and again I've just come back to it's not um
01:42:56
this is such a a positive thing we we talk so often in the health system about the deficit we have in the health system
01:43:01
and it is we've got big gaps we can't afford these medications and we wish we
01:43:04
were this and we're this far behind Australia, whatever. This is something where we can actually get back and lead
01:43:09
again and um and we're very close to having it done now. So, we are going the
01:43:14
distance. We're going to have this clinical trial paid for. I'm going to
01:43:17
finish it by August. We got a couple of million bucks to go wherever it is and then we hope that it'll quickly then
01:43:23
make its way into the public health system. >> Yeah. You cancer picked the wrong guy,
01:43:28
but also also the right guy. The right guy. One of my kids said that said, "Oh,
01:43:32
if anyone got cancer, I'm glad it was you, Dad." It was like what? I said,
01:43:35
"Oh, cuz you could deal with it." Um, >> you could deal with that. Not only that,
01:43:38
but you've you've done so much for so many since then. >> Oh, thank you. I'm still still more to
01:43:42
go. More to go. >> Yeah. What are your best and worst habits? >> Ah,
01:43:46
uh, best habit, my positivity and optimism. Like I I constantly reframing. It's now just not even I don't even
01:43:53
consciously do it. I'm always thinking, okay, what's what's good about this? How
01:43:55
can I make the most of this? What's, you know, what what's the good thing that's
01:43:58
going to happen? That skills I learned during hospital actually. you know, two years of trying to do that to yourself
01:44:03
means it's just sort of a natural habit. Worst habit is uh I'm not exercising
01:44:09
enough. I'm physically a bit lazy at times. I've got to force myself. I don't
01:44:12
enjoy it. I enjoy being fit, but I don't enjoy the the gym and all that sort of
01:44:16
jazz. So, you I know that I've got to do it more. >> Yeah. Yeah. And I probably work too
01:44:21
much, you know, at times there. You know, my I will definitely have to step back every now and then and go reset a
01:44:27
little bit. I've just got myself a little bit too busy again, but overcommitted. Um yeah,
01:44:31
>> you got a little bit emotional before when we were talking about um that that
01:44:35
wonderful reframing from with your wife. Are you um Yeah. Have you become more emotional since going through what
01:44:43
you've experienced? >> Yeah, I'm always been quite emotional. I'm a sook. Yeah. Yeah. Jeep has put on
01:44:47
water ship down and I'll ball like a child. Um but yeah, I've always been
01:44:52
emotional. I live I I live quite empathetically, I hope, with other people. I get quite clued into what
01:44:57
other people are thinking and feeling and and that can make me quite emotional. The times I get very
01:45:01
emotional are typically when I see other people in pain or when I when I know they're in a really difficult situation.
01:45:07
You there's a few cancer patients that I deal with and I find it really tough cuz
01:45:12
I know how hard it is for them. >> Yeah. >> And they're probably not a good outcome
01:45:16
for them and that makes me really emotional. Um but but you turn that the doctor told me this actually cuz I asked
01:45:21
that sort of question to the doctor. said, "How do you deal with all this stuff when people are dying on you and
01:45:26
or when you meet someone you know they're not going to be able to um be successful?" He said, "You turn that
01:45:32
into something. You turn it into action or you turn it into uh a resolve to be better yourself." Like if you wallow in
01:45:40
a negative space, it'll it'll eat away and get at you and you'll find yourself
01:45:45
like really in a negative thing. But if you go, "Ah, this another person that I
01:45:49
met and was on a journey with has not made it and their family are suffering."
01:45:53
Okay, how can we speed up the process to make sure that doesn't happen again?
01:45:58
>> And so I kind of give use it as fuel. Um that's a reframing type technique as
01:46:03
well that that I try and use. But it's not easy to do. It's blooming hard. But
01:46:07
um but it's better than just sitting there going, "Oh my god, you know,
01:46:10
there's nothing that can be done." >> Yeah. Rich Rich McCoy's got a quote like
01:46:15
the human brain is wired to think of the worst case scenario. >> We're the people that survived.
01:46:20
>> That's right. Think think of like what what if everything goes wrong, but his
01:46:23
thing is like no what if everything goes wrong. >> Right. And it's more often than not, you
01:46:27
know, >> somewhere in the middle. >> Yeah. Yeah. I mean, I often think what's
01:46:29
the best outcome from here? And it often happens like I would say 90% of the time
01:46:34
>> I start the day I literally do start the day. It's almost a little mantra of
01:46:38
what's the best thing that's going to happen today or what's the what are the
01:46:40
what are the positive things that can happen today? And then you get to the end of the day and you kind of reflect
01:46:44
back on it. This is sort of again this is um you know mental wellness type stuff. I don't I didn't consciously do
01:46:50
it because it was mental wellness but now I realize it is. What often happens at the end of the day you go actually
01:46:54
all of that stuff did happen. You know all of that positive things did happen. You know that meeting that I thought was
01:46:59
going to be different went better than I thought. That phone call was easier than
01:47:02
I thought it was going to be. That this this meeting Dom was great cuz now we we're mates and we're going to be able
01:47:06
to see each other and that's great. You know like all this sort of thing. But
01:47:10
that's a really good technique. That's like when I cuz I do a little bit of
01:47:14
teaching every now and then as part of my kind of keynote speaking. I'll I'll
01:47:18
give people these little techniques and and it feels really weird when you first
01:47:21
do it. It's like, you know, doing things with your left hand when you're normally
01:47:24
right-handed. So forcing yourself every day to create a little habit. >> Well, by after a while, not even that
01:47:30
long, a month or so, you will start to now go, it's just a normal behavior to
01:47:33
go actually by me going into a day going, what's the best thing that's going to happen? It actually created
01:47:39
that thing. >> Incredible. It's like manifestation in a way. >> It is. It is. It's not spooky woo woo
01:47:43
hopefully. But it's I think it just puts you in a position of optimism and >> uh seeing possibilities in a different
01:47:48
way. So instead of me being uh I I don't want to do that. It's going to be too
01:47:51
hard. It's like okay now let's walk towards that and what could what could
01:47:54
happen if it goes well >> and then and then you almost sort of steer it that way.
01:47:59
>> I love that. I think that that's so cool. Did you get that from like a book
01:48:02
or >> No, I made it up in my brain >> when I was really good. Well, I keep
01:48:07
thinking if I had more time, I would love to write a book on on on some of these mental techniques. A lot of it was
01:48:12
done when I was in hospital and I look back and retrospectively just, you know, worked out what I I had been doing,
01:48:18
dressing up my hospital room, all that kind of stuff. Um reframing, you know, I remember firmly remember sitting in, you
01:48:25
know, in my hospital room going, I feel terrible. It's terrible. My emotional
01:48:29
state's terrible. My physical state's terrible. What could I do that can make
01:48:33
me feel better? And it was like, "Make your bed >> or make the nurse laugh the next time
01:48:40
that they come in." Or Katherine would call me and go, "One of the kids has got
01:48:44
a problem with homework." Oh, okay. Help them with the homework. You know, like
01:48:48
it was just tiny things that would just make life a little bit better and feel like you've done something. And I think
01:48:53
if you can if you that micro habits become, you know, big impacts when you do them consistently over time. That's
01:48:59
the 1% rule. >> You know, people like Richie is a great example. You know, you don't have to be
01:49:04
100 times better. You just have to be 1% better >> and then and then build that habit.
01:49:10
>> You've run out of cards. >> It's only been an hour and 48 minutes.
01:49:14
>> This has been a great chat. Um, >> God knows how you're going to turn that
01:49:18
into something useful. >> Well, I I I um I don't need edit anything out unless the guest wants it
01:49:23
edited out. I think people will start listening and it's like a book. If it's
01:49:26
if it's good, they'll they'll keep listening. If they're not enjoying it,
01:49:29
they'll put it down. But I think um >> if you've made it this far, you've got
01:49:31
tenacity and resilience. Good on you, mom. >> The last question you might struggle to
01:49:38
um answer being um the son of Irish immigrants with a Catholic background. >> Are you proud of yourself?
01:49:44
>> Oh, pride is a sin. Um luckily I'm not religious anymore. I'm proud of my Yeah,
01:49:50
I'm proud of the things that I could I'm but the of myself bit's interesting
01:49:55
because of myself is you know assumes this reality of thing that you did at B yourself. I'm I I'm lucky and proud that
01:50:01
I've pulled together people that help me to do stuff and I and I'm very rarely
01:50:05
the only person doing something. Um but I'm proud of what we are achieving collectively. The Malagan Institute's
01:50:10
amazing. I'm proud to be part of it. Um yeah so I think the answer is yes with
01:50:15
that little proviso. >> Yes with the condition. in the condition that hopefully doesn't get me sent to
01:50:20
hell. >> Yeah. Yeah. What do you What do you think happens when you die? >> Uh well, it's going to be terrible. I'm
01:50:25
not religious in the slightest. I think nothing happens when you die. I think you your
01:50:29
>> your energy is lost and um hopefully you've left a mark on the universe in
01:50:33
another way, but I'm not. >> You live live on in the people whose lives you made impact on.
01:50:37
>> Are you um are you atheist, agnostic? >> I'm I'm atheist now.
01:50:41
>> Yeah. Yeah. Much as my my father would probably never listen to this. My
01:50:44
father's very religious. Um I'm not at all. we agree to disagree. >> Um I I think you can be I think the
01:50:51
conflation between morality and religion is just so dangerous. You know, I I find
01:50:56
I think I'm a very moral person, a very ethical person, but not at all religious. And I see religion sometimes
01:51:01
as being very anti-morality and anti-ethics. And so >> I I don't I don't bring the two things
01:51:07
together. >> I'm I'm the same Catholic a Catholic upbringing. And when I was old enough to
01:51:11
make my own decisions, I realized you could be um a bad person and go to church or a good person and not go to
01:51:15
church or somewhere in between. >> The best but the best but the best the best lessons I ever learned were at
01:51:20
school and they were in the religious studies class at school. And I remember again this priest, Father Tyat telling
01:51:26
us this thing which I hold dear to today. He said, "You've got two jobs in
01:51:29
life. One is to define your moral uh boundaries uh and create your morality and the
01:51:35
second job is to live by it." M and he said if you do those two things you'll
01:51:39
be a good person. You don't need that thrust on you by some external force. You need to create your moral boundaries
01:51:46
and then you know when you're stepping outside of them >> and uh and I've I just I remember that
01:51:51
was probably 15 at the time he taught me that. It's still something I think about
01:51:53
a lot >> like be be the the CEO of your own mind and body. >> Yeah. Be the best person you can be.
01:51:59
Yeah. >> I love it. Hey David Downs, this has been a great chat. Thank you.
01:52:02
>> Thanks so much mate. I'm so glad you survived and otherwise it would have
01:52:05
been a very boring hour and a half, wouldn't it? Um, but I'm so like proud of everything
01:52:12
everything you're doing for people today and tomorrow that may go through the
01:52:15
same experience you did. It's really cool. Thank you very much. You're a
01:52:18
great New Zealander. >> Awesome. >> Can't believe you're only semi-finalist
01:52:21
for New Zealand. >> Damn, there's still time. Squeeze me in next time, judges.
01:52:29
Heat. Hey, Heat.

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Episode Highlights

  • David DS: From Comedian to Cancer Advocate
    David shares his journey from comedy to battling cancer and advocating for others.
    “I made a touch of cancer documentary.”
    @ 00m 10s
    April 15, 2026
  • The Power of Community Support
    David reflects on the incredible support he received during his cancer treatment.
    “Look at the power of people coming together for a cause.”
    @ 13m 32s
    April 15, 2026
  • TV Show Opportunity
    Unexpectedly headhunted for a TV show during university, changing my career path.
    “Do you want to be on a TV show?”
    @ 24m 30s
    April 15, 2026
  • The Challenge of Comedy
    Reflecting on the difficulties of stand-up comedy and the learning process involved.
    “50% of our stuff was awful.”
    @ 32m 47s
    April 15, 2026
  • Microsoft Experience
    Describing the journey and challenges faced while working at Microsoft in Southeast Asia.
    “It was stressful as hell.”
    @ 40m 36s
    April 15, 2026
  • Unexpected Opportunities
    A phone call changed everything, leading to a potential treatment for cancer.
    “The phones don’t usually ring that way, you know.”
    @ 49m 50s
    April 15, 2026
  • A Tough Diagnosis
    Receiving the news of limited time left, surrounded by loved ones.
    “"Get your affairs in order, you’ve got 6 to 12 months."”
    @ 01h 00m 49s
    April 15, 2026
  • Hope in Boston
    Traveling to Boston for clinical trials, a couple finds hope and connection.
    “"We don’t get two chances like this. We’ve got to go for it."”
    @ 01h 10m 53s
    April 15, 2026
  • A Call for Equity in Healthcare
    The speaker emphasizes the need for equitable access to cancer treatments in New Zealand.
    “We need to set up a system that does not require me to have a high-profile.”
    @ 01h 19m 17s
    April 15, 2026
  • Hope and Action
    Hope must be coupled with action to lead to real change.
    “Hope without any activity is probably a bit of a fool's errand.”
    @ 01h 29m 23s
    April 15, 2026
  • Reflections on Death
    The speaker expresses a lack of fear regarding death, focusing instead on legacy.
    “I'm not afraid of death.”
    @ 01h 38m 45s
    April 15, 2026
  • Creating Your Own Morality
    The speaker reflects on the importance of defining personal moral boundaries and living by them.
    “You’ve got two jobs in life: define your moral boundaries and live by them.”
    @ 01h 51m 32s
    April 15, 2026

Episode Quotes

  • We were going to have to try and sell our house.
    Business Leader David Downs: NZ's Branding Problem!
  • Take every opportunity that’s offered to you.
    Business Leader David Downs: NZ's Branding Problem!
  • LinkedIn was literally the way that my life got saved.
    Business Leader David Downs: NZ's Branding Problem!
  • "I’ll spend the rest of my life wondering what might have been.".
    Business Leader David Downs: NZ's Branding Problem!
  • I felt this obligation, moral obligation to do it.
    Business Leader David Downs: NZ's Branding Problem!
  • You cancer picked the wrong guy, but also the right guy.
    Business Leader David Downs: NZ's Branding Problem!

Key Moments

  • Documentary Reflection00:10
  • Fundraising Challenge11:01
  • Irish Roots16:08
  • University Life20:31
  • Treatment Options Dwindle57:38
  • Clinical Trial Costs1:17:37
  • Cured Moment1:26:51
  • Genetically Modified Optimist1:28:23

Tension Over Time

Words per Minute Over Time

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