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Life with Cerebral Palsy: Mark Wilson aka Wobbles on Dating & Defying Expectations

November 30, 202501:34:22
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>> Top tier.
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Maximize. Generate. putting performance
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first.
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>> Mark Wilson, welcome to my podcast.
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>> Thank you. I'm very happy to be here.
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>> I'm happy to have you here. Um, you got
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this new book out, Wobbles. Where where
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did the nickname Wobbles come from?
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>> Uh, well, the people who are watching
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this will probably work it out, but um,
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but I was listening. Uh I have cable py
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which means I
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uh move around a lot quite a lot quite a
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bit more than most people. That's why
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I'm so skinnier as well. But not because
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I've under um so yeah, bubble this is a
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lick name that was um bought bought up
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and I thought you know what um it
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describes
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how I move um and it was sort of one of
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those things you know I did get bullied
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a lot though
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taking away one name I guess and owning
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It was I only it myself.
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>> Oh, like Yeah. So re reclaiming it.
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>> Absolutely.
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>> Are there any other any other names or
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words that you've reclaimed?
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>> Really get offended very easily. they
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get most
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most I like to have a bit of a laugh,
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you know, and um yeah, just words,
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you know, I get um just with my
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movements
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like how yeah, how I move, how I, you
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know, eating can be quite fun to watch.
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So, you know, um quite often my fingers
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get described as a bag of twisties. um
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which which cats and dogs love,
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especially if they're affectionate. But
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um
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>> yeah, like I say, I yeah, I do like to
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kind of have a bit of a laugh with
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>> with most situations. Um I feel like no
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matter what the situation, if you can
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sort of see any any funny joke, make the
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difficult parts a little bit easier to
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deal with.
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>> Yeah. My my hope um with this podcast is
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that um first of all it allows people to
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get to know you a bit better cuz you're
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a good bastard. Um and secondly it gives
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gives you people a greater understanding
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about CP and what it means to live with
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CP because I think a lot of us don't
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sort of have an understanding. Um so
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it's great to have you here and your
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your book by the way amazing wobbles. So
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people can look for that online and buy
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it online. Um but this is um apart from
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the beginning of it which sort of sets
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the tone for the book. If I'm going to
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tell my story, it's not going to be
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depressing. There won't be any feeling
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sorry for myself. I'm not a winger and I
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try to stay positive and that sets the
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tone for the book.
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>> Yeah. Um, like I say, it wasn't going to
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be what I was seeing. I'm very much a
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look at the butt side. Um, and I I I
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believe that um
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if you can't laugh at yourself or you
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know, then what you know what's the
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point? Well, everyone kind of has things
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going on, things they don't like about
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themselves or um but it's not it's I
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don't tend to take myself too seriously.
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I like to focus on what I can do rather
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than the things I can't do.
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>> And yeah, I wanted that to come across
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in the book.
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>> Yeah. Oh, and it did come across um
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Yeah. Yeah. Very very well. [ __ ]
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There's some good stories in there.
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>> Some of I'm reading I'm like, why would
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he why would he choose to leave this?
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>> Actually, I've got um I got a a visual
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um show and tell thing to begin with.
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What are what are these? paper clips. My
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nemesis.
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>> What's the significance significant of
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these little plastic things?
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>> These paper clips. Well, now they're
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paper is even worse. Um, but yes, brick
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clips are my nemesis. So why
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>> um my fine motor skills are the most
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effective of my py. Um, so for me trying
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to trying to take a break off a bread
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bag
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involves your two, you know, index
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finger and your thumb, which mine don't
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do as they told ever. M
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>> um so yeah, if I try and make myself a
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sandwich, I I end up with a
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deconstructed,
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you know, piece of bread that I've tried
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to push out a tiny hole or I just grab a
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knife and cut the bag open and then all
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the bread ruined for everyone else. So
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yeah, they like, you know, keep the bird
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fresh, but um whoever invented those did
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not have cable pausy at the front of
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their mind. What what what other um
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day-to-day things that that um some of
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us would take for granted um that you
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struggle with? Like can you do up the
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buttons? I'm I might ask some really
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dumb questions here, but I promise it
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doesn't I was going to say it doesn't
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come from a place of ignorance, but
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actually it does.
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>> That's fine. That's why I'm here.
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Can you can you do up buttons on your
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shirt?
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>> I cannot do up buttons. So, as much as I
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would like to sit here and look all
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sexy, my partner was not keen. So, um
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yeah, our morning routine looks quite
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quite different to a lot and uh it takes
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it takes a lot to get me to as people
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see me here. And at work, um, my partner
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has to prepare
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prepare my breakfast and then also feed
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it to me cuz I can't feed myself.
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>> Um, and then obviously, yeah, to get
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ready for work, I have to button my
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shirt up before before I leave the
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house. Um
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yeah, so certain things like that which
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I I guess are not not quite normal for
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anyone else. Um I always have to be uh
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conscious of okay who's around how can I
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get what I need today? So I need you
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know food, water to get dressed for
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work. Um and how is it going to look?
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I guess my life revolves around being
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reliant on other people, which is which
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is quite
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it's it's hard. I obviously prefer to be
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a lot more independent, but that's not
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the case. Um but yeah, I
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it it works and we I want to be uh part
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of society like everyone else, which is
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why when I'm outside of home. Um you
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won't see a lot of that going on. When I
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leave the house, I'm prepared. I have
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everything I need to get me through that
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that day or that event or or whatever.
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But um yeah, and obviously coming home
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but work at least is there my partner is
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there again to to feed me. Um yeah,
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we're lucky that we have um you know, my
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mom and dad are still around and her
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parents as well.
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you know, cuz I don't want uh my partner
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to miss out on things like, you know,
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going away with the girls or with work.
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Um because she feel like she has to, you
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know, feed me or be my
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>> be my helper. I didn't want to help her.
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I wanted a partner.
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>> Yeah.
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>> Um so that line gets very can be quite
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bad. But yeah, um yeah, we we like to
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have mom and dad around to to kind of
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step in when so can still go and do
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those things just as I can. Um yeah. So
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yeah, it's um we make it work. And I say
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it's all because um yeah, I I feel like
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I don't have any excuse not to be, you
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know, out there working, contributing.
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Yeah.
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Yeah. It's a it's um I mean there
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there's not an ounce of self-pity from
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you, but it's it's a rough hand to be
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dealt because everything is that much
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harder. But um it's worth pointing out
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um like you're an incredibly smart dude
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like in the top 15% of your classes at
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university. You got a business degree.
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You work as a business an analysist
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at um A&Z Bank. Um you're you know
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you're a smart guy and you're
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contributing member to society, but
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everything just takes that much longer.
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It's it's it's it's rough.
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>> It is. Yeah, it is rough. And I I don't
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like to dwell on it, but I do like that
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um the book has kind of opened a little
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bit of a window into what it's like. And
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I guess talking to um
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>> on these kind of platforms is another
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really great way just so people
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can just Yeah. pull the curtain back and
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say, "Holy crap." Like
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>> like
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to to see my at work. they see me as a
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colleague and probably no idea what goes
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on to to get me to that point. Um, but
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no, I I say before I don't like to dwell
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with it and yeah, I don't feel I have
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any excuse not to be not to be out
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there.
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>> So, um, you can you you've got your
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license, you drive your own car.
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>> Yeah.
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>> Is it is it mod modified or anything?
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>> I was quite fortunate. My my father and
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all his fatherly wisdom decided that
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before I could walk, I was going to
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drive a go-kart.
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I didn't walk till I was 6 years old. Um
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he got me the go-kart at five and he was
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sort of like, well, if he's not going to
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walk, you're still going to get around
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somehow. Um which made it a lot easier
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when it came time to get my driver's
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license. Um and that is one of the
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things that really changed um
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changed my life. Um it gave me a whole
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new independence
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cuz I'm so dependent back then on my
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mom.
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>> Um and then I was like all of a sudden,
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wow, I can take myself to school. I can
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go and see my my f my other family
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members. I Yeah, it was just it was it
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was really cool. So, yeah, quite
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fortunate. Um I aced all the driving uh
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lessons and um tests and all that. Um
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and yeah, my dad also is into cars. So
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very yeah
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as as well as the daily brother I I own
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a V8 hold in Kingswood 1973. So
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>> yeah you're a bogan e
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or Aussie or whatever you want to call
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me. I prefer boers cuz I'm definitely
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not Australian. Um
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>> but yeah. No it's good.
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>> You well full transparency I I drive a
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Holden as well. I didn't realize it was
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a bogan car until I got it. I got a
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Holden Commodore and my sister said to
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me, um, she goes, "Oh, you're a you're a
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cub." And I said, "What's a cub?" She
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said, "It's a cashed up bogan."
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>> But you're, um, I'm not a bogan, though.
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Like, but you you were a full bogan.
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Like, um, yeah, your favorite band's
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Devil Skin. You
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>> Absolutely.
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>> You've been to more Devil Skin concerts
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than maybe the bass player of Devil
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Skin?
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>> Probably. Yeah. Yeah.
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>> Like 100.
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>> It's insane. Yeah. I think I I think I
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went to two I think I went to three of
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their concerts on one of their tours.
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just a bit is a bit lut. But I love
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Yeah, I do. I love rock music. Devil
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skin was kind of coming on the scene
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when I got into into rock music and I
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just was like, "Oh, wow. These two guys
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that go, "Oh crap, they're from New
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Zealand." Like that's even that's even
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better. Yeah.
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>> And massive massive um Greg Murphy fan.
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He was probably your favorite athlete
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growing up. Have you have you met Murf?
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Do you know Murf?
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>> I have not met Greg yet. And it would be
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great to be able to or even get him a
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copy of the book cuz he he is uh he does
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get a mention.
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>> Well, he he gets just about as many
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mentions as your mom.
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>> He's so thirsty for M.
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>> He was childhood idol. Um yeah, but um
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yeah, he he was your dad loved V8 and he
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was the Kiwi driver.
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Yeah. So, he was a like you did child
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childhood idol. Yeah. Growing up.
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>> So, um there's there's a phrase that um
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people use these days when they they
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talk about um when they talk about
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different sort of um I don't know if
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disability is the words, but if they if
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you talk about ADHD or you talk about
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autism or you talk about CP, there's a
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phrase that people use. They say it's a
00:14:07
superpower. Have you heard that?
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>> I've heard it. I don't quite
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>> Yeah. Would you say it's a superpower? I
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haven't quite got uncomfortable with
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anything, but I I haven't quite I guess
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you could say own that word yet. It's
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not really um I think uh
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the some of the things that I can do
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because of my zero could be a superpower
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like like what I can cut my lines at the
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airport
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like that's awesome. Like people love
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traveling with me because it's like boo
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just get my Oh yeah. So yeah all the
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kids probably not after this but
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everyone knows my secret now. Um and you
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you got um when you were little you got
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a you some of your poor behavior got got
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let off. You were excused.
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>> Yeah. A bit like that. I had a teacher
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Yeah. It was my mom actually made him
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discipline me cuz he wasn't going to but
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uh yeah mom got in there made sure made
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sure I got the same punishment which is
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good I want to be treated like everyone
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else. Um but yeah back then I was like
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what are you what are you doing? But no,
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so the word superower I I think in the
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in the
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in the context of what I can do um
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because of it that some people can't
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maybe
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>> maybe but I I do like that it's it's a
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good word that is associated
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with disability. Um
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>> cuz quite old they just like [ __ ] or
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handic handicap they still carry some
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kind of negative and people getting can
00:16:03
become offended by those words. I
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certainly got called a lot though those
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things. Um,
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but yes, so I guess any any word that
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empowers
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disability is is great, far better than
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the ones that I I just mentioned.
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>> Yeah. Oh, well said. All right, let's go
00:16:25
back to the early years. First of all,
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Mark Wilson, what are your earliest
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memories? my earliest memories.
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You got to be careful here because I've
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obviously read my own I've read my own
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story from the aspects of my mom. So try
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not to make up my um memories.
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There's there's memories of being fed my
00:16:50
back then, you know, I had a bottle um
00:16:53
from my dad. That was always one of my
00:16:55
my favorite times. um in the morning. Um
00:17:02
yeah, in our in our old house. That
00:17:04
would probably be one of my earliest
00:17:06
earliest memories.
00:17:09
>> I I did a lot of therapy as a kid. Yeah.
00:17:12
>> Like not like um
00:17:15
therapy as we used
00:17:17
>> physical therapy.
00:17:17
>> Yeah. Physical. Um
00:17:20
>> I don't actually have a lot of memory
00:17:22
>> of that. I'm not sure if that's because
00:17:25
I was young or because it was a a time
00:17:30
for us.
00:17:31
>> Um,
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which I'm I think I'm quite lucky cuz
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I've only got good memories of
00:17:37
>> both my mom and my dad as as a kid, but
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it was very different for
00:17:46
>> for them. Um,
00:17:49
yeah. So, so I think that would be the
00:17:52
first kind of Yeah. in the lounge with
00:17:54
dad.
00:17:55
>> Mhm.
00:17:55
>> Yeah.
00:17:56
>> The um in your book Wobbles, there's um
00:17:59
there's sections that are written by
00:18:00
your mom and sections that are written
00:18:01
by your dad. And [ __ ] the the work they
00:18:03
put in to um create the man that's
00:18:06
sitting in front of me today. It's
00:18:07
tremendous. E it's a it's a tremendous I
00:18:10
I suppose sacrifice is the word. Like
00:18:12
the um the outcome for you at birth was
00:18:13
that you you don't be unlikely to ever
00:18:15
walk or talk.
00:18:16
>> Yeah, that's correct. Yeah. So my mom
00:18:18
and dad were told I would never walk or
00:18:21
talk. Don't And I also told
00:18:26
like what what does that mean? Yeah.
00:18:28
Don't expect much. That's that's you. Um
00:18:32
and dad
00:18:34
he was really he didn't like not being
00:18:38
able to do anything. He's like there's
00:18:41
got to be something I can do to help.
00:18:45
Um, and they had no idea of what my
00:18:48
future looked like. They just wanted to
00:18:52
do anything something. Um, and yeah, the
00:18:56
fact and it was a sacrifice. Um,
00:19:01
the fact that they're still together is
00:19:04
an absolute miracle. And there's no
00:19:07
other way to put it cuz I know families
00:19:10
that
00:19:11
>> didn't do a program but have disabled
00:19:14
children and it's just unfortunately it
00:19:17
becomes too much and you get consumed by
00:19:20
it and um unfortunately you um there's a
00:19:25
highlight separation of
00:19:28
>> um but yeah my parents are they st by
00:19:31
each other um through some really tough
00:19:36
really tough times and I'm I'm very
00:19:38
thankful. Um I was born into amazing
00:19:42
parents. Um
00:19:46
it's my I know it's my story but I guess
00:19:49
reading it from my dad's and and my
00:19:53
perspective even made me think like you
00:19:58
know would I would I be that dedicated?
00:20:02
Would could I do what they what they did
00:20:07
if I hadn't I don't have children but
00:20:10
could I you know would I be willing to
00:20:13
do what they did to sacrifice so much
00:20:15
and it's a
00:20:16
>> it's a question I Yeah.
00:20:20
Yeah. Absolutely. Yeah. Cuz it was
00:20:22
>> I think you just would it's it's
00:20:23
unconditional love at the end of the
00:20:25
day.
00:20:25
>> Absolutely. Yeah. There's um yeah in the
00:20:28
opening chapter from um your mom Shirley
00:20:31
um there's there's a quote here um which
00:20:34
is just [ __ ] heartbreaking um I was
00:20:36
such a bad mother a complete failure
00:20:39
every night I hated my son and I hated
00:20:42
myself even more for hating him. Yeah.
00:20:45
Like when when you're reading the draft
00:20:46
of the book and you read that how how do
00:20:49
you feel?
00:20:51
I I read it, this is going to sound
00:20:54
weird, but I read it as though I was I
00:20:57
was reading it from an outside like it
00:21:01
didn't really register that that was my
00:21:04
mom or she was talking about me. I was
00:21:07
just reading it as like like anyone else
00:21:11
would read it. M
00:21:13
>> and then there was like the the second
00:21:15
part kicked in which is what your which
00:21:18
what you used to listen to was holy [ __ ]
00:21:22
that's my mom
00:21:23
>> you're talking about me
00:21:25
>> that's my that's her story and that's
00:21:27
what I I led her to feel like that and I
00:21:33
got not that it was my fault but I I
00:21:37
didn't feel bad or like hated or
00:21:40
anything I just like uh like
00:21:44
just yeah felt very I felt sorry for um
00:21:50
and yeah just I
00:21:53
but with me I'm like so thankful cuz I
00:21:55
know she didn't she didn't do all that
00:21:59
and go through those difficult times and
00:22:02
>> as you said I wouldn't be here talking
00:22:04
to you like this um yeah know if it
00:22:07
wasn't for their hard hard work your
00:22:09
life would look completely different
00:22:10
Where is there a moment like do you
00:22:12
remember the the first time that you um
00:22:14
became aware that you were different?
00:22:17
>> Uh yes I do. Um
00:22:19
the therapy involved
00:22:22
30 volunteers coming into our house
00:22:25
every week.
00:22:26
>> Wow.
00:22:26
>> We worked 4 hours a day, six days a week
00:22:29
on on doing on doing exercises. Um and
00:22:35
that was up until I was still 6 years
00:22:38
old. So my from birth to six, I had just
00:22:44
been surrounded by people that knew the
00:22:47
situation in me. I had this great like
00:22:50
village I guess and they all be there
00:22:54
for one goal and that was to get my
00:22:57
talking or walking or or whatever. Um,
00:23:01
and then where I went to school,
00:23:03
a mainstream school, I had a walking
00:23:07
frame and no other kid had walking
00:23:10
frame. I had a teacher aid, no other kid
00:23:14
had teacher aid. And I was like, ah, all
00:23:17
right. Like I always knew like mom and
00:23:20
dad I knew I was different because I had
00:23:22
cousins and stuff and
00:23:25
a sister
00:23:27
but I never
00:23:29
never really I never sunk in that I was
00:23:33
actually like not like everyone else.
00:23:37
>> Yeah. Um, so yeah, thankfully primary
00:23:41
school kids are are more curious than
00:23:45
anything. They they see someone like me
00:23:47
and they they want they really, you
00:23:51
know, you would think they're rude, but
00:23:54
they just they just want to know.
00:23:56
>> It's innocence.
00:23:57
>> Yeah, it's so innocent. And um and once
00:24:00
they know, that's it. They just want to
00:24:03
carry on. they want to play or you know
00:24:07
it's it's so easy. Yeah, my my primary
00:24:10
school was
00:24:12
would filled with lots of fun and
00:24:14
friends and there was the you know as
00:24:17
you go through the years everyone knows
00:24:20
who you are and the young ones all kind
00:24:22
of get you know get older that's my you
00:24:26
know don't believe everyone half the
00:24:29
school
00:24:31
um
00:24:33
yeah stepping out of primary school into
00:24:37
into college was where um
00:24:41
that was where I really kind of it
00:24:44
really set in me that okay
00:24:47
>> I'm a hell of a lot
00:24:49
>> um
00:24:50
>> and like
00:24:53
since that point
00:24:56
my cable py was always viewed as a good
00:25:00
thing
00:25:01
>> like like you said hey maybe that word
00:25:04
is good like a superpower I guess Um and
00:25:08
then it was quickly turned around and um
00:25:12
what the I guess it was the butt of
00:25:15
every joke at school. It was um
00:25:19
Yeah, it was the most low hanging fruit
00:25:23
I guess. And um
00:25:24
>> is this secondary school we're talking
00:25:25
about here?
00:25:26
>> Secondary school. Yeah.
00:25:27
>> Did Did you Did you spend much time like
00:25:29
wishing things were different or asking
00:25:31
why me? I mean you're such a positive
00:25:33
guy now, but were there periods or
00:25:34
patches?
00:25:36
like like kind of a what if thing?
00:25:39
>> Yeah. Well, just like why me? Why you
00:25:41
know?
00:25:42
>> Absolutely. Like even even today I you
00:25:47
know I I want to go and have a pie like
00:25:51
I can't do that. You know why? Yeah.
00:25:55
I I carry on. But um yeah, in those in
00:25:59
those years definitely, you know, lying
00:26:02
in bed, didn't want to get out of bed
00:26:04
because I knew what school was going to
00:26:06
be. And you just look at everyone else
00:26:09
at school.
00:26:11
>> You got 1,200 kids and here I am. It's
00:26:16
like, well,
00:26:17
how what? Yeah. So, absolutely. I had
00:26:21
that. Why me? Um,
00:26:24
yeah, it pissed me off, but I think my
00:26:28
my upbringing was is not to feel sorry
00:26:32
for yourself and um I never really let
00:26:36
it get
00:26:37
>> get beyond get beyond that and um chose
00:26:41
to focus on on more positive things.
00:26:45
>> Yeah.
00:26:46
>> How um yeah the the the bullying at
00:26:49
school what like what what did it look
00:26:50
like? What were they saying or doing?
00:26:52
But you know you you get bullies and you
00:26:54
get the you get the ones that not many
00:26:58
brain cells to put together. So you know
00:27:01
they just they say what they say it's
00:27:04
like [ __ ] or that was a big one or um
00:27:08
something they got quite clever. I
00:27:10
remember when KFC did a a promotion on
00:27:16
boneless chicken.
00:27:18
I got called by the chicken for for
00:27:22
quite a while. Yeah,
00:27:24
I was like girl
00:27:28
original.
00:27:29
>> Yeah. Yeah.
00:27:30
>> Yeah. So that one stood out. But now the
00:27:34
big one was
00:27:37
handy [ __ ]
00:27:39
>> It's disgusting.
00:27:41
>> Yeah. Oh, it it was what it was. um
00:27:46
I had quite the quite the vocabulary
00:27:50
as as well. So um I didn't
00:27:55
I wasn't one to just take it. I sort of
00:27:58
used my um my cousins on the farm and
00:28:03
they had them their old they taught me
00:28:06
some colorful language out there. So
00:28:08
yeah, I would always fire something back
00:28:11
twice as bad as what they would and I'd
00:28:14
be the one that got in trouble.
00:28:20
You know, you know, you you sort of
00:28:22
allude to this in your in your book, but
00:28:24
it's um the way it's written, it's very
00:28:26
politely, but um yeah, this is a
00:28:28
podcast, so it's the wild west. Anything
00:28:32
goes, what what were some of the
00:28:33
retaliations? You you'd say to them that
00:28:35
you you [ __ ] their mom.
00:28:37
>> They were some something very Yeah.
00:28:40
>> Like what exactly?
00:28:42
>> It' be oh, you know, I get called
00:28:44
something and I'd say, "Oh, your mom was
00:28:46
loving it last night."
00:28:52
Yeah. And um yeah, I used to get more
00:28:57
the bullies for the girls when I would
00:29:00
say, you know, you wouldn't even get to
00:29:03
the hook or
00:29:07
so they call me this and I'd fire back
00:29:10
that I'd fire that with that and
00:29:14
was in the pit office.
00:29:17
I sometimes you'd even say to the
00:29:19
bullies that you you you'd done sexual
00:29:21
stuff with their dad.
00:29:22
>> Absolutely. Nothing nothing was off
00:29:25
limits, right?
00:29:27
You you have a go at me. I I'll have a
00:29:30
go at you. But be prepared. I think one
00:29:33
one girl even even uh she started
00:29:37
crying. I was like, "Hang on, you're the
00:29:40
one that go um and you can't cop it.
00:29:45
Don't don't don't d it out.
00:29:48
>> Um
00:29:50
yeah, they were some of my um more more
00:29:53
out there comments that would have me
00:29:55
quite a lot quite a lot of trouble. Um
00:30:00
but yeah, usually it was just a lot of
00:30:02
swearing at them or, you know, drop the
00:30:05
bomb in there and
00:30:06
>> and stuff. It was I don't feel bad for
00:30:10
it. Um, and it it didn't it doesn't
00:30:14
help. I still got bullied. Like
00:30:17
>> I guess it was a sort of a small wind
00:30:21
type thing, but
00:30:23
>> I looking back maybe I don't know if I
00:30:26
would have handled myself any different.
00:30:28
No, I
00:30:31
it was at the time like I say as
00:30:37
gave me a small win but I can put up
00:30:40
with name calling I don't that like [ __ ]
00:30:44
whatever you know the more the better
00:30:47
that's why
00:30:49
but the um
00:30:51
>> what really got to me was the the social
00:30:55
exclusion
00:30:56
and it was
00:30:58
yeah to the point where
00:31:01
the bobbies would
00:31:04
bobby anyone who even tried to talk to
00:31:07
me or become my friend. So that's like
00:31:12
that was what got me. Um, and
00:31:16
unfortunately it was I'm not sexist but
00:31:19
it was the girl like guys did say
00:31:22
something you punch in the face and you
00:31:26
carry on. But man, girls get they get
00:31:28
really really nasty and um yeah, so why
00:31:34
would you come and hang out with Mark if
00:31:36
you're going to get bullied for it like
00:31:38
that? So, so yeah, that was a new one
00:31:41
for me cuz I' i'd never experienced that
00:31:44
before at P music school. Um,
00:31:48
so yeah, that that was that was probably
00:31:50
the toughest part of part of it.
00:31:52
>> Yeah. So, were you there that was the
00:31:55
worst time of your life, would you say,
00:31:56
through high school?
00:31:59
>> Definitely one of the worst. Absolutely.
00:32:01
Um there were people in the school I
00:32:06
guess worried but I I I
00:32:10
wasn't a telltale cuz like I always see
00:32:14
something
00:32:16
twice as bad as back if I tell someone
00:32:20
they've got they got ammunition as well.
00:32:24
So I should have just shut my mouth but
00:32:27
you know here we are. But um
00:32:31
so no it was um it was definitely
00:32:35
definitely one of the double time they
00:32:37
were concerned you know school
00:32:40
counselors got involved just on my part
00:32:44
but not many people I don't think anyone
00:32:49
knew
00:32:51
my mom and dad didn't know until they
00:32:54
read the book so
00:32:55
>> Oh really? That was quite
00:32:58
>> That was quite That was probably the
00:33:01
hardest bit for both mom and dad to like
00:33:06
they were just getting told, "Oh, Mark's
00:33:11
not doing or he norally does or Mark
00:33:15
said this to someone." Um and I just
00:33:19
take the pose.
00:33:21
>> Why um why did your parents not know
00:33:23
until the book was coming out? you when
00:33:25
you read the book, you get a sense of
00:33:26
your upbringing. Your parents, as we've
00:33:28
established, they they did all they can
00:33:30
to give you the best life possible. They
00:33:32
didn't want you to be treated any
00:33:33
differently. Um there were even times
00:33:35
where they forced the school to punish
00:33:37
you cuz the school was going to Why Why
00:33:39
didn't you go home and tell them what
00:33:40
was happening at school?
00:33:42
>> It's almost like you're protecting the
00:33:43
bullies in a way. Well, I said before,
00:33:45
I'd say something's quite as bad, but
00:33:49
like I'm going to get myself in trouble
00:33:51
as well, but I I guess I'm just not not
00:33:56
really a telltale. That was sort of the
00:34:00
that was where it come from. And I don't
00:34:03
I think also I I thought at the time
00:34:10
um that would bring more attention
00:34:14
to me like you know if the if that was
00:34:18
happening the school were very quick to
00:34:22
put it in a news like we don't tolerate
00:34:24
this
00:34:25
>> okay
00:34:26
>> or or get me get take make a big
00:34:29
statement at assembly I'm like I don't
00:34:32
want to be single out like that's why
00:34:35
I'm getting bodies in first place like
00:34:37
it's um a little more
00:34:41
um but Yeah, that's why I didn't really
00:34:46
I didn't really tell anyone.
00:34:49
Yeah. Um, what about you had a teachers
00:34:51
aid? Where was your teachers aid when
00:34:53
when all this was going on
00:34:54
>> again?
00:34:57
I sort of had it from her as well. At
00:35:00
lunchtime, I didn't have a teacher aid.
00:35:02
>> Yeah. Um,
00:35:05
and they
00:35:07
I guess they didn't really know me from
00:35:09
primary school, so they kind of maybe
00:35:11
thought this was my behavior was was
00:35:15
just me. That was how I was. Um, no,
00:35:19
look, I don't blame anyone. Like the
00:35:22
schools are always they do their best,
00:35:24
right? But in my view, there will always
00:35:27
be bullies
00:35:29
no matter what you do. Every school has
00:35:30
them. M
00:35:32
>> um and I unfortunately you know you got
00:35:37
to find your own way to to kind of cope
00:35:41
and look absolutely education is great
00:35:45
knowing that it's not okay you know um
00:35:49
that's great too but the the best thing
00:35:52
you can do is is just play and find
00:35:55
something that you love outside of
00:35:58
outside of that um issue and just focus
00:36:02
on that. Just go go for that and you
00:36:05
know you got amazing parents or someone
00:36:08
around you. Um that's what get me going
00:36:12
was I had this amazing
00:36:15
network outside of school.
00:36:19
So I was only at school for so many
00:36:22
hours a day and after that I was like I
00:36:26
had a great network of people. I had my
00:36:28
family. of doing cool things. Um, I just
00:36:34
did my best to focus on on on that side
00:36:38
of my life rather than getting bogged
00:36:41
down in
00:36:42
>> what was going on at school.
00:36:44
>> What would from what I can gather, I
00:36:47
think I may have read this in your book,
00:36:48
there's something like 1,700 people in
00:36:50
in New Zealand with CP.
00:36:53
What would your message be to like any
00:36:55
any younger person that's still going
00:36:57
through school that has CP? What would
00:36:59
you say to them?
00:37:00
>> Exactly. That is just yeah, find
00:37:03
something that you enjoy or focus on the
00:37:07
people who do love you and support you
00:37:11
and like
00:37:14
you don't need to worry about the other
00:37:16
people. They're not even be
00:37:20
for five or six years. They'll probably
00:37:22
go to um clean the toilet somewhere
00:37:27
after, you know,
00:37:28
>> or be hookers.
00:37:29
>> That's right. Yeah. Yeah.
00:37:34
[ __ ] a savage. Actually, there's
00:37:37
Yeah. Um there there's even a story you
00:37:39
you told a stranger to [ __ ] off when you
00:37:41
were four.
00:37:43
>> Yeah. Yeah. I think mom tried to cover
00:37:46
that one up and was like, "No, that's
00:37:49
not what he
00:37:51
was exactly what I said."
00:37:55
>> How How did you know the f word at four?
00:37:57
Like I say, I c
00:38:00
>> and um and dad's language wasn't the
00:38:03
greatest I
00:38:08
swear as bad just in context. It's okay.
00:38:11
Um and yeah, we just got brought up.
00:38:16
>> It was it was like you were born a
00:38:17
bogan. Eh,
00:38:18
>> but having 30
00:38:21
strangers volunteers, they were
00:38:24
strangers. We used to advertise in the
00:38:26
paper
00:38:28
for help with my therapy. So, and there
00:38:31
was no police meeting back then or
00:38:34
anything. He's just like, "Yeah, we're
00:38:36
taking anyone we could." Like, "Yeah,
00:38:39
you want to put up with my son for now?"
00:38:41
Yeah, go for it. Um, and they all had
00:38:45
colorful language and stuff. They were
00:38:48
all all of them were such amazing
00:38:52
people.
00:38:53
I just love that they're part of my
00:38:58
story and journey. Not one of them was
00:39:02
had negative experience stuff and we got
00:39:05
we were very um spoiled who we got to
00:39:09
come into our house. It was great.
00:39:12
>> Yeah. So these these volunteers So
00:39:13
that's I'm I guess this is like the late
00:39:16
' 90s early 2000s.
00:39:18
>> Yes, that's right.
00:39:19
>> Yeah. What was in it for them? Just a
00:39:21
sense of a sense of goodwill
00:39:23
>> giving back.
00:39:24
>> Yeah. Mom was always really big on like
00:39:27
she hated me and it's like why would any
00:39:30
other person I mean willingly choose to
00:39:34
like be with my son. Um
00:39:38
but the world is is good and this is why
00:39:40
I love I love doing what we're doing. I
00:39:45
love talking. I love hearing people's
00:39:47
stories. I love sharing mine
00:39:50
is that there are such good people out
00:39:53
there. M
00:39:54
>> and that they you're right, John. They
00:39:57
did it for just the good of um
00:40:02
there was one man he
00:40:07
um he just said it um it changed his
00:40:11
life by helping me change his life. he
00:40:15
um wasn't very present with his kids
00:40:20
back when they were young and he still
00:40:23
kind of saw it as a not making up or
00:40:26
maybe yeah making up for that and it's
00:40:29
um so you don't know what people's
00:40:31
legends are.
00:40:32
>> Yeah,
00:40:33
>> we were just very
00:40:35
thankful that they were there. Um and
00:40:38
yeah, I'm still friends with some of
00:40:41
them today which is good.
00:40:43
>> Yeah.
00:40:45
Um,
00:40:46
just back to the bullying thing. So,
00:40:48
after leaving school, like um have have
00:40:50
you bumped into any of these bullies?
00:40:52
You seen seen them in the wild? Um,
00:40:56
not I did get one of them a few years
00:40:59
ago. Maybe it was after a concert. I did
00:41:04
bump into at the end I bumped into a few
00:41:07
at a concert or out in town when I was
00:41:11
18, 19. Um,
00:41:14
and I was fortunate to have my own
00:41:17
friend. I had a good friend group uh
00:41:20
after school and yeah, they want to come
00:41:22
up and pretend everything was great and
00:41:26
it's like hang on like you were [ __ ] I'm
00:41:29
not talk to you. It's like I didn't
00:41:33
remember what you did like um Yeah. And
00:41:36
they were Yeah. They wanted to talk cuz
00:41:40
everyone was like, you know, I was
00:41:43
having a good time with people and they
00:41:46
kind of try and get it's like no, hang
00:41:49
on. I'm not Yeah, there's no I know what
00:41:52
you did. Um, and yeah, I I haven't fell
00:41:56
into many, but yeah, definitely a few.
00:41:58
It's been interesting how they just uh
00:42:02
very short memories.
00:42:03
>> Yeah. Yeah. You wonder you wonder how
00:42:05
they how they reflect on that time and
00:42:06
maybe maybe they've minimized their own
00:42:08
behavior or maybe they feel guilty for
00:42:10
being [ __ ]
00:42:11
>> I do have a good story. I when I first
00:42:15
moved to Aland I moved out with my mate
00:42:18
but he went uh away and lives in the UK
00:42:23
and he is my carer. So I got another car
00:42:27
and and he was actually a bully from my
00:42:30
school that bullied me.
00:42:32
>> Oh. And the first thing I said to him
00:42:34
when he walked in, I'm like, "You used
00:42:37
to bully me." And he goes, "Yep, I was
00:42:40
an absolute [ __ ] at school and I'm
00:42:44
so sorry." And that's the only time I've
00:42:47
he owned it. He's just like, "Yeah, I
00:42:49
was a prick. I was an absolute He said
00:42:52
the C word of a child." Um, he just
00:42:56
owned it and we became great mates. Like
00:42:58
he he was such a good carer. M
00:43:01
>> um and we joked about it but after that
00:43:04
but so that was the one moment where
00:43:07
yeah someone has actually owned it.
00:43:10
>> Yeah the impact um god kids can be so
00:43:13
cruel eag
00:43:15
>> I'm getting upset just thinking
00:43:17
teenagers you think you think they'd
00:43:18
know that's an age where you'd know
00:43:20
better but I suppose it I don't know I
00:43:22
don't know
00:43:23
>> you're a lot more socially aware of like
00:43:26
of your image which I hate. I'm
00:43:29
>> I'm such a big advocate for being
00:43:32
yourself, being genuine.
00:43:35
Um, and unfortunately, the way the world
00:43:38
is right now is going everything against
00:43:42
that.
00:43:42
>> Um,
00:43:44
>> you always trying to recreate someone's
00:43:47
Instagram page. Um, which ain't live.
00:43:50
It's a slipper of it's the good part of
00:43:54
>> it's not life. But unfortunately, we
00:43:57
live in a world where you kids are
00:44:00
striving
00:44:01
for that. Um, and when you're at at
00:44:07
college, you know, it's not very good
00:44:10
for your image, but it wasn't when I was
00:44:13
at college to to be hanging around with
00:44:15
a disabled dude.
00:44:17
>> Yeah.
00:44:19
Yeah, it's frustrating the way from what
00:44:21
I know about um CP is like on the inside
00:44:24
you feel completely normal, but it's
00:44:26
just this um this this disability or
00:44:28
this condition that's visible from the
00:44:30
outside, but anyone that takes um a
00:44:33
moment to and it does require a little
00:44:35
bit of patience like to get to know you
00:44:37
or to get to get through that. Um you
00:44:40
you get to meet a really good bastard. I
00:44:42
think I think that's that is my I will
00:44:46
call it a superpower is that I have an
00:44:49
amazing filter for [ __ ]
00:44:53
>> Um because as you just said it once you
00:44:57
take some time to get to know me, you
00:45:00
know, listen and you work out I'm just
00:45:03
like everyone else told this guy a good
00:45:05
bastard. Let's go have a beer. like um
00:45:08
that and the people that don't hear me
00:45:12
or they'll they'll talk overly or at me
00:45:16
and I've said something and they'll
00:45:18
answer with something completely
00:45:20
different. It's like, okay, you haven't
00:45:23
taken the time to try and understand me
00:45:27
or even ask me to repeat myself. Um you
00:45:31
know, it's probably a little bit insight
00:45:33
into the kind of person they are. So,
00:45:37
I'm left with like this pool of just
00:45:41
really good people
00:45:42
>> that are genuine and yeah I I say
00:45:47
definitely a superpower I can I can spot
00:45:50
[ __ ] for my a mile away.
00:45:54
>> Yeah
00:45:56
of experience you weed out the fakes.
00:45:58
>> Absolutely. Yeah.
00:46:01
>> Um what uh yeah when do you think your
00:46:04
mom's been most proud of you?
00:46:08
That's a good question.
00:46:10
Yeah. Um maybe the moving out home.
00:46:15
Um
00:46:17
possibly the jobs at the first job at
00:46:21
Jim and the second job at a dead.
00:46:26
I guess they were the things that
00:46:29
um
00:46:31
that you could never imagine
00:46:34
>> in those times that you you talked about
00:46:37
before that if someone told her that I
00:46:40
was going to work um
00:46:43
>> in the finance department for New
00:46:46
Zealand's largest bank, she was Thompson
00:46:49
to [ __ ] off.
00:46:52
>> She put my big cheeky or something just
00:46:55
Yeah. I didn't want to hear it. Um,
00:46:58
no. And I think and I have just bought
00:47:02
the house and she loves to see um
00:47:08
me and my partner and my partner's two
00:47:11
kids. He just love to see
00:47:13
>> me in a home with a family, I guess. Um
00:47:18
I think that's what she'd be most
00:47:21
>> proud of. But there's there's um yeah
00:47:23
there's so many um like milestones that
00:47:26
you've accomplished in your life that
00:47:27
that would make her proud. That's why I
00:47:28
thought that's a reasonable question to
00:47:30
ask cuz there's yeah little things like
00:47:32
I suppose there was a period there when
00:47:34
you were little where you both your
00:47:36
parents thought this is going to be
00:47:37
there a lot in life like looking after
00:47:39
looking after you. So to see you fly the
00:47:41
nest and have this independence. It's
00:47:43
it's it's [ __ ] cool.
00:47:44
>> Yeah.
00:47:45
>> It's really cool.
00:47:46
>> It was kind of a double sword for mom
00:47:48
though. Like that was her I was her
00:47:51
wife. M
00:47:52
>> for 23 years like
00:47:56
if her life revolves around me
00:47:59
>> and then one day that was just not there
00:48:03
>> and poor timing my sister who is able
00:48:07
she moved out two weeks later so
00:48:11
they really ripped the band-aid off.
00:48:14
>> Yeah actually we we haven't mentioned
00:48:16
your sister so yeah a couple of years
00:48:17
younger than you. She gets um she gets a
00:48:20
a bit of spotlight in your book as well
00:48:21
and she explains you know the the
00:48:24
difficulties of you growing up you know
00:48:26
being an able-bodied younger sister to
00:48:29
an older brother with cereble pausy like
00:48:31
you got more of the attention and
00:48:33
rightfully so as well but it's um yeah
00:48:36
it's just a perspective of it that I
00:48:38
suppose you don't most of us don't even
00:48:39
think about but it's really interesting.
00:48:41
Yeah. And I I'm really like amazed at
00:48:45
how she
00:48:48
like all the way through her part of the
00:48:51
book,
00:48:52
>> it's very um obvious that she doesn't
00:48:55
blame me. She knew that I needed this
00:48:59
attention. She still felt annoyed that I
00:49:02
was getting it, but she never hated me
00:49:06
for it.
00:49:07
>> Yeah. Yeah. Well, I I can understand
00:49:08
like the element of jealousy, but then
00:49:10
you think, would you want to swap
00:49:11
places? And the answer the answer would
00:49:13
be no, right?
00:49:13
>> As a 5-year-old, who thinks about that?
00:49:16
Like she she was always my friend like
00:49:20
when we were outside of therapy or if it
00:49:24
was just us, she we still play together
00:49:27
like she
00:49:29
>> she didn't have this hatred from me
00:49:31
>> even though I was getting all this
00:49:33
attention. Um, and I think that's quite
00:49:36
big of her and speaks to the person that
00:49:40
that she is. Um, but yeah, you do want
00:49:44
mom and dad's attention when you you're
00:49:46
growing up and they did their best to to
00:49:50
to do it, but it was tough. Um, but
00:49:54
yeah, I'm really taken back by how she
00:49:58
>> how she still stayed. Um, yeah, my
00:50:01
friend. Not. She wasn't She wasn't
00:50:03
angry. She didn't resent.
00:50:06
She doesn't resent me for it and she
00:50:08
still doesn't.
00:50:09
>> Yeah. When um um flip side of the
00:50:13
question before, when has your mom been
00:50:15
least proud of you and before you
00:50:17
answer, I'll give you a second. I've got
00:50:18
a bit here from the book.
00:50:20
>> I know that.
00:50:22
>> I I did worry about his friends who
00:50:24
derived great pleasure from taking Mark
00:50:26
to some rather inappropriate places. I
00:50:29
think to satisfy their own desires
00:50:30
rather than marks. What? Strip clubs.
00:50:33
>> Absolutely.
00:50:39
>> Yeah. They took great joy in being the
00:50:42
first one to take M shippers.
00:50:45
>> Yeah. And it was so they got more
00:50:48
attention cuz you know like the opposite
00:50:51
to school. He's taking disabled guy into
00:50:53
a ship club. He gets all they get all
00:50:56
the attention. Yeah. Um, look, I was a
00:51:01
normal 18, 19 year old just like
00:51:04
everyone else. And uh yeah, and I think
00:51:07
every every pub would would say would
00:51:11
say the same thing about their 18
00:51:13
19year-old son, you know, it's um which
00:51:17
again you
00:51:19
but that's cool too cuz she went from
00:51:24
holy [ __ ] is my son ever going to walk?
00:51:28
Is this going to be my life, too? Oh,
00:51:30
[ __ ] He's at
00:51:33
>> my son's a pissed.
00:51:38
>> He's gone too far.
00:51:40
>> Oh, I think I can ask you a
00:51:44
>> But no, I think that's no different to
00:51:46
getting. M um yeah there there's other
00:51:51
stuff in the book which I don't know if
00:51:52
your parents knew about or if they read
00:51:54
it for the first time in the book like
00:51:55
your experience with dating apps and uh
00:51:57
losing your virginity.
00:51:59
>> Yep. It's all in there.
00:52:01
>> Yeah. You actually do do you know the
00:52:03
band Lonely Island?
00:52:04
>> Yeah.
00:52:06
>> Yeah. Like you you you cover two Lonely
00:52:08
Island songs. I'm on a boat and I just
00:52:10
had sex with you.
00:52:12
>> I love those. It could be my new theme
00:52:15
songs.
00:52:16
>> Yeah. So, do you want to um I'm assuming
00:52:19
most people listening to this podcast or
00:52:21
watching it haven't read the book
00:52:22
Wobbles yet. So, should do you want to
00:52:24
talk about the virginity stuff?
00:52:26
>> I'm happy to talk about
00:52:27
>> Yeah. So, you're on a family cruise.
00:52:29
>> Yeah. Yeah. What a great way to to
00:52:32
your virginity.
00:52:34
>> So, your mom and dad have a cabin. You
00:52:36
and your sister have a cabin. Yeah.
00:52:37
>> You're how old?
00:52:39
>> 19.
00:52:39
>> 19. Okay. Yeah.
00:52:41
>> Yeah. And um obviously yeah that was not
00:52:44
the best uh not the best ideal setup for
00:52:49
but I never thought it was never gonna
00:52:50
happen so I didn't care but yeah
00:52:54
we at least expect today things things
00:52:57
happen.
00:52:57
>> Why why did you think it was never going
00:52:59
to happen? the experience with school
00:53:04
19. So I was just out of school for
00:53:07
three years.
00:53:09
>> That was still um I had really good
00:53:12
friends. Um but yeah, just a bit on the
00:53:16
dating apps as well. Um I would tell
00:53:19
people I was disabled. Um and then they
00:53:22
would um oh yeah, I'm fine with that.
00:53:26
you know and they make me and or all of
00:53:30
a sudden they were not were not fine
00:53:32
with it. Um
00:53:34
>> I think it probably as you said before
00:53:38
is a big spectrum. Um the best way I
00:53:41
describe it is like I walk and talk a
00:53:44
bit differently. I'm a movement and
00:53:47
that's it. But I drive a car, I work
00:53:50
like you know. Um but I guess it's not
00:53:53
the way you see it.
00:53:55
>> Yeah. And you've got a devious sense of
00:53:56
humor as well.
00:53:57
>> Yeah. Um but no, that's why I thought it
00:54:00
would never happen just because of bad
00:54:02
experiences. And um yeah, but thankfully
00:54:07
um
00:54:09
thank thankfully thankfully there's
00:54:13
curious people out there. I think that
00:54:15
was just what what it was. Um someone
00:54:19
looked at me and thought, "Oh, I haven't
00:54:21
had that before."
00:54:24
She wanted you for the bingo card.
00:54:25
>> That looks interesting.
00:54:29
>> An Australian girl.
00:54:31
>> Yes. Yeah. Yeah. Yeah. Um Yeah. tried to
00:54:35
buy me a drink and I said no, which I
00:54:38
don't know why I said no, but the first
00:54:41
time um and then caught up with her a
00:54:44
bit later and had a few drinks and she
00:54:48
asked me if I'd ever been kissed before
00:54:51
and I lied and said no. I said yes. And
00:54:54
um so she kissed me and then um she
00:54:58
goes, "Oh, have you ever had sex
00:54:59
before?" Like, "Oh, honestly, no." She
00:55:02
go, "Oh, do you want to?" I was like,
00:55:04
"Fuck it."
00:55:14
Yeah.
00:55:18
So, yeah. and all my excitement. I went
00:55:20
to the wrong room and couldn't get in
00:55:23
but eventually found it and yeah it was
00:55:28
I did the day and then
00:55:31
I left New Zealand a boy and came back
00:55:34
and I guess it was
00:55:36
>> Yeah. So So your sister was um still
00:55:39
still out uh dancing or partying on the
00:55:42
boat. So So you the room did you did did
00:55:44
you tell your parents the next day?
00:55:46
>> Oh, hell no.
00:55:46
>> No. Uh, I think they kind of knew, not
00:55:51
mom. Um, but I was with dad and his mate
00:55:55
when the girl approached me the first
00:55:57
time. Um, and I said, "No." And dad go,
00:56:02
"Mate, why you say no? I think they
00:56:04
likes you." Um, and yeah, maybe there
00:56:07
was a big smile on my face the next day
00:56:09
or something. I'm sure dad put two and
00:56:12
two together. Um, but no, mom had no
00:56:15
idea until she seen me in the book.
00:56:17
>> Oh, yeah. What did she say about it?
00:56:19
>> We haven't spoken about it.
00:56:24
>> Oh, you're a nightmare. You're a
00:56:26
handful.
00:56:26
>> I think I I don't know if she's read it.
00:56:29
I think I told her what chapter it was.
00:56:32
I don't see the option to skip it. Um, I
00:56:36
don't know. I reckon
00:56:39
I reckon she would tell me she skipped
00:56:41
it, but I I think she made it.
00:56:46
>> That's a great story.
00:56:47
>> Yeah. And you do talk about the um the
00:56:49
dating apps and there's um I'm guessing
00:56:51
it's a fake name, but there's a there's
00:56:52
a girl called Angela that you talk about
00:56:54
and you you go through the the chatting
00:56:56
process. You you move the conversation
00:56:59
over to WhatsApp or whatever and you go
00:57:01
then you meet a couple of times and then
00:57:02
she sends you like a a message saying
00:57:05
it's you know, it's just too much. I
00:57:06
can't I can't do this. Yeah. How do you
00:57:08
how do you feel with that? Like does
00:57:10
does does it [ __ ] you off? Um do do you
00:57:14
understand that you know it's it's a bit
00:57:15
extra to deal with in a relationship? I
00:57:18
know on the and um
00:57:22
yeah, it really upset me because I was
00:57:26
you see other people out there and you
00:57:29
see some absolute drop kicks and they've
00:57:31
got amazing partners and you're like
00:57:33
[ __ ] me. I would treat someone so much
00:57:36
better if I if I had the opportunity.
00:57:39
Um, so that would be what really annoyed
00:57:43
me was like I have so much love to give.
00:57:47
Um, you know, but
00:57:50
I Yeah, it it was it was hard and I've
00:57:55
had it said to my even to my face was
00:57:57
like, "Oh, yours is yours is too much."
00:58:01
And I was like, "Oh, okay. It's um I
00:58:04
can't help I can't help that. Um
00:58:08
I don't I you can't really blame people
00:58:12
until they see you, I guess. Um and
00:58:16
look, I did
00:58:18
I did have a girlfriend off dinner for a
00:58:22
little bit, but it just it wasn't really
00:58:26
wasn't really like what we both wanted.
00:58:30
But no, it was it did [ __ ] me up.
00:58:33
Especially here, as I said, so many
00:58:36
people were
00:58:38
dick [ __ ] It's like, here's me.
00:58:42
Let's go. Okay, I can't be myself or I
00:58:46
look a bit funny, but um I can still,
00:58:50
you know, talk to you, listen, care, all
00:58:54
that. And um I also thought maybe some
00:58:58
of it was um when you're younger you
00:59:02
maybe girls are looking for potential
00:59:05
fathers or people that can protect them
00:59:08
and their family. And I'm probably I
00:59:11
have the figure of a a toothpick.
00:59:15
So that's not very, you know, I don't I
00:59:19
don't scream like good things, you know.
00:59:22
Um I don't know if I if I broke into
00:59:24
your house and I saw you coming at me in
00:59:26
the day.
00:59:28
>> It was probably quite intimidating.
00:59:30
>> And my unies.
00:59:33
>> Yeah. Yeah. Um but no, it was very diff
00:59:37
It was really difficult. Yeah.
00:59:40
>> But you you're um you met the right one.
00:59:42
I found this photo online. This is um
00:59:44
this is Elise.
00:59:45
>> Yes. Elise.
00:59:46
>> Yeah. So, she's sitting out here
00:59:48
watching this at the moment.
00:59:49
>> Um how does how does she feel when she
00:59:51
like hears you like telling stories
00:59:53
about the virginity?
00:59:54
>> She'll she'll probably go about it, but
00:59:58
that's
01:00:00
I'm very used to being in the dog box
01:00:02
and that's that's why I have a my at my
01:00:06
house. But um yeah, that was Tell me
01:00:08
about her. How did you guys meet?
01:00:11
I did a lot of charity work
01:00:15
>> and um yeah, it was an event
01:00:19
and if I say I I go to these events a
01:00:24
lot. It's just a bunch of mates. They're
01:00:27
all about 20 to 30 years older than me.
01:00:30
So um you know but at this at this event
01:00:34
I happened to be there and she was the
01:00:37
closest closest one to my age and um
01:00:42
yeah she started talking to me when I
01:00:44
walked in. Um and I sort of went oh
01:00:48
she's talking to me like I should know
01:00:50
who she is. Said all right I'll keep
01:00:54
going with this and see where it goes.
01:00:57
Um, and the night went on and we saw as
01:01:01
he was leaving I said, "Oh, do you would
01:01:03
you like to go out for dinner sometime
01:01:06
with me?" He goes, "Yeah, sure." And I
01:01:09
went, "Um, oh, can I get your love on
01:01:13
Facebook?
01:01:15
We already been on Facebook."
01:01:17
Oh, [ __ ]
01:01:19
Oh, [ __ ]
01:01:24
So we met up after that and um actually
01:01:29
she said I was allowed to say this. So
01:01:32
it was the same night and I she left and
01:01:35
I think she text me
01:01:38
after and she's like where are you
01:01:40
staying? I'm like I'm staying here.
01:01:43
I said oh
01:01:45
I'm like I'll just invite you back to my
01:01:48
house and see what happens. So I said,
01:01:50
"How about we go back to mine and have a
01:01:53
few drinks? I'll get and pick you up."
01:01:56
She goes, "Yeah, yeah, great." So I was
01:01:58
obviously so excited. I left my keys
01:02:03
back at the party. So we got to my
01:02:06
apartment building and I couldn't I
01:02:08
couldn't get into my apartment.
01:02:12
So, our first encounter together, we I
01:02:17
had to ask her to pretend to be my carer
01:02:21
and then the the security town and be
01:02:23
like, "Oh, he does live here. He's keys
01:02:29
to us in type thing." Um
01:02:32
probably
01:02:34
just
01:02:36
5 years later we Yeah, we have a have a
01:02:40
house and she's um
01:02:44
she's very supportive. Um I
01:02:49
I think the difference with Elise and
01:02:53
any other encounter or tender thing I've
01:02:57
had is that um
01:03:01
she knew me and she seen me be you know
01:03:05
be fed and stuff like
01:03:08
>> and not that she thought we were ever
01:03:09
going to get together but that was
01:03:12
always there. So the the whole body
01:03:14
conversation
01:03:16
didn't didn't have to didn't have to
01:03:19
happen.
01:03:19
>> Yeah. She knew what she was signing up
01:03:21
for.
01:03:21
>> Yeah.
01:03:22
>> So what what what what does she have to
01:03:23
So she's up your shirt.
01:03:25
>> Does she like brush your teeth?
01:03:27
>> No.
01:03:29
Believe it or not, I can brush my teeth
01:03:31
without impaling myself.
01:03:35
>> Sorry. Sorry.
01:03:37
>> Tooth. But yeah, it's weird what I can
01:03:39
and can't do. So I love to be asked. So,
01:03:42
don't be sorry. Um, I'll probably get in
01:03:45
trouble cuz I would have forgotten half
01:03:48
the stuff that she does for me. But,
01:03:50
yeah, mainly feed feed me, you know,
01:03:53
gets me ready in the morning. Um, but
01:03:57
even all the little all the little
01:04:00
things that we take, I can't cut my
01:04:03
nails.
01:04:04
you know, if I have a if I have
01:04:07
something
01:04:09
I need some help with on the computer or
01:04:11
whatever, sees my sees my hands,
01:04:16
>> I guess. Um,
01:04:18
yeah, I try my best and do some jobs
01:04:21
around the house. But yeah, she's my
01:04:24
primary. I hate the word caregiver
01:04:27
because when I met her and things got
01:04:31
we're getting along, I made it very
01:04:34
clear that I didn't want a caregiver. I
01:04:37
had I had one. I wanted a partner.
01:04:43
But her love language is acts of
01:04:45
service. And so she wants to do all
01:04:49
these things. Um, and then she also felt
01:04:53
like when it got further down the track
01:04:56
and we decided to move in, she doesn't,
01:04:59
you know, she wants to take care of me.
01:05:01
Like she kind of
01:05:03
>> she's just nurturing.
01:05:05
>> Yeah. And she prides herself that she
01:05:08
can do it better than anyone else. And
01:05:10
I'm I'm more comfortable when she's
01:05:15
when she's there. Then I don't
01:05:18
I just want to be fed. But I'm a lot
01:05:21
more comfortable if she
01:05:25
knows how I like it. Like it's not um
01:05:28
you know some people would think I'm
01:05:32
fussy if I want
01:05:34
before my steak. They oh just be
01:05:36
thankful someone put food in your mouth.
01:05:39
>> But at least think about like how do I
01:05:43
eat? Oh, actually I actually give Mark
01:05:47
the option so he'll ask me, "Oh,
01:05:50
actually what do you want with the It's
01:05:53
just
01:05:54
Yeah, it was a hard
01:05:57
I didn't want to blur bl
01:06:02
>> but she kind of think you know any
01:06:05
relationship
01:06:07
one person will do divorcing and she I
01:06:12
could deliver for me
01:06:13
kids. Anyway, we all sit down. What is
01:06:16
it just
01:06:18
to feed you? So, we actually look at it.
01:06:21
It's just a little bit tagged on to what
01:06:25
you already do in your life.
01:06:27
>> Um,
01:06:29
but again, she always has to think about
01:06:33
me in that in that way, like where how
01:06:37
am I going to eat, where am I going to
01:06:38
eat? She gets very um worried when I go
01:06:43
out somewhere and it's like, "Oh, who's
01:06:45
gonna feed you?" You know, she wants to
01:06:48
make sure that I enjoy myself
01:06:52
and not worry about about that. But
01:06:55
>> yeah,
01:06:56
>> sometimes I don't have a choice. I just
01:06:59
have to roll with it. Yeah,
01:07:01
>> I'm still here so I haven't got hungry
01:07:03
but but no
01:07:06
I'm very fortunate that she is that kind
01:07:09
of nurture and giver and um
01:07:13
>> yeah she if you ask her about me she'll
01:07:17
say I'm the most annoying person to to
01:07:21
live with. I think every man loves to to
01:07:24
wind their partner up and see how far
01:07:27
they can
01:07:30
no different to any other relationship.
01:07:33
She still expects me to do the things
01:07:37
that I can I can do.
01:07:40
>> Well, that's that's like that's the
01:07:41
impression I got from your book. That's
01:07:42
how you've been raised by your parents.
01:07:44
Like there's minimal amount of special
01:07:46
treatment uh possible.
01:07:48
>> Yeah.
01:07:48
>> Yeah. And and um she's got two kids from
01:07:51
a previous relationship.
01:07:52
>> That's right.
01:07:53
>> Um yeah. How have they been?
01:07:55
>> They're great. So I was a little bit
01:07:57
worried how that dynamic would work
01:08:00
moving in all together.
01:08:02
>> Of course. Yeah.
01:08:03
>> We Someone said, "Oh, don't you guys
01:08:06
live together yet?" I'm like, "No, but
01:08:09
you just bought this house." Like,
01:08:11
"Yeah, we'll figure it out." Um but
01:08:13
yeah, that was the the biggest um kind
01:08:17
of o for me. But um to be honest,
01:08:21
they've um yeah, it's brought us more a
01:08:25
lot closer. Like it's Yeah, we are a
01:08:28
family now in the house. They we me and
01:08:32
the kids, we respect each each other. Um
01:08:36
they do love it when I'm a big Broncos
01:08:39
fan, so they love they love um watching
01:08:43
the sport with me. I do get quite
01:08:45
animated and say some bad words and they
01:08:48
they think that's quite funny.
01:08:51
Um
01:08:53
but yeah, they also really good at, you
01:08:56
know, bringing me bring me back to level
01:08:59
and they'll tell me now who would read a
01:09:02
book about you? You're so boring. So
01:09:06
it's it's good. It's it helps the
01:09:09
relationship.
01:09:10
>> Yeah. Yeah. Well, it seems like you you
01:09:12
corrupt them. She was she was telling me
01:09:14
um before we came into the podcast chat
01:09:16
today that um after the NRL grand final
01:09:19
like you were doing like a like a naked
01:09:20
dash around the house or something.
01:09:22
>> Yeah, I did get a bit excited and uh my
01:09:25
aunties did say but that was that was
01:09:29
yeah that was um quite the game. I think
01:09:32
I had three heart attacks during that
01:09:34
grand final. So yeah, it was just you
01:09:38
know do whatever I could to get to get
01:09:40
through that.
01:09:42
Yeah, know some bad habits which my mom
01:09:44
is also uh quite
01:09:47
well what impression I'm leaving on the
01:09:51
kids.
01:09:51
>> Yeah.
01:09:52
>> Well, you know, once a bogan, always a
01:09:54
bogan, I guess. Like that behavior
01:09:57
sticks with Oh, there was um one thing
01:09:59
um you were actually in the news for
01:10:01
this a few years ago, long before the
01:10:02
book. Um there was an incident with
01:10:04
Countdown.
01:10:06
>> Now, now Wworth. So, you you went to
01:10:08
Countdown and they wouldn't they
01:10:09
wouldn't serve you alcohol. That's
01:10:11
right. I went to countdown. It was, you
01:10:13
know, just after work with everyone else
01:10:15
and um yeah, they wouldn't that I go to
01:10:18
I went to the same countdown for years
01:10:21
and I bought the same the same
01:10:25
stuff and it included a box of beer
01:10:27
every time. And this time they just
01:10:31
wouldn't they yeah wouldn't allow me to
01:10:34
buy the beer because they accused me of
01:10:38
being drunk.
01:10:39
I'm sure that's a [ __ ] up cafe.
01:10:41
>> I am. I kind of said to them, "Well, I'm
01:10:44
not drunk
01:10:46
>> yet." Yeah. Yeah. Um and yeah, I don't
01:10:50
really have any I buy this every week.
01:10:53
Like what what's different now about
01:10:57
this week?
01:10:58
And they I don't I don't really recall
01:11:01
word for word, but um one of them said
01:11:04
something like, "Oh, you can't even
01:11:06
stand up straight. you know, how could
01:11:08
we possibly serve you? I'm like, because
01:11:11
I have se cable py and that just went
01:11:15
straight over the head like no you
01:11:17
don't. You're drunk. I'm like,
01:11:20
I wish I didn't have [ __ ] z I wish I
01:11:23
was drunk.
01:11:26
Jesus. But but no, so that was that in
01:11:30
that moment it took me
01:11:34
back to cuz then everyone was staring at
01:11:37
me, right? Like I was made a bit of a a
01:11:41
bit of a fuss. So,
01:11:42
>> and I don't I try not to
01:11:46
>> have, you know, make myself pointed out
01:11:49
or whatever. And then everything kind of
01:11:51
gets my movements get worse and I get
01:11:55
stressed. Um,
01:11:58
but yeah, that moment was like going
01:12:00
back to the bullying, I guess, in the
01:12:03
like I've been pointed out for being
01:12:06
being different
01:12:08
>> and in a in a world where was supposed
01:12:10
to be more accepting of people uh
01:12:14
differences.
01:12:16
>> Yeah, it was certainly
01:12:19
Yeah. Bought up some stuff. Yeah.
01:12:24
>> Yeah. Are there are there things we can
01:12:25
be doing better in New Zealand to
01:12:27
support disabled people?
01:12:29
>> I I do think so. I think
01:12:34
look, you can hate me for this or not,
01:12:36
but I do think the disabled
01:12:39
um community are kind of forgotten about
01:12:42
a little bit. We focus a lot on um you
01:12:46
know different differences in other in
01:12:49
other aspects like cultures and
01:12:51
sexuality and being more inclusive of of
01:12:56
them.
01:12:56
>> Yeah.
01:12:57
>> And look that is great and it's amazing.
01:13:00
Um but yeah the
01:13:04
about disabled people that would like to
01:13:09
have a job but don't and that there's
01:13:12
the real um opportunity there to really
01:13:16
like help you're giving that's what
01:13:20
helped me. I got a purpose. I got to get
01:13:23
up in the morning and go and do do
01:13:26
something whether it was go to
01:13:29
university and study and then now it's
01:13:32
go to work and contribute. So um I do
01:13:36
think we could be doing
01:13:39
doing better for disabled people in the
01:13:42
workplace.
01:13:44
>> Um
01:13:45
and again I'm not one to to advocate.
01:13:48
I'm just here to share my story. But um
01:13:52
that where I think there's a there's a a
01:13:55
bit of a lag or some miseducation out
01:13:58
there.
01:13:59
>> Yeah. That work piece that you're
01:14:00
talking about. So you you applied you
01:14:02
sent your CV out to 50 different places
01:14:05
>> about that.
01:14:06
>> Yeah. You you ended up getting a job at
01:14:08
um Gem Finance as a financial analysis.
01:14:11
But um that was um it was a
01:14:13
heartbreaking. That's when you went off
01:14:14
the rails.
01:14:15
>> Yeah. That that bit between university
01:14:19
and getting a job um
01:14:23
was yeah probably my toughest the
01:14:26
toughest point in my life. Um and it was
01:14:30
because I think yeah I didn't have a
01:14:33
purpose. Um I couldn't really see why
01:14:38
an employer would employ me. Like I knew
01:14:41
I was clever, but you you got you know
01:14:45
every business is trying to save every
01:14:49
bit of cost cuz it's hard economy is
01:14:52
hard you know it's like why would they
01:14:54
spend extra money on on accommodating
01:14:58
me? Um, I know I know there's um you can
01:15:02
go for funding and stuff, but then if
01:15:05
you've got my CV
01:15:08
and you got an ablebodied version of me,
01:15:11
same qualifications, all that. Well, I'm
01:15:14
just more work than that. And we're all
01:15:17
busy, right? I I'm not saying it's bad
01:15:20
that I'm not having to go at these, but
01:15:22
I'm just saying I get it. Um, you know,
01:15:25
you're busy. you want probably
01:15:27
>> the least effort I guess. Um
01:15:31
but yeah, I felt very
01:15:35
yeah
01:15:37
like I going to be living living at home
01:15:40
all my life with my parents and that not
01:15:43
what we we set out to do with all the
01:15:46
therapy and I was walking now and you
01:15:49
know got amazing grades at university
01:15:53
and um
01:15:55
yeah so I I um I I I enjoy I enjoy a
01:16:02
beer
01:16:03
>> with a straw. With a straw.
01:16:05
>> Yes. And um I busted that myth though.
01:16:08
You don't get pissed f I'd be I'd be a
01:16:12
lot richer if that was the if if that
01:16:14
was if that were true. But um yeah, I I
01:16:19
partied
01:16:20
I going out and just the way that cuz I
01:16:25
was I was accepted in that clubing cuz
01:16:28
everyone pissed. So I just I I blended
01:16:33
by
01:16:35
and everything gets a bit easier for my
01:16:37
movements and stuff after a few years.
01:16:40
So that was sort of my how I wouldn't
01:16:45
call it coping but it was what I did and
01:16:48
I didn't really see a see a way forward
01:16:51
and there was some I did have some
01:16:54
thoughts about you know
01:16:57
what if it easy is it easier just if I'm
01:17:02
just talking way to m um you know
01:17:06
especially when I didn't want to get out
01:17:08
of bed they were So there was no
01:17:11
purpose. I never see a purpose. Um and
01:17:15
uh I do remember driving along
01:17:21
I saw a truck and I was like that would
01:17:24
be easy
01:17:26
>> and I thought oh [ __ ] then he I'd ruined
01:17:30
his life but that's that's not that's
01:17:32
not fair on the truck driver. Um
01:17:37
yeah, it was a low point. Um
01:17:41
that was probably the closest
01:17:44
for me having those thoughts. Um
01:17:48
but yeah, I
01:17:52
obviously glad that I was something in
01:17:55
me just um able to to kind of not block
01:18:02
that out, but just I still knew that
01:18:05
wasn't the way. Maybe there was
01:18:08
something in the back of my head that
01:18:09
there was a little bit of hope or I was
01:18:12
but I certainly didn't I didn't
01:18:15
>> I didn't feel it.
01:18:16
>> Yeah. I think that's the thing for
01:18:17
anyone that's in that state. You just
01:18:19
got to hang on to hope.
01:18:20
>> Hang on to the next moment. Um yeah,
01:18:23
your your mom in the book she talks
01:18:24
about suic suicidal ideiation as well at
01:18:28
a time and she she asked yeah um have
01:18:31
you had a discussion about this? Like
01:18:32
that must have been hard for you to read
01:18:34
about her. Um, but it must have been
01:18:35
hard for her to read about you as well.
01:18:38
>> And it was actually we had the same
01:18:40
story. She she thought about doing it in
01:18:43
the same way that I that I did and we
01:18:46
had never talked about that ever. I was
01:18:48
like, "Oh, wow."
01:18:50
>> Yeah. So, that was
01:18:52
>> that was interesting. And um
01:18:55
>> obviously, yeah, glad that we're both
01:18:58
still still here. Um, but no, we I'm
01:19:02
sure we will have a conversation about
01:19:04
it, but it's uh we as a family, I think
01:19:08
we
01:19:10
cuz we had to just be, you know,
01:19:13
celebrating every little win
01:19:15
>> going up. So once we once I was walking
01:19:18
into life just moved on like we were
01:19:21
just flying and um
01:19:24
>> but yeah, I'm we haven't really had that
01:19:27
deep conversation. Yeah.
01:19:29
>> Seems like there's there's a lot of [ __ ]
01:19:31
that you guys have got to discuss.
01:19:34
>> Really? We fill it out in the book now.
01:19:36
It's all out there.
01:19:38
>> Yeah.
01:19:39
>> Um if you could go back and talk to your
01:19:41
younger self, what what would you say? M
01:19:43
maybe um Yeah. Maybe maybe Mark aged say
01:19:47
13 to 17 in the middle middle of
01:19:49
secondary school. Oh, that's a tough one
01:19:51
cuz I would think I was such a [ __ ]
01:19:55
if I was the younger me would be like,
01:19:58
"Oh, this look, he's got it all worked
01:20:01
out." So, and
01:20:05
that's what my younger self would think
01:20:08
of me um trying to give advice. Um
01:20:14
but my my advice to me or anyone is
01:20:20
you're there are people
01:20:23
that love that love you. I knew there
01:20:25
were people that loved me. I think
01:20:27
that's also why I didn't train in my
01:20:31
life because I also loved I love them. I
01:20:34
love the people. I didn't want
01:20:39
that to stop.
01:20:42
um
01:20:44
and I think
01:20:46
yeah I would I hope that
01:20:49
um other people
01:20:52
just love
01:20:54
can find a way to know that they're
01:20:58
loved like people want them in this life
01:21:02
um everyone's got we're all here
01:21:08
we can all contribute we can all help.
01:21:11
Um,
01:21:12
yeah. And I just I was I would tell
01:21:16
myself that just to f you are loved,
01:21:19
people love you.
01:21:21
>> Um,
01:21:23
and yeah, just they want you around and
01:21:26
you got so many awesome
01:21:30
experiences to have with
01:21:32
>> with with these people. Um, yeah, I
01:21:36
would I do my best not to say the words.
01:21:40
It will get better and just keep going
01:21:42
cuz I would hate to hear that.
01:21:44
>> Yeah.
01:21:46
>> But yeah, just
01:21:47
>> it's true though, isn't it?
01:21:49
>> But it's a it's Yeah, you don't want to
01:21:51
when you when you're going through hell,
01:21:53
it seems like it's an impossible thing
01:21:55
to imagine.
01:21:56
>> Absolutely. Yeah. The last thing you
01:21:58
want to hear is that statement. Were you
01:22:01
just getting a bit emotional then with
01:22:02
that answer?
01:22:04
>> Oh, a little bit. And I think um I don't
01:22:08
um
01:22:13
Yeah, I don't want people to
01:22:22
to feel like that.
01:22:24
>> Yeah.
01:22:26
>> Yeah. And
01:22:35
the book. That's why
01:22:39
that's why the book is is there because
01:22:47
it was um really hard to write the book
01:22:50
and my mom
01:22:54
wanted it to stop cuz it bringing up all
01:22:58
that trauma again. And um but we keep
01:23:03
telling ourselves like we don't want
01:23:06
people to to take their own lives to to
01:23:10
do that. We if that can help one person
01:23:15
change that mindset or just
01:23:20
think just go oh okay it's not that bad
01:23:23
or
01:23:24
>> then it was worth us telling that story
01:23:28
and it's why I I do a little bit of
01:23:32
public speaking you know
01:23:36
that's my reason behind it is
01:23:40
no to take their own life.
01:23:43
>> It doesn't it doesn't need need to
01:23:46
happen.
01:23:47
>> And um
01:23:49
yeah, if if I can do something to to
01:23:52
help with that, I'm going to I'm going
01:23:55
to [ __ ] do it.
01:23:57
>> I think that that last couple of minutes
01:23:59
might be the most um important part of
01:24:00
this podcast. Yeah.
01:24:04
Yeah. It's a really good message.
01:24:06
I I I can tell when you get upset, you
01:24:09
you like you get really really animated.
01:24:11
Is it Is it um Is it painful,
01:24:14
uncomfortable, exhausting?
01:24:16
>> It's exhausting.
01:24:17
>> Yeah.
01:24:18
>> But not like right now like tonight I'll
01:24:23
be Oh, why why am I so tired? It's like,
01:24:26
oh, that's right. Um
01:24:29
>> it's not painful. So, don't worry if
01:24:31
you're watching this. I'm not in
01:24:34
It's not painful. Um, I I
01:24:39
it's really hard cuz I'm I'm literally
01:24:41
an open book. I I can't really hide my
01:24:45
emotions because of the way my my body
01:24:47
moves. When I do get excited or sad or
01:24:52
something I
01:24:54
Yeah, it does. It show it shows which is
01:25:00
um yeah, quite awkward in general
01:25:02
because I I laugh. Sorry, I laugh and
01:25:07
talk loud and I also cry.
01:25:10
So, yes, but um it it does make um
01:25:15
getting my words out harder,
01:25:18
you know, with emotional
01:25:20
topics. Yeah. But I
01:25:23
>> it's important it's important to share
01:25:26
them though. It is. It is. And I I can I
01:25:29
can say your your speech is fine. like,
01:25:31
you know, I've had to listen carefully
01:25:32
during this podcast, but no, you know, I
01:25:35
can understand everything you say. I
01:25:36
haven't had had to ask you to repeat
01:25:38
anything.
01:25:39
>> That's I'm glad and my speech has gotten
01:25:42
better as I've gotten older just with
01:25:45
Right. Uh I I had a lot of like um I had
01:25:49
bra which every kid most kids have that
01:25:52
actually really helped with with um my
01:25:55
speech and then
01:25:57
>> I found
01:25:59
swimming
01:26:01
just the way that you're breathing in
01:26:02
and out was yeah also really helped with
01:26:05
with my speech. I actually watched a
01:26:08
video of me of myself when I was I would
01:26:13
have been
01:26:15
12 years old. I couldn't understand
01:26:18
myself.
01:26:19
>> I could not I didn't know what I was
01:26:21
saying. I had to get my sister to to
01:26:24
translate to to translate what I was
01:26:27
saying cuz um to me I sound like
01:26:32
to me my voice is normal cuz I know the
01:26:36
words I want to say but obviously it
01:26:38
comes out much different to how it
01:26:41
sounds in my head.
01:26:42
>> Oh that reminds me of another story in
01:26:44
the book. Um you exploiting your sister
01:26:46
like so you were 6 years old she's four.
01:26:49
Um, you you you had the brain power, but
01:26:52
she had the motor skills, so you'd use
01:26:54
her to get the the lolly jar off the top
01:26:57
>> like a like a co-conspirator in your
01:26:59
master master crime. God, you're a
01:27:01
deviant. You're a rhymia.
01:27:04
>> Yeah. No, I taught myself a few days.
01:27:07
Yeah.
01:27:08
>> What's what's your um inner voice in a
01:27:11
critic like? Like when you when you're
01:27:12
talking to yourself, what are you like?
01:27:14
Are you are you are you kind to yourself
01:27:15
or are you hard on yourself?
01:27:19
I'm probably pretty hard on myself.
01:27:22
I I wouldn't I don't think of myself as
01:27:27
a perfectionist, but other people would
01:27:31
probably use that word to describe me. I
01:27:34
think that's because I've
01:27:37
I fought so not but a lot has gone to
01:27:41
get me to be who I am.
01:27:44
And I want to make sure that I'm there
01:27:48
because of my own merits, not for any
01:27:52
other reason.
01:27:54
So I work for I make a point to always
01:27:58
do a job right, get it done properly.
01:28:01
And if I don't if I do something,
01:28:04
everyone makes mistakes, but
01:28:07
>> I I do beat myself up and like tell
01:28:12
every boss I've had just been like, you
01:28:16
got to stop, but go easy. It was It was
01:28:18
a simple mistake. No one died. It was
01:28:21
fine. But to me, I'm I'm I'm prone to
01:28:25
just If it's not done right, it's not
01:28:28
done, you know. Why why bother? Um
01:28:33
>> that part of me.
01:28:36
Yeah, I'm always trying to make sure I
01:28:38
do do a good job or but I do
01:28:46
when I have effect
01:28:49
not very often but I I'm I'm proud of
01:28:53
like I do get proud of myself probably
01:28:57
for different reasons that that that
01:29:00
that people might think like I'm proud
01:29:04
of my job but I'm more proud
01:29:06
of um
01:29:09
you know having the the lifestyle that I
01:29:12
do at home
01:29:13
>> and just
01:29:16
being able to have my mom and dad come
01:29:20
and stay in my house.
01:29:23
um you know I'm more proud of that than
01:29:26
I I am of just about anything else cuz
01:29:32
it's my way of kind of not not thanking
01:29:37
them but just you know look what all
01:29:40
your hard work did
01:29:42
>> and now we get to be a family just like
01:29:47
anyone else. Um,
01:29:50
>> yeah.
01:29:53
>> Yeah. It must be the most gratifying
01:29:55
thing. It's like their investment of
01:29:56
time and energy has paid off.
01:29:59
>> It's really cool.
01:30:00
>> Yeah. Absolutely.
01:30:01
>> I can't imag Yeah. I can't imagine how
01:30:03
it is for them. It must be the
01:30:05
>> Yeah, it must be the weirdest feeling
01:30:06
like like letting your kid off into the
01:30:08
into the wild
01:30:10
>> like um Yeah. I can't imagine how how
01:30:13
many sleepless nights your mom had, but
01:30:15
also how proud she would be.
01:30:16
>> Yeah. They love they love
01:30:20
they love the house. They love they love
01:30:24
being in the house. You know, we can't
01:30:26
keep dad still. He's always something to
01:30:30
fix cuz I'm not that handy.
01:30:33
So,
01:30:34
>> but I love that. Yeah.
01:30:36
>> And what about what about future goals?
01:30:38
How old are you now? You 28 28?
01:30:40
>> I'm 30.
01:30:41
>> 30? Oh, yes.
01:30:42
>> Yeah. Where where do you see yourself
01:30:43
at? Like 35 40? Do you you want to at
01:30:46
least want to have your own family or
01:30:48
you happy with
01:30:49
>> I think no very settled very settled and
01:30:52
my stance was I didn't kids were never
01:30:57
really a
01:30:58
thing for me just because of what went
01:31:01
on. I know it's unlikely to ever happen
01:31:04
but I that was just that was too much.
01:31:08
>> Yeah. Um
01:31:10
but no I would I have a lot of career
01:31:14
goals like I you know I I like to be
01:31:18
with Simon De and Z. Um I I very much
01:31:23
enjoy enjoy working
01:31:27
there
01:31:29
personal. Yeah, we'd like to, you know,
01:31:32
just, you know, join, we've joined,
01:31:35
we've joined the rat race, we paid down
01:31:37
our mortgage and um I guess life kind of
01:31:41
just looked
01:31:43
getting back to just like by just having
01:31:47
experiences and um yeah, with with with
01:31:50
um just as a family. I am doing more
01:31:56
public speaking and I did I'd like to um
01:32:00
yeah if my message can help then I'm
01:32:05
all for sharing it. Um so that would be
01:32:08
that would be um where I kind of see my
01:32:13
project I guess. Yeah.
01:32:15
>> Yeah. Well, I'm sure the future's going
01:32:16
to be very bright. Um tonight I don't
01:32:19
know. Do you think you'll be allowed in
01:32:20
the house tonight or are you on the
01:32:22
deck? Luckily, my mate I got a mate back
01:32:25
at work and he'll be he'll be waiting
01:32:27
for me at the pub. So,
01:32:32
>> you're a handful. You're a handful. But,
01:32:34
hey, this has been a great podcast
01:32:36
today. It's been really cool.
01:32:37
>> Well, thank you so much for having me.
01:32:39
I've um going to make you feel old, but
01:32:41
I I grew up listening to you on the
01:32:44
radio,
01:32:45
so to come to come and talk to you um
01:32:50
calling you. I touch on it before. I
01:32:53
enjoy to talk to genuine people and know
01:32:57
you're definitely one of the one of the
01:32:59
good guys out there. So, um, yeah, keep
01:33:02
keep doing what you're doing, mate. It's
01:33:04
uh it's it's also helping people.
01:33:07
>> Yeah. Oh, Mark Wilson, you're a great
01:33:09
New Zealander. I I deliberately didn't
01:33:11
um bring up your dog, Sandy. Um, thank
01:33:13
you. I'm a dog. I'm a dog. My dog
01:33:16
Kanye's been on the floor. He's sleeping
01:33:18
next to me. He's been here for the last
01:33:20
hour and a half that we've been
01:33:21
chatting. Um, yeah, but that's something
01:33:23
in the in the book, this dog Sandy that
01:33:25
you have and the the role that she
01:33:27
played on getting you through those
01:33:28
teenage years.
01:33:29
>> Yeah. You just want to make me cry,
01:33:31
don't you?
01:33:32
>> No, I was like, this is going to be it's
01:33:33
going to make me cry. It's going to make
01:33:35
you cry.
01:33:36
>> Maybe leave that for
01:33:38
>> just the the impact of dogs. Um, but the
01:33:40
way that you wrote about her so
01:33:42
lovingly. Um, yeah, I think I'll leave
01:33:43
that as a spoiler. So if anyone wants to
01:33:45
know about um the relationship you had
01:33:47
with your dog Sandy um they can get your
01:33:49
book Wobbles.
01:33:51
>> Yeah. And that's the perfect way to
01:33:55
>> Hey Mark Wilson, thank you so much mate.
01:33:57
It's been an honor to sit down and chat
01:33:59
with you today and um I got a lot out of
01:34:01
it and I'm sure a lot of other people
01:34:02
will as well.
01:34:03
>> Oh, thank you so much for having me on.
01:34:05
It's been great.

Podspun Insights

In this episode, Mark Wilson, affectionately known as "Wobbles," joins the conversation to share his inspiring journey of resilience and humor in the face of cerebral palsy. The episode kicks off with a lively introduction to the heart of performance in New Zealand, setting the stage for a candid discussion about Mark's life, his new book, and the challenges he has faced. Mark opens up about reclaiming his nickname, the struggles of daily tasks, and the importance of laughter in overcoming adversity. He shares heartfelt anecdotes about his upbringing, the unconditional support from his parents, and the unique bond he has with his sister.

Listeners are taken on an emotional rollercoaster as Mark reflects on his experiences with bullying, the complexities of relationships, and the societal perceptions of disability. His candidness about his past, including moments of self-doubt and the impact of his condition on his independence, is both eye-opening and relatable. The conversation also touches on the significance of community support, the role of humor in his life, and the importance of finding joy in everyday moments.

As the episode unfolds, Mark's infectious spirit shines through, leaving listeners with a sense of hope and inspiration. His journey is a testament to the power of resilience, the importance of self-acceptance, and the beauty of human connection. This episode is not just about overcoming challenges; it's about celebrating life, laughter, and the bonds that make us human.

Badges

This episode stands out for the following:

  • 95
    Most inspiring
  • 95
    Best overall
  • 92
    Most heartwarming
  • 90
    Most emotional

Episode Highlights

  • Reclaiming the Nickname
    Mark discusses the nickname 'Wobbles' and how he reclaimed it after being bullied.
    “Oh, like Yeah. So reclaiming it.”
    @ 01m 40s
    November 30, 2025
  • Mark Wilson's Journey
    Mark Wilson shares his experiences living with cerebral palsy and his positive outlook on life.
    “I try to stay positive and that sets the tone for the book.”
    @ 03m 24s
    November 30, 2025
  • The Role of Humor
    Mark emphasizes the importance of humor in dealing with life's challenges.
    “If you can’t laugh at yourself, what’s the point?”
    @ 03m 44s
    November 30, 2025
  • Finding Strength
    Mark shares how he focused on positive aspects of life despite challenges.
    “I carry on. But um yeah, in those years definitely, you know, lying in bed.”
    @ 25m 59s
    November 30, 2025
  • Bullying Reflections
    Mark discusses the emotional toll of bullying during school years.
    “You just look at everyone else at school.”
    @ 26m 06s
    November 30, 2025
  • A Moment of Ownership
    A former bully acknowledges his past actions and they become friends.
    “You used to bully me. Yep, I was an absolute [ __ ] at school and I’m so sorry.”
    @ 42m 34s
    November 30, 2025
  • Navigating Childhood Jealousy
    Reflecting on childhood friendships and the complexities of jealousy.
    “She still felt annoyed that I was getting it, but she never hated me.”
    @ 48m 59s
    November 30, 2025
  • Finding Love Amidst Challenges
    Discussing the struggles of dating as a disabled person and the search for connection.
    “I have so much love to give.”
    @ 57m 47s
    November 30, 2025
  • A Unique Relationship
    Mark shares how he and Elise navigate their partnership beyond caregiving.
    “I didn’t want a caregiver. I wanted a partner.”
    @ 01h 04m 37s
    November 30, 2025
  • Finding Purpose
    The journey from feeling lost to discovering a sense of purpose in work.
    “I got a purpose. I got to get up in the morning and go and do something.”
    @ 01h 13m 20s
    November 30, 2025
  • The Importance of Hope
    A discussion on the significance of holding onto hope during dark times.
    “Just hang on to hope.”
    @ 01h 18m 19s
    November 30, 2025
  • A Shared Struggle
    A poignant moment of realization about shared experiences with suicidal ideation.
    “We had the same story. She thought about doing it in the same way that I did.”
    @ 01h 18m 40s
    November 30, 2025

Episode Quotes

Key Moments

  • Top Performers00:21
  • Unconditional Love20:23
  • Awareness of Difference22:12
  • School Struggles26:06
  • Independence Milestone47:44
  • Purpose in Work1:13:20
  • Hope and Resilience1:18:19
  • Future Goals1:30:38

Words per Minute Over Time

Vibes Breakdown