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How an Undiagnosed Brain Tumour left Mitch Wilson Blind at 19 Years Old

November 19, 202501:36:22
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Mitch Wilson, welcome to my podcast.
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>> How's it going, mate?
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>> Good, mate. We finally got together.
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>> I know. Thank you. Um, yeah, thanks for
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replying to the email and uh allowing me
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to come on here.
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>> Thanks for reaching out. So, you're
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you're legally blind. You've got 5%
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vision.
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>> Yeah, pretty much. Um, in my right eye,
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I've got centrally about 5% or maybe
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slightly less. Um, luckily I've got some
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peripherals, but my left eye is totally
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blind. And yeah, my right eye is uh the
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peripherals don't really do too much in
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terms of detail, but they allow me to
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look mostly normal. So,
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>> yeah, it's a it's a hell of a backstory.
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Um, started when you were 17 when things
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started turning to [ __ ] Uh, so we'll
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unpack all of that, but yeah. So, what
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can you see? So, you pulled up in the
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RAV 4 just before um your partner
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driving, you hopped out. I don't know. I
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suppose I was expecting a dog or a cane.
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>> Yeah. Well, um I do qualify for a guide
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dog, but uh that actually a new thing,
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but uh with my eyesight, I do actually
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qualify for a complete guide dog, but I
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don't need that. Um so many people need
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that more than me, so I've never gone
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down that route. Um, but recently I
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found out that they uh do like low
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vision dogs now. Um, so they don't
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actually guide you as such, but they
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still help, which I may look into. So,
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>> um, yeah, it'll be pretty cool. It's h
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good having a dog in public, but we'll
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see what happens. I haven't applied yet.
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So,
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>> so you can see nothing out of your left
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eye?
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>> Yeah, it's totally black.
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>> Right. And out of your right eye?
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>> Uh, my right eye, yeah, sorry. I was,
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uh, centrally is about the size of a
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straw. So, what are we now? about a
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meter and a half, 2 meters away from
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each other.
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>> I can see your left eye socket and can't
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see your face, but then I can see from
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your shoulders down and I can see all
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the table and all that sort of stuff.
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So, um yeah, luckily my central dot,
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although small is still perfectly clear
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and my peripherals are just sort of uh
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big vague sort of things. So, I can
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still see most stuff, but like if I
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looked at you out of my peripherals, I
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can't tell it's you.
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>> So, yeah. So, you're able to use your
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phone. You're able to What about TV?
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Watching TV and things.
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>> Um, yeah, I can still use my phone, can
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still read. Um, I should probably
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proofread a bit more, but I tend not to.
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Um, but watching TV is, yeah, not too
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bad. I just see sort of people's faces.
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Um, can just scour around the screen and
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still make out what's happening most of
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the time. So,
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>> yeah.
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>> And is it is it going to get better or
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worse or?
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>> Uh, no. uh it just is what it is now. Um
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so luckily I still have some eyesight
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left.
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>> Uh I wasn't supposed to really but they
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didn't know where it was going to stop.
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So
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>> it was kind of a gradual process which
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was pretty terrifying but
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>> especially at that age.
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>> Yeah. Yeah. Exactly. And it's um
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uh very long story but the eyesight was
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uh what they said was they sort of just
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didn't know. So for the my my time frame
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is probably off, but for the couple of
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months that I thought it was
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deteriorating at the end, um
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it probably stopped where it is a bit
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sooner than I thought and I still
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thought it was getting worse. So I sort
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of didn't want to go to sleep. Couldn't
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couldn't go to bed cuz I thought I'd
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wake up and like wouldn't be able to see
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anything.
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um every night was walking around the
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house looking at, you know, family
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photos, photos of myself, all that sort
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of stuff, going, "Shit, is this the this
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the last time I'm going to see it?" Um,
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but then, yeah, just sort of stopped
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where it did and luckily left me with
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some. So, I still make do most of the
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time. So,
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>> yeah,
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>> it's a terrifying way to um to go to
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sleep or or to live your life. Um, but
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I'd imagine even more so at that age,
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like 17. Yeah. Well, I was we were I was
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19 when we found the tumor.
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>> Okay.
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>> Um
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>> 17 when it started and
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>> Yeah, it's when I started getting unwell
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and then it was uh a long time although
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only a year and a half or so in between.
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>> Um it was a pretty [ __ ] year and a half.
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>> Yeah.
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>> Uh so,
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excuse me. Sorry.
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Um yeah, I started getting sick and was
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going to doctors and all that sort of
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stuff. And my GP was awesome. M
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>> um he'd been my doctor my whole life
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basically. Um
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>> but yeah, he sent me to the specialists
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and all that and got turned away. Um
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>> specifically I ended up going to a
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neurologist in February of 2011. Um I
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won't say his name, but uh that was only
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about a month and a bit after the like
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dizziness and stuff started. So in 20
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Oh [ __ ] What was the year? In 2010 when
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I was 17, I started getting quite rund
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down and quite sick. Was first year out
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of school being a bit of an idiot
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teenager I suppose. Uh you know,
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drinking too much and doing stupid
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stuff. Um was getting quite rund down
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and that's when all the sort of health
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stuff started. But then the start of
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2011, I started getting severely dizzy.
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>> And for some reason, I just thought,
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ironically, it's like it was in my head,
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ironically. But um I I just thought I
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had a brain tumor just because of the
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severity of the dizziness and all that
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sort of stuff. And
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um yeah, I couldn't lie down cuz it felt
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like my head just kept going backwards
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through the pillow. um couldn't look up,
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couldn't just turn around cuz I just
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completely feel like I'm falling over.
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Um yeah, so the my doctor sent me to the
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private neurologist which I requested
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and the private neurologist completely
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poo pooed me basically and just said go
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away. Um
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said that it was benign peroximal
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positional vertigo which
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is from my understanding quite uncommon
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in such a young age. M
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>> um but if you looked at my list of
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symptoms from a professional standpoint,
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which I've been told since and all that
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sort of stuff with my list of list of
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symptoms, the reason h sorry the fact
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that I wasn't given a scan is crazy.
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>> So I actually requested a scan as well
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and you know it was a private system. So
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I said I'm willing to pay, happy to pay.
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I just want to make sure it's not that.
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Um but yeah, I was turned away and
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that's why it was uh subsequently
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medical misadventure or neglect. So
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>> how do you let go of that rage? Have you
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let go of that rage?
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>> H I mean, yeah, it is what it is now. Uh
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if you spoke to me in 2012, it certainly
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was a different story.
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>> Yeah. How long did it take you to get
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over it?
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>> Um
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>> I'd be [ __ ] off. Anyone anyone
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listening to this or watching this' be
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[ __ ] off and you'd have a right to
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>> I mean it's not going to get you
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anywhere. It's not not going to allow
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you to get on with your life, but I
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could I could see why you'd still be
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pissed about it.
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>> Yeah, it's I mean, yeah, there's more to
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the story which we'll get into with
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that, but I mean, when I was in
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hospital, um it's probably I don't know.
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I don't know what the the go might be,
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but it's probably lucky I didn't get
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arrested with some of the [ __ ] that I
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was saying. Um you know,
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>> you want to kill the guy at that point.
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>> Oh, yeah. [ __ ] [ __ ] Um especially, you
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know,
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like the the the the medical neglect is
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the only reason I'm blind.
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>> Um so my eyesight was avoidable. Uh the
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tumor was there. That's what it is. But
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if they caught it in February of 2011,
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my eyesight would have been fine.
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>> So the only reason my eyesight was
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damaged is because uh because I was the
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the tumor was missed by the neglect.
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Yeah,
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>> it was allowed to be there for another
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14 months before we found it. And in
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that time, the uh intraraanial pressure
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got really high. So
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>> prolonged elevated intraraanial pressure
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is what caused the optic nerve atrophy.
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So yeah.
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>> So um you messaged me about coming on
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the podcast.
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What do you want people to feel when
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they hear your story?
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>> Um I kind of want
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Oh, I mean
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h how do you say it? I kind of I don't
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know how the hell it would come to
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fruition, but I'd like to enact change.
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Um
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want people to know that they should if
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they don't get the answer they want from
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their doctor, they should be arguing it.
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>> Um the doctors obviously do a bloody
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good job. They've got a a hard job,
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highly qualified, but at the same time,
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they can be lazy as hell. So,
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>> well, in in any line of work, in the
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medical profession is no difference.
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There's there's people that are really
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good at their jobs and people that are
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[ __ ] There's people that are good at
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their jobs that have [ __ ] days.
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>> Exactly. That's That's the thing.
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>> That's human error.
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>> That's the thing. And it's just um the
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the only difference would be when you're
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in the position of say the neurologist
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or any other medical professional,
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people's lives are in the balance,
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right? Um
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>> so they shouldn't I like everyone makes
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mistakes, but there's a difference
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between a mistake and a choice.
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>> Yeah. Um, so with the neurologist
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in my case, he just didn't want to fill
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out paperwork
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>> pretty much cuz when I ended up in
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hospital in April, uh, 2012, I was
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obviously, you know, I seen this guy did
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there, you know, like going off and they
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were like, why did he not give you a
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scan?
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>> Cuz of the symptoms I turned up with,
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um, they said in the public system,
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99% chance I would have got a scan. So
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uh just because the symptoms
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>> said that it should have been treated
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that way. Yeah. So
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>> you know is what it is but yeah it's
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just the the unfortunate thing is that
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like you hear of so many cases
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>> and you know you get into the other side
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of things of ACC and all that sort of
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crap too and it is not easy.
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>> I I suppose for for your own um your
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mental health and sanity you you you
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just need to move on don't you? You
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can't just you can't dwell on it. It's
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just not healthy for you.
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>> Yeah, pretty much. It is like it just is
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what it is. [ __ ] happens. Carry on. You
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can still talk about it, but
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>> can't change it.
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>> No, you can't change what happens. It's
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um all you can control is your response,
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I suppose.
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>> So, who was Mitch Wilson before he got
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unwell?
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>> Um through college a bit of a bit of a
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[ __ ] but
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>> everyone is.
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>> Yeah. Yeah. Just the old growing up, eh?
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It's a bit of a bit of a niggly time for
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a lot of people. Um
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>> yeah, I don't know. Uh when I was a
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young kid, I was very sporty. It's uh
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you know, many kids like it, but kids
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are kids, right? You can't sort of blame
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them for being a little arrogant,
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>> cocky, little bugger, you know.
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>> But I was kind of I was kind of like
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that. Um but for me, sports was
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everything when I was a kid. And I was
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very determined to be the winner of
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whatever I entered. So, um, came to
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fruition most times when I was a kid,
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but then you sort of get to college and
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everyone starts growing and I didn't
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and, uh, you know, you start getting
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smashed on the rugby field cuz you're
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half the size of everyone and, um, yeah,
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definitely, I suppose, bumped the
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confidence a bit in terms of just, I
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suppose, personal growth and all that
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sort of stuff. But, uh,
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>> you know, that's everyone goes through
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that sort of stuff, don't they? So,
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>> what what were your plans or passions?
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Um, to be honest, I was pretty lost. E,
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um, I didn't really know. I was just
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enjoying life and being a kid and, you
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know, spend a lot of time doing, you
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know, I'm on my bike freaking making
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jumps with my mates and doing stuff that
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got us hurt falling off and motocross
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and stuff like that. Um,
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>> yeah, just I was just having fun, man.
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Um, but the the one goal I always had
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was to be a cop. I always wanted to be a
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dog handler in the police. So that was
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sort of taken away from me because you
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can't do that when you're blind. So
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>> yeah.
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>> Um yeah, my granddad was a cop back in
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the sort of 60s, 70s, whatever. Um so I
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was just it's always what I what I
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always wanted to do was was to be a
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police officer. So
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>> yeah.
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>> So you start to get sick. What What does
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that look like?
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>> Um well for me I was I was actually
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still playing rugby. So the last game of
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rugby I played was like three weeks
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before I went into hospital. Um so 2011
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and couple first uh pre preseason games
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of 2012 I was still playing um not
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playing well but I was playing um you
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know under 19s though. So we were just
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there to drink beers basically.
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>> Um but
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uh yeah I was sort of through that time
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because the dizziness started at the
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start of 2011. Um,
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it was kind I mean it affected me
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everywhere. So even at work I couldn't
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spin around too much or anything like
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that cuz I'd just, you know, spin out
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nearly fall over.
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>> Did you think you were concussed or
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something? What did you think it was?
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>> No. Well, I mean, like I said, I thought
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from the start, I just had this random
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thought in the back of my mind that I
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had a brain tumor. And ironically,
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that's what tumor was was at the back of
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my head.
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Um but yeah, it was sort of within a
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month or so of the dizziness starting, I
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actually started vomiting as well. So
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every morning I woke up, I was vomiting.
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Um basically vomiting, nothing. It was
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kind of just looked like saliva. Um but
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it would be normally within 5 to 10
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minutes of waking up and moving.
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>> Sometimes it was a bit delayed. So I'd
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get to work and half an hour, an hour
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later I'd have to run to the toilet and
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have a spew and then go back to work. um
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which everyone I noticed but it was just
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a joke back then so everyone was saying
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I was pregnant and stuff you know so
00:14:01
morning sickness um but you know you
00:14:03
just sort of laugh it off and carry on
00:14:05
don't want to complain too much and
00:14:07
>> yeah just yeah that's what it was so for
00:14:10
the next yeah 14 15 months I was pretty
00:14:12
much spewing every day and um dizzy and
00:14:16
yeah headaches and all that sort of
00:14:17
stuff so
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>> so you weren't at school at the time you
00:14:20
were working
00:14:20
>> yeah I was working yeah
00:14:21
>> okay you were you still living at home
00:14:23
or were you flatting
00:14:23
>> yeah no I was at home. Yeah. Um,
00:14:25
>> what did your parents say about it?
00:14:27
>> Um,
00:14:27
>> I I can't imagine how concerned her mom
00:14:30
would be about this.
00:14:31
>> Yeah, she was concerned. There was
00:14:33
probably a bit of skepticism as well,
00:14:35
cuz, you know, probably thinking I was a
00:14:37
drama queen or something like that, but
00:14:39
uh yeah, I mean, she realized the
00:14:42
severity of it, I guess. Um, but yeah,
00:14:45
she she took me to the appointments and
00:14:47
stuff like that. So, um, yeah, I mean,
00:14:51
she never, I suppose, never said I was
00:14:54
like lying or anything like that, so
00:14:56
she, yeah, she still supported me trying
00:14:59
to chase it up. But,
00:15:00
>> were you prone to being like a
00:15:01
hypochondric or something or
00:15:03
>> uh, not a hypochondric, but I guess I
00:15:05
um, yeah, growing up, I was a little bit
00:15:07
of a soft [ __ ] so
00:15:09
>> you know,
00:15:11
you can't you can't argue with that.
00:15:13
Like if you've got like um severe
00:15:14
migraines or you know you're vomiting
00:15:16
every morning like the body doesn't lie.
00:15:19
>> Yeah. Exactly. Um so yeah the the
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dizziness was
00:15:24
quite severe like you'd see me I don't
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know if my eyes rolled back or anything
00:15:27
like that but that's what it felt like.
00:15:29
Um but yeah the vomiting when that
00:15:31
started quite it was probably yeah
00:15:33
January 2011 that started and just
00:15:35
carried on. But um
00:15:37
>> yeah you couldn't ignore me throw it up
00:15:40
in the toilet straight away every
00:15:42
morning. So, uh, yeah, it just
00:15:46
weird to say it, but it just became
00:15:47
normal, so I just carried on. Um, yeah.
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>> How long how long are you suffering like
00:15:51
this before you, um, seek your medical
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intervention?
00:15:55
>> Um, so the,
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like I said, at the end of 2010, I was
00:16:00
getting sort of run down and all that
00:16:01
sort of stuff, but none of the dizziness
00:16:02
or anything had started.
00:16:04
>> Uh, the very start of 2011, so January
00:16:06
2011, um, is when the dizziness and then
00:16:09
vomiting started and all that. And in
00:16:11
February 2011 is when I seen that
00:16:13
neurologist that ignored me. So um yeah,
00:16:16
>> it's getting worse. Not bad.
00:16:17
>> Yeah, it carried on getting worse the
00:16:19
whole time. 2011 throughout that whole
00:16:21
year because um uh because the
00:16:24
neurologist denied me any treatment or
00:16:27
uh scans and stuff and I was vomiting.
00:16:29
My GP is like, "Oh, we'll go to the next
00:16:31
port." And I got sent to the uh
00:16:33
gastrologist and got the camera down the
00:16:35
throat and there was obviously nothing
00:16:37
there. So, um, the doctor made some
00:16:41
[ __ ] claims on that one,
00:16:44
>> um, which had been removed from my file
00:16:45
as far as I know, but, um, yeah, there
00:16:48
was nothing in my stomach, so I just
00:16:49
carried on and just, um, yeah, just
00:16:52
carried on being a teenager and working
00:16:54
and playing rugby and going out with my
00:16:56
mates and stuff and yeah, still went to
00:16:59
R&B that year. Uh not not the best, but
00:17:02
uh
00:17:03
>> I think most people spew there a so it's
00:17:06
I kind of fit it in I guess but uh
00:17:09
>> yeah um yeah all of 2011 was like that
00:17:12
and 2012 was like that too but near the
00:17:16
end there uh sort of yeah January,
00:17:19
February, March 2012
00:17:22
um was when the headache started getting
00:17:24
really bad. M
00:17:25
>> I was waking up in the middle of the
00:17:26
night and I was in tears and uh the only
00:17:30
way I could describe it at the time was
00:17:32
it feels like I've been hit in the head
00:17:33
with an axe. Like I was just splitting
00:17:36
insane pains. Um yeah, so that was
00:17:41
coming to the end of that and it sort of
00:17:42
it worked out all right. Um I don't
00:17:45
condone this but uh the uh RNV um I
00:17:49
actually got an excess breath alcohol
00:17:51
fine. Uh I wasn't drink driving or
00:17:54
anything. It was in the morning. I drove
00:17:55
too early in the morning. Um although it
00:17:57
was still like 11:30 or something like
00:17:59
that. And because I was under 20, it was
00:18:01
zero tolerance. So I only blew a really
00:18:02
low number. Um but it put me over on
00:18:04
demerits. And it's probably the world
00:18:07
looking out for you in a funny way.
00:18:09
>> Um because I went over my demerits, I
00:18:13
had to hand my license in. But I was
00:18:14
driving tractors at this time. Um or
00:18:17
just starting to drive tractors. And uh
00:18:20
we were going to go and work in uh Ken
00:18:24
or just above Ken and do the sugarcane
00:18:26
harvest. Um that was in June or
00:18:29
something. We were going to go over
00:18:30
there in 2012. But to do that I needed
00:18:33
to hand my license in. So I did the 3
00:18:36
months. Um and after I handed it in in
00:18:40
March
00:18:41
is when my eyesight started playing up.
00:18:45
Um, so that was sort of the last sign
00:18:47
that something was I mean it was getting
00:18:50
worse. So, um, it's very lucky that I
00:18:53
handed my license in and stopped driving
00:18:55
when I did because I didn't notice my
00:18:57
eyesight was sort of diminishing at that
00:19:00
time.
00:19:00
>> How so?
00:19:01
>> Um, well, it sort of started as in my
00:19:04
left eye was just a black dot, a little
00:19:06
black dot. And I went to the doctors for
00:19:08
that and they were really good, my GP
00:19:12
and called the opthalmology place at
00:19:14
Wetto Hospital straight away when I was
00:19:17
actually in the room with them and
00:19:19
explained it and the opthromology place
00:19:21
said that it sounded like a floater
00:19:23
which is a very common thing and
00:19:26
basically just monitor it and if it gets
00:19:27
any bigger come or whatever. So, um, it
00:19:31
got a little bit bigger. So, it was it
00:19:33
was weird cuz my left eye started as a
00:19:35
pin dot and the pin dot was getting
00:19:36
bigger. My right eye, which just felt
00:19:40
funny, was like my central vision
00:19:41
closing in
00:19:43
>> over a very sort of slow period of time,
00:19:45
I suppose. Um, but yeah, it was at Yeah,
00:19:48
that time that they handed my license
00:19:49
in. So, when all that was starting to
00:19:51
happen,
00:19:52
um, yeah, I wasn't driving. So, that's
00:19:54
the safe part, right? cuz it would have
00:19:56
been terrible if I crashed and hurt
00:19:58
someone else or hurt myself or anything
00:20:00
like that. So,
00:20:01
>> are are you are you panicked at this
00:20:03
point? So, you've got you you're waking
00:20:04
up in the night with these excruciating
00:20:06
headaches that feel like you've been hit
00:20:07
by an axe.
00:20:08
>> Um your vision's not right.
00:20:11
>> Experts have told you there's nothing
00:20:13
badly wrong with you, which must provide
00:20:15
provide you with some sort of comfort or
00:20:16
reassurance.
00:20:17
>> But, um your health is just
00:20:19
deteriorating and you're a young man.
00:20:21
Are you freaking the [ __ ] out?
00:20:23
>> Yeah, pretty much.
00:20:25
Um I sort of uh like yeah it was getting
00:20:29
getting to a bad point but it was sort
00:20:30
of because of that neurologist at the
00:20:33
start there was still that sort of I
00:20:36
suppose false hope
00:20:37
>> that I was yeah that I was wrong about
00:20:39
the brain tumor but then all this other
00:20:41
[ __ ] started happening. So, um, yeah,
00:20:44
with it getting worse and worse, I was
00:20:45
just I I didn't know because cuz he had
00:20:48
said, "No, it's not a tumor." Um, that
00:20:51
kind of left my mind. So, I didn't keep
00:20:53
pressing the tumor thing. Um, which I
00:20:55
probably should have, but I mean,
00:20:56
arguably, he should have scanned me at
00:20:58
the start and this would have been
00:20:59
sweet. But, um, yeah, it was just I
00:21:04
don't know, it just I was just dealing
00:21:06
with what was in front of me at the time
00:21:07
really and just trying to get through
00:21:09
it. So,
00:21:10
>> um yeah, so after I handed my license in
00:21:14
in March,
00:21:15
>> um it just with the eyesight getting a
00:21:18
bit worse,
00:21:19
um
00:21:21
I was uh actually staying at the mount
00:21:23
with my granny at the time. Um cuz my
00:21:26
neck was insanely sore, too, cuz the
00:21:27
tumor was on my brain stem. So, all the
00:21:30
pressure was building up in like the
00:21:31
back of my head and my neck. Um so, cuz
00:21:35
my neck was sore, I was like, "Oh, let's
00:21:37
go to this chiropractor." which snapping
00:21:39
my neck around and all this which is
00:21:40
probably not good. Um but uh when I was
00:21:44
over at the mount with my granny for a
00:21:46
couple weeks, I
00:21:49
thought I should book in with the
00:21:51
optometrist and go check it out cuz I
00:21:52
like [ __ ] my eyes are getting pretty
00:21:54
pretty bad. Um and yeah, went this was
00:21:57
all the 23rd of April 2012
00:22:01
>> and had an appointment at like 9:00 in
00:22:03
the morning or something. Went there. to
00:22:05
check the pressure behind my eyes and
00:22:07
the optometrist was freaking out. He's
00:22:08
like, "Oh [ __ ] you have to go to the
00:22:10
opthalmologist immediately." So went
00:22:13
straight over to Taranga, went to the
00:22:14
opthalmology unit. Um they did the same,
00:22:18
checked the pressure in my eyes and it
00:22:20
was skyhigh. So they sent me straight to
00:22:22
Taranga Hospital for a CT. Um got the CT
00:22:27
and within about half an hour, an hour,
00:22:30
they came in and said, "I've got a brain
00:22:31
tumor." So my immediate thought was I'm
00:22:34
going to [ __ ] kill this dude, you
00:22:36
know, like I lost the plot straight
00:22:37
away, as well as being [ __ ] scared. Um,
00:22:41
and yeah, because of the size of the
00:22:43
tumor and all that sort of stuff cuz it
00:22:45
had been growing for so long. Um, they
00:22:48
wouldn't actually let me leave the
00:22:49
hospital unless I was in an ambulance.
00:22:51
So to come back over to Yet, they put me
00:22:54
in the ambulance. Um, which I I suppose
00:22:58
that's protocol, but for me, I was like,
00:23:00
I just came here in a car. I can leave
00:23:01
in the car. it's fine. But um yeah, they
00:23:04
wouldn't let me. So yeah, straight back
00:23:06
to Yet and obviously had told my mom and
00:23:10
um she met us at the hospital with her
00:23:12
best mate Wendy has since passed away. M
00:23:16
um but yeah they were they met us in ED
00:23:18
and I was in ED that night for I don't
00:23:21
know few hours or whatever and got put
00:23:23
on the ward which is ward 8 w hospital
00:23:26
um went in about 1:00 a.m. or something
00:23:28
like that and then I was the first
00:23:30
surgery the next day so 24th of April
00:23:33
2012 I say is my new birthday cuz it's
00:23:35
the day I was reborn. So
00:23:38
>> yeah.
00:23:39
>> Yeah. I mean, it's all it's all
00:23:40
hypotheticals, but had you not um gone
00:23:44
to see the optometrist in uh Bay of
00:23:46
Plenty, you what would have happened?
00:23:48
You would have been dead within a week.
00:23:50
>> [ __ ] I don't know. I really don't know.
00:23:52
Um
00:23:54
wouldn't have been good, but uh I
00:23:57
suppose I mean it was inevitable. It
00:23:59
would have been found eventually, but
00:24:00
sort of how I guess. Um but yeah, the
00:24:04
eyes were the
00:24:05
>> the uh the gateway to finding it, I
00:24:06
suppose. So
00:24:08
>> so that um brain surgery operation
00:24:11
12-hour operation I believe.
00:24:12
>> Yeah, roughly. I could be slightly off
00:24:14
but it was about 11 or 12 hours. Um so
00:24:16
yeah, they had to yeah remove the tumor
00:24:18
and
00:24:19
>> um I actually got the tumor back.
00:24:21
>> Uh I was
00:24:22
>> How big is that? What is it?
00:24:23
>> Well, I was thinking I'd get like the
00:24:25
tumor back like a like an apple in a jar
00:24:27
or something, right? But they biopsy it
00:24:29
and all that sort of stuff. So it came
00:24:30
back in all these slates, so I didn't
00:24:32
quite get the I just thought it was
00:24:33
funny and I was like, "Oh, cool. I'll
00:24:34
have it in a have it in a jar." But
00:24:36
yeah, it wasn't quite that. So, what
00:24:37
sort of size is it? Is it like a thumb
00:24:38
or
00:24:39
>> Oh, I don't know cuz it's all in like
00:24:40
little slates and stuff. So, it's all
00:24:42
been chopped up. Um,
00:24:44
>> there's not a lot of room in the inside
00:24:45
the skull, is there?
00:24:46
>> Nah. Oh, yeah. I don't know.
00:24:50
>> But, uh, my tumor was on the brain stem.
00:24:52
So, it was in like the the spinal cord
00:24:55
um fluid circulation sort of area.
00:24:57
>> Um, which is why all the uh the vomiting
00:25:00
was happening because the tumor was
00:25:01
blocking the the fluid flowing. And then
00:25:03
when I woke up and moved, it rushed past
00:25:05
and apparently causes the nausea.
00:25:07
>> Um, but that fluid backing up is what
00:25:09
caused the pressure in my head and
00:25:11
that's what caused the eyesight damage.
00:25:12
So,
00:25:13
>> yeah.
00:25:14
>> After surgery, uh, you describe lying
00:25:17
awake at night um, afraid to fall asleep
00:25:19
in case you went blind.
00:25:22
>> Yeah. What What does it do to a person
00:25:24
living with that kind of fear?
00:25:25
>> Um,
00:25:28
ruins you for sure. Um,
00:25:32
yeah. I don't know. I suppose the best
00:25:36
thing you learn in that situation is
00:25:40
although you're not comfortable, you
00:25:41
still just sort of learn to I mean, what
00:25:44
are you going to do? You can't change
00:25:45
it. So, um, you can complain all you
00:25:49
want and makes you feel better, but it's
00:25:53
it doesn't make the situation any
00:25:54
better.
00:25:55
>> So, it's sort of
00:25:56
>> I'm getting too hung up on the past.
00:25:58
It's just going to make you depressed,
00:25:59
isn't it? Yeah, pretty much. And it's
00:26:01
sort of like I mean people get cancer
00:26:03
every day, don't they? Cancer is just a
00:26:05
part of life really. And it's um it's
00:26:07
[ __ ] but people get it.
00:26:09
>> Um for me, to be honest, at the time, I
00:26:12
didn't even care about that. I was just
00:26:14
worried about the eyesight. So um
00:26:17
because it was a a sort of gradual thing
00:26:19
over the next month or two. Um yeah,
00:26:22
they were still focusing on it. I was
00:26:24
just I just want my eyesight back.
00:26:25
That's all all that I was worried about.
00:26:27
Um,
00:26:30
yeah. So, I I don't know. I sort of I
00:26:33
was kind of uh I guess you could say in
00:26:35
the mindset, excuse the language, but
00:26:37
like [ __ ] it. If I'm going to die, I
00:26:39
just at least I want to see when I die,
00:26:41
you know, or leading up to it. But
00:26:44
>> then, um, yeah, the eyesight sort of
00:26:46
leveled out where it was, and then I
00:26:47
could sort of start focusing on
00:26:48
hopefully I can get better. Um,
00:26:50
>> was it getting like progressively worse
00:26:52
by the day?
00:26:53
>> The eyesight?
00:26:54
>> Yeah. Uh yeah, it's
00:26:57
Yeah, it's a little bit hard to say
00:26:58
because I was probably freaking out a
00:27:00
bit at the same time. I mean, I was, but
00:27:03
>> Well, no doubt you would have been in a
00:27:05
spiral.
00:27:05
>> Yeah. Yeah, pretty much. And it was just
00:27:07
uh I don't know. Like I like I said
00:27:09
earlier, I think was
00:27:12
um where the eyesight stopped, I thought
00:27:15
it was still getting worse. So, I was
00:27:16
like probably overanalyzing it, like
00:27:19
looking at things going, I could see
00:27:20
more last time. I could see more last
00:27:22
time or you know, stuff like that. But
00:27:24
it's kind of all a bit of bit of a blur.
00:27:26
So, um
00:27:29
yeah, I don't I don't know. It just sort
00:27:30
of was what it what it was. And I just
00:27:34
yeah, just had to endure it and
00:27:35
hopefully still get left with some. And
00:27:37
luckily I did because I'd be absolutely
00:27:39
screwed without what I've got.
00:27:41
>> Um but uh yeah.
00:27:45
>> How long were you in hospital for?
00:27:47
>> Uh the first time was just over 3 weeks,
00:27:49
which was a bit of a stuff up.
00:27:51
>> Right. It should have only been a week,
00:27:52
but there was a few things that uh
00:27:55
didn't get done properly. Um, so first,
00:27:58
not I mean, let's preempt this. The
00:28:01
nurses do an awesome job.
00:28:03
They Yeah, they bloody awesome. But
00:28:07
sometimes things get missed and for me
00:28:09
like I didn't know what was supposed to
00:28:11
happen. It was my first time in there
00:28:12
for something like that. And um like I
00:28:16
had all these stitches down the back of
00:28:18
my head and the one of the stitch holes
00:28:22
like around the incision got infected.
00:28:24
So we didn't find that until the end of
00:28:26
the first week when I was supposed to go
00:28:27
home. Um
00:28:30
but because of that I ended up staying
00:28:31
another week because
00:28:34
risk of systemic infection or whatever.
00:28:36
So you know I was on pretty heavy
00:28:37
antibiotics and all that trying to stop
00:28:38
that cuz being in the spinal column as
00:28:40
well it's not exactly the best place to
00:28:42
get the infection. Um but luckily it
00:28:45
didn't didn't go systemic or anything
00:28:47
like that. Um and then the uh I don't
00:28:51
want to say too much detail here but the
00:28:52
uh because of um
00:28:56
being in having the surgery I had
00:29:00
uh you get given like steroids and stuff
00:29:02
to help you heal. Um and then you're
00:29:04
also on morphine and all that which sort
00:29:07
of clogs you up but the steroids
00:29:09
increase your appetite. So, like I ended
00:29:12
up pretty much literally getting told I
00:29:13
was full of [ __ ] So,
00:29:15
>> oh, just severe constipation.
00:29:18
>> I've had that before. It's the worst
00:29:19
stomach pain imaginable.
00:29:20
>> [ __ ] terrible, man. It's so bad. The
00:29:22
>> worst.
00:29:22
>> Yeah, cuz like with the steroids, I was
00:29:24
eating so much. I was eating so much.
00:29:26
Um, so yeah, there was uh Yeah, that was
00:29:30
the that was the third week in hospital
00:29:32
was trying to fix that. It was terrible,
00:29:34
but they wouldn't let me go home until
00:29:36
it was fixed. So, um yeah, that was the
00:29:38
first time. And then um
00:29:41
I ended up I think there's maybe a month
00:29:44
or 6 weeks between
00:29:46
>> that and then starting radiation. So I
00:29:49
had 6 weeks of um IMRT radiation
00:29:53
radiotherapy um which was 5 days a week.
00:29:56
>> What was that for? Just to move any
00:29:57
little bits and pieces left behind from
00:29:59
the tumor.
00:30:00
>> Um how to treat it basically. Um, so the
00:30:03
tumor was actually on my brain stem, so
00:30:06
they couldn't like remove 100% of it cuz
00:30:08
the brain stem bleeds, I'm pretty
00:30:10
screwed. So luckily my surgeon was
00:30:12
amazing. Um,
00:30:14
yeah. Um, so the tumor was actually
00:30:17
cancerous. So it was a stage 2
00:30:19
appendimoma. Um, so that's what the
00:30:22
radiation was for. Uh, luckily I didn't
00:30:25
have to have chemo because that tumor or
00:30:27
that type of cancer apparently doesn't
00:30:29
respond to chemo. So it was only
00:30:30
radiation that I could have. Um
00:30:34
so that sort of radiation sort of treats
00:30:37
the big area. So from the top of my ears
00:30:39
down I lost all my hair. So I sort of
00:30:41
just had a had a sick fade day. But um
00:30:45
yeah, that that didn't work though. So
00:30:48
it it started growing back at the end of
00:30:50
2012. Um which they noted uh obviously
00:30:55
with the checkups every month or 3
00:30:57
months or whatever it was at that stage.
00:30:59
Um
00:31:00
so it was in December sort of just
00:31:02
before Christmas they seen that it was
00:31:04
growing back and said you have to have
00:31:05
another surgery sort of go through the
00:31:07
whole process again. Um the only
00:31:10
difference this time is that uh my mom
00:31:12
and stepdad were actually getting
00:31:13
married on the 5th of January in 2013.
00:31:16
So I couldn't have surgery before that.
00:31:18
I was like I'll have to do it after
00:31:19
that. Um
00:31:21
yeah. So had the second surgery on I
00:31:26
don't know it was the start of January
00:31:27
sometime. I think maybe the 11th or
00:31:28
something. Um, that was slightly shorter
00:31:32
that surgery. I think it was only 7 or 8
00:31:33
hours. And
00:31:36
they actually managed to get some of it
00:31:38
off the brain stem. So instead of just
00:31:40
being like a solid, I don't know, cm, 2
00:31:43
centimeters, whatever it was, I don't
00:31:44
know.
00:31:45
>> Um, there was a break in the middle. So
00:31:47
there was, yeah, they got some of it
00:31:49
off. But, um, because I'd had the IMRT
00:31:52
radiation, I couldn't have that again.
00:31:55
Um, so they ended up sending me down to
00:31:57
Deneden, uh, cuz it was a I think it's
00:32:02
probably standard now, but at the time
00:32:03
it was kind of a new radiation called
00:32:05
stereotactic radiation.
00:32:07
>> And, um, yeah, they flew me down there
00:32:10
on the Wednesday. Um, got treated on the
00:32:15
Thursday, like had to go in on Thursday
00:32:18
morning.
00:32:19
They screwed a big halo thing into my
00:32:21
head, which there's some photos on my
00:32:23
athlete page if you've seen them. Um,
00:32:26
and then had to sit around all day,
00:32:29
which I don't remember much of cuz they
00:32:30
drugged me up with heaps of stuff.
00:32:32
>> And apparently I was sitting in sitting
00:32:34
in uh the cancer ward down there yelling
00:32:36
at my dog that wasn't even there
00:32:38
>> and uh tripping out and all that sort of
00:32:40
stuff. And I don't remember it, but mom
00:32:41
certainly does. Um then they treated me
00:32:44
that afternoon and night and um
00:32:49
yeah went back in on the Friday and they
00:32:51
sort of discharged it or whatever and
00:32:53
then went back to TA and caught up with
00:32:55
the boys and went to the pub. So
00:32:57
probably not the best but
00:32:59
you know um that ended up working so
00:33:01
that's why the tumor stopped growing
00:33:03
which is great. So yeah.
00:33:05
>> How how does your mom reflect on this
00:33:07
whole experience?
00:33:08
>> Um
00:33:10
it's a long time e couple of years.
00:33:12
Yeah. Um,
00:33:14
>> have you talked about this with her and
00:33:15
the toilets taken on her?
00:33:17
>> Sort of. Sort of not. Sort of. I don't
00:33:19
know. Um, like she was Yeah, she was
00:33:21
bloody good at the time. And her boss
00:33:22
was also amazing. She's been with the
00:33:25
same person um at work. She just works
00:33:28
for one guy, so it's just them two. Um,
00:33:30
she's been with him like my whole life.
00:33:32
So, he's kind of
00:33:34
>> um
00:33:35
>> like family in a way.
00:33:36
>> Yeah. Yeah, pretty much. And he's he's
00:33:37
an awesome awesome boss for her. Mhm.
00:33:39
>> Um yeah, he just let her take whatever
00:33:41
time off she needed. Didn't dock her pay
00:33:43
or anything like that and
00:33:45
>> just just yeah, let her do whatever she
00:33:47
needed to do. So like that first type of
00:33:50
radiation I had, she was going to work
00:33:51
in the morning, coming back down to
00:33:54
taking me back over to Hamilton and then
00:33:56
back down to afterwards. Um every day
00:33:59
for 6 weeks. Um but yeah, we
00:34:03
>> I don't know. She just did what what
00:34:06
mothers do, I suppose. Yeah, I mean
00:34:08
there's a lot to unpack there for her.
00:34:09
Like maybe there's like elements of
00:34:12
guilt because she she didn't think you
00:34:13
were that sick in the beginning.
00:34:15
>> Um then there's um you know just the
00:34:18
stress and the anguish of seeing your
00:34:19
son go through something like this and
00:34:21
feeling the feeling of helplessness that
00:34:23
there's nothing you can do.
00:34:24
>> Yeah, I think that yeah, the feeling of
00:34:25
helplessness would have been the most
00:34:27
prevalent. Yeah.
00:34:28
>> If someone else was going through what
00:34:30
you've been through, maybe they're at
00:34:31
the beginning of the journey now, what
00:34:33
would you tell them?
00:34:35
Um, it's a bit of a hard one because
00:34:38
it's all the cliche stuff, but like
00:34:40
being on the other side of it, you sort
00:34:42
of, it might just be me. I might just be
00:34:43
a bit bit of a bit of a dick sometimes.
00:34:46
But, uh, when people go, "Oh, it's going
00:34:48
to be all right and it's going to be
00:34:49
fine." It's like, well, when you're
00:34:50
sitting in that situation, like, you
00:34:52
don't you don't [ __ ] know that. Stop
00:34:53
saying that, you know? So,
00:34:55
>> um,
00:34:57
yeah. I don't know. It's just just keep
00:34:59
going pretty much. It's just, you know,
00:35:01
it might get better. Hopefully it gets
00:35:03
better, but you just got to be strong.
00:35:05
Just keep keep being a stubborn bugger
00:35:06
and carry on, you know. So, it's uh
00:35:10
yeah, it's a bit basically it's a little
00:35:12
bit hard to be optimistic.
00:35:15
It's yeah, it's more of a realistic
00:35:18
situation um cuz you don't want to get
00:35:20
your hopes up and then get let down as
00:35:22
well, you know. So,
00:35:23
>> yeah, you just got to take it every day
00:35:25
and as it comes and just yeah, keep keep
00:35:28
tracking on forward, you know. Well,
00:35:30
it's another boring old cliche, but I
00:35:31
suppose it's like just, you know, keep
00:35:32
moving forward, eh? Put one foot in
00:35:34
front of the other.
00:35:35
>> Was there a specific moment when you
00:35:37
realized, [ __ ] you know, my old life is
00:35:39
gone?
00:35:40
>> And and how do you emotionally process
00:35:43
that?
00:35:46
Um,
00:35:48
I suppose for me it sounds a bit silly,
00:35:50
but um just before I actually ended up
00:35:53
in hospital, I got a new motorbike. I
00:35:56
got a uh yeah, motocross bike, sorry.
00:35:58
and um never actually got to take it on
00:36:00
the track. So um
00:36:04
I sort of I held on to it for probably
00:36:08
about a year afterwards just in hopes
00:36:10
that my eyesight would come back and
00:36:12
then like when I ended up going ah might
00:36:16
as well you know give it back to the
00:36:18
shop and take it back to the shop. Um
00:36:20
that was probably the point where it
00:36:22
sunk in for me that my eyesight is not
00:36:24
coming back. So that was when I could
00:36:27
sort of start
00:36:29
yeah sort of yeah maybe planning some
00:36:32
other stuff and trying to look forward
00:36:34
to what I may be able to do you know
00:36:35
>> accepting it and maybe yeah do you think
00:36:37
that's when you started sort of
00:36:38
grieving?
00:36:40
>> Um n sort of all my grieving was in the
00:36:43
first sort of year and a half. Um
00:36:47
>> by grieving it's just me sort of being a
00:36:48
dumbass.
00:36:50
>> What do you mean?
00:36:50
>> Oh just medicating with just trying to
00:36:53
be normal, you know. um just getting
00:36:55
pissed and
00:36:57
>> sort of trying to act like it didn't
00:36:58
happen.
00:36:59
>> Um
00:37:01
>> not the best being blind and going into
00:37:03
a social situation where there's alcohol
00:37:05
involved and there's a lot of idiots
00:37:08
around basically that you know I can't
00:37:10
see what's there and I accidentally bump
00:37:12
into someone and oh sorry bro but then
00:37:14
they turn around and you know and fights
00:37:16
kick off and it's like I'm just trying
00:37:18
to walk to take a piss somewhere you
00:37:20
know. Um, so I just, yeah, um, there's a
00:37:23
lot of that stupid stuff that, um, yeah,
00:37:26
it's not, not the best situation for a
00:37:28
blind guy.
00:37:29
>> Uh, yeah. So, that was that was that
00:37:31
first sort of year, year and a half. And
00:37:33
then,
00:37:34
>> yeah, best to step away from that and
00:37:37
uh, how do you say it? Remove yourself
00:37:39
from the situation to sort of have an
00:37:40
outside perspective or gain some
00:37:42
clarity, right? And start thinking
00:37:43
clearly and
00:37:45
>> um, yeah, start looking forward rather
00:37:47
than sort of just weekend to weekend or
00:37:49
something like that. So
00:37:51
>> yeah,
00:37:51
>> I think um the the way you act is
00:37:54
probably perfectly rational. Like um you
00:37:56
just want to bury your head in the sand
00:37:58
and like try and pretend it's not there.
00:38:00
>> Yeah,
00:38:01
>> I think that's probably quite normal,
00:38:03
>> especially at that age, like 19, 20.
00:38:05
>> Yeah. Yeah. Exactly. Um the sort of the
00:38:08
the other hard thing was that uh like at
00:38:10
that age, right, everyone's sort of
00:38:13
growing up and starting their career or
00:38:15
going off and doing stuff and you know,
00:38:17
traveling, whatever it may be. Um so for
00:38:21
everyone sort of social uh groups change
00:38:25
or
00:38:26
>> you know um yeah life changes for
00:38:29
everyone regardless but for me it was
00:38:31
sort of everything happened at once.
00:38:33
>> Yeah.
00:38:33
>> So that was the other hard thing like
00:38:35
was the eyesight the sort of the cancer
00:38:37
um but then also the
00:38:40
>> uh sort of loss or perceived loss of
00:38:44
friendship
00:38:45
>> and like my circle got a lot smaller. Um
00:38:49
but yeah, in those situations you sort
00:38:51
of
00:38:53
it definitely weasles out the
00:38:55
>> fake fans. Fake friends.
00:38:57
>> Yeah. Not necessarily fake friends, but
00:39:00
people that you're not as close with at
00:39:01
least. And like your your real mates
00:39:03
sort of step up, you know? So
00:39:05
>> yeah, fake friends as you ones that are
00:39:08
only want to be there for the good
00:39:09
times.
00:39:10
>> Yeah. Yeah, pretty much. And like that's
00:39:12
a human thing as well. But you know,
00:39:14
>> especially at that age as well, you
00:39:15
know, at that age, I mean, you you've
00:39:18
called yourself a dumbass a few times. I
00:39:20
I I definitely was like, you well into
00:39:22
my 20s or even 30s. And
00:39:24
>> yeah, you know, you don't want to you
00:39:26
don't want to you don't want the party
00:39:28
to stop.
00:39:29
>> You want someone to bring the party
00:39:30
down.
00:39:30
>> Yeah, pretty much. And to I mean to it's
00:39:32
not putting yourself down to say
00:39:33
dumbass, right? It's just realizing that
00:39:35
you've grown as a person, you know,
00:39:37
stuff like that. So,
00:39:39
>> so um that that moment where you sent
00:39:42
the dirt bike back to the shop, I
00:39:44
suppose that's um that's you grieving
00:39:45
the life that you thought you were going
00:39:47
to have. Um yeah, then how do you how do
00:39:49
you find the strength to build a new
00:39:50
one?
00:39:51
>> Um
00:39:52
I sort of I guess like what I said about
00:39:57
being when I was a kid growing up being
00:39:59
very sporty and all that sort of stuff.
00:40:01
I sort of started
00:40:03
thinking of that sort of in the bigger
00:40:06
picture was thinking
00:40:08
uh like who was I
00:40:12
what did I turn into what I want to get
00:40:14
back to sort of just sort of yeah
00:40:18
um nitpicking myself really you know so
00:40:21
uh it's plus also I gained a lot of
00:40:25
weight so I got got a few titties
00:40:28
growing and stuff when I I lost my
00:40:30
eyesight and got pretty fat. Um,
00:40:32
>> just just cuz you're not doing the same
00:40:33
sort of amount of physical activity.
00:40:35
>> Yeah. Just sitting around eating and you
00:40:37
know not able to work. I mean working on
00:40:39
your feet all day burns a shitload of
00:40:41
calories. So
00:40:43
>> um I just yeah also eating bad. I wasn't
00:40:46
wasn't eating good but um
00:40:48
>> yeah got got quite heavy and also when I
00:40:50
was sick I was quite skinny because I
00:40:53
was sick you know. Um, so it was the
00:40:56
motivator for that was basically just
00:40:58
get back into the gym and start losing
00:40:59
some weight and try to get a bit bit
00:41:01
more healthy again, you know. And then I
00:41:03
sort of I'm very competitive. So doing
00:41:08
that, I started thinking maybe I should
00:41:09
look at sports and see what I might be
00:41:12
able to do cuz I don't know what blind
00:41:13
guys do, you know. Um,
00:41:16
and yeah, I ended up getting
00:41:20
uh originally I was going to look at
00:41:22
paratriathlon because I was decent at at
00:41:26
triathlons when I was a kid, but um the
00:41:28
distances are much bigger when you're an
00:41:29
adult. So, um, and I'm not much of an
00:41:32
endurance guy. Like, I can do it, but I
00:41:35
I don't really enjoy it. So, um, ended
00:41:38
up because
00:41:40
the bike league of the triathlon is
00:41:42
obviously one of them. someone at Sport
00:41:45
Y could I mention parasycling to me? Um
00:41:47
so I was I'll give it a go and went down
00:41:49
to this camp uh in New Plymouth and they
00:41:52
did testing and all that and originally
00:41:54
I actually missed out. Um but me being a
00:41:57
stubborn bugger I just kept going and
00:41:59
yeah eventually yeah got put in the the
00:42:02
development program and just yeah that
00:42:04
was that was the goal and just started
00:42:06
going like that. I was like well I want
00:42:07
to be at the I want to be a parolympian
00:42:09
or something so or world champ something
00:42:11
like that. um aim higher, right? So,
00:42:14
>> yeah. Well, I I suppose that's the um
00:42:15
that's the path forward a like finding
00:42:17
finding some sort of goals.
00:42:19
>> Yeah, it's finding a purpose, something
00:42:21
to work towards cuz it's uh I tell you
00:42:25
one thing is is sitting at home by
00:42:26
yourself all day every day is not fun.
00:42:29
>> Ruminating. No.
00:42:30
>> Yeah. It's it's not good for the mind.
00:42:32
It's not it's not good for anything
00:42:34
really. Um
00:42:35
>> even just as
00:42:37
>> as a human that we've we've all got to
00:42:39
have purpose. if you don't have purpose,
00:42:41
you're just lost and you just, you know,
00:42:42
that whether you've got depression or
00:42:44
not or whatever, um it's not going to
00:42:47
make you feel good. So,
00:42:49
>> you need something to make yourself feel
00:42:51
fulfilled and and like you're
00:42:52
accomplishing something. So,
00:42:54
>> did you have depression for a time?
00:42:56
>> Yep.
00:42:56
>> Yeah,
00:42:57
>> 100%. What did that look like?
00:42:59
>> Uh, it was all I mean obviously the
00:43:02
first year and a bit was pretty bad
00:43:05
trying to adjust and all that and um,
00:43:08
you know, wasn't helped by alcohol
00:43:12
um, and all that sort of stuff. But, uh,
00:43:15
yeah, I I went and got like a diagnosis
00:43:20
and all that sort of stuff. Uh, but I
00:43:24
never actually took the
00:43:25
anti-depressants. I sort of just pulled
00:43:28
myself out of it in the end. Um,
00:43:30
>> why didn't you take the the drugs?
00:43:33
>> Uh, I don't know. I can't really
00:43:35
remember. I sort of just
00:43:37
probably like it's like I don't want to
00:43:40
be taking that [ __ ] every day. And, you
00:43:42
know, um, yeah, I just never never ended
00:43:44
up taking them. So,
00:43:46
>> um,
00:43:48
yeah. I don't know. Just being stubborn
00:43:51
as well in all areas, you know.
00:43:53
>> Yeah.
00:43:54
>> Yeah. Although um yeah there's no
00:43:57
there's yeah I mean each to their own
00:43:58
but yeah there's no shame in it. Like if
00:44:00
there's uh if if you're depressed and
00:44:02
there's something that can help you feel
00:44:03
better even if it's to mask it.
00:44:04
>> Yeah.
00:44:05
>> Yeah. I don't think there's any shame in
00:44:06
that. And there's I mean obviously there
00:44:08
was a reason that you were feeling
00:44:09
depressed like a very obvious reason.
00:44:11
>> Um but for some people that have a
00:44:13
chemical imbalance in their brain if it
00:44:14
can be you know fixed with um medication
00:44:18
then yeah I'm all for it.
00:44:19
>> Yeah for sure. And um like I had been on
00:44:22
them at a later period. I'm not on them
00:44:24
now. come off them. But um yeah, at the
00:44:26
time I don't know, I just sort of just I
00:44:29
don't know, is what it is. And it's just
00:44:31
what I found is I sort of um you know,
00:44:35
the exercise getting back into that sort
00:44:37
of stuff, going to the gym, the the you
00:44:39
know, the dopamine release from from
00:44:40
from exercising and all that made me a
00:44:43
lot better. And it
00:44:45
>> you know, also losing the weight again
00:44:47
and getting back down to a healthy
00:44:48
weight and you know, look good, feel
00:44:50
good, right? So, um, yeah, definitely
00:44:52
helped
00:44:54
>> definitely helped me move forward for
00:44:56
sure. So,
00:44:58
>> so the the, um, periods there after
00:45:00
you'd been out of hospital and you were
00:45:02
like adjusting to the new normal. Um,
00:45:04
I'm guessing that was sort of like the
00:45:05
the rock bottom.
00:45:08
Were you putting on a brave face for
00:45:09
your family and like cry? Were you
00:45:11
crying yourself to sleep at night when
00:45:12
you're on your own? No, I think the most
00:45:16
uh prominent way I would have expressed
00:45:19
myself was just being angry.
00:45:21
>> Um, never did anything bad, but
00:45:24
>> just frustrated.
00:45:25
>> Yeah, just pissed off, man. I get it.
00:45:27
You know, just was Yeah, it was what it
00:45:29
was. But, um,
00:45:31
>> just, yeah, very short fuse, all that.
00:45:34
Like, don't piss me off cuz I'm going to
00:45:35
I'm going to bite your head off, you
00:45:36
know.
00:45:37
>> Um, so I certainly, you know, that that
00:45:39
adds into that social situation I was
00:45:41
mentioning as well. And you can see that
00:45:43
I was not easy to be around.
00:45:45
>> Um, I can certainly see that. Um, but
00:45:49
yeah, just sort of what else are you
00:45:52
going to do, right? There's no there's
00:45:54
no written guide on how to deal with
00:45:56
stuff and, you know, get through the
00:45:59
[ __ ] life throws you. So, um, you
00:46:02
just got to find your way, I guess. And
00:46:03
sometimes it it takes time.
00:46:05
>> So,
00:46:06
>> I had another guy on the podcast called,
00:46:08
um, Lee War. when he was 16, he had a
00:46:10
scooter accident and ended up um
00:46:12
paralyzed.
00:46:13
>> Oh [ __ ]
00:46:13
>> Um and from 16 to 21, he was [ __ ]
00:46:16
angry. Yeah. Like just angry. Like he
00:46:19
reflects now he was horrible to be
00:46:20
around. Like pushed everyone away.
00:46:22
>> And then um his rock bottom came like I
00:46:24
think I think it was at the age of 21 he
00:46:26
tried to take his own life um and
00:46:28
failed. And from there that was a
00:46:30
turning point. And since then he's had a
00:46:32
remarkable life. like he does the even
00:46:34
though he's unable to walk, he does this
00:46:36
the sky tower challenge every year like
00:46:38
just using his arms and his upper body
00:46:39
to push himself up.
00:46:40
>> He's some big guns, eh?
00:46:42
>> Yeah. He's done all the world's major
00:46:43
marathons. But yeah. Yeah. Yeah. Was
00:46:46
there an actual rock botto bottom moment
00:46:48
for you?
00:46:48
>> Um I suppose it was
00:46:52
like I ended up um
00:46:57
I don't even know what time or what time
00:46:59
frame it was. What year? Must have been
00:47:01
2013, maybe 2014. Um, I ended up being
00:47:06
too much for my family and I went and
00:47:08
lived with my one of my best mates uh
00:47:12
family
00:47:13
>> for a while. Um, it was
00:47:14
>> just cuz you're too angry.
00:47:15
>> No, I was kind of told to bugger off.
00:47:17
Um, but it was my fault. So, uh,
00:47:20
>> why? What' you do?
00:47:21
>> Oh, just being angry and not, you know,
00:47:23
um,
00:47:24
>> yeah, it wasn't wasn't a healthy
00:47:25
situation um, for anyone. Um, but my my
00:47:29
mates's family were sort of like my
00:47:31
second family growing up. I was at their
00:47:32
house all the time when I was a teenager
00:47:34
and stuff and used to go to their family
00:47:36
events and all that, you know, like even
00:47:38
their grandma's birthdays and stuff like
00:47:40
that. So
00:47:41
>> yeah, that's the King family. They're my
00:47:43
second family for sure. Um but yeah,
00:47:46
sort of going and living there for a
00:47:49
while sort of made me yeah, just I
00:47:52
suppose being removed from a situation,
00:47:54
having some clarity and that's when I
00:47:56
actually started getting into the the
00:47:58
the gym and stuff. So,
00:48:00
>> um cuz I was in town, so I was able to
00:48:03
walk to the gym and just start moving a
00:48:05
bit and it started clearing my mind and
00:48:07
started helping me.
00:48:08
>> Um yeah, and then from there is where it
00:48:10
went into the the cycling thing. So
00:48:13
>> it's it's understandable that you're in
00:48:14
this um this this anger period. I
00:48:16
suppose it's grief in a way and
00:48:18
frustration and just a whole mixture of
00:48:20
things,
00:48:20
>> but you just can't stay there forever.
00:48:22
>> Yeah, exactly. It's uh
00:48:23
>> it's not not healthy for anyone.
00:48:25
>> Nah, self-destructive behavior is not
00:48:27
productive.
00:48:29
>> So, so um so losing your sight um Yeah.
00:48:33
What was easier than what you thought?
00:48:34
What was harder than what you thought?
00:48:37
>> [ __ ] that's a that's a good question.
00:48:39
Um,
00:48:43
I suppose you could say in a way the
00:48:45
cancer was easier than I thought because
00:48:46
I didn't even think about it. Um,
00:48:49
but also, uh, just to to explain that
00:48:53
one a bit.
00:48:54
>> The doctors explained it to me, if
00:48:56
you're going to get cancer, that's the
00:48:57
one you want. So, in terms of the cancer
00:49:00
route, I had a easy route
00:49:02
>> cuz obviously cancer is not easy for for
00:49:04
anyone really. Um,
00:49:06
but the what was harder than I thought
00:49:09
was probably
00:49:11
I mean I suppose I'm still kind of
00:49:13
dealing with it now a bit even though I
00:49:15
had a goal and I've gone after it and
00:49:16
stuff like that. The the direction is
00:49:20
hard because everything
00:49:22
before this was, you know, I wanted to
00:49:26
be a cop. I wanted to, you know, just
00:49:28
driving tractors and stuff like that.
00:49:30
Um,
00:49:32
yeah. Direction. Oh, sorry. Also
00:49:34
independence.
00:49:35
>> That's that was definitely the hardest.
00:49:37
It just came into my mind then.
00:49:39
>> But uh yeah, losing your independence
00:49:42
was horrible. Absolutely sucks. Um yeah,
00:49:48
not being able to drive, not being able
00:49:49
to walk up the street by myself and sort
00:49:51
of know where I'm going. I can walk up
00:49:53
the street. I look look a bit drunk. But
00:49:55
uh um yeah, just even just, you know,
00:49:57
the things you take for granted, which
00:49:59
is, you know, even just walking into a
00:50:01
shop and go, "Oh, I want to get this off
00:50:03
the shelf, but where the [ __ ] is it?"
00:50:05
>> Um just those little things where you
00:50:08
don't feel like a independent adult.
00:50:10
>> Um you feel like a little unaccompanied
00:50:13
minor or something again, you know, that
00:50:14
needs help. So it's um yeah, it's
00:50:18
difficult. That's that's the
00:50:21
>> probably the biggest hurdle was was
00:50:23
dealing with that. So
00:50:25
>> yeah,
00:50:27
>> like it's it's been like 12 13 years
00:50:29
now. When you dream, what do you see?
00:50:34
>> I don't even know, man. I I don't even
00:50:35
know if I dream.
00:50:36
>> You see in in full vision?
00:50:38
>> Uh I guess so. I I mean I I very very
00:50:42
rarely um
00:50:45
realize I've had dreams. Um I don't
00:50:48
know. The the last thing I actually
00:50:50
remember dreaming was seeing my dog. So
00:50:55
>> it's like he was coming to see me.
00:50:58
>> Oh, your dog has passed away.
00:51:00
>> Yeah. Yeah.
00:51:00
>> Oh [ __ ]
00:51:01
>> Bloody Blaze.
00:51:03
>> So was um Did you have Blaze before the
00:51:05
the brain tumor?
00:51:07
>> No.
00:51:08
>> So
00:51:09
um I got him at the end of 2012.
00:51:12
December 2012 I got Blaze.
00:51:14
>> Oh. So right when you're in the thick of
00:51:16
it.
00:51:16
>> Yeah. He's uh he's going to make me cry,
00:51:19
but uh he gets me every time.
00:51:21
>> It's all right,
00:51:22
>> little bastard.
00:51:23
>> This little uh people won't be able to
00:51:25
see this on camera or if they're
00:51:26
listening to this, but um yeah, my
00:51:28
little 11year-old Sydney Silky Kanye,
00:51:30
>> he's on the floor here.
00:51:32
>> Every day, honestly, without fail, every
00:51:35
day I think about how [ __ ] sad it's
00:51:37
going to be when he dies.
00:51:38
>> Yeah. Yeah. It's terrible, man.
00:51:40
>> Terrible.
00:51:41
>> As soon as I got him, I didn't even
00:51:42
[ __ ] want him. It was a birthday
00:51:44
present for my ex-wife. Within a week of
00:51:46
having him, I started googling like
00:51:48
lifespan for Sydney Silkies cuz I knew
00:51:50
it was going to be, you know, just an
00:51:53
absolute gut punch when he dies.
00:51:55
>> Yeah.
00:51:55
>> Um
00:51:56
>> Yeah, that's the thing.
00:51:57
>> And it is. It's going to be terrible.
00:51:58
It's going to leave a massive hole in my
00:52:00
life. But um yeah, like every morning
00:52:02
when he's lying in bed with me and I'm
00:52:04
Yeah. I've got got a hand on him.
00:52:06
>> Yeah.
00:52:06
>> I just think [ __ ] I got to appreciate
00:52:08
this because this isn't going to be part
00:52:09
of my life forever.
00:52:10
>> Yeah. That's the thing, man. Those uh
00:52:13
man's best friend, right? It's um
00:52:16
>> Yeah, they're pretty special. So
00:52:18
>> yeah. So Blaze
00:52:19
>> Yeah, Blaze was uh
00:52:20
>> So you got him when you're in the thick
00:52:21
of it, when you're really in the
00:52:22
trenches.
00:52:23
>> Yeah. Well, like originally I was like
00:52:26
I mean I was thinking at the very start
00:52:28
it's like [ __ ] do I get a get a guide
00:52:30
dog or whatever? But then I was like I
00:52:33
mean I even at that time I still
00:52:34
realized it's like I don't need a guide
00:52:36
dog cuz there's people that are totally
00:52:38
blind that really need them, you know.
00:52:40
Um I can make do. Um, but I was like, I
00:52:42
need a need a buddy. And um, I just
00:52:45
jumped on TradeMe and was looking for
00:52:48
breeders and stuff like that that were
00:52:50
advertising. Um,
00:52:53
but uh, I sort of grew up with German
00:52:56
shepherds sort of as my mom's good mate.
00:52:59
Um, Carl and Kay, they they had German
00:53:02
shepherds, so I was always around German
00:53:03
shepherds when I was younger. Um,
00:53:06
so I just started searching and didn't
00:53:08
even know there was white shepherds. Um
00:53:12
but yeah, I came across him. I was like,
00:53:14
I don't know. It looks different. He's
00:53:15
he's he looks cool. So, or they look
00:53:17
cool cuz yeah, um decided to go get a
00:53:21
white shepherd and you know, turned up
00:53:24
there and he's the one that ran to me.
00:53:25
So, I thought that was quite cool. So, I
00:53:28
was like, he's mine and uh yeah, the
00:53:30
rest was history, I suppose.
00:53:32
>> So, yeah, he was
00:53:36
on his uh on his box.
00:53:40
his box at home. He's got um
00:53:43
just a little note that we put on there
00:53:45
was uh my savior and guardian. So
00:53:50
>> yeah,
00:53:51
>> that's my boy.
00:53:55
>> It's good to cry about it. I think it
00:53:57
shows how much um how much you care.
00:54:00
>> Yeah. I wish I could control it a bit
00:54:01
better, but he's like a tap.
00:54:02
>> Oh no. When when did he when did he
00:54:04
pass?
00:54:05
>> Uh 15th of March, 2023.
00:54:08
>> Yeah. So he
00:54:09
>> It's been a couple of years. [ __ ]
00:54:10
That's a big impact, eh?
00:54:11
>> Yeah, man. It's uh I was lucky I had
00:54:13
Lucy. Um by that time, if I lost him
00:54:16
when I didn't have Lucy, I think it
00:54:17
would have been pretty [ __ ] So,
00:54:19
>> it's um
00:54:21
>> yeah, is what it is. But he we had to we
00:54:24
had to have him put it down. So,
00:54:25
>> Oh, no.
00:54:26
>> Yeah, he got a big big tumor in his
00:54:28
stomach, right? Um which to
00:54:30
>> what they described was it was like in
00:54:32
the wall of his stomach, so it's
00:54:33
inoperable. He was 10 and a half as
00:54:35
well. So,
00:54:36
>> pretty good life for his his breed. So,
00:54:38
>> so were you there with him holding a paw
00:54:40
or something?
00:54:42
>> Yeah. Um Lucy's dad's actually a vet. Uh
00:54:46
he's retired now, but he was a vet, so
00:54:49
he actually came over and did it at
00:54:51
home.
00:54:52
>> Um
00:54:52
>> Oh, that's nice.
00:54:55
>> Yeah. Yeah, it was cool that we could do
00:54:56
it at home. And then we took him to the
00:54:59
crerematorium and um I thought I could
00:55:02
carry him by myself, but I sort of
00:55:04
didn't think of the dead body, you know.
00:55:05
And I went to pick him was, "Oh [ __ ]
00:55:07
no, no, we need two people." Cuz it felt
00:55:09
like he was going to freaking he was a
00:55:11
bit too bendy, you know.
00:55:13
>> Um, but yeah, so he was
00:55:18
it was pretty hard. It's pretty hard. So
00:55:22
>> yeah.
00:55:23
>> Well, I suppose he
00:55:25
he helped you get through some really
00:55:27
rough times.
00:55:30
>> Yeah. It's um
00:55:31
>> just by being there.
00:55:32
>> Yeah. Yeah, it was just his presence
00:55:33
basically, but he he was very protective
00:55:36
of me too, which was pretty funny.
00:55:37
>> Was he in what way?
00:55:38
>> Uh just like he'd sort of he'd get in
00:55:41
between me and other people and sort of
00:55:42
look at them like he was not bad at all.
00:55:44
He wouldn't he wouldn't hurt a fly. Um
00:55:47
>> I think it's a white sheeperd thing. I'm
00:55:48
not too sure. But um
00:55:51
like he'd be a guard dog, you know, and
00:55:53
people turn up just a normal dog thing
00:55:54
and bark at everyone and stuff, but if
00:55:56
people walk towards him, he'd run away.
00:55:58
>> So he'd run away and then come back and
00:56:00
bark and run away. like he wouldn't let
00:56:01
them touch him. Um but yeah, if someone
00:56:03
like tried to give me a hug or
00:56:04
something, he'd be like jumping in
00:56:05
between us trying to push him away and
00:56:07
stuff. So
00:56:08
>> like get jealous.
00:56:09
>> Yeah. Yeah, pretty much. Yeah. Yeah. He
00:56:11
was a very um uh what do you say? Very
00:56:14
emotive dog. He used to I mean I'm sure
00:56:17
many dogs do it, but it looked like he
00:56:18
packed tantrums and argued and all that
00:56:20
sort of stuff. It was pretty funny. So
00:56:23
>> um yeah, he's very very special to me.
00:56:25
So,
00:56:26
>> um, non dog people won't won't get this
00:56:29
question at all, but can you remember
00:56:31
like your last conversation with him or
00:56:32
your final words?
00:56:33
>> Uh, you give him a little pep talk.
00:56:36
>> Yeah. Like I was doing it for like the
00:56:38
last two weeks pretty much. It was just
00:56:41
um cuz we were like hoping that he was
00:56:43
going to be okay,
00:56:45
>> but uh
00:56:47
I um
00:56:53
it was just a
00:56:56
The most
00:56:58
the thing I said to him most was just
00:56:59
you will always be my best buddy. So
00:57:04
>> you weren't lying.
00:57:05
>> Yeah.
00:57:08
Far out. Little bastard. Um I still talk
00:57:11
to him every day. So
00:57:12
>> got some tissues there.
00:57:14
>> Yeah. Cheers, man.
00:57:15
>> Yeah.
00:57:16
>> Um
00:57:17
yeah, I still he's got a he's got two
00:57:20
big photo frames and then one big photo
00:57:22
on the wall.
00:57:22
>> Mhm. So, got his his box below that and
00:57:26
his uh
00:57:28
his collars.
00:57:29
[ __ ] hell, get it together, mate. Uh
00:57:32
his collars on the wall between the
00:57:34
photo and the box. So,
00:57:36
>> yeah. Still talk to him every night. So,
00:57:41
>> yeah. And you came into the office
00:57:42
before we did the podcast. You holding
00:57:44
some Polaroid photos of him as well.
00:57:47
>> Yeah. That was Lucy's doing, eh? Um
00:57:50
>> Lucy's not jealous of this relationship.
00:57:52
No, she she loved him to bits as well.
00:57:54
She was she was [ __ ] scared of them at
00:57:56
the start, but uh
00:57:58
>> she was just a little bit nervous around
00:58:00
dogs due to some stuff that happened
00:58:02
with a dog in her childhood.
00:58:03
>> Yeah, for sure.
00:58:04
>> Um but I assured her, I was like, "No,
00:58:06
he just looks stuff. He's a softy." And
00:58:08
she was in love with him straight away.
00:58:10
It's probably the only reason she
00:58:11
stayed. Um
00:58:12
>> after I met her, hey, she's like, "I'll
00:58:14
just stay for the dog cuz you know he's
00:58:16
better than I was." So,
00:58:18
>> um but uh what was the question? Sorry.
00:58:24
Um, oh, I can't even remember what it
00:58:25
was.
00:58:25
>> Yeah, I lost my way. So,
00:58:26
>> anyway, no, it's it's all good. Um,
00:58:28
thanks for sharing that stuff. I know
00:58:29
it's not easy, but
00:58:30
>> Oh, the Polaroids.
00:58:31
>> Oh. Oh, yeah. You're still carrying
00:58:32
around Polaroids of them.
00:58:33
>> Yeah. Yeah. Sorry, they they're on my
00:58:34
bedside table, but um cuz we actually
00:58:37
got married uh on this Oh my god. 16th
00:58:41
of May.
00:58:41
>> Mhm.
00:58:42
>> [ __ ] I probably just got that wrong.
00:58:44
>> Oh, just recently, like 2 months ago.
00:58:45
>> Yeah. Yeah.
00:58:46
>> Congratulations.
00:58:46
>> Yeah. Cheers, mate. Um I didn't think it
00:58:48
would happen, but it did. So,
00:58:51
um, yeah, and she, uh, I don't know, the
00:58:55
morning of, she had given the best man
00:58:58
instructions and he brought the stuff
00:59:00
out and I opened it up and it's two
00:59:02
little photos of Blaze and I was like,
00:59:03
"Ah, [ __ ] Here we go." Like be crying
00:59:05
all day. So, um, for that reason, you
00:59:09
know, like, uh, he just, I don't know. I
00:59:10
don't cry over anything. Never have.
00:59:13
>> Well, apart from it was a soft cop when
00:59:15
I was a kid, but
00:59:15
>> how how, um, yeah, how did you and Lucy
00:59:18
make? Um
00:59:21
the typical uh way of the future um
00:59:24
>> oh Tinder
00:59:24
>> Bumble
00:59:25
>> Bumble's one of those two.
00:59:27
>> So yeah being being a bit blinder it's I
00:59:30
can't really go out and like meet people
00:59:32
so it was sort of you know meet on there
00:59:34
and didn't tell her I was blind.
00:59:36
>> Um
00:59:37
>> didn't you why not?
00:59:38
>> Uh you sort of learn that uh
00:59:40
>> you don't have that in your profile like
00:59:41
as a No. No.
00:59:43
>> No. So many times it's um you'd be
00:59:46
talking to people for a while and then
00:59:50
or you know you tell them you're blind
00:59:52
and you sort of stop getting replies. Um
00:59:54
stuff like that even though I'm not
00:59:56
totally blind. Um you know most people
00:59:57
wouldn't notice unless I go somewhere
00:59:59
unfamiliar. Uh but yeah, it's just uh
01:00:03
what people do cuz obviously it's not
01:00:05
quite normal. So um yeah, I didn't
01:00:08
didn't mention it to her. Uh but at this
01:00:11
point I'd already been to world champs a
01:00:14
couple times. So she searched me on
01:00:15
Google and there was a couple articles
01:00:17
or something like that. So she found out
01:00:18
but she didn't tell me. So I was still
01:00:20
talking to her for I think we're talking
01:00:22
like three or so weeks before we
01:00:24
actually met. Um
01:00:27
>> she she done a a good little stalk by
01:00:28
then.
01:00:29
>> Yeah. Apparently. Yeah. Which I didn't
01:00:30
know until later. But um
01:00:32
>> I think you got to do your own research
01:00:34
on these things. I can for that.
01:00:35
>> Exactly. Exactly. But uh you know um
01:00:38
because I hadn't told her, we had the
01:00:41
the place set which was a cafe just down
01:00:43
the road from me um in Cambridge that I
01:00:46
could walk to and
01:00:49
just my luck the day that we were going
01:00:51
to meet. It was pissing down. So I was a
01:00:53
[ __ ] I can't I can't walk there cuz I'll
01:00:56
get absolutely soaked. So my pilot from
01:00:58
the tandem I was calling him. I was
01:00:59
like, "Man, can you come save me? I
01:01:00
haven't told this chick I'm blind. So
01:01:02
can you come drop me off?" And he's
01:01:03
like, "Oh yeah, yeah." You know, came
01:01:05
drop me off. And um I walked in there
01:01:07
and walked straight into a bloody chair
01:01:08
in front of her. Um I better tell you
01:01:11
straight away. I'm actually actually a
01:01:12
bit blind. Um and she's like, "Yeah, I
01:01:14
know." So yeah, I don't know. Meant to
01:01:17
be, I guess. Um
01:01:18
>> that's cool. God, that must have felt
01:01:19
like um a huge amount of stress off your
01:01:21
shoulders when she said, "Yeah, I know."
01:01:23
>> Yeah, sort of. Um
01:01:24
>> yeah, why?
01:01:25
>> I find that I mean, if I just met
01:01:27
people, they can see that I'm still
01:01:28
pretty sweet. Um, but I think it's the
01:01:31
thought of
01:01:34
I don't know, just people going, "Oh,
01:01:35
he's blind. He like can't see anything.
01:01:36
I'll have to lead him everywhere. I'll
01:01:38
have to do this." Whatever it may be. I
01:01:39
don't know. Um, but you're seeing me.
01:01:42
Most people don't know I'm blind. So,
01:01:44
>> um, I still get around her to write
01:01:45
until I smack into something. But,
01:01:48
>> um, yeah, I don't know. And then, yeah,
01:01:50
later on she, well, that same day she
01:01:54
wanted to meet Blaze, so she came blaze.
01:01:56
And um yeah, like I said, she probably
01:01:58
only stayed for him, but uh but you
01:02:01
know, she loved me eventually.
01:02:04
>> Yeah. Yeah. How long did it take?
01:02:06
>> Um for what exactly?
01:02:07
>> Well, like Yeah. To fall in love before
01:02:09
you realize it was something serious.
01:02:11
>> Oh, I don't know, man.
01:02:13
>> Obviously obviously when you when you
01:02:14
when you met in the cafe, you met for
01:02:16
the first time and you said I'm blind
01:02:18
and she's like, "Yeah, I know."
01:02:19
Obviously, you realized at that point
01:02:21
that was not a barrier.
01:02:22
>> Yeah. Oh, yeah. Pretty much. Yeah. Yeah,
01:02:24
I was a bit worried about the stalker
01:02:26
though, but uh you know
01:02:28
um yeah. No, she I don't know, it just
01:02:31
sort of just grew. And uh
01:02:33
>> it was actually within a couple weeks of
01:02:35
that as well. We um
01:02:37
had a very close family friend, the one
01:02:40
that had the German Shepherds when I was
01:02:41
growing up, he actually ended up passing
01:02:43
away.
01:02:44
>> And my family had gone, well, my mom and
01:02:46
stepdad had gone to hospital to be with
01:02:48
them because it was quite rushed. And um
01:02:50
I was in Cambridge. So I was like,
01:02:52
"Shit, I need to get to hospital cuz he
01:02:54
was like sort of like my dad when I was
01:02:56
younger. He was or at least the male
01:02:59
role model for me."
01:03:00
>> Um spent a lot of time with me when I
01:03:03
was a little fella and uh you know had
01:03:06
to get there but I couldn't. So I had to
01:03:08
call her and I was like [ __ ] I don't
01:03:10
want to ask and it would be a pain but
01:03:12
like do you reckon you could come and
01:03:13
get me and take me to the hospital so I
01:03:15
can go see him? And um she did that and
01:03:17
so it was sort of like yeah that kind of
01:03:20
set her aside even more for me
01:03:22
>> cuz it was like oh sweet you know.
01:03:24
>> Yeah. And she's um Yes. So you live in
01:03:27
Cambridge?
01:03:28
>> Yeah.
01:03:28
>> Yes. Yeah. I can turn the air con on if
01:03:30
you want.
01:03:30
>> No, it's all good. Just take the jersey
01:03:32
off.
01:03:32
>> Yeah. Um Yes. You live in live in
01:03:34
Cambridge. Um the Pod Lab studio is in
01:03:36
Oakuckland. She she drove you up today.
01:03:38
She's sitting out in the office watching
01:03:40
us now.
01:03:41
>> Yep.
01:03:41
>> She's probably thinking, "What the [ __ ]
01:03:42
You cry about the dog, but not me." Oh,
01:03:44
she knows that, man.
01:03:45
>> What um yeah, your your blindness. Yeah.
01:03:48
What how does it impact her?
01:03:50
>> Like she drove you up here today.
01:03:53
>> There's obviously things like that where
01:03:54
she where she's required to help or
01:03:56
>> um Yeah, mostly. Like I mean,
01:03:58
>> you're feeling independent though, eh?
01:04:00
>> Pretty much like I am now. Um only since
01:04:03
sort of 2019.
01:04:05
>> Mhm.
01:04:05
>> Um when I finally got on to ACC and
01:04:08
started getting a driver. Um, so I can
01:04:12
drive Masia around Cambridge and stuff
01:04:14
like that, which is all good for me cuz
01:04:16
it, you know, gives me some independence
01:04:17
again. And
01:04:18
>> I was I've seen those cars. What is it?
01:04:19
What's driving my stasis? Ah,
01:04:20
>> it's just a driving service,
01:04:21
>> right? So it's like Uber for
01:04:24
>> Uber for people with like disabilities.
01:04:27
>> Um, just anyone really, but it's like
01:04:29
they've got ACC contracts. So um yeah,
01:04:33
they take people to whatever really. Um
01:04:36
because I'm permanent, they're on on for
01:04:39
me to drive me around cuz
01:04:41
>> you know uh the only thing I can't
01:04:43
really do is drive. So
01:04:46
um in terms of yeah, independence and
01:04:48
stuff. So um that's the biggest barrier
01:04:51
to me doing anything is being able to
01:04:52
get there. So
01:04:54
>> yeah, but um yeah, ACC paid for that,
01:04:57
which is good.
01:04:59
>> But it was definitely a [ __ ] fight
01:05:01
getting onto it. So
01:05:03
>> yeah, I've heard you better with Yes. So
01:05:04
yeah. So you do you work now?
01:05:07
>> No.
01:05:08
>> So you're unable to work or there's
01:05:10
>> Wow.
01:05:10
>> Is there anything you you you could do
01:05:11
or you want to do?
01:05:12
>> That's the thing. I don't really know,
01:05:14
but I am on ACC for the vision loss
01:05:17
because Yeah. I like I'm not able to
01:05:19
drive. I'm not able to do the stuff that
01:05:21
I would do. Um don't know how much I'm
01:05:24
allowed to say, but I can't really do
01:05:26
anything to get me into another field. M
01:05:28
>> um and it's hard because um
01:05:33
like if I do anything I get ACC taken
01:05:36
off me. So like I can earn like I get
01:05:39
80% of what I used to earn when I was 19
01:05:42
which
01:05:43
>> Oh [ __ ] What was that
01:05:44
>> back then? I was on 1350 an hour which
01:05:46
was minimum wage and uh the inflation
01:05:49
does not Oh sorry it doesn't keep up
01:05:52
with inflation at all. So, I'm not even
01:05:54
in the same place, let alone progressing
01:05:57
or anything like that. So, um yeah,
01:06:01
that's that's another story in itself.
01:06:03
But, uh
01:06:03
>> yeah,
01:06:04
>> it's a hard one cuz like given my
01:06:05
situation, the uh you know, my my
01:06:08
potential for earning was actually taken
01:06:09
away from me.
01:06:11
>> Um
01:06:13
>> you know, didn't get the career
01:06:14
progression or or anything like that
01:06:16
because yeah, was out of my hands
01:06:18
really. So um that's where ACC are quite
01:06:23
difficult. So yeah.
01:06:25
>> Yeah. What do you want to do?
01:06:28
>> Um
01:06:30
I don't really know in terms of like a
01:06:32
full-on career. Like I thought of going
01:06:35
into
01:06:36
psychology for a bit. So I did a bit of
01:06:38
study and didn't end up finishing it.
01:06:40
Studying is pretty bloody hard when
01:06:41
you're blind. So um but I also studied
01:06:44
political science for a while. Um I
01:06:47
still I have quite an interest in
01:06:48
politics. Um there's you know being in
01:06:52
the system like I have been there's many
01:06:54
things that have been highlighted to me
01:06:55
that need need to change.
01:06:57
>> Um
01:06:59
I do like working with dogs.
01:07:03
Um so I don't know. I'm trying to figure
01:07:05
out how to piece it all together or what
01:07:07
avenue to take. But
01:07:09
>> um time will tell I suppose. But I mean
01:07:12
>> the other point is I don't really know
01:07:14
how to get into some stuff
01:07:17
>> like politics or anything like that or
01:07:19
whatever. But um I also
01:07:23
I'd like to do
01:07:26
like I'd like to help people. That's
01:07:28
that's the biggest thing I'd like to
01:07:30
>> do like speaking, motivational speaking,
01:07:32
whatever. Tell tell sto tell my story.
01:07:35
Um sort of mindset coaching, life
01:07:38
coaching, something like that. I'm I'm
01:07:39
not really sure. I don't really know how
01:07:41
to
01:07:43
>> get on that path.
01:07:44
>> Yeah.
01:07:44
>> Um I've done some speaking stuff in the
01:07:46
past, just little gigs and stuff here
01:07:48
and there, but like I don't know how it
01:07:49
all works legally with like pay and
01:07:52
stuff like that. So, it's it's a hard
01:07:54
one like
01:07:56
>> Yeah. I mean, yeah, it's just not
01:07:58
knowing that sort of area, but like I'd
01:08:00
like to do something worthwhile like um
01:08:03
meaningful. biggest thing is helping
01:08:05
people and being fulfilled and um just
01:08:08
doing something important that may you
01:08:11
know may save someone's life one day or
01:08:13
may may help them better their life or
01:08:16
even just feel better. So
01:08:18
>> um yeah there's many things I suppose I
01:08:21
could do but yeah
01:08:22
>> well I I I would say you can do you can
01:08:25
do just about anything you want to do.
01:08:27
You need to figure it out figure out
01:08:28
what it is first and then just and then
01:08:30
go for it. I suppose it's the hard bit
01:08:31
of the puzzle. Yeah,
01:08:32
>> I suppose it's just like, you know, you
01:08:34
have this
01:08:35
>> you have this vision of how you think
01:08:36
your life's going to plan out and then
01:08:38
something happens, you know, life kicks
01:08:40
you in the ass and suddenly it's not
01:08:42
going to look that way anymore and then
01:08:43
it's figuring out how this new direction
01:08:45
is going to look.
01:08:46
>> Yeah. Exactly. And
01:08:47
>> and obviously that's still a piece of
01:08:48
the puzzle that you're working your way
01:08:50
through.
01:08:50
>> Yeah. So, my original thought was like
01:08:52
to to do the sport stuff and hopefully
01:08:55
achieve what I was aiming for there and
01:08:57
then it might
01:08:58
>> sort of set me up for the next part.
01:09:01
>> Yeah. piece pieces of the puzzle fall
01:09:03
into place.
01:09:03
>> Yeah. Yeah. But I haven't managed to do
01:09:05
what I wanted to in that area yet. So, I
01:09:07
sort of I've hit a roadblock and I've
01:09:09
just um I've been trying to navigate
01:09:11
that for a few years. So,
01:09:13
>> um but yeah, in terms of the speaking
01:09:14
and you know uh
01:09:18
yeah, motivational stuff or personal
01:09:21
coaching sort of thing. I don't know.
01:09:22
I'd love to do that in some some regard,
01:09:24
but then I suppose I don't know how do I
01:09:27
advertise it to start getting gigs to to
01:09:29
go and do speaking stuff or whatever,
01:09:32
but um certainly open and keen to do it.
01:09:36
It's just uh starting to get the foot in
01:09:38
the door, I guess.
01:09:39
>> Yeah.
01:09:40
>> Yeah. We haven't even talked about the
01:09:41
sport stuff. Let's talk about that for a
01:09:43
little bit. So, um
01:09:44
>> parasycling for anyone that can't uh
01:09:47
visualize what it is. What What is it
01:09:48
like a tandem bike on the Valadrome?
01:09:50
>> Uh for me it is. Yeah. But parasycling
01:09:53
uh covers most all disabilities I guess.
01:09:56
Um
01:09:57
>> so you say for me it is why why because
01:10:00
you're
01:10:00
>> on the tandem.
01:10:01
>> Yeah.
01:10:01
>> Yeah. Yeah.
01:10:02
>> Because because you don't have enough
01:10:03
vision to do it.
01:10:04
>> Yeah. Solo. Yeah. I could ride it by
01:10:06
myself but not Well.
01:10:08
>> Okay.
01:10:08
>> Um but
01:10:09
>> So there's two of you and the other
01:10:11
person's called a pilot.
01:10:12
>> Yeah.
01:10:12
>> So does the other person pedal?
01:10:14
>> Yeah. Yeah. [ __ ] Yeah. Yeah. Um so the
01:10:17
tandemss are a team sport essentially.
01:10:19
Um, and the dude on the front has to be
01:10:21
or the chick on the front for the girls
01:10:22
tandem, they've got to be really good as
01:10:24
well.
01:10:25
>> Um, you know, the tandemss are as fast
01:10:27
as the able body guys. So, uh, yeah,
01:10:30
they're they're very it's a very hard
01:10:32
division.
01:10:33
>> Um, but the parasycling encompasses or
01:10:36
covers um people like in wheelchairs as
01:10:41
well or that that'll be the the hand
01:10:43
cycle. So, their category is H. Um the C
01:10:47
categories cover there's C1 2 3 4 and 5.
01:10:51
Uh C1 being the like most disabled and
01:10:54
C5 being the least disabled. But that
01:10:57
encompasses like um like amputees or
01:11:01
people um that have like MS. Um there's
01:11:06
sort of that's it's quite a complicated
01:11:08
category. I don't really understand it
01:11:10
exactly but
01:11:11
>> Yeah. There's so many variables e
01:11:12
>> Yeah. Yeah. And they all get classified.
01:11:14
So
01:11:15
>> they um have to see an actual classifier
01:11:18
and doctor or whatever it is and they
01:11:20
have to
01:11:20
>> I don't know they go through movements
01:11:22
and all that sort of stuff. Like for me
01:11:24
I just have to eye test. So it's a
01:11:26
little bit different for me but uh
01:11:28
>> they don't make you wear um like some
01:11:30
sort of like like a mask or anything so
01:11:32
your eyes are covered.
01:11:33
>> N
01:11:34
sports, don't they?
01:11:35
>> Yeah. Yeah. I don't quite know how that
01:11:37
works but um like in
01:11:41
like for the tandem there's only one
01:11:43
category, right? It's just you're on the
01:11:44
tandem. That's that's pretty much it.
01:11:46
But some people may be totally blind and
01:11:48
some may be partially like me.
01:11:50
>> Um but like for say athletics there's
01:11:56
like you're classified as a one, two or
01:11:57
three um was BBI, so blind, visually
01:12:00
impaired. Um one, two, or three. One was
01:12:02
totally blind and three was like kind of
01:12:05
blind I suppose. Um so but yeah, in
01:12:08
athletics and stuff like that, they
01:12:10
actually have their separate categories,
01:12:11
I think. Right. But I could be wrong
01:12:13
there. I'm not in that sport. So
01:12:15
>> So what what's it like um you like going
01:12:18
around a Valad drive at what 70ks an
01:12:21
hour?
01:12:21
>> Yeah, it's sort of the top speed we got
01:12:22
up to 200. Um
01:12:24
>> yeah, what's it like going going around
01:12:25
a val 70ks an hour with only 5% vision?
01:12:28
>> Um is is it like the most exhilarating
01:12:30
thing ever? Like you never felt more
01:12:32
alive or are you just [ __ ] yourself?
01:12:33
>> Uh it's a bit of both, but I mean I was
01:12:35
always a bit of a thrill seeker, you
01:12:37
know. That's sort of what appealed to me
01:12:38
was the speed and
01:12:40
>> uh doing something that's could be a bit
01:12:42
gnarly, you know. Um luckily we haven't
01:12:44
come off on the track, but if you do,
01:12:45
you get pretty pretty minced up. Um
01:12:49
yeah. Uh it's I don't know. I sort of
01:12:53
I'm holding the bars and pretty much all
01:12:55
I see is my pilot's back and like the
01:12:57
top tube on the bike. Um and just what's
01:13:00
directly below me. I don't really see
01:13:01
too much else. So
01:13:02
>> Well, I suppose the steering aspect is
01:13:04
the pilot's job, right?
01:13:05
>> Yeah. Yeah. Um how important is is that
01:13:08
relationship like the level of trust
01:13:09
there like um and the level of
01:13:11
communication involved between you and
01:13:12
the pilot?
01:13:13
>> It's pretty important like you got to I
01:13:15
mean for the team aspect of things like
01:13:17
you if you get to the level that we did
01:13:19
you've got to travel with them and
01:13:21
>> um you know room with them and all that
01:13:23
sort of stuff. So you've got to get on
01:13:24
pretty well. Um and lucky for me with
01:13:26
with Jackson who was my pilot. Um oh I
01:13:29
told him I'd give him a plug. He's he's
01:13:32
uh he's doing really well for himself
01:13:34
now. Um Jackson Ogle um is he's got a
01:13:37
company called CL Fence Painting and
01:13:39
he's yeah really into his business stuff
01:13:41
and and doing really well with that. So
01:13:43
if anyone needs fences painted, man, go
01:13:45
to CL Fence Painting on Instagram.
01:13:48
>> Yeah. So you heard it on um the Mitch
01:13:50
episode of the Dom Harvey podcast and
01:13:52
you'll get 50% discount.
01:13:54
>> I can't commit to that, but he's he does
01:13:57
a good job and he's he's really into it.
01:13:59
E so um he's done he's done bloody good.
01:14:02
Um but yeah, we we get on pretty good
01:14:04
and um yeah, he's still at my he came to
01:14:06
my wedding and stuff like that. And um
01:14:09
he's been trying to help me a bit too
01:14:10
cuz he's quite business orientated and
01:14:12
uh he's a really ambitious person. So
01:14:16
like when I first met him, he was only
01:14:18
like 19, 18, 19. And he like straight
01:14:21
away he was just like you could tell
01:14:23
like business mindset and he just
01:14:25
straight away had this figure in his
01:14:26
head of what he wanted to earn each year
01:14:28
to be like successful as such. like that
01:14:31
was his goal and he's, you know, he's I
01:14:33
think he's smashing that. So
01:14:35
>> awesome.
01:14:35
>> But yeah, for a 19year-old to say that I
01:14:37
was like, "Shit, man." Like there's a
01:14:39
big difference between him and me when I
01:14:40
was 19.
01:14:42
>> There's different levels to the game,
01:14:43
eh? Like people working at different
01:14:44
speeds.
01:14:45
>> Yeah.
01:14:45
>> So you must have been quite good at the
01:14:47
cycling. Eh, so two years after starting
01:14:49
um that's when you compete at a national
01:14:51
level.
01:14:52
>> Um Oh, like you just you just ride
01:14:55
nationals, I guess. You just apply and
01:14:57
you get in. Um, it was definitely a a
01:15:00
process. Uh,
01:15:04
>> yeah. I don't know. It's It's hard
01:15:05
because on the tandem you got to be
01:15:09
Yeah. like a team, I guess, you know?
01:15:10
So,
01:15:11
>> uh, but like the opportunity to train
01:15:14
and stuff like that is always a bit
01:15:16
harder. Um, for me now, I'm actually set
01:15:19
up a lot better than I was when we made
01:15:20
it to world champs in 2019. Um
01:15:24
>> but yeah, for a few years there it was
01:15:27
pretty slow going I suppose.
01:15:30
>> Um plus I had some more health things
01:15:33
going on myself just cuz I wasn't
01:15:35
handling the training to start with cuz
01:15:37
you know my my history and stuff like
01:15:39
that and I was getting sick all the time
01:15:41
and um ended up getting my tonsils out
01:15:43
because they were sort of dead from
01:15:45
radiation
01:15:46
>> um cuz it was that exact same area. M
01:15:49
>> um but yeah, it was a bit of a rocky
01:15:50
road and then the end on mid 2018 I got
01:15:54
back into it cuz I'd had a bit of time
01:15:56
off to get all my tonsils out and all
01:15:57
that sort of stuff. Um
01:16:00
and uh yeah, then I shacked up with
01:16:02
Jackson and things moved pretty quick
01:16:04
from there because we we jelled and he
01:16:07
was an absolute beast himself. So, um
01:16:10
yeah, we we cracked it pretty fast and
01:16:14
uh
01:16:15
>> yeah, got to go to world champs in 2019
01:16:17
and 2020 and um got top eight and only
01:16:21
eighth place. We didn't get any higher
01:16:23
than that, but still top eight, you
01:16:24
know. So, um but for being eighth in the
01:16:27
world was pretty cool. So,
01:16:29
>> you you used the word purpose before.
01:16:30
Did um is that what paras parasycling
01:16:33
gave to you? A bit of purpose, bit of
01:16:35
meaning, a reason to get out of bed.
01:16:36
>> Yeah, for sure. it was like a target to
01:16:38
work towards, you know, so you sort of
01:16:39
know where you're going. Um especially
01:16:41
once you actually get put in that team
01:16:43
or you've hit the standard or whatever
01:16:44
it may be because it's a bit more
01:16:46
concrete
01:16:47
>> rather than sort of still up in the air.
01:16:49
>> Yeah.
01:16:49
>> But uh
01:16:50
>> yeah, it was cool working towards a goal
01:16:53
with Jackson as well cuz we both had
01:16:55
that same goal.
01:16:56
>> Um we did Yeah. did pretty awesome.
01:16:59
Pretty happy with what we did. Like the
01:17:01
competitive side of me was like it's not
01:17:03
high enough. I want to get better.
01:17:04
>> But like I want the medals. That was my
01:17:06
original goal, but I mean I can still
01:17:08
say I've been top eight in the world at
01:17:10
world champs, you know. So,
01:17:12
>> um still achievement.
01:17:13
>> What's that moment like when when you
01:17:16
you know, you're representing your
01:17:17
country for the first time?
01:17:18
>> Um for me, I I was
01:17:22
I suppose like when we were on the bike
01:17:24
warming up sort of the day of the race
01:17:26
or the No, it's the day before. The
01:17:29
first time I put the actual New Zealand
01:17:30
skin suit on, um I was sort of sitting
01:17:33
there and this uh I know I said earlier
01:17:36
I didn't cry, but I actually had a tear
01:17:38
in my eye this day. But uh I was uh I
01:17:40
was looking up and I was looking up cuz
01:17:42
my I was I was speaking to my granddad
01:17:45
and uh my dad my dad's passed away as
01:17:48
well. Um
01:17:51
yeah, kind of just dang I [ __ ] made
01:17:53
it. I'm doing it, you know. Uh, so
01:17:57
yeah, that was that was a bit of a
01:17:59
surreal moment. Um, but then that you
01:18:02
switch back in pretty quick going, "Oh,
01:18:03
[ __ ] I'm going to die in a second." Cuz
01:18:04
those kilos hurt, man. They they kill
01:18:07
you. E. So
01:18:08
>> um, yeah. But yeah, that was that little
01:18:10
little somber moment of of Yeah. looking
01:18:13
up. And
01:18:14
>> do you think it was even more special um
01:18:16
because of the journey and the adversity
01:18:17
you've overcome?
01:18:18
>> Yeah, pretty much. Um, it was sort of,
01:18:23
>> how do you say it? It was like it was
01:18:26
surreal, but it was sort of like
01:18:31
the most sort of relaxing feeling of
01:18:34
like I knew I'd do it. Um I said I'd get
01:18:37
here and it's sort of just like I I was
01:18:41
going to do it. I sort of So it wasn't
01:18:43
like a surprise as such.
01:18:45
>> Um but it was still surreal if that
01:18:46
makes sense. No.
01:18:49
>> Yeah.
01:18:50
>> Mitch from uh 15 years ago, 2010. Mitch
01:18:54
before before the before getting sick.
01:18:57
What would what would he make of the guy
01:18:59
sitting in front of me now?
01:19:00
>> Um I mean you'd think
01:19:03
he's a different person, I suppose.
01:19:06
>> Um
01:19:09
yeah, I don't know. Yeah, you'd be quite
01:19:12
surprised, that's for sure. Would
01:19:13
>> he be proud of you?
01:19:14
>> Yeah. Yeah, for sure. Um,
01:19:18
>> yeah, definitely definitely praise it.
01:19:21
>> Uh, come a long way. That's for sure.
01:19:24
>> And if you could go back now and have 5
01:19:27
minutes with that 16, 17 year old
01:19:29
version of yourself, the one that's
01:19:31
waking up dizzy, vomiting, scared, but
01:19:34
sort of being dismissed by people. What
01:19:36
would you say to him?
01:19:38
>> Get a second opinion.
01:19:40
>> Yeah, pretty much, man. Um,
01:19:42
>> no, no, no. More more holistically than
01:19:44
that, though. like like what would you
01:19:46
say? Would you tell them everything's
01:19:47
going to be okay?
01:19:48
>> Yeah, just Yeah, I mean you sort of um
01:19:53
stop being a [ __ ] is one of them. Um
01:19:56
pull your head pull your head out, you
01:19:57
know, but uh just yeah, just stick to
01:20:00
your guns. Go back and get you get that
01:20:02
second opinion and you know
01:20:05
>> um it's yeah, not going to be easy, but
01:20:08
you can do it. So
01:20:10
yeah,
01:20:11
>> I think that's probably the a good
01:20:12
takeaway for anyone listening to this.
01:20:14
Hey, you know, be be your own doctor. Do
01:20:17
your own research. Do your own study. If
01:20:19
you feel like something's not right and
01:20:21
you've been you've been told everything
01:20:22
is all right, keep trying. Keep pushing.
01:20:25
>> Yeah. That I mean the the other side of
01:20:27
that too is like there's too many Google
01:20:29
doctors these days you hear about,
01:20:31
right? Like you've got to do
01:20:32
>> Oh, 100%. GPT doctors.
01:20:34
>> Oh, exactly. Yeah. Do do proper
01:20:36
research. Um but if you've got a hint of
01:20:38
a feeling of something, don't just take
01:20:41
someone else's word for it. Do your own
01:20:43
research. which is plenty of information
01:20:44
available these days. So,
01:20:46
>> um
01:20:48
>> yeah, definitely yeah, check your
01:20:50
sources, but there's definitely enough
01:20:52
out there to do some proper research and
01:20:55
um you know, don't just take the
01:20:57
doctor's word for it, man. You don't
01:20:59
want to be unnecessarily
01:21:02
rude or anything like that, but if you
01:21:05
feel like you're being dismissed, argue.
01:21:08
You you you have to be your own best
01:21:10
advocate. That's that's the only way to
01:21:11
say it. Um, at the end of the day, it's
01:21:14
your life.
01:21:16
>> So, you know, don't neglect it as such.
01:21:20
Just just fight for yourself because
01:21:23
>> you're the only one who can do it. So,
01:21:25
>> yeah, I love that. I had um Honey Hammy
01:21:27
Smiler on the podcast. She's like a a
01:21:29
rugby and rugby league commentator now,
01:21:31
like one of the goats of New Zealand
01:21:33
sport.
01:21:33
>> She lost her mom to cancer. her her wife
01:21:36
um is living with stage four cancer and
01:21:38
and Honey's just become like a like a
01:21:41
cancer expert. Like she reads what she
01:21:43
can, she studies what she can.
01:21:45
>> Um like she she's Yeah. She's she
01:21:47
understands um that the oncologist. Are
01:21:50
they the cancer people?
01:21:52
>> Yeah. She understands that the for the
01:21:54
oncologist like her wife is only one of
01:21:56
however many patients.
01:21:58
>> So she's got to be the biggest advocate
01:21:59
she can be. And I find that super
01:22:01
inspiring.
01:22:02
>> Exactly. Yeah. And that's the that's the
01:22:04
thing like um if you've got some some
01:22:08
legitimate information to share and
01:22:11
question and stuff like that then you'll
01:22:13
probably open up an avenue that they may
01:22:14
not have thought of because like you
01:22:16
said they're seeing shitloads of people
01:22:18
every day right
01:22:20
>> um and thinking of different cases and
01:22:21
all that sort of stuff. So yeah, just
01:22:23
advocating for yourself and and having
01:22:26
your own knowledge is pretty important.
01:22:27
So
01:22:28
>> yeah, be a pain in the ass. Be the be
01:22:29
the squeaky wheel that gets the oil.
01:22:31
>> Exactly. And it's like
01:22:33
they might appear mad when you're doing
01:22:36
it, but it's pretty important to get it
01:22:38
done, you know? So,
01:22:39
>> well, it might actually be a matter of
01:22:40
life and death.
01:22:41
>> Yeah. Exactly. Exactly. So, you know,
01:22:44
short-term pain for long-term gain,
01:22:46
right?
01:22:47
>> What do you still struggle with today
01:22:48
that people probably assume you've
01:22:50
already overcome?
01:22:51
>> Um,
01:22:53
that's a good question. Um,
01:23:00
I really don't know to be honest. Um,
01:23:04
probably one relevant one is like being
01:23:07
in crowded situations.
01:23:09
Not too bad, but like
01:23:11
>> I don't like it.
01:23:13
>> Um, even just walking up the street to
01:23:16
be honest, it's pretty frustrating. Um,
01:23:18
>> in what way?
01:23:19
>> Yeah. Oh, just people. Like I know I
01:23:22
don't look blind and all that but just
01:23:24
like the general manners of people in
01:23:26
public like barely any people move for
01:23:28
people you know. Um my reference to this
01:23:31
is I got to go to Japan in 2017
01:23:34
um for cycling and man their their
01:23:37
society is insane. They're insanely
01:23:39
cool. um they're so respectful and you
01:23:43
know walking up the street everyone I
01:23:46
don't know how they bloody how they do
01:23:47
it but they've got their head down or
01:23:48
whatever and they're just all zigzagging
01:23:49
for everyone and you know you say hi to
01:23:52
people there and they're so friendly.
01:23:54
>> Um but just the you know walking
01:23:56
anywhere here you're trying to move and
01:23:58
you know I can still see a bit so I'm
01:24:00
still looking out and trying to move out
01:24:01
of the way but people just walk straight
01:24:03
at you
01:24:03
>> and it's that is frustrating. I can't
01:24:06
>> I can't get past that. that annoys me,
01:24:08
you know,
01:24:09
>> just a bit of
01:24:11
um
01:24:13
what do you call it?
01:24:15
I can't think of the word, but just
01:24:17
being, you know, moving out of people's
01:24:18
way and just giving people a smile and a
01:24:20
wave or whatever and just be friendly.
01:24:22
There's no need trying to put your
01:24:23
shoulders back and act staunch or
01:24:24
something, you know? So,
01:24:26
>> yeah.
01:24:28
>> Um, what do you like with vulnerability?
01:24:30
You've got Lucy. Can can you talk to her
01:24:33
about like what you're feeling? Like if
01:24:34
you're having a [ __ ] day, like do you
01:24:36
sort of keep it to yourself or are you
01:24:37
are you good at like chatting to her
01:24:39
about it or you got some good friends
01:24:40
that you can talk to about how you're
01:24:41
really feeling?
01:24:42
>> Um yeah, I definitely do. Um me
01:24:44
personally, I talk about it a little
01:24:46
bit, but I'm kind of old school as well.
01:24:48
>> Um I sort of
01:24:51
I do keep stuff to myself, but like I
01:24:54
know it's it's good to talk and all that
01:24:56
sort of stuff. Um but I'm going to get
01:24:59
given [ __ ] Hey, inside joke saying all
01:25:01
that sort of stuff. Uh Lucy will get it.
01:25:04
Um, I don't know. Don't want to get in
01:25:06
trouble, but
01:25:07
>> trouble with her.
01:25:08
>> No, no, we I I'll reference it to to to
01:25:10
clarify. But, uh, at our wedding, Bruce
01:25:12
heard her Lucy's dad made a speech and
01:25:15
we were counting how many times he said
01:25:17
all that sort of stuff.
01:25:18
>> Oh, yeah.
01:25:18
>> And all all that kind of stuff and
01:25:20
heaps, so I've been saying it a bit too
01:25:21
much. I'm not even realizing. So, it's a
01:25:23
good joke.
01:25:24
>> Um,
01:25:26
>> uh, I forgot the question. Sorry. Um,
01:25:30
oh, like just, you know, are you good at
01:25:32
the vulnerability piece?
01:25:33
>> Oh, yeah. Um, like talking about like
01:25:35
when you're when you're struggling and
01:25:36
when you're having a [ __ ] day.
01:25:37
>> Yeah. I mean, I I do sometimes. Other
01:25:39
times I just like to keep to myself and
01:25:41
I sort of pull myself out of it and
01:25:42
just, you know, do a ride on the bike or
01:25:44
whatever it is. I don't know. Um, I'll
01:25:46
talk about it if I need to,
01:25:48
>> but like I don't need to talk about
01:25:50
everything. Um, but it's definitely
01:25:52
important if if you're at that point
01:25:54
where you need to talk, go bloody talk,
01:25:56
you know? Um,
01:25:58
>> but yeah, I'm like a Yeah, I can be
01:26:01
vulnerable, but I prefer not to be. But
01:26:03
it's Yeah, needs based, you know. So,
01:26:05
>> I get it. Just when you get when things
01:26:06
get really really bad.
01:26:08
>> Yeah. Yeah, pretty much. And being
01:26:10
proactive on it is good, too, if you're
01:26:11
in that in that case. Like, I mean, I
01:26:13
openly at the moment I'm seeing a
01:26:14
psychologist as well.
01:26:16
>> Um, get a few.
01:26:17
>> I am. How long has that been going on?
01:26:22
>> I don't know, maybe 6 months.
01:26:23
>> Right. So, did did you have any therapy
01:26:26
like at the time? No,
01:26:27
>> no, no. Interesting.
01:26:28
>> No, no. So,
01:26:29
>> were you offered one?
01:26:30
>> Yep.
01:26:31
>> Yep.
01:26:31
>> Yeah. I was just like, no.
01:26:33
>> I just sort of
01:26:34
>> classic, eh?
01:26:35
>> Yeah. Just old school way. It's like,
01:26:36
no, excuse the language. [ __ ] that.
01:26:38
Like,
01:26:39
>> so why did you start seeing one now six
01:26:41
months 6 months ago?
01:26:42
>> Um, just that that roadblock of what am
01:26:45
I going to do? I'm just trying to
01:26:47
>> unpick my mind, you know, and just sort
01:26:49
of maybe get some clarity and get a
01:26:52
vision to to go in the direction I want
01:26:54
to go or finding that direction is the
01:26:56
hard part. So,
01:26:58
>> um yeah, just Yeah, he's pretty good.
01:27:02
>> Yeah. How you finding it? I I I um I I
01:27:05
put off going to therapy forever cuz I
01:27:07
was like, "Oh, [ __ ] I don't know."
01:27:09
Like, like you sit down with a stranger,
01:27:11
where do you start? like, you know, it
01:27:13
just feels awkward and then you sit down
01:27:15
and you realize they're the professional
01:27:16
and they'll just lead the conversation
01:27:18
and it's bloody great.
01:27:19
>> Yeah.
01:27:19
>> It's like a personal trainer for your
01:27:20
head.
01:27:21
>> Yeah, pretty much. They ask one question
01:27:22
and you start spilling everything. E so
01:27:25
>> um but I mean you got to have a little
01:27:28
bit of um you got to click with them
01:27:30
too, right? Like yeah um luckily for me
01:27:32
the first one I went to I clicked with.
01:27:34
So,
01:27:35
>> um, yeah, he's he's he's pretty good
01:27:36
and, um, it's good to just have a chat
01:27:39
>> and,
01:27:40
>> you know, see what he
01:27:41
>> see what he, uh, offers and
01:27:44
>> unpicks and stuff like that. So, it's,
01:27:45
yeah, it's definitely a positive.
01:27:47
>> It's definitely not a weakness or
01:27:49
anything.
01:27:50
>> Just being proactive on it, you know,
01:27:51
but
01:27:52
>> even saying that, just cuz you're seeing
01:27:53
a psychologist doesn't mean you're
01:27:55
you're not going to have [ __ ] days.
01:27:57
>> Um, but everyone has [ __ ] days. It's
01:27:59
just part of life, isn't it? So, just
01:28:00
carry on.
01:28:01
>> Do do you have more good days than [ __ ]
01:28:02
days?
01:28:03
>> Yeah. Yeah. Yeah, for sure. Yeah. Yeah,
01:28:04
100%. Um but yeah, just being realistic,
01:28:09
right? Nothing's perfect all the time.
01:28:10
So,
01:28:11
>> um you just got to take it as it comes
01:28:13
and you know, know that you'll you'll
01:28:15
get through it cuz you do.
01:28:17
>> Yeah. And you got to have the bad days
01:28:18
to appreciate the good ones.
01:28:19
>> Yeah, exactly.
01:28:20
>> Um do you have any regrets?
01:28:23
>> Um
01:28:27
yes and no. I suppose like I regret sort
01:28:30
of doing the stuff I did in my later
01:28:32
teen years, but at the same time
01:28:34
everything still makes you who you are
01:28:35
today.
01:28:36
>> Why? What do you regret? How bad were
01:28:38
you?
01:28:39
>> From what you've explained, it sounds
01:28:40
like you were pretty pretty normal and
01:28:41
standard.
01:28:42
>> Yeah, pretty normal and standard, but
01:28:43
just for me it was just sort of away
01:28:45
from my beliefs or my my morals, you
01:28:47
know, um or my stances, I should say, on
01:28:50
certain things.
01:28:51
>> Um had fun doing it, don't get me wrong.
01:28:55
Um you know, if any of the boys listen
01:28:57
to this, they'll have a laugh at that.
01:28:58
But uh you know
01:29:01
um yeah I I don't know it just sort of
01:29:04
it took me down the wrong path
01:29:07
basically. So but yeah like I said it
01:29:09
all everything adds into who you are
01:29:11
today right so it's it's kind of a
01:29:13
positive and a negative but um yeah in
01:29:17
terms of regrets not not really but you
01:29:21
know
01:29:22
>> some things are just better for you than
01:29:24
others I suppose. But yeah,
01:29:28
>> um what do you think your best and worst
01:29:30
habits are?
01:29:31
>> Um
01:29:33
Lucy would definitely say my worst habit
01:29:34
is procrastinating. Um
01:29:37
but uh my best habit is I'm stubborn and
01:29:41
consistent. Even if I hate it, like I'll
01:29:43
keep doing it. Um which is like the love
01:29:46
hate with training or whatever, I still
01:29:47
stick to it because I have to.
01:29:49
>> Um for my own sanity, if I don't do it,
01:29:52
I'm actually a lot worse off, even if I
01:29:53
hated doing it to start with. M um but
01:29:57
yeah, my worst habit is yeah, probably
01:30:00
my procrastinating. Sometimes I I'll sit
01:30:02
there and I I sort of stir in my head
01:30:04
rather than being concise and direct.
01:30:05
I'm like, [ __ ] I don't know. I don't
01:30:07
know. You know, and I sort of
01:30:09
>> Yeah, I'm a bit lack decisiveness
01:30:11
sometimes. So,
01:30:12
>> yeah, it seems like the impression I've
01:30:14
got today is there's still some [ __ ] to
01:30:15
figure out.
01:30:16
>> Yeah, exactly.
01:30:17
>> But I think that's the same for most of
01:30:18
us to be fair.
01:30:19
>> Yeah. Yeah, exactly. It's sort of um I
01:30:21
mean life's complicated for everyone,
01:30:23
isn't it? But, uh, like for me, I
01:30:25
suppose I just find
01:30:28
if I could still see, it would be a lot
01:30:30
easier because I'd
01:30:31
>> of course
01:30:31
>> just be able to just do it, you know.
01:30:33
Um,
01:30:35
>> so yeah, I I don't know. Just see what
01:30:38
opportunities can possibly arise in the
01:30:40
future and
01:30:42
>> see what directions pop up.
01:30:44
>> But yeah,
01:30:46
>> um, if you had to find something
01:30:48
something good that's come from all of
01:30:50
this, Yeah. what would it be?
01:30:53
Um,
01:30:54
>> it's taken away your eyesight, but has
01:30:56
it has it has it given anything good?
01:30:58
>> Something good is that
01:31:01
it's definitely shown me that I am very
01:31:05
resilient and you know, although it
01:31:09
might suck for a while, you just, you
01:31:11
know, the storm always clears, right?
01:31:13
>> Um, I can get through anything. I know I
01:31:14
can. Um,
01:31:17
you know, things will challenge you. It
01:31:19
might come across cocky, but it's not
01:31:20
going to stop me. it's not going to beat
01:31:22
me. Um, I will win pretty much. Um, and
01:31:26
that's sort of my tattoo on my arm I got
01:31:29
because of all my stuff. So, it's uh
01:31:32
kind of tells the story with the storm
01:31:33
clouds clearing and the sunshine coming
01:31:35
through. Um, blazes on the back of there
01:31:38
as well, if you can see that.
01:31:39
>> Oh, I can.
01:31:40
>> Yeah, I got him on there cuz it was like
01:31:41
he's part of it, you know.
01:31:42
>> And what's the text? God always
01:31:44
>> God always has something for you. Um,
01:31:48
[ __ ] How's it go? God always has
01:31:50
something for you. A light for every
01:31:53
like a key for every problem, a light
01:31:55
for every shadow, a relief for every
01:31:57
sorrow, and a plan for every tomorrow.
01:32:00
>> Um except one one funny thing is the
01:32:02
tattoo is actually writ place instead of
01:32:04
plan. So it says place for every
01:32:07
tomorrow, but it's like [ __ ] hell,
01:32:09
man. It was written out clearly and they
01:32:11
got the word wrong. So it still fits,
01:32:13
but like I know it's different, you
01:32:14
know?
01:32:15
>> Did you get a discount?
01:32:16
>> Nah. No.
01:32:17
>> What the [ __ ] One job. I know it was
01:32:19
terrible. Like I drew it all up myself
01:32:22
and stuff and like yeah I had [ __ ]
01:32:23
eyesight but it definitely said plan. Um
01:32:26
and like I got it took a while to do and
01:32:28
I got the f I got the words done first
01:32:31
>> and I was at my mate's uh brother's
01:32:34
birthday thing later that night and this
01:32:36
is in 2014 and um everyone was reading
01:32:40
it and someone read out place for every
01:32:42
tomorrow's like no no it says plan and
01:32:44
they're like nah bro it says place. I'm
01:32:46
like, "Oh, fuck." Like,
01:32:48
>> but you you got done dirty by the
01:32:50
doctor.
01:32:51
>> I know.
01:32:51
>> And by the tattoo artist.
01:32:52
>> I know. At least the tattoo artist
01:32:54
sounds funny, right? But
01:32:57
>> but um yeah, it's a good laugh. At least
01:32:59
it still fits. But I still say a plan
01:33:00
for every tomorrow cuz that's what it's
01:33:01
supposed to be. So,
01:33:03
>> you know,
01:33:04
>> you've been through a lot of [ __ ] Are
01:33:06
you proud of yourself?
01:33:07
>> Yeah. Yep. Yeah. I'd be lying if I say I
01:33:09
wasn't. I'm um I have very high
01:33:11
expectations of myself. Um, which is why
01:33:14
I'm sort of not quite content with not
01:33:17
achieving what I wanted to yet. Um, I
01:33:20
say yet because I'm still dabbling and
01:33:22
hopefully getting back there, but it's
01:33:24
just the goalpost keep shifting so it's
01:33:27
a little bit hard, but I mean I know I
01:33:29
can't do that forever either. So, um,
01:33:33
yeah, we just got to take that as it
01:33:34
comes and see see what happens. But the
01:33:37
most frustrating thing there is that
01:33:38
when I went to Worlds with Jackson, um
01:33:43
I was not probably the best prepared. Um
01:33:46
I'm a lot better prepared now and I'm a
01:33:48
lot stronger. I'm faster and all that
01:33:50
sort of stuff. So that's a bit of a you
01:33:52
can't say what if, but like um
01:33:57
the best version of me is now. Um so I
01:34:00
can definitely make it again, but it's
01:34:01
just everything needs to align. Yeah.
01:34:03
>> So, it's uh yeah, we'll see see what
01:34:05
happens there. But, um still proud of
01:34:08
myself for what I've done.
01:34:10
>> Yeah. Good on you.
01:34:10
>> Um but yeah, I just want to keep it
01:34:12
going and do something important really.
01:34:15
>> So, it's figuring out what what that is.
01:34:18
What's going to bring you that joy?
01:34:19
>> Exactly. Um and yeah, I mean that would
01:34:22
definitely be around helping people in
01:34:23
some some uh aspect, but
01:34:27
>> um yeah, the speaking and all that.
01:34:29
Hopefully I could, you know, I can talk
01:34:30
a bit of [ __ ] sometimes. So hopefully I
01:34:32
can spin a good a good presentation and,
01:34:35
you know, help people in that way or
01:34:37
talk about adversities and
01:34:39
>> yeah,
01:34:40
>> um maybe ways I got through things, you
01:34:43
know, everyone's different
01:34:45
>> but uh also everyone, you know,
01:34:48
everyone's Everest is different, right?
01:34:50
What might be huge to me or to you might
01:34:53
be tiny to me. Um but in terms of
01:34:58
um relevance that might be the biggest
01:35:00
thing that person's gone through. So
01:35:02
it's still huge to them. So
01:35:05
>> yeah, you don't want to compare.
01:35:06
>> Yeah. You can't compare. Yeah. Exactly.
01:35:08
So
01:35:08
>> I mean if you compare, you can always
01:35:10
find some someone that's better off, but
01:35:12
you can also find someone that's worse
01:35:13
off.
01:35:14
>> Yeah.
01:35:14
>> No one's No one's doing the same.
01:35:16
>> Exactly.
01:35:16
>> You could even um if you want to help
01:35:18
people, you could set up a um a spelling
01:35:19
school for tattoo artists.
01:35:22
>> Yeah. Exactly. taking the advice from a
01:35:24
blind guy.
01:35:25
>> Well, Mitch Wilson, it's been really
01:35:27
nice connecting today. Thanks for coming
01:35:28
on the podcast. Have you enjoyed
01:35:30
yourself?
01:35:30
>> Yeah, man. I'm just uh very appreciative
01:35:32
of um uh getting the opportunity and you
01:35:35
know, you've been willing to to hear my
01:35:37
story and you given me a platform and
01:35:38
it's uh really awesome. So, thank you
01:35:40
very much.
01:35:41
>> I appreciate you reaching out. It's been
01:35:42
good to connect today.
01:35:43
>> Yeah, mate. Thank you very much for
01:35:44
that. Eh,
01:35:45
>> cheers, mate. And good luck for whatever
01:35:46
the future may bring.
01:35:47
>> Yeah, you too. And um just uh you know
01:35:50
from back in the year I just sto those
01:35:52
uh nude run days are over right
01:35:54
>> they are long gone 52 now. Nobody nobody
01:35:59
>> nobody ever deserves to see that.
01:36:00
>> Yeah. None of that streaking stuff mate.
01:36:04
>> Look after yourself.
01:36:05
>> Sweet ass. Thank you very much Dominic.

Podspun Insights

In this episode, Mitch Wilson shares his remarkable journey of resilience and transformation after losing his eyesight due to a brain tumor. With a candid and humorous approach, Mitch recounts the harrowing moments leading up to his diagnosis, the frustration of being dismissed by medical professionals, and the emotional turmoil of adjusting to life with limited vision. He opens up about the fear of losing his sight entirely, the anger that followed, and how he ultimately found purpose through paracycling. Mitch’s story is not just about overcoming adversity; it’s about the importance of self-advocacy, the power of friendship, and the unconditional love of his dog, Blaze, who played a pivotal role in his healing process. As he navigates the complexities of life post-diagnosis, Mitch reflects on the lessons learned and the hope for a brighter future, inspiring listeners to embrace their own challenges with courage and determination.

Badges

This episode stands out for the following:

  • 95
    Most emotional
  • 94
    Most heartwarming
  • 93
    Best concept / idea
  • 92
    Most inspiring

Episode Highlights

  • A Life-Changing Diagnosis
    After a series of troubling symptoms, a young man discovers he has a brain tumor.
    “I’ve got a brain tumor.”
    @ 22m 31s
    November 19, 2025
  • The Day of Surgery
    April 24, 2012, marks a new beginning as he undergoes a 12-hour operation.
    “It’s my new birthday because it’s the day I was reborn.”
    @ 23m 35s
    November 19, 2025
  • Facing Reality
    Coming to terms with his condition, he realizes his old life is gone.
    “I might as well give it back to the shop.”
    @ 36m 18s
    November 19, 2025
  • The Struggle with Depression
    Adjusting to life changes can lead to depression, but there are ways to cope.
    “Sitting at home by yourself all day is not fun.”
    @ 42m 26s
    November 19, 2025
  • Finding Purpose
    Finding a purpose is essential for mental well-being, especially during tough times.
    “You need something to make yourself feel fulfilled.”
    @ 42m 51s
    November 19, 2025
  • The Impact of Losing Independence
    Losing independence can be one of the hardest challenges to face after a life change.
    “Losing your independence was horrible. Absolutely sucks.”
    @ 49m 42s
    November 19, 2025
  • A Special Bond
    He reflects on the deep connection he had with his dog, Blaze, and how it helped him through tough times.
    “He was very protective of me, which was pretty funny.”
    @ 55m 36s
    November 19, 2025
  • Final Words
    He shares the last pep talk he gave to his dog, emphasizing their strong bond.
    “You will always be my best buddy.”
    @ 56m 59s
    November 19, 2025
  • Navigating Life Changes
    He discusses the challenges of adjusting to life after losing his vision and how it has impacted his career aspirations.
    “Life kicks you in the ass.”
    @ 01h 08m 40s
    November 19, 2025
  • A Surreal Moment
    Wearing the New Zealand skin suit for the first time brought tears to my eyes.
    “I was looking up and I was speaking to my granddad.”
    @ 01h 17m 45s
    November 19, 2025
  • The Importance of Self-Advocacy
    It's crucial to not just accept a doctor's word; do your own research.
    “You have to be your own best advocate.”
    @ 01h 21m 11s
    November 19, 2025
  • A Tattoo with a Twist
    His tattoo carries a meaningful message, albeit with a humorous mistake.
    “God always has something for you.”
    @ 01h 31m 44s
    November 19, 2025

Episode Quotes

Key Moments

  • Acceptance36:27
  • Anger and Frustration45:21
  • Rock Bottom46:52
  • Grieving Independence49:42
  • World Championship Journey1:16:17
  • Mental Health Awareness1:26:14
  • Tattoo Story1:31:33
  • Individual Struggles1:35:05

Words per Minute Over Time

Vibes Breakdown